Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Hi Jack, I hope you enjoyed your walk today! The other day when I was receiving my treatment at the hospital my blood pressure was 100/65, my normal BP is 120/80. They did have oximeter, on my finger, at rest my oxygen level registered between 90 and 96. In my most recent admission in hospital, when I was waken up at 7am and 8am for vital signs my oxygen level registered at 88 IrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Asthma 02/92 My Oximeter Hello all, I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. !. At six minutes, at the bottom of the hill and a short level walk: 98 2. 12 minutes on level ground: 98 3. A short rest - maybe 7 minutes. 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 5. A short rest - 5 minutes. 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster to my house, ending the 30 minutes: 98 At the same time my heart rate seemed normally faster, my BP hovered around 120/60. Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. I've only had the regular PFTs given at the hospital and those have little to no variation from the original. The medic posts the original up and I can watch the lines during the test as they pretty much a match. I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, preferably positive. Jack 79/UIP - IPF/06/05 Maine Looking for the perfect gift? Give the gift of Flickr! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Jack, WONDERFUL numbers. That means you are in VERY early stages and can still take a deep breath. Your body is getting enough oxygen.. wanna trade.. kidding if course. A six min. walk is just that, walk 6 min. and check your saturation. IF it goes below 90 at that time you need to probably be on 02. Love and Prayers, PeggyIPF 2004, Florida"Worry looks around, Sorry looks back, Faith looks up." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Thanks for the confirmation. I could never get out of the pulmo just where on the reigster I am. Jack Re: My Oximeter Jack, WONDERFUL numbers. That means you are in VERY early stages and can still take a deep breath. Your body is getting enough oxygen.. wanna trade.. kidding if course. A six min. walk is just that, walk 6 min. and check your saturation. IF it goes below 90 at that time you need to probably be on 02. Love and Prayers, Peggy IPF 2004, Florida "Worry looks around, Sorry looks back, Faith looks up." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Jack, I'm not a doctor but those numbers look normal for a gentleman your age. Do You ever get short of breath or chest pain. Are you sure you are in the right support group. This is not the old writers home. Just kidding. You should let us in on your secret though. Steve 60 from WA IPF 2006 Parkinsons 2008 Alzheimers 2008 Reply-To: Breathe-Support To: Breathe-Support Group <Breathe-Support >Subject: My OximeterDate: Fri, 13 Jun 2008 14:39:18 -0700 (PDT) Hello all, I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. !. At six minutes, at the bottom of the hill and a short level walk: 98 2. 12 minutes on level ground: 98 3. A short rest - maybe 7 minutes. 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 5. A short rest - 5 minutes. 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster to my house, ending the 30 minutes: 98 At the same time my heart rate seemed normally faster, my BP hovered around 120/60. Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. I've only had the regular PFTs given at the hospital and those have little to no variation from the original. The medic posts the original up and I can watch the lines during the test as they pretty much a match. I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, preferably positive. Jack 79/UIP - IPF/06/05 Maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 Hi, It's me, la Senorita, I am so happy to hear you are doing so good !! I cannot read your stats however from the comments I understand they are good !! So proud of you, taking walks, with hills. Must be beautiful over there ? Picture please so I can feel as if I have traveled some, I can imagine the walk, together up and down the hills !! God Bless !! dragonflymcs Mayleen 02/07 ILD / MCS/ Fibro/ RADS/ TMJD/ IRD +14 < Click on me !! My Oximeter Hello all, I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. !. At six minutes, at the bottom of the hill and a short level walk: 98 2. 12 minutes on level ground: 98 3. A short rest - maybe 7 minutes. 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 5. A short rest - 5 minutes. 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster to my house, ending the 30 minutes: 98 At the same time my heart rate seemed normally faster, my BP hovered around 120/60. Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. I've only had the regular PFTs given at the hospital and those have little to no variation from the original. The medic posts the original up and I can watch the lines during the test as they pretty much a match. I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, preferably positive. Jack 79/UIP - IPF/06/05 Maine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2008 Report Share Posted June 15, 2008 Jack I proclaim you healthy....now, don't confuse that with disease free because I don't know medical crap. But, isn't it really the symptoms that bother us rather than the disease on anything? That doesn't mean we don't need to be educated and prepared. But, you are as you feel. And if your oxygen can stay up like that, then you should be enjoying yourself completely and not thinking too much about PF. I could be on 5 lpm or who knows how much higher but no way I'm going to maintain 98 after a three minute walk, much less 12. 98 is reserved for sitting and standing on oxygen in my case. So enjoy the summer and get out and about while we all scorch. Then come winter we'll have the advantage. > > Hello all, > I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. > I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. > !. At six minutes, at the bottom of the hill and a short level walk: 98 > 2. 12 minutes on level ground: 98 > 3. A short rest - maybe 7 minutes. > 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 > 5. A short rest - 5 minutes. > 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster > to my house, ending the 30 minutes: 98 > At the same time my heart rate seemed normally faster, my BP hovered around 120/60. > Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. > I've only had the regular PFTs given at the hospital and those have little to no variation from the original. > The medic posts the original up and I can watch the lines during the test as they pretty much a match. > I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, > preferably positive. > Jack > 79/UIP - IPF/06/05 Maine > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi Jack....Your saturation readings are very normal...must of us hit the 80's when walking. As long as you are in the 90's your sats are great. What is your diagnosis? Have a great day. Joy in Seattle > > Steve, I'm puzzled. It's been three years since the dx. Truthfully, until the day of the dx I had never been sick except for an occasional cold and my hypthyroidism and I can't even tell that I have that. I don't smoke, don't use alcohol, my diet is mostly fruit and veggies, I don't get stressed (that's a mind control thing), I have a modest exercise program. I love and get loved. I enjoy helping people (the why of the oximeters), mostly I mentor other playwrights who range in age from twenties to my favorite, Veda, who is 98 years old. In addition to my work with my theater and my writing, I work full time (up to 50 hours a week) running my business, but I plan to give that up by the end of the year. I also work with the local lieracry volunteers program, teaching English as a foreign language. This is something I did years ago while in the USAF. > But I digress. I have had a wonderful life and still do. Fibrosis is to me one more thing to deal with, and I try to do it in the most positive way I can. Joining this group and meeting some truly extraordinary and heroic people is to me positive. And finally, no I don't get chest pains nor SOB. I know that someday those things are likely to occur. Thanks to this group, I am somewhat prepared. > Jack > My Oximeter > Date: Fri, 13 Jun 2008 14:39:18 -0700 (PDT) > > > Hello all, > > I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time. > I'm going to list my readings and hope one of you will interpret them for me: I live in a neighborhood of steep hills, so I have developed a 30 minute walk that goes down the steepest hills and up the more shallow ones. My walk today was 30 minutes, starting down hill and then level for a while. My stride was reasonably brisk. > > !. At six minutes, at the bottom of the hill and a short level walk: 98 > > 2. 12 minutes on level ground: 98 > > 3. A short rest - maybe 7 minutes. > > 4. Some distance across fairly level ground with a gradual increase in incline, then up the hill (less steep than the previous hill): 96 > > 5. A short rest - 5 minutes. > > 6. The rest of walk was a combination of gradually rising terrain, then downhill, then rising faster > to my house, ending the 30 minutes: 98 > > At the same time my heart rate seemed normally faster, my BP hovered around 120/60. > > Keep in mind that it has been 62 years since I was 17 and a raw recruit in USAF boot camp in Texas in August. > > I've only had the regular PFTs given at the hospital and those have little to no variation from the original. > The medic posts the original up and I can watch the lines during the test as they pretty much a match. > > I have never had a 6 minute walk test, or any other test. So I hope my self-test shows me something, > preferably positive. > > Jack > 79/UIP - IPF/06/05 Maine > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Joy I was dx with IPF in June 2005. A biopsy last month said UIP. From what I read there is no difference between the two. One source said UIP is another name for IPF. Actually, it's rare that I can tell I have a lung problem and that is coughing when it's very cold or very humid. Jack My Oximeter> Date: Fri, 13 Jun 2008 14:39:18 -0700 (PDT)>>> Hello all,>> I followed my advice to every one else and bought myself an oximeter. Today I used it for the first time.> I'm going to list my readings and hope one of you will interpret themfor me: I live in a neighborhood of steep hills, so I have developed a30 minute walk that goes down the steepest hills and up the more shallowones. My walk today was 30 minutes, starting down hill and then levelfor a while. My stride was reasonably brisk.>> !. At six minutes, at the bottom of the hill and a short level walk: 98>> 2. 12 minutes on level ground: 98>> 3. A short rest - maybe 7 minutes.>> 4. Some distance across fairly level ground with a gradual increasein incline, then up the hill (less steep than the previous hill): 96>> 5. A short rest - 5 minutes.>> 6. The rest of walk was a combination of gradually rising terrain,then downhill, then rising faster> to my house, ending the 30 minutes: 98>> At the same time my heart rate seemed normally faster, my BP hoveredaround 120/60.>> Keep in mind that it has been 62 years since I was 17 and a rawrecruit in USAF boot camp in Texas in August.>> I've only had the regular PFTs given at the hospital and those havelittle to no variation from the original.> The medic posts the original up and I can watch the lines during thetest as they pretty much a match.>> I have never had a 6 minute walk test, or any other test. So I hopemy self-test shows me something,> preferably positive.>> Jack> 79/UIP - IPF/06/05 Maine>> Quote Link to comment Share on other sites More sharing options...
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