Re: Re: Calling It quits...

[Guest guest]

there actually is a stem cell group with several stories of amazing recovery of kids with autism and this treatment, you just need to find the group and read them, the moms are open to being contacted as well

From:

Sent: Tuesday, January 25, 2011 5:40 PM

To: mb12 valtrex

Subject: Re: Calling It quits...

I was on the stem cell group for awhile and it never sounded that promising to me. I didn't hear even one story of recovery. You may want to troll that group for awhile before commiting to this treatment. At least hear what other people have to say about it first. Just my 2 cents...> > >> > > Hello.... I've decided to call it quits on the nids protocal. My son has been on nids protocal for 6 months now and no changes. He's been on a lot of meds this past 6 months and now dr wants to add more. I know meds do more damage than good. I'm understanding is that most nids patience recover off the protocal after an average 5-11 years later? And still on meds after that? I can't bear to do this whole thing. It's too much burden on my son to go through and I can't stand going through the years and just hoping that he'll recover. > > > > > > My husband and I need to get him better now. Hes 4 and has been doing bio medical treatment for 2 years now.... And nothing! No improvements as I was promised by doctors. That's why I'm turning to stem cell treatment. I plan to visit the panama clinic and get my son better with immediate permenate results. > > > > > > I wish I could have the patience some of you parents have. These past 2 years feel like an eternity of suffering for me. I breath, eat, sleep and dream "autism". I can't be at peace until my son is better. I can't wait another 5-11 years in hope while I load my son up in meds. > > > > > > I will keep you posted on my trip to panama. I just got done with the application process so I still need to wait for an appointment. Most likely well be heading there in march. > > > > > > Wish us luck and hope all of your kiddos going through this battle recover soon....> > >> >>

[Guest guest]

under that same premise most of what us parents are doing is "proven" go with your mama gut, research and then run after what you gut is telling you. best of luck on your jouney and please share back with us. at one point there was some parent who was new to all we are all doing now....they had to be brave and there were lots of nay sayers then as well. I have also saved stem cells from my last babies cords. incase this treatment ever takes off. which I pray it does!!! I have 2 immunocomprimized children!

From: big me

Sent: Tuesday, January 25, 2011 3:58 PM

To: mb12 valtrex

Subject: Fw: Re: Re: Calling It quits...

There was a segment on 60 Minutes last year that uncovered a scam artist in Panama who claimed to heal with stem cell transplants, it definitely was a scam!!! This is way too experimental and nothing has been proven yet, please be careful!! The internet is full of hearsay. > Please I cannot express to you that I have watched 3 of my friends use stem cells with no or worse results on their kids. I don't know if it could be an answer in the future , but it isn't now> > Jeff> > > > >> > > Hello.... I've decided to call it quits on the nids protocal. My son has been on nids protocal for 6 months now and no changes. He's been on a lot of meds this past 6 months and now dr wants to add more. I know meds do more damage than good. I'm understanding is that most nids patience recover off the protocal after an average 5-11 years later? And still on meds after that? I can't bear to do this whole thing. It's too much burden on my son to go through and I can't stand going through the years and just hoping that he'll recover. > > > > > > My husband and I need to get him better now. Hes 4 and has been doing bio medical treatment for 2 years now.... And nothing! No improvements as I was promised by doctors. That's why I'm turning to stem cell treatment. I plan to visit the panama clinic and get my son better with immediate permenate results. > > > > > > I wish I could have the patience some of you parents have. These past 2 years feel like an eternity of suffering for me. I breath, eat, sleep and dream "autism". I can't be at peace until my son is better. I can't wait another 5-11 years in hope while I load my son up in meds. > > > > > > I will keep you posted on my trip to panama. I just got done with the application process so I still need to wait for an appointment. Most likely well be heading there in march. > > > > > > Wish us luck and hope all of your kiddos going through this battle recover soon....> > >> >> >

[Guest guest]

I also received many replied posts about trying other remedies on the side besides just sticking with nids. Any helpful ideas from you guys would be appreciated. DO NOT DO THIS. If you are seeing Dr. G and he finds out, it won't be pretty. Either see him or don't. And he will find out, there are many NIDS people on this list and things DO get back to him, even if it's just on accident. Trust me on this one. Been there, done that.Cheryl