Guest guest Posted June 26, 2008 Report Share Posted June 26, 2008 Sorry you have not been feeling well Joyce, I know you will get threw this and everyone is praying for you !! God Bless !! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14 < Click on me !! Sick and Tired of being Sick and Tired I haven't been posting much lately and I know that I have missed some newbie posts. Still reading. I have been so very sick. I have had really bad stomach pain, diarrhea, fever, etc. etc. I finally shared this with the doc in exchange for phenegran. That didn't give me relief so he prescribed Levsin. Good stuff. Of course all of that stuff makes you looney. Then, came a battery of cultures and testing. I don't have results back yet, but I saw blood in my sputum and stool. I have lost 10 pounds in about 3 weeks. I am really fighting depression. It is just so difficult to deal with this stuff day after day. It seems like one thing will get a little better and two more things happen. My Coumadin dosage gets changed every few days because of my weight loss. I am so afraid that they are going to have to take me off the medication and that would mean stopping Flolan. That would mean that I would die. Just pray for me. I am so weak and so very tired. I have been able to eat a little today with the Levsin. That is an improvement. My husband is pleased to see me sitting at the computer. Sitting up at all. All I have wanted to do is sleep. I am trying to read posts and contribute here and there. Don't you all forget that you are important to me. I wouldn't have made it this far without your support. Hugs, Joyce DaltonPulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Do you remember what site you got your leader flow meter ? I found one on line for 20. but they wanted like 64. to mail it.I remember you said you had one. My concentrator was set on 7.5 today while I was trying to change my sheets and it just dropped to what felt like 4 or 5 L. Think I better find one. I ask my 02 Co and they said just the drivers have them.I think I'll just come loose with a hissy fit Monday.. Maybe that will work. lol Love and Prayers, Peggy IPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Peggy Here's where I got mine. http://www.tinashomecare.com/oxygen_therapy_accessories.htm And others I haven't dealt with: http://www.jamesonmedical.com/pages/liter_meter.htm http://www.medicalsupplyassistant.com/liter-meter-0-8-lpm-1-each-salter-labs-item-sr1272-p.html?utm_source=froogle http://www.pulmolab.com/respiratory/flowmeters/1271.html >> Do you remember what site you got your leader flow meter ?> I found one on line for 20. but they wanted like 64. to mail it.> > I remember you said you had one. My concentrator was set on 7.5 today> while I was trying to change my sheets and it just dropped to what > felt like> 4 or 5 L. Think I better find one. I ask my 02 Co and they said just > the drivers have them.> I think I'll just come loose with a hissy fit Monday.. Maybe that > will work. lol> > > > > > > Love and Prayers, Peggy> IPF 2004, Florida> > "Worry looks around,> Sorry looks back,> Faith looks up."> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2008 Report Share Posted July 19, 2008 Apria has given me two of them. I have used them so much. I didn't even have to ask. Speak up, girlfriend......I know that you can do that!!! Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16>> Do you remember what site you got your leader flow meter ?> I found one on line for 20. but they wanted like 64. to mail it.> > I remember you said you had one. My concentrator was set on 7.5 today> while I was trying to change my sheets and it just dropped to what > felt like> 4 or 5 L. Think I better find one. I ask my 02 Co and they said just > the drivers have them.> I think I'll just come loose with a hissy fit Monday.. Maybe that > will work. lol> > > > > > > Love and Prayers, Peggy> IPF 2004, Florida> > "Worry looks around,> Sorry looks back,> Faith looks up."> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2008 Report Share Posted July 30, 2008 Hiya Joyce, I know I'm soooooooooooo excited, like a little kid. I had been feeling really really good, I'm in a lot of pain today breathing but I think its the hunidity, I went out today, badddd girl. Question is, how are YOU doing? You know you are still in my prayers, God knows your name real good by now... I am wondering of theres a slim chance that I may make it to Christmas, oh wouldn't that be wonderful!!! But I'm not complaining, I asked God for 1 more Christmas when I got sick and He gave me 2, one with my whole family, from Texas and Alabama so I am blessed. I love you... Love, Vicky81856 Get fantasy football with free live scoring. Sign up for FanHouse Fantasy Football today. Quote Link to comment Share on other sites More sharing options...
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