Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 J/J, Here's my 2 cents....as long as you know what it's worth! The headache is likely a side effect of the Norvasc and will subside as your body adjusts to the drug. I don't think that your bp being elevated is necessarily a sign that your ipf is progressing at least not directly. However, it could be a sign that your heart is stressed and your heart could be stressed because of the difficulty of getting the blood through your lungs. What bothers me more than the blood pressure is a pulse rate of 140 while your sats are 93. That's a high pulse rate. Is that during exertion or resting? If it's resting that's very fast and could be cause for concern. Joe I'm glad you're being re-evaluated soon. Are they going to do an echocardiogram? I would ask them to check for pulmonary hypertension as it's an almost inevitible development at some point with this disease and without treatment is dangerous. Please ask about it. Beth Age 48 Fibrotic NSIP 06/06 Change everything. Love and Forgive JOE & JOANIE DEAR GROUP, JOE STARTED ON NORVASC TODAY FOR HIS BLOOD PRESSURE AND I WONDERED IF ANYONE ELSE IS ON THIS DRUG ALSO...HE HAD A TERRIBLE HEADACHE AND THE PHARMACIST TOLD HIM HE WOULD BE DIZZY FOR THE FIRST COUPLE OF WEEKS. ALSO I WONDER IF THE RISE IN BLOOD PRESSURE IS A "SIGN" THAT IPF IS GETTING WORSE BECAUSE HE USED TO BE 110/80 AND NOW AT REST HE IS 155/110, AND WITH EXERTION AFTER 1-2 MINUTES IT REALLY JUMPS UP THERE. HIS PULSE RATE STAYS AROUND 140 WHEN OXIMETER READS 93 WHILE OFF HIS OXYGEN. ANY THOUGHTS WOULD BE APPRECIATED, HIS NEXT APPOINTMENT AND REASSESSMENT IS JUNE 27 AT EMORY SO HE IS RECORDING BLOOD PRESSURE , PULSE, O2, ETC FOR THE DR. TO REVIEW. JOANIE     JOE/JOANIE JOE 60 IPF1/2008 GRIFFIN, GA. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2008 Report Share Posted June 12, 2008 J/J/MB Adding my penny to MB's two cents. I second, third, fourth and a million MB's emphasis on an echocardiogram. And, I repeat and will continue to do so even if I sound like a broken record (well, my first crusade was oximeters and we've made huge progress there) that ECHOCARDIOGRAMS ARE MORE IMPORTANT THAN PFT's and CT's TO PF'ers. Again, the reason I say that is that the watch for PH and right side hard damage is crucial and not detectable just by how you feel. Don't let PH do you in before your lungs do. If an echo indicates a potential issue then it will be followed by a catheter. But if you are developing PH you must get treatment. Tracleer (Bosentan) and Revatio are often used. Ask Joyce what kind of lifesaver Flolan is. And there are others. The echocardiogram can warn you. The catheter can detect. PFT's help the doctor track but tell you nothing you don't already know. CT's the same except why take unnecessary x-rays. Your sats and sob and how you feel tell you what the PFT and CT confirm. But echocardiograms save lives. Now I'm not saying not to have PFT's or CT's (although more than once a year for CT's probably serves no purpose). I am saying you should have echocardiograms at least once a year and I personally will never go more than six months without one. > > J/J, > Here's my 2 cents....as long as you know what it's worth! The headache is likely a side effect of the Norvasc and will subside as your body adjusts to the drug. I don't think that your bp being elevated is necessarily a sign that your ipf is progressing at least not directly. However, it could be a sign that your heart is stressed and your heart could be stressed because of the difficulty of getting the blood through your lungs. What bothers me more than the blood pressure is a pulse rate of 140 while your sats are 93. That's a high pulse rate. Is that during exertion or resting? If it's resting that's very fast and could be cause for concern. > Joe I'm glad you're being re-evaluated soon. Are they going to do an echocardiogram? I would ask them to check for pulmonary hypertension as it's an almost inevitible development at some point with this disease and without treatment is dangerous. Please ask about it. > >  Beth > Age 48 Fibrotic NSIP 06/06 >  > Change everything. Love and Forgive   >  >  > > > > JOE & JOANIE > > > DEAR GROUP, > JOE STARTED ON NORVASC TODAY FOR HIS BLOOD PRESSURE AND I WONDERED IF ANYONE ELSE IS ON THIS DRUG ALSO...HE HAD A TERRIBLE HEADACHE AND THE PHARMACIST TOLD HIM HE WOULD BE DIZZY FOR THE FIRST COUPLE OF WEEKS. ALSO I WONDER IF THE RISE IN BLOOD PRESSURE IS A " SIGN " THAT IPF IS GETTING WORSE BECAUSE HE USED TO BE 110/80 AND NOW AT REST HE IS 155/110, AND WITH EXERTION AFTER 1-2 MINUTES IT REALLY JUMPS UP THERE. HIS PULSE RATE STAYS AROUND 140 WHEN OXIMETER READS 93 WHILE OFF HIS OXYGEN. ANY THOUGHTS WOULD BE APPRECIATED, HIS NEXT APPOINTMENT AND REASSESSMENT IS JUNE 27 AT EMORY SO HE IS RECORDING BLOOD PRESSURE , PULSE, O2, ETC FOR THE DR. TO REVIEW. > JOANIE >     JOE/JOANIE > JOE 60 IPF1/2008 > GRIFFIN, GA. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Hypertension is one of the side effects of Prednisone, is he on it? Geeta -- In Breathe-Support , " JOE & JOANIE LAMENSKIE " wrote: > > DEAR GROUP, > JOE STARTED ON NORVASC TODAY FOR HIS BLOOD PRESSURE AND I WONDERED IF ANYONE > ELSE IS ON THIS DRUG ALSO...HE HAD A TERRIBLE HEADACHE AND THE PHARMACIST > TOLD HIM HE WOULD BE DIZZY FOR THE FIRST COUPLE OF WEEKS. ALSO I WONDER IF > THE RISE IN BLOOD PRESSURE IS A " SIGN " THAT IPF IS GETTING WORSE BECAUSE HE > USED TO BE 110/80 AND NOW AT REST HE IS 155/110, AND WITH EXERTION AFTER 1-2 > MINUTES IT REALLY JUMPS UP THERE. HIS PULSE RATE STAYS AROUND 140 WHEN > OXIMETER READS 93 WHILE OFF HIS OXYGEN. ANY THOUGHTS WOULD BE APPRECIATED, > HIS NEXT APPOINTMENT AND REASSESSMENT IS JUNE 27 AT EMORY SO HE IS RECORDING > BLOOD PRESSURE , PULSE, O2, ETC FOR THE DR. TO REVIEW. > JOANIE >     JOE/JOANIE > JOE 60 IPF1/2008 > GRIFFIN, GA. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Gita, Joe has been off prednisone for a couple of months now. He did have an echocardiagram in January and it was normal. Bruce was kind enough to respond also and suggested an echo...we continue to monitor Blood pressure, pulse and O2 and are writing it down on a chart for doc to see 6/27. We also have a PF support group meeting at Emory on the 19th so he will be able to ask about the high pulse rate then also. Will keep everyone posted, thanks for the reply..     JOE/JOANIE JOE 60 IPF1/2008 GRIFFIN, GA. -- Re: JOE & JOANIE Hypertension is one of the side effects of Prednisone, is he on it?Geeta-- In Breathe-Support , "JOE & JOANIE LAMENSKIE" wrote:>> DEAR GROUP,> JOE STARTED ON NORVASC TODAY FOR HIS BLOOD PRESSURE AND I WONDERED IF ANYONE> ELSE IS ON THIS DRUG ALSO...HE HAD A TERRIBLE HEADACHE AND THE PHARMACIST> TOLD HIM HE WOULD BE DIZZY FOR THE FIRST COUPLE OF WEEKS. ALSO I WONDER IF> THE RISE IN BLOOD PRESSURE IS A "SIGN" THAT IPF IS GETTING WORSE BECAUSE HE> USED TO BE 110/80 AND NOW AT REST HE IS 155/110, AND WITH EXERTION AFTER 1-2> MINUTES IT REALLY JUMPS UP THERE. HIS PULSE RATE STAYS AROUND 140 WHEN> OXIMETER READS 93 WHILE OFF HIS OXYGEN. ANY THOUGHTS WOULD BE APPRECIATED,> HIS NEXT APPOINTMENT AND REASSESSMENT IS JUNE 27 AT EMORY SO HE IS RECORDING> BLOOD PRESSURE , PULSE, O2, ETC FOR THE DR. TO REVIEW.> JOANIE>     JOE/JOANIE > JOE 60 IPF1/2008> GRIFFIN, GA.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 21, 2008 Report Share Posted June 21, 2008 Hi Jane, Last week we had bad weather....severe thunderstorms, lightning, rain and a tornado touched down, 2 hours from were I live. Further from us they had hail. This week it seems the weather is doing better, but it's pretty cold though. Irene > Hey! > > Did y'all have the bad weather? I think up here in Dalton, we were > lucky today because it went south of us. Hope y'all are doing well > today. > > Toodles! > > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl Quote Link to comment Share on other sites More sharing options...
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