Re: New poll for Breathe-Support

[Guest guest]

Turned up as per instruction from resp ther who instructed me on how to use equipment.

New poll for Breathe-Support

Enter your vote today! A new poll has been created for the Breathe-Support group:For those who use cannulas, the question is do you insert the prongs into your nose with the end of the prong turned up or turned down. o Nasal prong is turned up. o Nasal prong turned down. To vote, please visit the following web page:http://groups. yahoo.com/ group/Breathe- Support/surveys? id=2069230 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the Yahoo! Groups web site listed above.Thanks!

[Guest guest]

I do not trim or modify the prongs.

New poll for Breathe-Support

Enter your vote today! A new poll has been created for the Breathe-Support group:For those who use cannulas: Do you trim or otherwise modify it? o Trim the prongs to shorten them. o Make other modifications. o Do not trim or modify To vote, please visit the following web page:http://groups. yahoo.com/ group/Breathe- Support/surveys? id=2069246 Note: Please do not reply to this message. Poll votes are not collected via email. To vote, you must go to the Yahoo! Groups web site listed above.Thanks!

[Guest guest]

Now thats interesting as the overwhelming majority have them turned

down. I started turned up, used them turned up in hospital too. Then

people said should be turned down. Now, I go back and forth sometimes

based on the cannula, how it fits and how the air seems to be getting

through.

>

> Turned up as per instruction from resp ther who instructed me on how

to use equipment.

>

>

> New poll for Breathe-Support

>

>

>

> Enter your vote today! A new poll has been created for the

> Breathe-Support group:

>

> For those who use cannulas, the question is do you insert the prongs

into your nose with the end of the prong turned up or turned down.

>

>

> o Nasal prong is turned up.

> o Nasal prong turned down.

>

> To vote, please visit the following web page:

> http://groups. yahoo.com/ group/Breathe- Support/surveys? id=2069230

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

[Guest guest]

Did it take any getting use to when you changed?

New poll for Breathe-Support>>>> Enter your vote today! A new poll has been created for the> Breathe-Support group:>> For those who use cannulas, the question is do you insert the prongsinto your nose with the end of the prong turned up or turned down.>>> o Nasal prong is turned up.> o Nasal prong turned down.>> To vote, please visit the following web page:> http://groups. yahoo.com/ group/Breathe-

Support/surveys? id=2069230>> Note: Please do not reply to this message. Poll votes are> not collected via email. To vote, you must go to the Yahoo! Groups> web site listed above.>> Thanks!>

[Guest guest]

Hi , When I have gone up in Leaders per min. I began turning my concentrator up on my own then called my Dr. because at 2L at the time, I felt odd and my legs would hurt and give out so I went up to 3L. I called my Dr. and she said that was fine. We have to listen to our bodies. When we need an increase we usually know we are having a hard time breathing. If your long muscles are bothering you when your on your feet, you need to check your oximeter and you will probably find an increase is needed. Don't be afraid of 02. When you need it you need it. If you don't use enough the other organs in your body will suffer. Don't let it go below 90 ever...God Bless you. Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

No, it didn't really, but if what you're doing works, see no real reason

to change. Now it seems to me that some of the cannulas fit better one

way and some the other. I keep trying to figure out if I get better flow

either way but can't. I certainly feel the flow more though with them

turned up. I found this interesting because most people have just found

or been told a way and I think have no idea that others are doing it

opposite. I've actually looked before to see if I could find anywhere on

line instructions one way or the other from a supplier.

> >

> > Turned up as per instruction from resp ther who instructed me on how

> to use equipment.

> >

> >

> > New poll for Breathe-Support

> >

> >

> >

> > Enter your vote today! A new poll has been created for the

> > Breathe-Support group:

> >

> > For those who use cannulas, the question is do you insert the prongs

> into your nose with the end of the prong turned up or turned down.

> >

> >

> > o Nasal prong is turned up.

> > o Nasal prong turned down.

> >

> > To vote, please visit the following web page:

> > http://groups. yahoo.com/ group/Breathe- Support/surveys? id=2069230

> >

> > Note: Please do not reply to this message. Poll votes are

> > not collected via email. To vote, you must go to the Yahoo! Groups

> > web site listed above.

> >

> > Thanks!

> >

>

[Guest guest]

Peggy

is talking about which way the prongs of his cannulas are when he

says " turned up " .

Although your advice is still quite good.

>

> Hi , When I have gone up in Leaders per min. I began turning my

> concentrator up on my own then called my Dr. because at 2L at the

> time, I felt odd and my legs would hurt and give out so I went up to

> 3L. I called my Dr. and she said that was fine. We have to listen to

> our bodies. When we need an increase we usually know we are having a

> hard time breathing. If your long muscles are bothering you when your

> on your feet, you need to check your oximeter and you will probably

> find an increase is needed. Don't be afraid of 02. When you need it

> you need it. If you don't use enough the other organs in your body

> will suffer. Don't let it go below 90 ever...

> God Bless you.

>

>

> 

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

B, when I turn mine upward, I get a sinus headache. I cut the cannula down also. Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

Peggy

I was getting horrible sinus headaches with the ones I had before my

VATS and had them turned up. Thanks for the reminder. Now, I don't know

what Cannulas those were, just glad I've never had them again. I

normally have mine down. But definitely feel more air flow when turned

up so sinus headache is very logical.

>

> B, when I turn mine upward, I get a sinus headache. I cut the cannula

> down also.

>

>

> 

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

Peggy/

How much you want to bet that Fay has reversed his while we've been

talking just to see what turned down feels like?

>

> B, when I turn mine upward, I get a sinus headache. I cut the cannula

> down also.

>

>

> 

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

Peggy

I found out that is what it took several months ago. I was having problems breathing and once I got the meter I started turning the flow up. I guess the real scare is that I keep turning it up. Feels better short term but then that long term looks shorter. The anxiety is where I had the biggest problem this weekend for some reason. I second the comments 'I hate this damn disease!'

While not commenting often, I get a lot from this site and particularly enjoy your input. Thank you for the help and support.

Fay

IPF 06/06 IL

Re: New poll for Breathe-SupportHi , When I have gone up in Leaders per min. I began turning my concentrator up on my own then called my Dr. because at 2L at the time, I felt odd and my legs would hurt and give out so I went up to 3L. I called my Dr. and she said that was fine. We have to listen to our bodies. When we need an increase we usually know we are having a hard time breathing. If your long muscles are bothering you when your on your feet, you need to check your oximeter and you will probably find an increase is needed. Don't be afraid of 02. When you need it you need it. If you don't use enough the other organs in your body will suffer. Don't let it go

below 90 ever...

God Bless you.

Love and Prayers, Peggy

IPF 2004, Florida

"Worry looks around,

Sorry looks back,

Faith looks up."

[Guest guest]

, I to had some anxiety and my Dr. put me on Wellbutron  I know thats not spelled correctly.. I didn't realize how much of me was missing until I got my stuff all together. I went off it for a few days and started crying and didn't stop for a few days. Back on and wonderful in about three or four days. Amazing. Love and Prayers, Peggy   IPF  2004,  Florida"Worry looks around, Sorry looks back,  Faith looks up."

[Guest guest]

Fay/Peggy

I think there is some fright in every time one turns it up. I think of

10 as sort of the maximum and so as I get closer it does give me pause.

I know I've had to turn mine up periodically all along. Now, I'm finding

certain activities, there just isn't enough oxygen for as I drop to the

same or close to it regardless of flow. So, those are becoming " don't do

anymore " activities or at least very close to it. Right now I can stay

just on the safe side of 90 doing them, occasionally bouncing in the

upper 80's but I know that very soon I won't be able to on those

activities. Most of them involve bending and lifting combined with

walking.

>

> Peggy

> I found out that is what it took several months ago. I was having

problems breathing and once I got the meter I started turning the flow

up.. I guess the real scare is that I keep turning it up. Feels better

short term but then that long term looks shorter. The anxiety is where

I had the biggest problem this weekend for some reason. I second the

comments 'I hate this damn disease!'

> While not commenting often, I get a lot from this site and

particularly enjoy your input. Thank you for the help and support.

> Fay

> IPF 06/06 IL

>

>

> Re: New poll for Breathe-Support

>

> Hi , When I have gone up in Leaders per min. I began turning my

concentrator up on my own then called my Dr. because at 2L at the time,

I felt odd and my legs would hurt and give out so I went up to 3L. I

called my Dr. and she said that was fine. We have to listen to our

bodies. When we need an increase we usually know we are having a hard

time breathing. If your long muscles are bothering you when your on your

feet, you need to check your oximeter and you will probably find an

increase is needed. Don't be afraid of 02. When you need it you need it.

If you don't use enough the other organs in your body will suffer. Don't

let it go below 90 ever...

> God Bless you.

>

>

>

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

Peggy

I have a call into the doctor now and I think it is time to discuss this with him. I really do not want more med but want to be able to function too. It is hard for me to tell what is me, the disease and normal without help from those here.

Thank you very much.

Fay

IPF 06/06 IL

Re: New poll for Breathe-Support, I to had some anxiety and my Dr. put me on Wellbutron I know thats not spelled correctly..

I didn't realize how much of me was missing until I got my stuff all together. I went off it for a few days and started crying and didn't stop for a few days. Back on and wonderful in about three or four days. Amazing.

Love and Prayers, Peggy

IPF 2004, Florida

"Worry looks around,

Sorry looks back,

Faith looks up."

[Guest guest]

Fay

I've been on Wellbutrin for 12 years now in one form or another. We're

not sure whether or not it helps me now but not about to find out by

stopping it. No other psychiatric med works for me at all although they

do for many others here. Of course I do and always will get counseling

on a regular basis.

In our previous poll, around 70% of the people here suffer from

depression. Why wouldn't we? I'm amazed at the 30% who don't. I did

before the disease but the disease by itself is enough to cause it.

>

> Peggy

> I have a call into the doctor now and I think it is time to discuss

this with him. I really do not want more med but want to be able to

function too. It is hard for me to tell what is me, the disease and

normal without help from those here.

> Thank you very much.

> Fay

> IPF 06/06 IL

>

>

>

> Re: New poll for Breathe-Support

>

> , I to had some anxiety and my Dr. put me on Wellbutron I know

thats not spelled correctly..

> I didn't realize how much of me was missing until I got my stuff all

together. I went off it for a few days and started crying and didn't

stop for a few days. Back on and wonderful in about three or four days.

Amazing.

>

>

>

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> " Worry looks around,

> Sorry looks back,

> Faith looks up. "

>

[Guest guest]

Zena

It is funny that we've all received them and most of us never told by

anyone which way to put it in. They just say here it is and assume you

know.

> >

> > Turned up as per instruction from resp ther who instructed me on how

> to use equipment.

> >

> >

> > New poll for Breathe-Support

> >

> >

> >

> > Enter your vote today! A new poll has been created for the

> > Breathe-Support group:

> >

> > For those who use cannulas, the question is do you insert the prongs

> into your nose with the end of the prong turned up or turned down.

> >

> >

> > o Nasal prong is turned up.

> > o Nasal prong turned down.

> >

> > To vote, please visit the following web page:

> > http://groups. yahoo.com/ group/Breathe- Support/surveys? id=2069230

> >

> > Note: Please do not reply to this message. Poll votes are

> > not collected via email. To vote, you must go to the Yahoo! Groups

> > web site listed above.

> >

> > Thanks!

> >

>

[Guest guest]

Turning the cannula up is something that hadn't occured to me. I've just been fiddling and I think I'm more comfortable with them down, but it's certainly something to remember if my nose is blocked.

Love Ze xx> >> > Turned up as per instruction from resp ther who instructed me on how> to use equipment.> >> >> > New poll for Breathe-Support> >> >> >> > Enter your vote today! A new poll has been created for the> > Breathe-Support group:> >> > For those who use cannulas, the question is do you insert the prongs> into your nose with the end of the prong turned up or turned down.> >> >> > o Nasal prong is turned up.> > o Nasal prong turned down.> >> > To vote, please visit the following web page:> > http://groups. yahoo.com/ group/Breathe- Support/surveys? id=2069230> >> > Note: Please do not reply to this message. Poll votes are> > not collected via email. To vote, you must go to the Yahoo! Groups> > web site listed above.> >> > Thanks!> >>