Re: Re: Don't know how much more I can take......UPDATE

[Guest guest]

Thank God! I am so relieved for you guys. Don't be afraid of the antibiotics - it will save your son's life.

I am wondering - did you stop the valtrex or are you doing both?

-Tammy

To: mb12 valtrex Cc: pom5903 Sent: Sun, January 30, 2011 8:25:18 PMSubject: Re: Re: Don't know how much more I can take......UPDATE

Thanks to all who helped yesterday.....after 1 dose of antibiotics my son has had a much better day.....this appears to have been a PANDAS issue...and not the valtrex.--Kasey Dettinger---- pom5903 wrote: > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic> > > >

> > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts.

How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >

[Guest guest]

well I am glad you got an answer but sad that we have another amoungst our ranks....we are hear for you!

From: kldett@...

Sent: Sunday, January 30, 2011 8:25 PM

To: mb12 valtrex

Cc: pom5903

Subject: Re: Re: Don't know how much more I can take......UPDATE

Thanks to all who helped yesterday.....after 1 dose of antibiotics my son has had a much better day.....this appears to have been a PANDAS issue...and not the valtrex.--Kasey Dettinger---- pom5903 wrote: > You need to get blood work such as ASO and anti-Dnase antibody titers to see if there has ever been a strep exposure, in the present or past. PANDAS experts are finding that not only strep is causing symptoms of PANDAS, but mycoplasma pneumonia (test myco-p IgA and IgM), lyme, and viral infections. Strep is often the first infection to start it, but any of these subsequent infections can exacerbate the craziness again. > > > > > > RUN to your dr and get him tested for strep you just discribed PANDAS to a T and it's treatable and you can get QUICK results with the right antibiotic> > > > > > > > > > > > > > > > From: kldett@... > > > > Sent: Saturday, January 29, 2011 10:19 AM> > > > To: mb12 valtrex > > > > Subject: Don't know how much more I can take......> > > > > > > > > > > > > > > > I wrote a few days ago how awful this regression has been from the valtrex and diflucan....and someone suggested to go back and read Stan's paper which I did. It's been about 5 weeks and seriously I don't know how much longer I can watch him hit his head and bite and scratch himself/others. I am afraid he is going to hurt his sister. I can tell something is coming out of him right now because he is very raspy and sounds like his throat hurts. How bad do you let it get before you call it quits.....it is really affecting everyone in our home.....> > > > --> > > > Kasey> > > > > > > > > > > > > > > > > >> >> >