Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 i just read there are no tests for it, but that symptoms must increase drastically after a flare up of strep.... my son has always been all over the place, and he would get strep infections up to 6 a year with fevers over 105 degrees. he also had scarlet fever when he was a lil over 1, and that was a nightmare with the doctor as well... but when i asked my DAN! dr. about it being a possibility he said he did not have enough of the symptoms to be an issue.. so i was just wondering as i always do... wondering leads me to many great discoveries=] thanks for ur help =] jenifer Re: Re: Autism & PANDAS This is how you know: Anti Neuronal antibodies related to strep attacking the basal ganglia You can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 I think PANDAS children can act normal for periods of time, esp after antibiotics. So for instance, if your child had a bunch of autistic symptoms flare up which included also OCD and tics, irrational fears, and then after antibiotics, your child seemed to get better for a period of time, that would make me think of PANDAS. With or without the titers being elevated. I thought my children were PANDAS for a bit, but they tested negative. Now I feel like they are viral kids... and the reason they were getting better after antibiotics was merely (I guess) that there is some underlying inflammation which was being alleviated when they were sick because I was also giving motrin with the antibiotics. i just read there are no tests for it, but that symptoms must increase drastically after a flare up of strep.... my son has always been all over the place, and he would get strep infections up to 6 a year with fevers over 105 degrees. he also had scarlet fever when he was a lil over 1, and that was a nightmare with the doctor as well... but when i asked my DAN! dr. about it being a possibility he said he did not have enough of the symptoms to be an issue.. so i was just wondering as i always do... wondering leads me to many great discoveries=] thanks for ur help =] jenifer Re: Re: Autism & PANDAS This is how you know: Anti Neuronal antibodies related to strep attacking the basal ganglia You can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 PANDAS Is sudden onset with exposure to strep (there is another name for those that have that with viral onset) and it comes and goes, a normal child to sudden autism child compairson. it's extream and over night personality change. autism is consistant, PANDAS is not From: uhlmiller@... Sent: Thursday, February 03, 2011 8:35 PM To: mb12 valtrex Subject: Re: Re: Autism & PANDAS that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other?jenifer =] Re: Autism & PANDAS Anti Neuronal antibodies related to strep attacking the basal ganglia causing OCD, movement disorders, tantrums, tics, excessive urination, irrational fears, hyperactivity, sleep disturbances, loss of math skills, poor handwriting and more.My son is doing well on long term augmentin. Have you read the book, "Saving Sammy?"There is a yahoo group where we discuss treatments and doctors. Also the pandasnetwork.org is a good resource.Caryn>> Who's famailiar with Autism and Pandas? Pandas is a new word for me....and our grandson is starting supplements to help.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 with a history of more then 2-3 strep infections you need to test for it and YES there is a test for it, it's blood titers drawn 4-6 weeks after symptoms flare. you can also confirm by seeing them go away with antibiotics From: uhlmiller@... Sent: Thursday, February 03, 2011 10:58 PM To: mb12 valtrex Subject: Re: Re: Autism & PANDAS i just read there are no tests for it, but that symptoms must increase drastically after a flare up of strep.... my son has always been all over the place, and he would get strep infections up to 6 a year with fevers over 105 degrees. he also had scarlet fever when he was a lil over 1, and that was a nightmare with the doctor as well... but when i asked my DAN! dr. about it being a possibility he said he did not have enough of the symptoms to be an issue.. so i was just wondering as i always do... wondering leads me to many great discoveries=] thanks for ur help =]jenifer Re: Re: Autism & PANDAS This is how you know: Anti Neuronal antibodies related to strep attacking the basal ganglia You can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other?jenifer =] Quote Link to comment Share on other sites More sharing options...
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