Re: Hi Everybody

[Guest guest]

Good Evening Beth,

Happy 50th Anniversary for your parents and many many more to come!

Did they ever find out, from were the rash is or what's causing it? I hope your

hand feels better soon! Have a good week!

We've had rainy days, severe thunderstorms and lightning.

Went to a soccer game on Tuesday (first time ever).

I had a good relaxing weekend. Hardly did anything. Too much going on my mind

right now and I don't know how to deal with it...it has to do with respect, yelling at

me because the other person is having a bad day, (how can someone have a bad

day when it's 08:30 in the morning and you're the first patient of the day).

Banned from giving updates on how I'm doing or calling because he will get updates

from other people (whether the updates are true or false).

In a very nasty kind of way, yelling and screaming at me...I was told, I was a stalker.

Which I am not. Learning there were pre-conditions before surgery, nobody is

willing to tell me what they were...I've been called other stuff when I was accused of

the pornographic pictures (as some of you will remember).

I've always have spoken my mind! maybe from now on, I should not say how I'm

feeling etc...whether it endagers my health or not.

Quote: The wise person knows the psychological advantage of silence

IrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Asthma 02/92

Hi everybody

Good evening from North Carolina!

Just wanted to say hey and see how everyone is tonight. I hope there were lots of fun weekends throughout our group. I spent some relatively quiet time in the last couple of days. I've been tired and very achey for the last little bit. The rash on my hands is acting up and the itching makes me want to lop off my hands with a cleaver (ok I know that's a little dramatic but y'all get the picture.) I've also been coughing a little more than usual and have been needing a bit more oxygen which of course makes me nervous. I'm not too worried. If these kind of low grade symptoms continue for another couple of days I'll call the doctor.....we' ll see what happens.

Sometimes I wonder if I'm pushing a little too hard, I'm working 3 days a week taking care of the elderly mother of a friend (but on those 3 days I only work about 4 hours each day) and then using the treadmill 5 days a week. I do have my parents 50th wedding anniversary party coming up for which I'm doing most of the planning and coordinating. It's not physical work, just mental (which probably explains why it's so exhausting for me LOL)

OK I'll stop babbling now, just wanted to say hey to everyone! Enjoy the rest of the evening!

Beth

Age 48 Fibrotic NSIP 06/06 UCTD 07/08

Change everything. Love and Forgive

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot with the All-new Yahoo! Mail

[Guest guest]

mary-beth

what sort of activities are you doing when you are with your

lady? i took my mum for a drive on thursday and then for

an ice cream in the park and then home and made her a cup of

tea (no need to feed her that night) and i was shattered the

next day. i think anything that requires focused concentration

can drain you. i think i might 'hold my breath' when i'm

walking with my mum in case she trips. maybe five days on the

treadmill is a bit much too especially, if in the nice weather, you

are out and about - unlike winter time when we are likely to

hibernate a bit. anyhow, listening to your wee shrinking body and

giving it some rest sounds good to me.

i pick up the slightest of colds from the least thing. the other

day i was sitting in my lounge with a sleeveless t-shirt on without

putting on a cardie and suddenly i can't tolerate smells - for me

this is the first sign of a cold.

may uip 0606

glasgow, scotland

>

> Good evening from North Carolina!

> Just wanted to say hey and see how everyone is tonight.  I hope

there were lots of fun weekends throughout our group.  I spent

some relatively quiet time in the last couple of days. I've been

tired and very achey for the last little bit. The rash on my hands is

acting up and the itching makes me want to lop off my hands with a

cleaver (ok I know that's a little dramatic but y'all get the

picture.)  I've also been coughing a little more than usual  and have

been needing a bit more oxygen which of course makes me nervous. I'm

not too worried.  If these kind of low grade symptoms continue for

another couple of days I'll call the doctor.....we'll see what

happens.

> Sometimes I wonder if I'm pushing a little too hard, I'm working 3

days a week taking care of the elderly mother of a friend (but on

those 3 days I only work about 4 hours each day) and then using the

treadmill 5 days a week.  I do have my parents 50th wedding

anniversary party coming up for which I'm doing most of the planning

and coordinating.  It's not physical work, just mental (which

probably explains why it's so exhausting for me LOL) 

> OK I'll stop babbling now, just wanted to say hey

to everyone!  Enjoy the rest of the evening!

>  Beth 

> Age 48 Fibrotic NSIP 06/06 UCTD 07/08

>  

> Change everything. Love and Forgive    

>

[Guest guest]

Hi May,

When I'm with Virginia, we don't generally do anything that's physically very strenuous. I take her to get her hair done, or out to get a bite of lunch or maybe to the grocery. I honestly think it's more the mental strain of looking out for her, repeating answers to questions over and over and over, (for instance she asks me what day it is every 5 or 6 minutes. She has literally no short term memory) making sure she's taken her meds and her insulin, trying to keep her as steady on her feet as possible, etc. You know in reality, Virginia needs to be in an assisted living facility. She needs supervision and company. Unfortunately her children have not faced up to the reality of the situation. I'm one of the bandages on the wound, the Aide who comes the two weekdays that I'm not there are another bandage, the "emergency button" she wears around her neck is another one.... Huh, it's funny writing it all down, I didn't realize how much it all

bothers me that I can't do what's best for her. That's probably one of the reasons it's so exhausting. I worry about her safety and her happiness. She's very lonely in that big house all by herself.

I do think that you're right about 5 days being too much on the treadmill. I've been doing that because in the heat of the summer my outdoor walks are very limited. I've been trying to make up for that by more treadmill time. But the treadmill is more like work and going for a walk outside is more like fun. Oh and I only wish I had a "wee shrinking body", it' may be shrinking (slowly) but it's far from wee yet.

Hope you are having a good day and it's not too hot across the pond!

Beth

Age 48 Fibrotic NSIP 06/06 UCTD 07/08

Change everything. Love and Forgive

Re: Hi everybody

mary-bethwhat sort of activities are you doing when you are with yourlady? i took my mum for a drive on thursday and then for an ice cream in the park and then home and made her a cup oftea (no need to feed her that night) and i was shattered thenext day. i think anything that requires focused concentrationcan drain you. i think i might 'hold my breath' when i'm walking with my mum in case she trips. maybe five days on thetreadmill is a bit much too especially, if in the nice weather, youare out and about - unlike winter time when we are likely to hibernate a bit. anyhow, listening to your wee shrinking body and giving it some rest sounds good to me.i pick up the slightest of colds from the least thing. the otherday i was sitting in my lounge with a sleeveless t-shirt on withoutputting on a cardie and suddenly i can't tolerate smells - for methis is the first sign of a cold.may

uip 0606glasgow, scotland>> Good evening from North Carolina!> Just wanted to say hey and see how everyone is tonight. I hope there were lots of fun weekends throughout our group. I spent some relatively quiet time in the last couple of days. I've been tired and very achey for the last little bit. The rash on my hands is acting up and the itching makes me want to lop off my hands with a cleaver (ok I know that's a little dramatic but y'all get the picture.) I've also been coughing a little more than usual and have been needing a bit more oxygen which of course makes me nervous. I'm not too worried. If these kind of

low grade symptoms continue for another couple of days I'll call the doctor... ..we'll see what happens. > Sometimes I wonder if I'm pushing a little too hard, I'm working 3 days a week taking care of the elderly mother of a friend (but on those 3 days I only work about 4 hours each day) and then using the treadmill 5 days a week. I do have my parents 50th wedding anniversary party coming up for which I'm doing most of the planning and coordinating. It's not physical work, just mental (which probably explains why it's so exhausting for me LOL) > OK I'll stop babbling now, just wanted to say hey to everyone! Enjoy the rest of the evening!> Beth > Age 48 Fibrotic NSIP 06/06 UCTD 07/08> > Change everything. Love and Forgive >

[Guest guest]

Beth,

I hadn't thought of mental strain as making us tired. Duh! I am trying to cope as well as I can with all the "baggage" I have to deal with this week. So yesterday I stayed home and rested, as I did Saturday. My favorite project is this week and I want to spend much time on it. Today I stayed home and worked on it and used the telephone. This afternoon I am going to my exercise class. But for instance, this is what I am dealing with this week: Called 's doctor's nurse again to leave a message about how her medicine decrease is going and now we have to go there on Wed. morning at 10:15am. Alarm company has to come & fix our security alarm tomorrow. I am worried about finding the RIGHT job for her. Have to be at church on Wednesday afternoon to meet with families who want to come for school supplies on Saturday. Have to stay at church and conduct 2 meetings with those who are helping me in registration for Saturday. My brother, sister and I are going to court on Thursday morning to face the wicked ex-step mother. On Friday I am going to Atlanta to Emory for my 12th week visit in the Step Trial. Saturday morning I will be at my church very early for the school supplies to be given out to needy children. And that is how my week is going.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

P.S. I am very excited about the STEP Trial.

> >> > Good evening from North Carolina!> > Just wanted to say hey and see how everyone is tonight. I hope > there were lots of fun weekends throughout our group. I spent > some relatively quiet time in the last couple of days. I've been > tired and very achey for the last little bit. The rash on my hands is > acting up and the itching makes me want to lop off my hands with a > cleaver (ok I know that's a little dramatic but y'all get the > picture.) I've also been coughing a little more than usual and have > been needing a bit more oxygen which of course makes me nervous. I'm > not too worried. If these kind of low grade symptoms continue for > another couple of days I'll call the doctor... ..we'll see what > happens. > > Sometimes I wonder if I'm pushing a little too hard, I'm working 3 > days a week taking care of the elderly mother of a friend (but on > those 3 days I only work about 4 hours each day) and then using the > treadmill 5 days a week. I do have my parents 50th wedding > anniversary party coming up for which I'm doing most of the planning > and coordinating. It's not physical work, just mental (which > probably explains why it's so exhausting for me LOL) > > OK I'll stop babbling now, just wanted to say hey > to everyone! Enjoy the rest of the evening!> > Beth > > Age 48 Fibrotic NSIP 06/06 UCTD 07/08> > > > Change everything. Love and Forgive > >>

[Guest guest]

Wow Jane, you have so much going on for you this week! I hope you also put some

time to rest during the week and is doing OK!

All the Best at court on Thursday.

Irene

Re: Hi everybody

Beth,

I hadn't thought of mental strain as making us tired. Duh! I am trying to cope as well as I can with all the "baggage" I have to deal with this week. So yesterday I stayed home and rested, as I did Saturday. My favorite project is this week and I want to spend much time on it. Today I stayed home and worked on it and used the telephone. This afternoon I am going to my exercise class. But for instance, this is what I am dealing with this week: Called 's doctor's nurse again to leave a message about how her medicine decrease is going and now we have to go there on Wed. morning at 10:15am. Alarm company has to come & fix our security alarm tomorrow. I am worried about finding the RIGHT job for her. Have to be at church on Wednesday afternoon to meet with families who want to come for school supplies on Saturday. Have to stay at church and

conduct 2 meetings with those who are helping me in registration for Saturday. My brother, sister and I are going to court on Thursday morning to face the wicked ex-step mother. On Friday I am going to Atlanta to Emory for my 12th week visit in the Step Trial. Saturday morning I will be at my church very early for the school supplies to be given out to needy children. And that is how my week is going.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

P.S. I am very excited about the STEP Trial.

> >> > Good evening from North Carolina!> > Just wanted to say hey and see how everyone is tonight. I hope > there were lots of fun weekends throughout our group. I spent > some relatively quiet time in the last couple of days. I've been > tired and very achey for the last little bit. The rash on my hands is > acting

up and the itching makes me want to lop off my hands with a > cleaver (ok I know that's a little dramatic but y'all get the > picture.) I've also been coughing a little more than usual and have > been needing a bit more oxygen which of course makes me nervous. I'm > not too worried. If these kind of low grade symptoms continue for > another couple of days I'll call the doctor... ..we'll see what > happens. > > Sometimes I wonder if I'm pushing a little too hard, I'm working 3 > days a week taking care of the elderly mother of a friend (but on > those 3 days I only work about 4 hours each day) and then using the > treadmill 5 days a week. I do have my parents 50th wedding > anniversary party coming up for which I'm doing most of the planning > and coordinating. It's not physical work, just mental (which > probably explains

why it's so exhausting for me LOL) > > OK I'll stop babbling now, just wanted to say hey > to everyone! Enjoy the rest of the evening!> > Beth > > Age 48 Fibrotic NSIP 06/06 UCTD 07/08> > > > Change everything. Love and Forgive > >>

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

[Guest guest]

Jane,

You know it's good to have a reminder of the importance of taking a "mental health day". Sometimes we need downtime from everything, not just physical work or exercise. To spend a day doing nothing more strenuous than picking up a book or putting a movie in the dvd player.

I'm the kind of person that sometimes needs to just shut myself away and have a few hours where I don't have to talk to anyone or listen to anyone in order to be able to function like a human in society. It's tough to do sometimes because I live with my elderly parents but there are ways. Like the other day, I left the house to "do a couple of errands" but in reality I drove over to my church parked my car and sat at one of the tables in the picnic grove under the trees and read a book. Now I could have read at home but I would have had the phone ringing, my parents coming in and out asking me questions or wanting to tell me something, I would have heard 3 different tv's going all tuned to a different program (don't ask) and after awhile I would have been told I was being "too grouchy" and then I would have felt guilty.

Instead, I had absolute quiet for a couple of hours and came home relaxed and able to behave like a daughter who loves her parents (which I do obviously)

Anyway Jane, I'll keep praying for . Give both she and Eddie a hug for me!

Beth

Age 48 Fibrotic NSIP 06/06 UCTD 07/08

Change everything. Love and Forgive

Re: Hi everybody

Beth,

I hadn't thought of mental strain as making us tired. Duh! I am trying to cope as well as I can with all the "baggage" I have to deal with this week. So yesterday I stayed home and rested, as I did Saturday. My favorite project is this week and I want to spend much time on it. Today I stayed home and worked on it and used the telephone. This afternoon I am going to my exercise class. But for instance, this is what I am dealing with this week: Called 's doctor's nurse again to leave a message about how her medicine decrease is going and now we have to go there on Wed. morning at 10:15am. Alarm company has to come & fix our security alarm tomorrow. I am worried about finding the RIGHT job for her. Have to be at church on Wednesday afternoon to meet with families who want to come for school supplies on Saturday. Have to stay at church and

conduct 2 meetings with those who are helping me in registration for Saturday. My brother, sister and I are going to court on Thursday morning to face the wicked ex-step mother. On Friday I am going to Atlanta to Emory for my 12th week visit in the Step Trial. Saturday morning I will be at my church very early for the school supplies to be given out to needy children. And that is how my week is going.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

P.S. I am very excited about the STEP Trial.

> >> > Good evening from North Carolina!> > Just wanted to say hey and see how everyone is tonight. I hope > there were lots of fun weekends throughout our group. I spent > some relatively quiet time in the last couple of days. I've been > tired and very achey for the last little bit. The rash on my hands is > acting

up and the itching makes me want to lop off my hands with a > cleaver (ok I know that's a little dramatic but y'all get the > picture.) I've also been coughing a little more than usual and have > been needing a bit more oxygen which of course makes me nervous. I'm > not too worried. If these kind of low grade symptoms continue for > another couple of days I'll call the doctor... ..we'll see what > happens. > > Sometimes I wonder if I'm pushing a little too hard, I'm working 3 > days a week taking care of the elderly mother of a friend (but on > those 3 days I only work about 4 hours each day) and then using the > treadmill 5 days a week. I do have my parents 50th wedding > anniversary party coming up for which I'm doing most of the planning > and coordinating. It's not physical work, just mental (which > probably explains

why it's so exhausting for me LOL) > > OK I'll stop babbling now, just wanted to say hey > to everyone! Enjoy the rest of the evening!> > Beth > > Age 48 Fibrotic NSIP 06/06 UCTD 07/08> > > > Change everything. Love and Forgive > >>

[Guest guest]

Beth,

Somehow I will try to work in plenty of "down" time. But I feel guilty if I am not doing chores, etc. around the house. I do depend on for some of my "legwork" as she is usually the one to take Max on his walks. I spent this past weekend in the house. Today the temp here was almost 100 and I can hardly even stand to open the door. The humidity is so high today. After exercising today, I was walking to my car and I met a girl that was using oxygen. she asked me about my O2 and I asked her about her need for O2. (She was using the tanks that you & Leanne use). She told me that she had fibrosis in her lungs and her rheumy thinks she has schleraderma. I told her about our group. She was younger than me and too young to be afflicted. I hope she will join.

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl> > >> > > Good evening from North Carolina!> > > Just wanted to say hey and see how everyone is tonight. I hope > > there were lots of fun weekends throughout our group. I spent > > some relatively quiet time in the last couple of days. I've been > > tired and very achey for the last little bit. The rash on my hands is > > acting up and the itching makes me want to lop off my hands with a > > cleaver (ok I know that's a little dramatic but y'all get the > > picture.) I've also been coughing a little more than usual and have > > been needing a bit more oxygen which of course makes me nervous. I'm > > not too worried. If these kind of low grade symptoms continue for > > another couple of days I'll call the doctor... ..we'll see what > > happens. > > > Sometimes I wonder if I'm pushing a little too hard, I'm working 3 > > days a week taking care of the elderly mother of a friend (but on > > those 3 days I only work about 4 hours each day) and then using the > > treadmill 5 days a week. I do have my parents 50th wedding > > anniversary party coming up for which I'm doing most of the planning > > and coordinating. It's not physical work, just mental (which > > probably explains why it's so exhausting for me LOL) > > > OK I'll stop babbling now, just wanted to say hey > > to everyone! Enjoy the rest of the evening!> > > Beth > > > Age 48 Fibrotic NSIP 06/06 UCTD 07/08> > > > > > Change everything. Love and Forgive > > >> >>

[Guest guest]

Jane

Almost 100? Oh what we would have given for almost 100.....

It was 105 here yesterday and today and will be tomorrow as well.

> > > >

> > > > Good evening from North Carolina!

> > > > Just wanted to say hey and see how everyone is tonight. I hope

> > > there were lots of fun weekends throughout our group. I spent

> > > some relatively quiet time in the last couple of days. I've been

> > > tired and very achey for the last little bit. The rash on my hands

> is

> > > acting up and the itching makes me want to lop off my hands with a

> > > cleaver (ok I know that's a little dramatic but y'all get the

> > > picture.) I've also been coughing a little more than usual and

> have

> > > been needing a bit more oxygen which of course makes me nervous.

I'm

> > > not too worried. If these kind of low grade symptoms continue for

> > > another couple of days I'll call the doctor... ..we'll see what

> > > happens.

> > > > Sometimes I wonder if I'm pushing a little too hard, I'm working

3

> > > days a week taking care of the elderly mother of a friend (but on

> > > those 3 days I only work about 4 hours each day) and then using

the

> > > treadmill 5 days a week. I do have my parents 50th wedding

> > > anniversary party coming up for which I'm doing most of the

planning

> > > and coordinating. It's not physical work, just mental (which

> > > probably explains why it's so exhausting for me LOL)

> > > > OK I'll stop babbling now, just wanted to say hey

> > > to everyone! Enjoy the rest of the evening!

> > > > Beth

> > > > Age 48 Fibrotic NSIP 06/06 UCTD 07/08

> > > >

> > > > Change everything. Love and Forgive

> > > >

> > >

> >

>

[Guest guest]

, I'm sorry you're in so much pain. I will be praying for you.

Joyce J.

Subject: Hi EverybodyTo: Breathe-Support Date: Tuesday, July 29, 2008, 9:58 PM

Hey everybody *hugs* hope everyone is doing okay. This past week so far has been one of my worst. I've been in alot of pain and even with all the pain meds I hurt alot. Besides my chest hurting always; my side has started to get real bad...it feels like I either bruised or pulled something really hard while coughing. I've been having trouble sleeping (and laying down) and walking aches so bad because of my side. So I end up sleeping all day because I stay up all night. I put my oxy up to 4 for about 5 minutes today after a real bad coughing fit. I don't think the steroids my lung doc put me on is doing anything worth while I hope I get yanked off of them. I see lung doctor for a follow up next week; I get a CT scan before I see her. I've also been feeling a general "blah". Take care everybody./23/ Ohio ~ Non-Hodgkins Lymphoma Survivor 2 years 12/2005 ~ Autologus Bone Marrow

Transplant 09/2006 ~ Pulmonary Fibrosis due to chemotherapy 06/2008 ~.

[Guest guest]

Thank you =)

I was looking on google, which I shouldn't I always throw things out

of porportion when I look up symptoms. I still have my appendix,

kinda worried it's that causing all the pain. It hurts to hiccup and

yawn too.

/23/Ohio ~ Non-Hodgkins Lymphoma Survivor 2 years 12/2005 ~

Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis due to

chemotherapy 06/2008 ~.

>

>

> Subject: Hi Everybody

> To: Breathe-Support

> Date: Tuesday, July 29, 2008, 9:58 PM

>

>

>

>

>

>

> Hey everybody *hugs* hope everyone is doing okay. This past week so

far

> has been one of my worst. I've been in alot of pain and even with

all

> the pain meds I hurt alot. Besides my chest hurting always; my side

has

> started to get real bad...it feels like I either bruised or pulled

> something really hard while coughing. I've been having trouble

sleeping

> (and laying down) and walking aches so bad because of my side. So I

end

> up sleeping all day because I stay up all night. I put my oxy up to

4

> for about 5 minutes today after a real bad coughing fit. I don't

think

> the steroids my lung doc put me on is doing anything worth while I

hope

> I get yanked off of them. I see lung doctor for a follow up next

week;

> I get a CT scan before I see her. I've also been feeling a

> general " blah " .

>

> Take care everybody.

>

> /23/ Ohio ~ Non-Hodgkins Lymphoma Survivor 2 years 12/2005

~

> Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis due

to

> chemotherapy 06/2008 ~.

>

[Guest guest]

Kim. sorry to read you've been having trouble lately. What a bad draw you have with so much at such a young age. I'm sorry.

God Bless you.

MamaSher, age 69. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Hi Everybody

Hey everybody *hugs* hope everyone is doing okay. This past week so far has been one of my worst. I've been in alot of pain and even with all the pain meds I hurt alot. Besides my chest hurting always; my side has started to get real bad...it feels like I either bruised or pulled something really hard while coughing. I've been having trouble sleeping (and laying down) and walking aches so bad because of my side. So I end up sleeping all day because I stay up all night. I put my oxy up to 4 for about 5 minutes today after a real bad coughing fit. I don't think the steroids my lung doc put me on is doing anything worth while I hope I get yanked off of them. I see lung doctor for a follow up next week; I get a CT scan before I see her. I've also been feeling a general "blah". Take care everybody./23/Ohio ~ Non-Hodgkins Lymphoma Survivor 2 years 12/2005 ~ Autologus Bone Marrow Transplant 09/2006 ~ Pulmonary Fibrosis due to chemotherapy 06/2008 ~.