Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 , Your niece casey has a long road to travel yet. Just remind her..one step at a time. We'll be thinking good thoughts to help her along. Z fibriotic NSIP/05 Z 64, fibriotic NSIP/o5/PA And “mild” PH/10/07 and Reynaud’s too!! No, NSIP was not self-inflicted…I never smoked! Potter, reader,carousel lover and MomMom to Darah and Sara “I’m gonna be iron like a lion in Zion” Bob Marley Vinca Minor-periwinkle is my flower wrote: For those of you who've been enquiring after my niece, Casey, she's back in her hone town in a Rehab Unit. It was also her birthday on the 17th & she turned 24. It was a difficult day for her as she saw herself in a mirror for the first time the day before & got quite a shock. The reality is starting to hit home for her now which is so so hard for such a vibrant young woman to come to grips with. Everyone around her is just so happy that she pulled thorugh they don't give a toss about how she looks but SHE does of course. Her left eye is droopy, almost totally shut & her right eye is 'wandering' & stuck open. That's just one little example but gives the gist of what she' going to have to adapt to. I'm not sure if they can do anything about the wandering eye...maybe it's muscular & they'll be able to help her with that. It's such early days yet they haven't even been able to test for what sort of useful vision she's got in each eye. She IS swallowing after a fashion but she has to be so careful & really concentrate hard to make sure it hapens right. It's a huge effort instead of being an automatic action. That is however a huge improvement on the notion of having a tube directly into her stomach. On & on it goes......of course with the underlying amxiety that the rotten AVM could blow again at any moment 'cos they haven't yet been able to islolate it due to where it is in her brain! I don't think she's been told about that bit yet! Her brother & friends are really shocked at what can happen to someone their own age right out of the blue like that. We all hate car accidents for the damage they cause but at least we 'know' they occur somewhere in the deep depths of our mind even if we never think it'll happen to us or anyone we love. This sort of thing we have no preparation for...something we've never even heard of & WHAM there it is! Thanks for keeping her in your thoughts & prayers everyone...it means a lot, love, in Oz No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.1/1560 - Release Date: 7/18/2008 6:47 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 ... thanks for the update on Casey. I think of her often and wonder how she is. I know it's hard on all the family to see such a young girl fight this condition. I continue to pray for her. MamaSher, age 69. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Casey Update For those of you who've been enquiring after my niece, Casey, she's back in her hone town in a Rehab Unit. It was also her birthday on the 17th & she turned 24. It was a difficult day for her as she saw herself in a mirror for the first time the day before & got quite a shock. The reality is starting to hit home for her now which is so so hard for such a vibrant young woman to come to grips with. Everyone around her is just so happy that she pulled thorugh they don't give a toss about how she looks but SHE does of course. Her left eye is droopy, almost totally shut & her right eye is 'wandering' & stuck open. That's just one little example but gives the gist of what she' going to have to adapt to. I'm not sure if they can do anything about the wandering eye...maybe it's muscular & they'll be able to help her with that. It's such early days yet they haven't even been able to test for what sort of useful vision she's got in each eye. She IS swallowing after a fashion but she has to be so careful & really concentrate hard to make sure it hapens right. It's a huge effort instead of being an automatic action. That is however a huge improvement on the notion of having a tube directly into her stomach. On & on it goes......of course with the underlying amxiety that the rotten AVM could blow again at any moment 'cos they haven't yet been able to islolate it due to where it is in her brain! I don't think she's been told about that bit yet! Her brother & friends are really shocked at what can happen to someone their own age right out of the blue like that. We all hate car accidents for the damage they cause but at least we 'know' they occur somewhere in the deep depths of our mind even if we never think it'll happen to us or anyone we love. This sort of thing we have no preparation for...something we've never even heard of & WHAM there it is! Thanks for keeping her in your thoughts & prayers everyone...it means a lot, love, in Oz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 That sort of puts most of our problems much more in perspective. This is one of those horrible shocks that no one can understand and complicated by the doctors still working to figure it all out. We can all sympathize but even with all our illnesses there isn't one of us here who can really imagine how she feels. All we can do is just hope each day is a little better than the one before. > > > For those of you who've been enquiring after my niece, Casey, she's back > in her hone town in a Rehab Unit. It was also her birthday on the 17th & > she turned 24. It was a difficult day for her as she saw herself in a > mirror for the first time the day before & got quite a shock. The > reality is starting to hit home for her now which is so so hard for such > a vibrant young woman to come to grips with. > > Everyone around her is just so happy that she pulled thorugh they don't > give a toss about how she looks but SHE does of course. Her left eye is > droopy, almost totally shut & her right eye is 'wandering' & stuck open. > That's just one little example but gives the gist of what she' going to > have to adapt to. I'm not sure if they can do anything about the > wandering eye...maybe it's muscular & they'll be able to help her with > that. It's such early days yet they haven't even been able to test for > what sort of useful vision she's got in each eye. > > She IS swallowing after a fashion but she has to be so careful & really > concentrate hard to make sure it hapens right. It's a huge effort > instead of being an automatic action. That is however a huge improvement > on the notion of having a tube directly into her stomach. > > On & on it goes......of course with the underlying amxiety that the > rotten AVM could blow again at any moment 'cos they haven't yet been > able to islolate it due to where it is in her brain! I don't think she's > been told about that bit yet! > > Her brother & friends are really shocked at what can happen to someone > their own age right out of the blue like that. We all hate car accidents > for the damage they cause but at least we 'know' they occur somewhere in > the deep depths of our mind even if we never think it'll happen to us or > anyone we love. This sort of thing we have no preparation > for...something we've never even heard of & WHAM there it is! > > Thanks for keeping her in your thoughts & prayers everyone...it means a > lot, > > love, > > in Oz > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2008 Report Share Posted July 18, 2008 Hi Thankyou for the update. Yes it must be a shock for the poor love. Hopefully things will get back to normal after time. She, you and the rest of your family remain in my thoughts. Love Ze xx>> > For those of you who've been enquiring after my niece, Casey, she's back> in her hone town in a Rehab Unit. It was also her birthday on the 17th & > she turned 24. It was a difficult day for her as she saw herself in a> mirror for the first time the day before & got quite a shock. The> reality is starting to hit home for her now which is so so hard for such> a vibrant young woman to come to grips with.> > Everyone around her is just so happy that she pulled thorugh they don't> give a toss about how she looks but SHE does of course. Her left eye is> droopy, almost totally shut & her right eye is 'wandering' & stuck open.> That's just one little example but gives the gist of what she' going to> have to adapt to. I'm not sure if they can do anything about the> wandering eye...maybe it's muscular & they'll be able to help her with> that. It's such early days yet they haven't even been able to test for> what sort of useful vision she's got in each eye.> > She IS swallowing after a fashion but she has to be so careful & really> concentrate hard to make sure it hapens right. It's a huge effort> instead of being an automatic action. That is however a huge improvement> on the notion of having a tube directly into her stomach.> > On & on it goes......of course with the underlying amxiety that the> rotten AVM could blow again at any moment 'cos they haven't yet been> able to islolate it due to where it is in her brain! I don't think she's> been told about that bit yet!> > Her brother & friends are really shocked at what can happen to someone> their own age right out of the blue like that. We all hate car accidents> for the damage they cause but at least we 'know' they occur somewhere in> the deep depths of our mind even if we never think it'll happen to us or> anyone we love. This sort of thing we have no preparation> for...something we've never even heard of & WHAM there it is!> > Thanks for keeping her in your thoughts & prayers everyone...it means a> lot,> > love,> > in Oz> Quote Link to comment Share on other sites More sharing options...
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