Re: What should be our next step?

January 15, 2011

I've done biomed for 6 years, 3 types of chelation,mito support, anti-virals low

and high dose, Yasko, LDN, MB12 injections, hydroxyB12 injections, mesenchyme,

modified biofilm, spironolactone, diflucan, nizoral, flagyl, allinia, seizure

meds, gfcf, NeuroSensory Center, vitamin A protocol, and a whole lot more. I

study protocols then try them. I have most of them checked off the list now but

still a few I haven't tried. I'd suggest find a doctor who you believe in and

follow his or her protocol. We have experience with our own kid but they have

experience with lots of kids.

>

> Our biomedical journey began 6 months ago,to date we have started the GFCFSF

diet, B12 shots, Mito Support, and mult supplements.We did two months on

Nystatin which I think I messed up by giving grape juice during that time to get

down the other supplements do so 2 weeks after she got off Nystatin the yeast

was back and this time she was put on Diflucan for 30 days, she is almost done

with that and the yeast seems to be under control

>

> The last time I spoke with my Dan was in November after I received the lab

results for her titers..which makes me sick to my stomach. My daughter has 6

titers that are all high..5 are between 2 and 5 and her Reballa is 385.3. When I

pick up the lab results I spoke with Dr Usman who is the head Dan but wasn't my

dan, she went over the labs and said that Rublla should never be so high and

when I asked if we should do antiviral treatment she said that virus's can be

> " tricky " and asked if I have tried the Vitamin A protocol for her measules

which was 5.35, I said no and she said that it may help.

>

> Anyway I spoke with my dan who said that she is concerned that my daughter may

have a mitochondria dysfunction or a disorder based on some high/low amino acids

and also because of something to do with a lactate acid test however because my

daughter was on the MCT oil that lab results said to retest once we are off. She

started my daughter on a mito support then, added Larix to her supplements and

> changed her from B12 drops to B12 Shots.

>

> When I called to schedule my 90 day check up I was told that my dan is turning

me over to Dr Usman the head dan.I go in Feb to meet with her. I'm sorry that my

post is SO long but my question is what do you think we should be doing next? We

know that she has HIGH Viral titers and to be honest with all that we are on I

would think I would see some HUGE gains. Since starting biomedical I have been

able to get her to make more eye contact, seems to understand alittle bit more

> what's going on around her and here and there does show interest books, toys

and my other children however she is still doing HER thing most of the time. She

has a couple words that she uses from time to time but not everyday,she doesn't

commucate in anyway what she wants and the only time she cries is when one of

the other kids takes a toy from her. She is still having aproblem completing

even a simply task in therapy and most of the time we have a hard time keeping

her in the room for therapy.She is 2.5 and I am really struggling with the diet

because she is SO picky.

>

> So I guess I'm just wondering what my next step should be? Should I let the

dan guide me or should I ask to start antiviral or maybe talk about chelation? I

just know that diet and supplements are not going to get her recovered. On my

Assessment plan from Novemeber my dan wrote that she would like to do the Vit A

protocol, and add BCCA(which I don't now what that is) and also Methione Sl

> which I was told because that level is low it makes a person do the same thing

over and over.

>

> Any advise on what my next step shoud be? My daghter wasn't tested for heavy

metals yet either.Again I'm sorry for the long post...it's just driving me crazy

to see her like this and therapy is helping but I know that she has alot of

things that are holding her back.

>

> One more thing I don't know if the Vitamin A protocol would be a good thing

because she gets a bloated belly from just 5000 iu's of Vit A and I heard that

all it does is stur up yeast anyway..her high titers are on the 6 shots from the

MMR and DPT.

>

> Thanks for listening

> jENNIFER

>

January 15, 2011

We've also tried Enhansa, Meriva (up to 1500mg per day), superNuThera, B12

patches, NeuroProtek, LDM-100, namenda, amantadine, singular, acetyl-carnintine,

CLO, Ulitmate Omega, DMG...

> >

> > Our biomedical journey began 6 months ago,to date we have started the GFCFSF

diet, B12 shots, Mito Support, and mult supplements.We did two months on

Nystatin which I think I messed up by giving grape juice during that time to get

down the other supplements do so 2 weeks after she got off Nystatin the yeast

was back and this time she was put on Diflucan for 30 days, she is almost done

with that and the yeast seems to be under control

> >

> > The last time I spoke with my Dan was in November after I received the lab

results for her titers..which makes me sick to my stomach. My daughter has 6

titers that are all high..5 are between 2 and 5 and her Reballa is 385.3. When I

pick up the lab results I spoke with Dr Usman who is the head Dan but wasn't my

dan, she went over the labs and said that Rublla should never be so high and

when I asked if we should do antiviral treatment she said that virus's can be

> > " tricky " and asked if I have tried the Vitamin A protocol for her measules

which was 5.35, I said no and she said that it may help.

> >

> > Anyway I spoke with my dan who said that she is concerned that my daughter

may have a mitochondria dysfunction or a disorder based on some high/low amino

acids and also because of something to do with a lactate acid test however

because my daughter was on the MCT oil that lab results said to retest once we

are off. She started my daughter on a mito support then, added Larix to her

supplements and

> > changed her from B12 drops to B12 Shots.

> >

> > When I called to schedule my 90 day check up I was told that my dan is

turning me over to Dr Usman the head dan.I go in Feb to meet with her. I'm sorry

that my post is SO long but my question is what do you think we should be doing

next? We know that she has HIGH Viral titers and to be honest with all that we

are on I would think I would see some HUGE gains. Since starting biomedical I

have been able to get her to make more eye contact, seems to understand alittle

bit more

> > what's going on around her and here and there does show interest books, toys

and my other children however she is still doing HER thing most of the time. She

has a couple words that she uses from time to time but not everyday,she doesn't

commucate in anyway what she wants and the only time she cries is when one of

the other kids takes a toy from her. She is still having aproblem completing

even a simply task in therapy and most of the time we have a hard time keeping

her in the room for therapy.She is 2.5 and I am really struggling with the diet

because she is SO picky.

> >

> > So I guess I'm just wondering what my next step should be? Should I let the

dan guide me or should I ask to start antiviral or maybe talk about chelation? I

just know that diet and supplements are not going to get her recovered. On my

Assessment plan from Novemeber my dan wrote that she would like to do the Vit A

protocol, and add BCCA(which I don't now what that is) and also Methione Sl

> > which I was told because that level is low it makes a person do the same

thing over and over.

> >

> > Any advise on what my next step shoud be? My daghter wasn't tested for heavy

metals yet either.Again I'm sorry for the long post...it's just driving me crazy

to see her like this and therapy is helping but I know that she has alot of

things that are holding her back.

> >

> > One more thing I don't know if the Vitamin A protocol would be a good thing

because she gets a bloated belly from just 5000 iu's of Vit A and I heard that

all it does is stur up yeast anyway..her high titers are on the 6 shots from the

MMR and DPT.

> >

> > Thanks for listening

> > jENNIFER

> >

>

January 15, 2011

LDN is an immune system modulator. But from what I hear, you have to get the diet/gut cleaned up first. It can cause a yeast flare, so Tammy's suggestion that you get a good probiotic therapy going is a good one.

One of the ladies on these lists suggested Kyolic Candida Cleanse. I felt it was a good easy way to get the gut cleaned up.My kids have been doing great on LDN. My daughter also has Hashimoto's (thyroid antibodies) so we are hoping the LDN will get to the root of the problem by switching her auto-immune disease state off (rather than just giving her thyroid medicine for the rest of her life)

We did do just vitamins, minerals, amino acids and probiotics for about 9 months before attempting LDN.If you don't like/trust Dr. Usman's office, we use two DAN. I have a local guy I like ok, and I also use Dr. Woeller. He has the Autism Action Plan site, 39$/month and he will answer messages within 24 hours. After a few months of just belonging to the site, I did finally use him for consultations (typical DAN prices) He really knows his stuff and I feel like he gives individualized advice. He will do skype consults, so it's just like being there (he is in California)

If you decide to join his site, you can use me as a referral and I get a kick back LOL I would recommend him without the kick back though because I do really like him and LOVE the fact I can send him a message at 2am, go to bed, and wake up with an answer.

Thanks for the reply & taken the time to read my Long post LDN is that a natural antiviral? May I ask what kind of changes? I want to be able to offer some options for us to go down instead of my dan just telling me what to do because then it seems like I never get a chance to ask all my questions because of the " money clock " . In turn I'm giving my daughter something that I haven't had the time to research.

Thanks again,

To: mb12 valtrex

Sent: Sat, January 15, 2011 12:47:41 AMSubject: Re: What should be our next step?

LDN (low dose naltrexone) might help. We just started it and it's been great here. My kids have a couple high virus titers.

Our biomedical journey began 6 months ago,to date we have started the GFCFSF diet, B12 shots, Mito Support, and mult supplements.We did two months on Nystatin which I think I messed up by giving grape juice during that time to get down the other supplements do so 2 weeks after she got off Nystatin the yeast was back and this time she was put on Diflucan for 30 days, she is almost done with that and the yeast seems to be under control

The last time I spoke with my Dan was in November after I received the lab results for her titers..which makes me sick to my stomach. My daughter has 6 titers that are all high..5 are between 2 and 5 and her Reballa is 385.3. When I pick up the lab results I spoke with Dr Usman who is the head Dan but wasn't my dan, she went over the labs and said that Rublla should never be so high and when I asked if we should do antiviral treatment she said that virus's can be

" tricky " and asked if I have tried the Vitamin

A protocol for her measules which was 5.35, I said no and she said that it may help.Anyway I spoke with my dan who said that she is concerned that my daughter may have a mitochondria dysfunction or a disorder based on some high/low amino acids and also because of something to do with a lactate acid test however because my daughter was on the MCT oil that lab results said to retest once we are off. She started my daughter on a mito support then, added Larix to her supplements and

changed her from B12 drops to B12 Shots.When I called to schedule my 90 day check up I was told that my dan is turning me over to Dr Usman the head dan.I go in Feb to meet with her. I'm sorry that my post is SO long but my question is what do you think we should be doing next? We know that she has HIGH Viral titers and to be honest with all that we are on I would think I would see some HUGE gains. Since starting biomedical I have been able to get her to make

more eye contact, seems to understand alittle bit morewhat's going on around her and here and there does show interest books, toys and my other children however she is still doing HER thing most of the time. She has a couple words that she uses from time to time but not everyday,she doesn't commucate in anyway what she wants and the only time she cries is when one of the other kids takes a toy from her. She is still having aproblem completing even a simply task in therapy and most of the time we have a hard time keeping her in the room for therapy.She is 2.5 and I am really struggling with the diet because she is SO picky.

So I guess I'm just wondering what my next step should be? Should I let the dan guide me or should I ask to start antiviral or maybe talk about chelation? I just know that diet and supplements are not going to get her recovered. On my Assessment plan from Novemeber my dan wrote that she would like to do the Vit A protocol,

and add BCCA(which I don't now what that is) and also Methione Slwhich I was told because that level is low it makes a person do the same thing over and over.Any advise on what my next step shoud be? My daghter wasn't tested for heavy metals yet either.Again I'm sorry for the long post...it's just driving me crazy to see her like this and therapy is helping but I know that she has alot of things that are holding her back.

One more thing I don't know if the Vitamin A protocol would be a good thing because she gets a bloated belly from just 5000 iu's of Vit A and I heard that all it does is stur up yeast anyway..her high titers are on the 6 shots from the MMR and DPT.

Thanks for listening jENNIFER

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

January 16, 2011

Is LDN a better approach on virus's then OLE?

To: mb12 valtrex Sent: Sat, January 15, 2011 2:59:17 PMSubject: Re: What should be our next step?