Guest guest Posted February 12, 2011 Report Share Posted February 12, 2011 We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills. So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now! The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE. Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 Sounds viral. I would pull titers and you can certainly test for PANDAS. Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~ We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills. So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now! The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE. Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2011 Report Share Posted February 15, 2011 What test would I request for that? Strep is a bacteria, so I assume it's not titers, is it? > > > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently. > > > > So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it. > > > > This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and " write " books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills. > > > > So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now! > > > > The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE. > > > > Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Can you get a prescription for a month of daily Azithromycin? (Our PANDAS Dr. told me he thinks the 3 antibiotics for PANDAS are Azithromycin, Omnicef, Augmentin, but of course, it can vary) My experience: My child fit the PANDAS clinical diagnosis to a 'T' We did a month of Azith. daily dose, and gave ibuprofen 2x a day-(for thet inflammation part of PANDAS) took copious, detailed notes. It was a WOW for us-but we can't get to a baseline with it, because my dd5 has been dealing with it untreated for years. We also did a blood test through a research university for PANDAS, and my daughter scored high/almost to severe for PANDAS. The month long trial of Azith. and ibuprofen nailed it. (Now we are still on Azith., and doing a 4 day steroid treatment next weekend.) & 5 > > > > can't get LDN these parts . might have some success with the full strength > stuff, but can't get a prescription unless you're a drug addict... infuriating. > son's been largely bonkers the last 2 months > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 But doesn't he write the prescriptions for your current local Dr.? Like a recommendation? I only mention this because with our current insurance medical Dr.'s, I'd be laughed out the door. I thought to get prescriptions you have to actually 'see' a Dr. in person, or at least 1x a year in person... > > That just burns me up....I know I just mentioned it last night to somebody else, > but you guys might want to check out Dr. Kurt Woeller's website and sign on with > him. It's $40/month. You get access to his site, his news letters, webinars, he > answers e-mails, does phone consultations and writes rx's. I know a mom that > uses him and she's very happy with him. I've watched a number of videos from > him - he seems to really know his stuff. It might be an option for you. Good > luck! > > -Tammy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Hi- I just checked Dr. Woeller's website. You can print the prescription he recommends, but you need to take it to an MD near you for their signature/agreement for the prescription. If someone has a local Dr. that is willing to follow this protocol, take direction from another Dr., it would work well, I would think-- Personally, my medical insurance Dr.'s here in CA.- I have taken them diagnosis and testing done by my DAN!, and they ripped it all apart and will not help me in the slightest--- I thank God for our DAN!/PANDAS Dr., but I tell you what-- it is not cheap (preaching to the choir here, I am sure) & 5 > > > > That just burns me up....I know I just mentioned it last night to somebody > >else, > > > > but you guys might want to check out Dr. Kurt Woeller's website and sign on > >with > > > > him. It's $40/month. You get access to his site, his news letters, webinars, he > > > > answers e-mails, does phone consultations and writes rx's. I know a mom that > > uses him and she's very happy with him. I've watched a number of videos from > > him - he seems to really know his stuff. It might be an option for you. Good > > luck! > > > > -Tammy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN, Armour, ordered tests we want run, you name it. No taking the Rx to another doctor. We have never " seen " him except through our Skype consults. (we do have to pay for those out of pocket, but I don't care, because he's worth it) He is fantastic and I definitely recommend him. HTH, Amy Hi- I just checked Dr. Woeller's website. > You can print the prescription he recommends, but you need to take it to an MD near you for their signature/agreement for the prescription. > If someone has a local Dr. that is willing to follow this protocol, take direction from another Dr., it would work well, I would think-- > Personally, my medical insurance Dr.'s here in CA.- I have taken them diagnosis and testing done by my DAN!, and they ripped it all apart and will not help me in the slightest--- > I thank God for our DAN!/PANDAS Dr., but I tell you what-- it is not cheap (preaching to the choir here, I am sure) > & > 5 > > > > > > > > That just burns me up....I know I just mentioned it last night to somebody > > >else, > > > > > > but you guys might want to check out Dr. Kurt Woeller's website and sign on > > >with > > > > > > him. It's $40/month. You get access to his site, his news letters, webinars, he > > > > > > answers e-mails, does phone consultations and writes rx's. I know a mom that > > > uses him and she's very happy with him. I've watched a number of videos from > > > him - he seems to really know his stuff. It might be an option for you. Good > > > luck! > > > > > > -Tammy > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2011 Report Share Posted February 16, 2011 Lynette, I sent you a PM--- That is awesome about Dr. Woeller, what a fantastic service--- > > >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN, Armour, ordered tests we want run, you name it. No taking the Rx to another doctor. We have never " seen " him except through our Skype consults. (we do have to pay for those out of pocket, but I don't care, because he's worth it) He is fantastic and I definitely recommend him. > >HTH, > >Amy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 We used Dr. Woeller's website service for a year too. It was instrumental in our direction for healing, but he IS a doctor and DOES rely on prescriptions for a lot, so we ended up doing a lot of our own research and veering away from his forum a bit. He was helpful with chock full of information which was at my fingertips at any given time, but he didn't have knowledge of the safer biofilm protocol or the safer chelation protocol (in my opinion). We've seen significant healing going our route, so I feel good with our choices. Don't get me wrong, I am not suggesting Dr. Woeller wasn't useful or that you shouldn't consider him, but if you are into natural treatments and going with safer options, keep your eye on other forums for key alternative treatment options. > > > > >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN, Armour, ordered tests we want run, you name it. No taking the Rx to another doctor. We have never " seen " him except through our Skype consults. (we do have to pay for those out of pocket, but I don't care, because he's worth it) He is fantastic and I definitely recommend him. > > >HTH, > > >Amy > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.