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We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5

year old had battled with Clostridia and yeast since he was at least 3 when we

first knew to test him with an OAT and another stool test more recently.

So you would think it would be good news to have a stool test come back totally

clear of everything!! But instead, I am confused. He is colonizing all good

bacteria (not all high, but it's there none the less), has NO opportunistic

bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means

we totally eradicated the Clostridia which was a NASTY bug to deal with. And

both my husband and I have commented on how well he's been doing lately, BUT we

still have some weird things happening with him and I beginning to think we may

still be contending with viral problems, but we have never actually done any

viral titer testing. I think this may be a good time to consider doing so. Can

anyone tell me what titers to have pulled and if it's really expensive, because

I am sure our insurance won't cover it.

This is what we are still noticing with him: he is getting sick more frequently

than he used to (although he fights them pretty fast), when he gets a virus his

sensory stuff comes back and what I thought was a yeast symptom (swatting at his

ears and head) may not even be a yeast sign. He also gets wildly moody when

he's sick. His moods are much better than they used to be, but we are still

seeing an occasional low frustration threshold and we are waiting for the

results of a handwriting evaluation, because he seems to struggle with writing,

although he loves to read and " write " books and cards. He just gets frustrated

with himself. About two years ago when this all started, we had him evaluated

and he had delayed fine motor skills.

So I guess I don't know, if some of this is (aside from the delayed motor

skills) normal or not and if we should be addressing virals more. We currently

give him 500mg of OLE two to three times a day. He's also still reacting to his

antimicrobials, meaning, if we go off them (like for the stool test) he has

die-off of some sort when going back on them. Why would this happen, if he

doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh

and I tried to add Monolaurin in a few times and even one pellet causes

something, die-off or mood swings. Reminds me of when we started killing off

the Clostridia. He did have the MMR and varicela vaccinations so I was thinking

he could have a measles or rubella infection. When we started the OLE, ten days

into using it, he broke out in a rash all over his trunk, like the chicken pox

which is how he also reacted to his vaccinations. Unfortunately, the MMR and

varicela were given at the same time....I know, if only I knew then what I know

now!

The other thing I am considering here is Lyme. He was tested once when he was

one and reacted to his 12 month vaccinations with a month of things including

various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash

on his head (he's VERY blonde, so it was hard to miss) so they did the test

which was negative. The rash wasn't a bullseye, just a round red spot that

didn't stick around long. Should we reconsider this route? I would expect the

Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

Sorry for the long message, trying not to leave anything out so we don't have to

go in circles, lol.

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Sounds viral. I would pull titers and you can certainly test for PANDAS.

Cheryl ~http://www.gryffins-tail.blogspot.com~~@Gryffins_Tail~

We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our 5 year old had battled with Clostridia and yeast since he was at least 3 when we first knew to test him with an OAT and another stool test more recently.

So you would think it would be good news to have a stool test come back totally clear of everything!! But instead, I am confused. He is colonizing all good bacteria (not all high, but it's there none the less), has NO opportunistic bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means we totally eradicated the Clostridia which was a NASTY bug to deal with. And both my husband and I have commented on how well he's been doing lately, BUT we still have some weird things happening with him and I beginning to think we may still be contending with viral problems, but we have never actually done any viral titer testing. I think this may be a good time to consider doing so. Can anyone tell me what titers to have pulled and if it's really expensive, because I am sure our insurance won't cover it.

This is what we are still noticing with him: he is getting sick more frequently than he used to (although he fights them pretty fast), when he gets a virus his sensory stuff comes back and what I thought was a yeast symptom (swatting at his ears and head) may not even be a yeast sign. He also gets wildly moody when he's sick. His moods are much better than they used to be, but we are still seeing an occasional low frustration threshold and we are waiting for the results of a handwriting evaluation, because he seems to struggle with writing, although he loves to read and "write" books and cards. He just gets frustrated with himself. About two years ago when this all started, we had him evaluated and he had delayed fine motor skills.

So I guess I don't know, if some of this is (aside from the delayed motor skills) normal or not and if we should be addressing virals more. We currently give him 500mg of OLE two to three times a day. He's also still reacting to his antimicrobials, meaning, if we go off them (like for the stool test) he has die-off of some sort when going back on them. Why would this happen, if he doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh and I tried to add Monolaurin in a few times and even one pellet causes something, die-off or mood swings. Reminds me of when we started killing off the Clostridia. He did have the MMR and varicela vaccinations so I was thinking he could have a measles or rubella infection. When we started the OLE, ten days into using it, he broke out in a rash all over his trunk, like the chicken pox which is how he also reacted to his vaccinations. Unfortunately, the MMR and varicela were given at the same time....I know, if only I knew then what I know now!

The other thing I am considering here is Lyme. He was tested once when he was one and reacted to his 12 month vaccinations with a month of things including various rashes and fevers, his eyelid swelled up, etc. I had noticed a red rash on his head (he's VERY blonde, so it was hard to miss) so they did the test which was negative. The rash wasn't a bullseye, just a round red spot that didn't stick around long. Should we reconsider this route? I would expect the Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

Sorry for the long message, trying not to leave anything out so we don't have to go in circles, lol.

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What test would I request for that? Strep is a bacteria, so I assume it's not

titers, is it?

>

> > We recently did the Metamtrix DNA stool test with our 2 and 5 year olds. Our

5 year old had battled with Clostridia and yeast since he was at least 3 when we

first knew to test him with an OAT and another stool test more recently.

> >

> > So you would think it would be good news to have a stool test come back

totally clear of everything!! But instead, I am confused. He is colonizing all

good bacteria (not all high, but it's there none the less), has NO opportunistic

bacteria, NO yeast and NO parasites!! So yes, I am very glad for this, it means

we totally eradicated the Clostridia which was a NASTY bug to deal with. And

both my husband and I have commented on how well he's been doing lately, BUT we

still have some weird things happening with him and I beginning to think we may

still be contending with viral problems, but we have never actually done any

viral titer testing. I think this may be a good time to consider doing so. Can

anyone tell me what titers to have pulled and if it's really expensive, because

I am sure our insurance won't cover it.

> >

> > This is what we are still noticing with him: he is getting sick more

frequently than he used to (although he fights them pretty fast), when he gets a

virus his sensory stuff comes back and what I thought was a yeast symptom

(swatting at his ears and head) may not even be a yeast sign. He also gets

wildly moody when he's sick. His moods are much better than they used to be, but

we are still seeing an occasional low frustration threshold and we are waiting

for the results of a handwriting evaluation, because he seems to struggle with

writing, although he loves to read and " write " books and cards. He just gets

frustrated with himself. About two years ago when this all started, we had him

evaluated and he had delayed fine motor skills.

> >

> > So I guess I don't know, if some of this is (aside from the delayed motor

skills) normal or not and if we should be addressing virals more. We currently

give him 500mg of OLE two to three times a day. He's also still reacting to his

antimicrobials, meaning, if we go off them (like for the stool test) he has

die-off of some sort when going back on them. Why would this happen, if he

doesn't have yeast or bacteria, can virals cause that same sort of reaction? Oh

and I tried to add Monolaurin in a few times and even one pellet causes

something, die-off or mood swings. Reminds me of when we started killing off the

Clostridia. He did have the MMR and varicela vaccinations so I was thinking he

could have a measles or rubella infection. When we started the OLE, ten days

into using it, he broke out in a rash all over his trunk, like the chicken pox

which is how he also reacted to his vaccinations. Unfortunately, the MMR and

varicela were given at the same time....I know, if only I knew then what I know

now!

> >

> > The other thing I am considering here is Lyme. He was tested once when he

was one and reacted to his 12 month vaccinations with a month of things

including various rashes and fevers, his eyelid swelled up, etc. I had noticed a

red rash on his head (he's VERY blonde, so it was hard to miss) so they did the

test which was negative. The rash wasn't a bullseye, just a round red spot that

didn't stick around long. Should we reconsider this route? I would expect the

Lyme bacteria to react to his antimicrobials which are GSE, OoO and OLE.

> >

> > Sorry for the long message, trying not to leave anything out so we don't

have to go in circles, lol.

> >

> >

> >

> >

>

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Can you get a prescription for a month of daily Azithromycin? (Our PANDAS Dr.

told me he thinks the 3 antibiotics for PANDAS are Azithromycin, Omnicef,

Augmentin, but of course, it can vary)

My experience: My child fit the PANDAS clinical diagnosis to a 'T'

We did a month of Azith. daily dose, and gave ibuprofen 2x a day-(for thet

inflammation part of PANDAS) took copious, detailed notes.

It was a WOW for us-but we can't get to a baseline with it, because my dd5 has

been dealing with it untreated for years.

We also did a blood test through a research university for PANDAS, and my

daughter scored high/almost to severe for PANDAS.

The month long trial of Azith. and ibuprofen nailed it.

(Now we are still on Azith., and doing a 4 day steroid treatment next weekend.)

&

5

>

>

>

> can't get LDN these parts :( . might have some success with the full strength

> stuff, but can't get a prescription unless you're a drug addict...

infuriating.

> son's been largely bonkers the last 2 months

>

>

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But doesn't he write the prescriptions for your current local Dr.?

Like a recommendation?

I only mention this because with our current insurance medical Dr.'s, I'd be

laughed out the door.

I thought to get prescriptions you have to actually 'see' a Dr. in person, or at

least 1x a year in person...

>

> That just burns me up....I know I just mentioned it last night to somebody

else,

> but you guys might want to check out Dr. Kurt Woeller's website and sign on

with

> him. It's $40/month. You get access to his site, his news letters, webinars,

he

> answers e-mails, does phone consultations and writes rx's. I know a mom that

> uses him and she's very happy with him. I've watched a number of videos from

> him - he seems to really know his stuff. It might be an option for you. Good

> luck!

>

> -Tammy

>

>

>

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Hi- I just checked Dr. Woeller's website.

You can print the prescription he recommends, but you need to take it to an MD

near you for their signature/agreement for the prescription.

If someone has a local Dr. that is willing to follow this protocol, take

direction from another Dr., it would work well, I would think--

Personally, my medical insurance Dr.'s here in CA.- I have taken them diagnosis

and testing done by my DAN!, and they ripped it all apart and will not help me

in the slightest---

I thank God for our DAN!/PANDAS Dr., but I tell you what-- it is not cheap

(preaching to the choir here, I am sure)

&

5

> >

> > That just burns me up....I know I just mentioned it last night to somebody

> >else,

> >

> > but you guys might want to check out Dr. Kurt Woeller's website and sign on

> >with

> >

> > him. It's $40/month. You get access to his site, his news letters, webinars,

he

> >

> > answers e-mails, does phone consultations and writes rx's. I know a mom that

> > uses him and she's very happy with him. I've watched a number of videos from

> > him - he seems to really know his stuff. It might be an option for you. Good

> > luck!

> >

> > -Tammy

> >

> >

> >

>

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We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN, Armour,

ordered tests we want run, you name it. No taking the Rx to another doctor. We

have never " seen " him except through our Skype consults. (we do have to pay for

those out of pocket, but I don't care, because he's worth it) He is fantastic

and I definitely recommend him.

HTH,

Amy

Hi- I just checked Dr. Woeller's website.

> You can print the prescription he recommends, but you need to take it to an MD

near you for their signature/agreement for the prescription.

> If someone has a local Dr. that is willing to follow this protocol, take

direction from another Dr., it would work well, I would think--

> Personally, my medical insurance Dr.'s here in CA.- I have taken them

diagnosis and testing done by my DAN!, and they ripped it all apart and will not

help me in the slightest---

> I thank God for our DAN!/PANDAS Dr., but I tell you what-- it is not cheap

(preaching to the choir here, I am sure)

> &

> 5

>

>

> > >

> > > That just burns me up....I know I just mentioned it last night to somebody

> > >else,

> > >

> > > but you guys might want to check out Dr. Kurt Woeller's website and sign

on

> > >with

> > >

> > > him. It's $40/month. You get access to his site, his news letters,

webinars, he

> > >

> > > answers e-mails, does phone consultations and writes rx's. I know a mom

that

> > > uses him and she's very happy with him. I've watched a number of videos

from

> > > him - he seems to really know his stuff. It might be an option for you.

Good

> > > luck!

> > >

> > > -Tammy

> > >

> > >

> > >

> >

>

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Lynette, I sent you a PM---

That is awesome about Dr. Woeller, what a fantastic service---

>

> >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN, Armour,

ordered tests we want run, you name it. No taking the Rx to another doctor. We

have never " seen " him except through our Skype consults. (we do have to pay for

those out of pocket, but I don't care, because he's worth it) He is fantastic

and I definitely recommend him.

> >HTH,

> >Amy

> >

> >

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We used Dr. Woeller's website service for a year too. It was instrumental in

our direction for healing, but he IS a doctor and DOES rely on prescriptions for

a lot, so we ended up doing a lot of our own research and veering away from his

forum a bit. He was helpful with chock full of information which was at my

fingertips at any given time, but he didn't have knowledge of the safer biofilm

protocol or the safer chelation protocol (in my opinion). We've seen

significant healing going our route, so I feel good with our choices.

Don't get me wrong, I am not suggesting Dr. Woeller wasn't useful or that you

shouldn't consider him, but if you are into natural treatments and going with

safer options, keep your eye on other forums for key alternative treatment

options.

> >

> > >We use Dr. Woeller and he has prescribed MB12 shots, Diflucan, LDN,

Armour, ordered tests we want run, you name it. No taking the Rx to another

doctor. We have never " seen " him except through our Skype consults. (we do have

to pay for those out of pocket, but I don't care, because he's worth it) He is

fantastic and I definitely recommend him.

> > >HTH,

> > >Amy

> > >

> > >

>

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