Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] Re: Autism & PANDAS Anti Neuronal antibodies related to strep attacking the basal ganglia causing OCD, movement disorders, tantrums, tics, excessive urination, irrational fears, hyperactivity, sleep disturbances, loss of math skills, poor handwriting and more. My son is doing well on long term augmentin. Have you read the book, "Saving Sammy?" There is a yahoo group where we discuss treatments and doctors. Also the pandasnetwork.org is a good resource. Caryn > > Who's famailiar with Autism and Pandas? Pandas is a new word for me....and our grandson is starting supplements to help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 We have 2 w Pandas, one also has PDD/Autism. " pandas_autism " ACN Forums are also great. What do you need help with? OK to e-mail me off list. > > Who's famailiar with Autism and Pandas? Pandas is a new word for me....and our grandson is starting supplements to help. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 This is how you know: Anti Neuronal antibodies related to strep attacking the basal gangliaYou can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 so u literally have to have all of the symptoms or is it like other autism breakdowns and it might just be SOME of those..... i thought walking on ur tip toes was a good sign too... jenifer =] Re: Re: Autism & PANDAS This is how you know: Anti Neuronal antibodies related to strep attacking the basal ganglia You can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 No, you don't have to have all the symptoms. But having any of them are definitely indicators that you'll want to test. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ so u literally have to have all of the symptoms or is it like other autism breakdowns and it might just be SOME of those..... i thought walking on ur tip toes was a good sign too... jenifer =] Re: Re: Autism & PANDAS This is how you know: Anti Neuronal antibodies related to strep attacking the basal ganglia You can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 3, 2011 Report Share Posted February 3, 2011 I forgot to say something. here it is.Wow. With 6 strep infections a year, I would pull titers - it wouldn't matter to me if he didn't show enough symptoms. It's not an expensive test and it's covered by insurance. You can get it through your local lab. I'm surprised your DAN dismissed it based on a lack of symptoms. Especially if he's all over the place. That's kind of crazy to me to not test something like this when it's so cheap to do. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ i just read there are no tests for it, but that symptoms must increase drastically after a flare up of strep.... my son has always been all over the place, and he would get strep infections up to 6 a year with fevers over 105 degrees. he also had scarlet fever when he was a lil over 1, and that was a nightmare with the doctor as well... but when i asked my DAN! dr. about it being a possibility he said he did not have enough of the symptoms to be an issue.. so i was just wondering as i always do... wondering leads me to many great discoveries=] thanks for ur help =] jenifer Re: Re: Autism & PANDAS This is how you know: Anti Neuronal antibodies related to strep attacking the basal ganglia You can test for PANDAS. And honestly, it *seems* like it might describe every kid with autism but it actually doesn't. My son never had OCD, tics, movement disorders, or irrational fears (nothing beyond typical for his age). And the only time he's ever lost skills is when he got vaccinated. My son is not a PANDAS kid, if you couldn't tell. Cheryl ~http://www.gryffins-tail.blogspot.com~ ~@Gryffins_Tail~ that basically just described every kid i know with autism... how do u distinguish between it being pandas or the other? jenifer =] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 OCD, irrational fears and tantrums. OCD: my son would do the same thing from morning to night if allowed. Tantrums: when my son refused to leave the house, even at 4 years old we could not fight him as he became superhuman. Irrational fears: my son used to be afraid of water and refuse to bathe. He is also afraid of animals. Although most ASD kids can perseverate on things, I would not necessarily call it OCD. OCD cannot be voluntarily stopped. Caryn > > > > Who's famailiar with Autism and Pandas? Pandas is a new word for me....and our grandson is starting supplements to help. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2011 Report Share Posted February 4, 2011 My son carries this both of these diagnoses. Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of gammiepamieSent: Thursday, February 03, 2011 6:26 PMTo: mb12 valtrex Subject: Autism & PANDAS Who's famailiar with Autism and Pandas? Pandas is a new word for me....and our grandson is starting supplements to help. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2011 Report Share Posted February 5, 2011 I am and would be more then happy to help you however I can, you can reach me off group if you like, chadchristelking@... there is also an autism PANDAS yahoo group like this one if you are intereted From: gammiepamie Sent: Thursday, February 03, 2011 6:26 PM To: mb12 valtrex Subject: Autism & PANDAS Who's famailiar with Autism and Pandas? Pandas is a new word for me....and our grandson is starting supplements to help. Quote Link to comment Share on other sites More sharing options...
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