Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 All of you on Prednisone...Please take my experience as a lesson. I did fall a few months ago with the vertigo...just bruised I thought! After many months of lower left back pain I finally went to the doctor...yep...cracked rib!!! I have osteoporosis due to the Prednsone ( keep forgetting that for some stupid reason) Any fall...I repeat any fall ...could lead to a fracture for me! I even fractured a pinky toe by doing nothing at all except stepping on it ! So...please don't take falls lightly!!!You could have fractured something!!! Jane, I hope that you went to the doctor right away...not like me ( 8 weeks later) Take it easy and if you haven't been to the doctor and the pain does not improve over the week-end...get an Xray!!!! Yes..I'm nagging!!!! Have A Happy and Safe 4th. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower And still healing from cracked rib Joyce wrote: Jane, You are blessed to come away without more injury. I'm so glad that you were in a place that you could get treatment. Take care of you. Today, I walked into the kitchen and was trying to straighten a throw rug with my toe (didn't want to bend my bad back). I was doing this with my good leg, then my bad leg (knee) just gave out.....and down I went. Fell onto my butt and back. I just laid there, knowing I had broken something. My poor husband who is about at the end of his rope came running. We got me up from the floor and nothing seems any worse. No one seen me fall, that is the main thing. It is always the first thing that I think of. I go around so slow that I never think it will happen. Hope your boo-boos heal up soon. Hugs, Joyce D. Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 ......I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 > > Jane, > Oh my goodness girlfriend, BE CAREFUL!!! I'm glad that you were at least in a place where they were able to help you and I know Eddie and are taking good care of you at home. Take it easy for a couple of days will ya please? > Love, > > Beth > Age 48 Fibrotic NSIP 06/06 > > Change everything. Love and Forgive > > > > > > My Crackles > > > Hi! I want to wish everyone a happy 4th of July! > I always ask my pulmonary doctor to describe the sound of any crackles I might have. When I saw him on June 20th, he said they sounded very faintly,"swish, swish". I know in the past when I have been sick, I could feel them in my back in the lower lobes which is a werid feeling to me. > I have had a rough day today. I was going to the wellness center here to exercise at my class. As I was walking to the front door, I tripped on a curb (a very low one infact) with my left foot and fell on my right elbow and right knee. I have a scrapped knee and my right elbow has a long scrap on it and a large bruise. My elbow hurts the worse. I was able to get up on my on accord with a little help. The people who work there (it is part of the hospital) were so helpful. They doctored my wounds, bandaged them and gave me two ice packs. Eddie refixed my wounds tonight. I have to put two bandaids on my elbow. I am glad I didn't hit my head or break anything. I am so clumsy! > The other part of my day was tonight when I got together with my brother & sister to discuss our parents' estates. My brother is the executor and our dad's second wife, (they were only married a year before he died) wants to take us backto probate court. because she thinks my brother isn't handling settling the estate very well. It is such a big mess but I think my brother is handling it as well as he can. Phew! > I think I'm done in for today. Tomorrow has to be a better day! > Toodles! > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > No virus found in this incoming message. Checked by AVG. Version: 8.0.134 / Virus Database: 270.4.5/1533 - Release Date: 7/3/2008 7:19 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 I match your instruction and raise it one. Not just those on prednisone. I'm sorry, but this " think I'll be fine " routine doesn't get it for any of us. Most of us did that about our breathing for too long. But now we can't afford other problems. An infection can set us significantly back. A break of a bone can impair our ability to keep ourselves going and healthy. None of us can make our lungs suddenly well, but we can fight with all we've got to keep everything else in the best shape possible. Don't buy the stories that if I can still use it there's nothing broken because that is very false. There is no such thing for us as a " common cold " as its all a threat to our system. I'm determined to do as much as possible to keep PF (well and possible auto immune) as the only serious health problems I have. If I slip and fall and hurt my back, I'll be to the doctor to make sure nothing wrong and then to the physical therapist to get me active again quickly. I know that every week I'm unable to be as active as possible I lose a bit. > > > > > > Jane, > > > Oh my goodness girlfriend, BE CAREFUL!!! I'm glad that you were at > > least in a place where they were able to help you and I know Eddie and > > are taking good care of you at home. Take it easy for a couple > > of days will ya please? > > > Love, > > > > > > Beth > > > Age 48 Fibrotic NSIP 06/06 > > > > > > Change everything. Love and Forgive > > > > > > > > > > > > > > > > > > My Crackles > > > > > > > > > Hi! I want to wish everyone a happy 4th of July! > > > I always ask my pulmonary doctor to describe the sound of any > > crackles I might have. When I saw him on June 20th, he said they > > sounded very faintly, " swish, swish " . I know in the past when I have > > been sick, I could feel them in my back in the lower lobes which is a > > werid feeling to me. > > > I have had a rough day today. I was going to the wellness center > > here to exercise at my class. As I was walking to the front door, I > > tripped on a curb (a very low one infact) with my left foot and fell > > on my right elbow and right knee. I have a scrapped knee and my right > > elbow has a long scrap on it and a large bruise. My elbow hurts the > > worse. I was able to get up on my on accord with a little help. The > > people who work there (it is part of the hospital) were so helpful. > > They doctored my wounds, bandaged them and gave me two ice packs. > > Eddie refixed my wounds tonight. I have to put two bandaids on my > > elbow. I am glad I didn't hit my head or break anything. I am so clumsy! > > > The other part of my day was tonight when I got together with my > > brother & sister to discuss our parents' estates. My brother is the > > executor and our dad's second wife, (they were only married a year > > before he died) wants to take us backto probate court. because she > > thinks my brother isn't handling settling the estate very well. It > > is such a big mess but I think my brother is handling it as well as he > > can. Phew! > > > I think I'm done in for today. Tomorrow has to be a better day! > > > Toodles! > > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > > > > > > > >-----------------------------------------------------------------------\ - > > > > > >No virus found in this incoming message. > >Checked by AVG. > >Version: 8.0.134 / Virus Database: 270.4.5/1533 - Release Date: 7/3/2008 7:19 PM > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2008 Report Share Posted July 4, 2008 Also if you are on pred, make sure you take your calcium supplement and I now take residronate sodium. My latest bone scan (I have one every couple of years) showed that I don't have, and am not at risk of osteoporosis. If you don't take a calcium supplement, make sure you have plenty of calcium in your diet. It is found in dairyfoods and green leafy veg. Sesame seeds are also a good source. Take care of yourselves Love Ze xx> > >> > > Jane,> > > Oh my goodness girlfriend, BE CAREFUL!!! I'm glad that you were at > > least in a place where they were able to help you and I know Eddie and > > are taking good care of you at home. Take it easy for a couple > > of days will ya please?> > > Love,> > >> > > Beth > > > Age 48 Fibrotic NSIP 06/06> > > > > > Change everything. Love and Forgive > > > > > > > > >> > >> > >> > > My Crackles> > >> > >> > > Hi! I want to wish everyone a happy 4th of July! > > > I always ask my pulmonary doctor to describe the sound of any > > crackles I might have. When I saw him on June 20th, he said they > > sounded very faintly,"swish, swish". I know in the past when I have > > been sick, I could feel them in my back in the lower lobes which is a > > werid feeling to me.> > > I have had a rough day today. I was going to the wellness center > > here to exercise at my class. As I was walking to the front door, I > > tripped on a curb (a very low one infact) with my left foot and fell > > on my right elbow and right knee. I have a scrapped knee and my right > > elbow has a long scrap on it and a large bruise. My elbow hurts the > > worse. I was able to get up on my on accord with a little help. The > > people who work there (it is part of the hospital) were so helpful. > > They doctored my wounds, bandaged them and gave me two ice packs. > > Eddie refixed my wounds tonight. I have to put two bandaids on my > > elbow. I am glad I didn't hit my head or break anything. I am so clumsy!> > > The other part of my day was tonight when I got together with my > > brother & sister to discuss our parents' estates. My brother is the > > executor and our dad's second wife, (they were only married a year > > before he died) wants to take us backto probate court. because she > > thinks my brother isn't handling settling the estate very well. It > > is such a big mess but I think my brother is handling it as well as he > > can. Phew!> > > I think I'm done in for today. Tomorrow has to be a better day!> > > Toodles!> > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > > > > >> >> > > >> >------------------------------------------------------------------------> >> >> >No virus found in this incoming message.> >Checked by AVG. > >Version: 8.0.134 / Virus Database: 270.4.5/1533 - Release Date: 7/3/2008 7:19 PM> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 What an amazing history, Mike! How you do it would make a great and inspirational book. I'll be your editor if you want to write it. I'll say the prayers for you, but I don't know if I'm in good graces just now. Jack Re: Falling / Jane Bruce speaks wisely as usual. I have had between 15-20 surgeries in my life - so many I have lost count. But after each and every one of them, I worked vigorously to bring about healing as quickly as I could - to put the ailment behind me as if it never happened. Besides the IPF of which I have no control over, I have other one other existing condition which I must deal now with since I was approved for a transplant listing. I have had a paralyzed diaphragm in the up position for over 20 years and amazingly my body was able to cope by making just a few adjustments. During that time span several organs in my body were displaced. My heart moved to the right side of my body (freaks doctors out all the time for they can find it on the left), my stomach is located where the lower half of my left lung should be and my esophagus is all twisted about to the point each time I've had an endoscopy, doctors were freaked out again as they thought I had this gargantuan hiatel hernia that would require emergency surgery. Yet with all this I have done just fine - until the IPF of course. Now I have been told this paralyzed diaphragm could pose a significant risk to a successful lung transplant should that day arrive. As a result, I am scheduled to have the diaphragm (plication) repaired at the Univ of Wisconsin Madison the 10th of this month. It will put the exercising on hold right now as my wife and I (along with my oxygen tanks) have gotten into a routine of weight training and treadmill 5-6 days a week. You can count on me to get out of that bed and into an exercise clinic as soon as I can as I try to put yet one more surgery behind me. It is like Bruce says. You have to do everything in your power to keep your ailments limited and to fight this monster every step of the way. Would appreciate any prayers you good people could send my way this week. I will do my best not let you down! Mike Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 I agree completely, you cant be care ful enough, a few years back when I was on 40mg of prednisone i had a fracture in the spine when I lifted a tub of water , the back had given me a warning the day before but i ignored it, this time i fell in the bathroom broke the spine and lay on the floor and couldnt move an inch and oh! the pain was unbearable, I had to be lifted out of the bathroom by my son and husband , felt horribly mortified and helpless, fractures can make you immoblie ,you dont get asingle spot that is painless. now I am always careful especially of my back. - In Breathe-Support , " Bruce Moreland " wrote: > > > > > I match your instruction and raise it one. Not just those on prednisone. > I'm sorry, but this " think I'll be fine " routine doesn't get it for any > of us. Most of us did that about our breathing for too long. But now we > can't afford other problems. An infection can set us significantly back. > A break of a bone can impair our ability to keep ourselves going and > healthy. None of us can make our lungs suddenly well, but we can fight > with all we've got to keep everything else in the best shape possible. > Don't buy the stories that if I can still use it there's nothing broken > because that is very false. There is no such thing for us as a " common > cold " as its all a threat to our system. I'm determined to do as much as > possible to keep PF (well and possible auto immune) as the only serious > health problems I have. If I slip and fall and hurt my back, I'll be to > the doctor to make sure nothing wrong and then to the physical therapist > to get me active again quickly. I know that every week I'm unable to be > as active as possible I lose a bit. > > > > > > > > > > > Jane, > > > > Oh my goodness girlfriend, BE CAREFUL!!! I'm glad that you were at > > > least in a place where they were able to help you and I know Eddie > and > > > are taking good care of you at home. Take it easy for a couple > > > of days will ya please? > > > > Love, > > > > > > > > Beth > > > > Age 48 Fibrotic NSIP 06/06 > > > > > > > > Change everything. Love and Forgive > > > > > > > > > > > > > > > > > > > > > > > > My Crackles > > > > > > > > > > > > Hi! I want to wish everyone a happy 4th of July! > > > > I always ask my pulmonary doctor to describe the sound of any > > > crackles I might have. When I saw him on June 20th, he said they > > > sounded very faintly, " swish, swish " . I know in the past when I have > > > been sick, I could feel them in my back in the lower lobes which is > a > > > werid feeling to me. > > > > I have had a rough day today. I was going to the wellness center > > > here to exercise at my class. As I was walking to the front door, I > > > tripped on a curb (a very low one infact) with my left foot and fell > > > on my right elbow and right knee. I have a scrapped knee and my > right > > > elbow has a long scrap on it and a large bruise. My elbow hurts the > > > worse. I was able to get up on my on accord with a little help. The > > > people who work there (it is part of the hospital) were so helpful. > > > They doctored my wounds, bandaged them and gave me two ice packs. > > > Eddie refixed my wounds tonight. I have to put two bandaids on my > > > elbow. I am glad I didn't hit my head or break anything. I am so > clumsy! > > > > The other part of my day was tonight when I got together with my > > > brother & sister to discuss our parents' estates. My brother is the > > > executor and our dad's second wife, (they were only married a year > > > before he died) wants to take us backto probate court. because she > > > thinks my brother isn't handling settling the estate very well. It > > > is such a big mess but I think my brother is handling it as well as > he > > > can. Phew! > > > > I think I'm done in for today. Tomorrow has to be a better day! > > > > Toodles! > > > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl > > > > > > > > > > > > > > > > > > > > >------------------------------------------------------------------ -----\ > - > > > > > > > > >No virus found in this incoming message. > > >Checked by AVG. > > >Version: 8.0.134 / Virus Database: 270.4.5/1533 - Release Date: > 7/3/2008 7:19 PM > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2008 Report Share Posted July 5, 2008 , Thanks for posting this. I too have bone loss from the prednisone and need to remember to be careful. Sarcoid/PF 3/2006 California My Crackles> > > Hi! I want to wish everyone a happy 4th of July! > I always ask my pulmonary doctor to describe the sound of any crackles I might have. When I saw him on June 20th, he said they sounded very faintly,"swish, swish". I know in the past when I have been sick, I could feel them in my back in the lower lobes which is a werid feeling to me.> I have had a rough day today. I was going to the wellness center here to exercise at my class. As I was walking to the front door, I tripped on a curb (a very low one infact) with my left foot and fell on my right elbow and right knee. I have a scrapped knee and my right elbow has a long scrap on it and a large bruise. My elbow hurts the worse. I was able to get up on my on accord with a little help. The people who work there (it is part of the hospital) were so helpful. They doctored my wounds, bandaged them and gave me two ice packs. Eddie refixed my wounds tonight. I have to put two bandaids on my elbow. I am glad I didn't hit my head or break anything. I am so clumsy!> The other part of my day was tonight when I got together with my brother & sister to discuss our parents' estates. My brother is the executor and our dad's second wife, (they were only married a year before he died) wants to take us backto probate court. because she thinks my brother isn't handling settling the estate very well. It is such a big mess but I think my brother is handling it as well as he can. Phew!> I think I'm done in for today. Tomorrow has to be a better day!> Toodles!> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > No virus found in this incoming message. Checked by AVG. Version: 8.0.134 / Virus Database: 270.4.5/1533 - Release Date: 7/3/2008 7:19 PM Quote Link to comment Share on other sites More sharing options...
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