Re: Bruce and group............................

July 14, 2008

Lou

Sorry today is a trapped day. The trick is to just let it be but then

refuse to be trapped tomorrow.

As to polls, these aren't as serious topics as the last polls which I

think gathered some very meaningful perspective. However, they are just

matters about which I was curious. They will probably just be up

briefly.

>

> I just did the new polls on cannulas. Very interesting to say the

> least. I like the polls, I think they are very helpful.

>

> Wanted to say one thing this morning, as much optimizim and zest that

> I have for life, this morning I feel trapped and confused and my head

> and face feel like it has been hit with a baseball bat, simply

> because not only the cannula across my face, (I know, we do what we

> must do), the part of the cannula that has the little strap

> underneath that you can pull up to keep the cannula sort of fixed in

> one place, I keep that part up on my chin so my neck doesn't get so

> darn tired of the cannula constantly rubbing on my neck and when I

> step on the tubing (which is almost all day long as I move around the

> house all the day long) with the tubing on my chin, it at least

> doesn't bug me so much. I look like some kind of a freakish freak.

> Today I feel trapped. It is almost too much to bear for me today. I

> need some prayers. I don't ask for anything at all on this board,

> but today I am not depressed at all, I just need some prayers. I am

> not venting, just need some extra prayers. My eyesight is not so

> good, and I am trying so very hard to accept all that stuff too.

> Wearing the patch just seems to cover my existance and bury my

> heart. Today I hurt inside and need you guys.

>

> I LOVE YOU THIS DAY !!!

> HEAVEN IS IN THE NEXT ROOM !! (and today I wish I were there)

> MARY LOU - (74) RICHMOND VA

> IPF '02

>

July 14, 2008

Lou honey, I am so so so sorry your going through this kind of day. i have a hint about your cannula if I can explain it. First I do not tighten the thingie under my neck.. next I put the hose around my neck and let it hang down about a foot or so. That helps with the weight of the cannula on your ears.If it catches on anything it tugs on the back of your neck and not your ears and nose. I fortunately can sit without 02 for quite a while. actually I don't go below 92 sitting. These heartache days are no fun. I wish you were here a hug fixes us up sometimes.I love you this day to. God is with you. Love and Prayers, Peggy IPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up."

July 14, 2008

Aw, Lou, I think we all have days like that lovey, I usually rant and rage and through my toys out the pram. It doesn't change anything, just makes me feel better.

Funny isn't it, I dislike the cannula tied up under my chin and only really do it when I'm driving and the hose is caught up in the seat belt.

Sending you much love and strength

Love Ze xx>> I just did the new polls on cannulas. Very interesting to say the > least. I like the polls, I think they are very helpful.> > Wanted to say one thing this morning, as much optimizim and zest that > I have for life, this morning I feel trapped and confused and my head > and face feel like it has been hit with a baseball bat, simply > because not only the cannula across my face, (I know, we do what we > must do), the part of the cannula that has the little strap > underneath that you can pull up to keep the cannula sort of fixed in > one place, I keep that part up on my chin so my neck doesn't get so > darn tired of the cannula constantly rubbing on my neck and when I > step on the tubing (which is almost all day long as I move around the > house all the day long) with the tubing on my chin, it at least > doesn't bug me so much. I look like some kind of a freakish freak. > Today I feel trapped. It is almost too much to bear for me today. I > need some prayers. I don't ask for anything at all on this board, > but today I am not depressed at all, I just need some prayers. I am > not venting, just need some extra prayers. My eyesight is not so > good, and I am trying so very hard to accept all that stuff too. > Wearing the patch just seems to cover my existance and bury my > heart. Today I hurt inside and need you guys.> > I LOVE YOU THIS DAY !!!> HEAVEN IS IN THE NEXT ROOM !! (and today I wish I were there)> MARY LOU - (74) RICHMOND VA> IPF '02>

July 15, 2008

Lou,

I am praying! All of us know exactly what you are going through. I call them my pajama days and try to do things that help me not to focus on how much my life has changed. You are such an upbeat and positive lady and I always enjoy reading your posts, but you wouldn't be human if you didn't get discouraged once in awhile. I am so sorry about your eye and all the tripping, soreness, inconveniences and all the other things about using oxygen that makes you ( and all of us) feel trapped. I am praying that God restores your wonderful sense of humor and sense of peace, that He holds you in ther palms of his hands, gives you calm through this storm, and that you feel the outpouring of love from all of us to help lift you out of the doldrums and back into the light. God bless you Lou,

Sarcoid/PF 3/2006 California

Bruce and group............................

I just did the new polls on cannulas. Very interesting to say the least. I like the polls, I think they are very helpful.Wanted to say one thing this morning, as much optimizim and zest that I have for life, this morning I feel trapped and confused and my head and face feel like it has been hit with a baseball bat, simply because not only the cannula across my face, (I know, we do what we must do), the part of the cannula that has the little strap underneath that you can pull up to keep the cannula sort of fixed in one place, I keep that part up on my chin so my neck doesn't get so darn tired of the cannula constantly rubbing on my neck and when I step on the tubing (which is almost all day long as I move around the house all the day long) with the tubing on my chin, it at least doesn't bug me so much. I look like some kind of a freakish freak. Today I feel trapped. It is almost too much to bear

for me today. I need some prayers. I don't ask for anything at all on this board, but today I am not depressed at all, I just need some prayers. I am not venting, just need some extra prayers. My eyesight is not so good, and I am trying so very hard to accept all that stuff too. Wearing the patch just seems to cover my existance and bury my heart. Today I hurt inside and need you guys.I LOVE YOU THIS DAY !!!HEAVEN IS IN THE NEXT ROOM !! (and today I wish I were there)MARY LOU - (74) RICHMOND VAIPF '02

July 15, 2008

Thank you so much , I feel humbled by your words of comfort.

Yesterday was very hard for me, but my hard days are few as I choose

to keep them kind of free of frustration and " tripping " all over the

place.

I will try very hard to keep my sense of humor so you guys can count

on that. k?

Love, Lou IPF '02

>

> Lou,

> I am praying! All of us know exactly what you are going

through. I call them my pajama days and try to do things that help

me not to focus on how much my life has changed. You are such an

upbeat and positive lady and I always enjoy reading your posts, but

you wouldn't be human if you didn't get discouraged once in awhile.

I am so sorry about your eye and all the tripping, soreness,

inconveniences and all the other things about using oxygen that makes

you ( and all of us) feel trapped. I am praying that God restores

your wonderful sense of humor and sense of peace, that He holds you

in ther palms of his hands, gives you calm through this storm, and

that you feel the outpouring of love from all of us to help lift you

out of the doldrums and back into the light. God bless you

Lou,

>

> Sarcoid/PF 3/2006 California

>

> Bruce and

group............................

>

> I just did the new polls on cannulas. Very interesting to say the

> least. I like the polls, I think they are very helpful.

>

> Wanted to say one thing this morning, as much optimizim and zest

that

> I have for life, this morning I feel trapped and confused and my

head

> and face feel like it has been hit with a baseball bat, simply

> because not only the cannula across my face, (I know, we do what we

> must do), the part of the cannula that has the little strap

> underneath that you can pull up to keep the cannula sort of fixed

in

> one place, I keep that part up on my chin so my neck doesn't get so

> darn tired of the cannula constantly rubbing on my neck and when I

> step on the tubing (which is almost all day long as I move around

the