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Barbara, Irene, I too use probiotics from Klaire Labs, the source of your probiotics is very important. You do not want any with anything artificial in them. All of your sources should be the best quality. Barbara you are correct in stating that our immune is in our intestinal tract. I good source to read for healthy forms is from Dr. Mercola.

http://www.mercola.com/

Barbara here is also another good source for good probiotics:

a hospital in Texas that sells good souces as well.

http://www.ehcd.com/

You can go to the resources section of the page.

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

< Click on me !!

Re: Irene/crohn's

Irene, I would strongly suggest using the probiotics as they are the"good" bugs for your intestines. You can buy Activia yogurt, or youcan purchase the pills (I use both) and see if they help you.Fully 70% of our immune system is in our intestinal tract, and that'swhere we need to start protecting ourselves. The probiotics have helped me immensely, and my poor hubby has IBS andhas been feeling great for the past year that he's been using theprobiotics. Really an amazing change in his life after suffering for20 years.You can buy them online, but the best of the best is to have themformulated at a pharmacy or through a naturopath doctor. We boughtours online at Swanson Vitamins until we began using the naturopathdoc close to home.I really, really do feel your pain, and I'm hoping that you'll trythese for a month or two and see if they give you any relief.Keeping you in my prayers, as

always!Hugs!Babs in Texas> > > > >> > > > > Hi All,> > > > >> > > > > Sorry I haven't posted in a few days again, but I am back from> > > > > Birmingham. Still don't know anything definite other than the> > > > > diagnosis I already have of UIP. First when I got there,they did> > > > > ABGs (OMG!! It hurt so bad!! I had it done once before and I> didn't> > > > > even feel it, but not this time. She had to pry (herwords)). Then> > > > > I had to do PFTs, which showed 57% lung function, comparedto the> > > 68%> > > > > I had in December. Next, I visited with the doc. Actually there> > > > > were 2 docs. The first one was a fellow of Dr. de Andrade(who was> > > > > the Assistant Professor). His name was Dr. ,

very niceguy.> > > > > He took down all my history and said he thinks I may have> pulmonary> > > > > hypertension (which would explain the rapid heart rate). He> did exam> > > > > and then goes to discuss with Dr. de Andrade, who comes back> in and> > > > > again, very nice guy. He explains that it is very rare in awoman> > > > > under the age of 50 to have pulmonary fibrosis and since I> have been> > > > > sick for 6 years already, even more rare, not unheard of, just> rare.> > > > > So I am a model case!! Anyhoo, due to this fact that I AM sorare,> > > > > he thinks there is an underlying disease causing the PF, soI get> > > > > blood work (10 tubes of blood) for various autoimmunediseases. He> > > > > is

leaning towards Sjogren's or scleroderma (mostly> scleroderma for> > > > > which also there is no cure). Dr.. did a heart exam and> > looked> > > > > at the veins in my neck before talking to Dr. de Andrade who> decided> > > > > I needed another chest CT (my last one was in February2008), so I> > > > > had that done (without contrast thank God!!) and also that I> needed> > > > > an ultrasound of my heart to check for blood flow to theheart and> > > > > for any blockages to the valves. All in all, he said if I> don't hear> > > > > from them in a week, to call them to get the results. Other than> > > > > that, he didn't change any of my medications, except to> decrease the> > > > > prednisone even further to 10 mg a day. He said

he wants meto get> > > > > off the prednisone completely, so NO MORE STEROIDS!! YEAH!!!! I> > > > > told him I had gained 20 pounds since being on them starting in> > > > > January, and told him I have moon faces and he agreed.. He> said they> > > > > want me lean and healthy and I did not need to be on that for> sure.> > > > > Any weight gain is out of the question, he said. He told meI have> > > > > to keep moving. He told me to eat lean proteins, fruits, and> veggies> > > > > and no snacks. He PROMISED me the weight will come off. Hesaid he> > > > > expects me to lose 10 pounds rather quickly. I sure hope he is> > > > > right, because I am miserable and I told him so, too!! He said> there> > > > > are no real medications to

treat PF, and I knew that, but hesaid> > > > > when I come back, I can decide either to go with the Imuranand N-> > > > > Acetyl-Cysteine (NAC), which is all the best they know at this> point> > > > > to give patients with PF, or I can try an experimental drug> > > (clinical> > > > > trial), which I don't know what the side effects will be,but I am> > > > > kinda leaning towards doing anyway, because I feel like evenif it> > > > > doesn't help me, it may help some other person with this stupid> > > > > disease on down the road and it would be worth it. As for lung> > > > > transplant, I don't yet qualify because my sats are not lowenough> > > > > and I am not on oxygen yet. Note that I said "YET." He said> the key> > > >

> to prolonging oxygen use as long as possible is to stay asactive> > > and> > > > > healthy as possible and that is what I am going to try and do.> > > > > (my grandson) is here with me this summer, and he really> > > > > helps to keep me motivated and I think I need that rightnow. Also> > > > > the docs were really glad to know that I am in pulmonaryrehab and> > > > > that I am going to stay in the Wellness Program when I get> done with> > > > > the rehab program. All in all, even though I did get some not so> > > > > good news, I feel like I got some good news, also, so until next> > > week> > > > > or whenever I get the results, I am just trying to keep myself in> > > > > exercise and health mode the best I can and keep

going.> > > > >> > > > > So that was my Birmingham visit. My parents went with me and we> > > > > really had a nice trip. I don't know what I would do withoutthem.> > > > > They have been my rock through all of this. Thank God for myMama> > > > > and Daddy!!> > > > >> > > > > I hope you all have a great week and now that I am back I hope> to be> > > > > able to keep up with posts better and write more than I have> been. I> > > > > do reads all the posts and think of each and every one of you> > > > > everyday. You are my air family and you are my rock, as well.> Don't> > > > > know what I would do without you guys, either!! I love you all!!> > > > >> > > > > Have a great

day!!> > > > >> > > > > Caro> > > > >> > > >> > >> > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> > Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark> your favourite sites. Download it now at> > http://ca.toolbar. yahoo.com.> >> > > > > ____________ _________ _________ _________ _________ _________ _> Instant Messaging, free SMS, sharing photos and more... Try the newYahoo! Canada Messenger at http://ca.beta. messenger. yahoo.com/>

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Thanks Mayleen! I've bookmarked these sites. Just took my probiotic

for the day :)

Hugs!

Babs in Texas

> > > > > >

> > > > > > Hi All,

> > > > > >

> > > > > > Sorry I haven't posted in a few days again, but I am back from

> > > > > > Birmingham. Still don't know anything definite other than the

> > > > > > diagnosis I already have of UIP. First when I got there,

> they did

> > > > > > ABGs (OMG!! It hurt so bad!! I had it done once before and I

> > didn't

> > > > > > even feel it, but not this time. She had to pry (her

> words)). Then

> > > > > > I had to do PFTs, which showed 57% lung function, compared

> to the

> > > > 68%

> > > > > > I had in December. Next, I visited with the doc. Actually

there

> > > > > > were 2 docs. The first one was a fellow of Dr. de Andrade

> (who was

> > > > > > the Assistant Professor). His name was Dr. , very nice

> guy.

> > > > > > He took down all my history and said he thinks I may have

> > pulmonary

> > > > > > hypertension (which would explain the rapid heart rate). He

> > did exam

> > > > > > and then goes to discuss with Dr. de Andrade, who comes back

> > in and

> > > > > > again, very nice guy. He explains that it is very rare in a

> woman

> > > > > > under the age of 50 to have pulmonary fibrosis and since I

> > have been

> > > > > > sick for 6 years already, even more rare, not unheard of, just

> > rare.

> > > > > > So I am a model case!! Anyhoo, due to this fact that I AM so

> rare,

> > > > > > he thinks there is an underlying disease causing the PF, so

> I get

> > > > > > blood work (10 tubes of blood) for various autoimmune

> diseases. He

> > > > > > is leaning towards Sjogren's or scleroderma (mostly

> > scleroderma for

> > > > > > which also there is no cure). Dr.. did a heart exam and

> > > looked

> > > > > > at the veins in my neck before talking to Dr. de Andrade who

> > decided

> > > > > > I needed another chest CT (my last one was in February

> 2008), so I

> > > > > > had that done (without contrast thank God!!) and also that I

> > needed

> > > > > > an ultrasound of my heart to check for blood flow to the

> heart and

> > > > > > for any blockages to the valves. All in all, he said if I

> > don't hear

> > > > > > from them in a week, to call them to get the results.

Other than

> > > > > > that, he didn't change any of my medications, except to

> > decrease the

> > > > > > prednisone even further to 10 mg a day. He said he wants me

> to get

> > > > > > off the prednisone completely, so NO MORE STEROIDS!!

YEAH!!!! I

> > > > > > told him I had gained 20 pounds since being on them

starting in

> > > > > > January, and told him I have moon faces and he agreed.. He

> > said they

> > > > > > want me lean and healthy and I did not need to be on that for

> > sure.

> > > > > > Any weight gain is out of the question, he said. He told me

> I have

> > > > > > to keep moving. He told me to eat lean proteins, fruits, and

> > veggies

> > > > > > and no snacks. He PROMISED me the weight will come off. He

> said he

> > > > > > expects me to lose 10 pounds rather quickly. I sure hope he is

> > > > > > right, because I am miserable and I told him so, too!! He said

> > there

> > > > > > are no real medications to treat PF, and I knew that, but he

> said

> > > > > > when I come back, I can decide either to go with the Imuran

> and N-

> > > > > > Acetyl-Cysteine (NAC), which is all the best they know at this

> > point

> > > > > > to give patients with PF, or I can try an experimental drug

> > > > (clinical

> > > > > > trial), which I don't know what the side effects will be,

> but I am

> > > > > > kinda leaning towards doing anyway, because I feel like even

> if it

> > > > > > doesn't help me, it may help some other person with this

stupid

> > > > > > disease on down the road and it would be worth it. As for lung

> > > > > > transplant, I don't yet qualify because my sats are not low

> enough

> > > > > > and I am not on oxygen yet. Note that I said " YET. " He said

> > the key

> > > > > > to prolonging oxygen use as long as possible is to stay as

> active

> > > > and

> > > > > > healthy as possible and that is what I am going to try and do.

> > > > > > (my grandson) is here with me this summer, and he

really

> > > > > > helps to keep me motivated and I think I need that right

> now. Also

> > > > > > the docs were really glad to know that I am in pulmonary

> rehab and

> > > > > > that I am going to stay in the Wellness Program when I get

> > done with

> > > > > > the rehab program. All in all, even though I did get some

not so

> > > > > > good news, I feel like I got some good news, also, so

until next

> > > > week

> > > > > > or whenever I get the results, I am just trying to keep my

> self in

> > > > > > exercise and health mode the best I can and keep going.

> > > > > >

> > > > > > So that was my Birmingham visit. My parents went with me

and we

> > > > > > really had a nice trip. I don't know what I would do without

> them.

> > > > > > They have been my rock through all of this. Thank God for my

> Mama

> > > > > > and Daddy!!

> > > > > >

> > > > > > I hope you all have a great week and now that I am back I hope

> > to be

> > > > > > able to keep up with posts better and write more than I have

> > been. I

> > > > > > do reads all the posts and think of each and every one of you

> > > > > > everyday. You are my air family and you are my rock, as well.

> > Don't

> > > > > > know what I would do without you guys, either!! I love you

all!!

> > > > > >

> > > > > > Have a great day!!

> > > > > >

> > > > > > Caro

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > > ____________ _________ _________ _________ _________ _________ _

> > > Yahoo! Canada Toolbar: Search from anywhere on the web, and bookmark

> > your favourite sites. Download it now at

> > > http://ca.toolbar. yahoo.com.

> > >

> >

> >

> >

> >

> > ____________ _________ _________ _________ _________ _________ _

> > Instant Messaging, free SMS, sharing photos and more... Try the new

> Yahoo! Canada Messenger at http://ca.beta. messenger. yahoo.com/

> >

>

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My Pleasure Barbara, Please do read. I wish just to help in any way possible !!

God Bless !!

dragonflymcs

Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14

< Click on me !!

Re: Irene/Barbara

Thanks Mayleen! I've bookmarked these sites. Just took my probioticfor the day :)Hugs!Babs in Texas> > > > > >> > > >

> > Hi All,> > > > > >> > > > > > Sorry I haven't posted in a few days again, but I am back from> > > > > > Birmingham. Still don't know anything definite other than the> > > > > > diagnosis I already have of UIP. First when I got there,> they did> > > > > > ABGs (OMG!! It hurt so bad!! I had it done once before and I> > didn't> > > > > > even feel it, but not this time. She had to pry (her> words)). Then> > > > > > I had to do PFTs, which showed 57% lung function, compared> to the> > > > 68%> > > > > > I had in December. Next, I visited with the doc. Actuallythere> > > > > > were 2 docs. The first one was a fellow of Dr. de Andrade> (who was> > > > > > the Assistant

Professor). His name was Dr. , very nice> guy.> > > > > > He took down all my history and said he thinks I may have> > pulmonary> > > > > > hypertension (which would explain the rapid heart rate). He> > did exam> > > > > > and then goes to discuss with Dr. de Andrade, who comes back> > in and> > > > > > again, very nice guy. He explains that it is very rare in a> woman> > > > > > under the age of 50 to have pulmonary fibrosis and since I> > have been> > > > > > sick for 6 years already, even more rare, not unheard of, just> > rare.> > > > > > So I am a model case!! Anyhoo, due to this fact that I AM so> rare,> > > > > > he thinks there is an underlying disease causing the PF, so> I get> >

> > > > blood work (10 tubes of blood) for various autoimmune> diseases. He> > > > > > is leaning towards Sjogren's or scleroderma (mostly> > scleroderma for> > > > > > which also there is no cure). Dr.. did a heart exam and> > > looked> > > > > > at the veins in my neck before talking to Dr. de Andrade who> > decided> > > > > > I needed another chest CT (my last one was in February> 2008), so I> > > > > > had that done (without contrast thank God!!) and also that I> > needed> > > > > > an ultrasound of my heart to check for blood flow to the> heart and> > > > > > for any blockages to the valves. All in all, he said if I> > don't hear> > > > > > from them in a week, to call them to get the

results.Other than> > > > > > that, he didn't change any of my medications, except to> > decrease the> > > > > > prednisone even further to 10 mg a day. He said he wants me> to get> > > > > > off the prednisone completely, so NO MORE STEROIDS!!YEAH!!!! I> > > > > > told him I had gained 20 pounds since being on themstarting in> > > > > > January, and told him I have moon faces and he agreed.. He> > said they> > > > > > want me lean and healthy and I did not need to be on that for> > sure.> > > > > > Any weight gain is out of the question, he said. He told me> I have> > > > > > to keep moving. He told me to eat lean proteins, fruits, and> > veggies> > > > > > and no snacks. He PROMISED me the

weight will come off. He> said he> > > > > > expects me to lose 10 pounds rather quickly. I sure hope he is> > > > > > right, because I am miserable and I told him so, too!! He said> > there> > > > > > are no real medications to treat PF, and I knew that, but he> said> > > > > > when I come back, I can decide either to go with the Imuran> and N-> > > > > > Acetyl-Cysteine (NAC), which is all the best they know at this> > point> > > > > > to give patients with PF, or I can try an experimental drug> > > > (clinical> > > > > > trial), which I don't know what the side effects will be,> but I am> > > > > > kinda leaning towards doing anyway, because I feel like even> if it> > > > > > doesn't

help me, it may help some other person with thisstupid> > > > > > disease on down the road and it would be worth it. As for lung> > > > > > transplant, I don't yet qualify because my sats are not low> enough> > > > > > and I am not on oxygen yet. Note that I said "YET." He said> > the key> > > > > > to prolonging oxygen use as long as possible is to stay as> active> > > > and> > > > > > healthy as possible and that is what I am going to try and do.> > > > > > (my grandson) is here with me this summer, and hereally> > > > > > helps to keep me motivated and I think I need that right> now. Also> > > > > > the docs were really glad to know that I am in pulmonary> rehab and> > > > > > that I am

going to stay in the Wellness Program when I get> > done with> > > > > > the rehab program. All in all, even though I did get somenot so> > > > > > good news, I feel like I got some good news, also, sountil next> > > > week> > > > > > or whenever I get the results, I am just trying to keep my> self in> > > > > > exercise and health mode the best I can and keep going.> > > > > >> > > > > > So that was my Birmingham visit. My parents went with meand we> > > > > > really had a nice trip. I don't know what I would do without> them.> > > > > > They have been my rock through all of this. Thank God for my> Mama> > > > > > and Daddy!!> > > > > >> > > > > > I hope

you all have a great week and now that I am back I hope> > to be> > > > > > able to keep up with posts better and write more than I have> > been. I> > > > > > do reads all the posts and think of each and every one of you> > > > > > everyday. You are my air family and you are my rock, as well.> > Don't> > > > > > know what I would do without you guys, either!! I love youall!!> > > > > >> > > > > > Have a great day!!> > > > > >> > > > > > Caro> > > > > >> > > > >> > > >> > > > > > > > > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> > > Yahoo! Canada Toolbar: Search

from anywhere on the web, and bookmark> > your favourite sites. Download it now at> > > http://ca.toolbar. yahoo.com.> > >> > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> > Instant Messaging, free SMS, sharing photos and more... Try the new> Yahoo! Canada Messenger at http://ca.beta. messenger. yahoo.com/> >>

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