Re: Other support forums

[Guest guest]

Hi Ze,

I don't belong to other support groups for my other conditions. IrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Asthma 02/92

Other support forums

I'm being nosy really. I was wondering if anyone belonged to other support groups for any of your other conditions?

I belong to two, but hardly ever go on them. I've been a member of the myositis support group in the UK for ages, but posts are few and far between. Also I'm the only one on there with PF to this degree.

I have also recently joined one for PH, but I managed to join at the same time as someone with severe PH (mine's only mild) and I kinda got missed.

So I'm wondering what your experiences of other forums were.

Love Ze xx

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[Guest guest]

Hi Ze,

I joined two others when I was first diagnosed-no air to go and a sarcoidosis group. Neither ever replied to my posts and I checked once or twice then never went back, Sarcoid/PF 3/2006 California

Subject: Other support forumsTo: Breathe-Support Date: Wednesday, July 30, 2008, 7:52 AM

I'm being nosy really. I was wondering if anyone belonged to other support groups for any of your other conditions?

I belong to two, but hardly ever go on them. I've been a member of the myositis support group in the UK for ages, but posts are few and far between. Also I'm the only one on there with PF to this degree.

I have also recently joined one for PH, but I managed to join at the same time as someone with severe PH (mine's only mild) and I kinda got missed.

So I'm wondering what your experiences of other forums were.

Love Ze xx