Re: Re: Elevated Vitamin B12 levels in Plasma

[Guest guest]

Thanks - that does help.What were some of the classical symptoms of B12 deficiency that you saw? And did you ever test for Homocysteine & Urine Methylmalonic acid ( in Urine OAT) - were they off as well suggesting B12 deficiency? I understand they are also markers of B12 deficiency.To: mb12 valtrex Sent: Sun, February 6, 2011 7:22:07 AMSubject: Re: Elevated Vitamin B12 levels in Plasma

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response (and it was quite fair) that Rob had 'normal' in the high range of B12 serum levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12 Deficiency. That although the serum levels may be high, it didn't explain why it seemed like a coincidence that he had EVERY symptom. She reluctantly said "we can try it" (which is all I wanted to hear anyway -- and as she explained -- you can't overdose, it's water soluble, and goes out with your urine) -- We got HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and measuring the the time for the patch to disappear), the diet (along with the IGg foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't enough. And I gave her times I noticed along with his symptoms. We decided to try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms away. She did another blood test and he was WAYYY low. (like off the charts way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean that you don't have a deficiency going on. This is usually due to not enough of other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol, potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in understanding all of this. (on a layman level) ...

I hope this helps - laura

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that it

> might be the oxidized form of B12 hence unusable hence the high reading but not

> sure if that is true.

>

[Guest guest]

Those are the tests mentioned in the B12 book; I believe the ones has done. Not sure if she ran them on Rob but I think she ran them for her dad.

 

Thanks - that does help.

What were some of the classical symptoms of B12 deficiency that you saw? And did you ever test for Homocysteine & Urine Methylmalonic acid ( in Urine OAT) - were they off as well suggesting B12 deficiency? I understand they are also markers of B12 deficiency.

To: mb12 valtrex

Sent: Sun, February 6, 2011 7:22:07 AMSubject: Re: Elevated Vitamin B12 levels in Plasma

 

I keep meaning to reply to this post...

YES! When Rob's DAN and I got into it over the B12 nasal spray-- her response (and it was quite fair) that Rob had 'normal' in the high range of B12 serum levels - the nasal spray wasn't necessary.

I argued (and brought documentation) that Rob expressed EVERY sign of a B12 Deficiency. That although the serum levels may be high, it didn't explain why it seemed like a coincidence that he had EVERY symptom. She reluctantly said " we can try it " (which is all I wanted to hear anyway -- and as she explained -- you can't overdose, it's water soluble, and goes out with your urine) -- We got HUGE gains from it.

Now, during that time, I also (thank GOD I took copious notes!) got him a bio-available multi-vitamin, was doing an 'iodine' patch test weekly (and measuring the the time for the patch to disappear), the diet (along with the IGg foods removed)...this was Oct 2009. During one of my visits in Oct 2010, I told Rob's Dr. that he 'burns' up and thru the B12, that what he's getting isn't enough. And I gave her times I noticed along with his symptoms. We decided to try shots.

I gave shots, nasal spray and revitapops and sublinguals to keep the symptoms away. She did another blood test and he was WAYYY low. (like off the charts way low.) -- he was getting most of the same things as when we started.

She wants to run a bunch of other tests as a result. (A shillings test and another test.)

SO short answer yes. Just because the blood serum levels are high, doesn't mean that you don't have a deficiency going on. This is usually due to not enough of other resources like B6, Folic Acid, choline, vitamin C, B-complex, inositol, potassium, sodium and calcium. OR a error in metabolism, like a mutation.

The book - Could it Be B12, An Epidemic of a Misdiagnosis -- really helps in understanding all of this. (on a layman level) ...

I hope this helps - laura

>

> Has anyone have very elevated Vitamin B12 levels in plasma that actually went

> down with any intervention?

> There seems to be very little literature on this - I have read somewhere that it

> might be the oxidized form of B12 hence unusable hence the high reading but not

> sure if that is true.

>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.