Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Sher Yes the air is very bad here. However, we do sometimes forget that approximately 20% of the entire US population lives in California and Texas alone. Not sure why we don't have more California members. Almost 1/3 of all US residents live in California, Texas, New York and Florida. The metropolitan area of New York City has a population greater than any states except California and Texas. The City itself has a population greater than 39 of the states do. > > Hi Jen! My gosh, another of us in TX. We have a lot of members from TX. The air there must be really really bad. > > You have been through so much and most of it I don't understand but I'm glad you found us. There is always someone to answer a question and we are good about supporting one another. > > I'm one of the older ones on the board...70 next month. Dx 3-06 and until lately have remained in " The Stables " . I'm on O2 w/exertion and at night. > Actually, my IPF gives me the least amount of problems right now, for which I am grateful! > > I'll watch for your posts. > > MamaSher, age 69. IPF 3-06, OR. > Nasturtiums > Don't fret about tomorrow, God is already there! > > Hello! My introduction > > > Hello. My name is Jen and I'm 37y/o. I was diagnosed w/ IPF in 08/06 > likely due to chemo/radiation from my allogeneic stem cell > transplants in 08/98 and 10/98 secondary to Acute Myelogenous > Leukemia. My brother was my donor who was a perfect match 6/6 > antigens. In 09/99 I developed PCP pneumonia 11 months s/p STC txp > and was intubated for 11 days. I was dx'd with ARDS etc. which > could've also lead to to IPF. Not to mention chronic GVHD (graft vs > host disease) that could or could not be in my lungs. So...with all > that info we are calling it IPF. I am currently listed for double > lung txp (pretty pink puffers) and have been waiting since 01/23/08. > It seems like such a long journey, however in the big scheme of > things it has not been all that long ago that I was diagnosed. I have > been on oxygen since 04/07, but didn't start to really wear it 24/7 > until 05/07 then I just had to buck up and do it. > > Kim - I saw your posting and although I don't wish IPF on anyone but > I am pleased to see that there is another person like me on this > group. I would love to hear more. Over the years I have met many BMT > survivors and organ txp survivors but never someone who has had both. > It is nice to know that I'm not alone. > > I have been following the board for a few days and I'm impressed with > all of the knowledge and support. Thanks for being available. > > I use liquid o2. I wear my canula down, but wore it up for a long > time until I found the softech canulas which fit me the best. > > Much regard. > Jen > AML 04/08, SCtxp 08/98 & 10/98, IPF 08/06. > STL, MO waiting for txp. Reside in Houston, TX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Bruce ... the PNW looks better and better all the time. Good clean air and green trees! MamaSher, age 69. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Hello! My introduction>>> Hello. My name is Jen and I'm 37y/o. I was diagnosed w/ IPF in 08/06> likely due to chemo/radiation from my allogeneic stem cell> transplants in 08/98 and 10/98 secondary to Acute Myelogenous> Leukemia. My brother was my donor who was a perfect match 6/6> antigens. In 09/99 I developed PCP pneumonia 11 months s/p STC txp> and was intubated for 11 days. I was dx'd with ARDS etc. which> could've also lead to to IPF. Not to mention chronic GVHD (graft vs> host disease) that could or could not be in my lungs. So...with all> that info we are calling it IPF. I am currently listed for double> lung txp (pretty pink puffers) and have been waiting since 01/23/08.> It seems like such a long journey, however in the big scheme of> things it has not been all that long ago that I was diagnosed. I have> been on oxygen since 04/07, but didn't start to really wear it 24/7> until 05/07 then I just had to buck up and do it.>> Kim - I saw your posting and although I don't wish IPF on anyone but> I am pleased to see that there is another person like me on this> group. I would love to hear more. Over the years I have met many BMT> survivors and organ txp survivors but never someone who has had both.> It is nice to know that I'm not alone.>> I have been following the board for a few days and I'm impressed with> all of the knowledge and support. Thanks for being available.>> I use liquid o2. I wear my canula down, but wore it up for a long> time until I found the softech canulas which fit me the best.>> Much regard.> Jen> AML 04/08, SCtxp 08/98 & 10/98, IPF 08/06.> STL, MO waiting for txp. Reside in Houston, TX> Quote Link to comment Share on other sites More sharing options...
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