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Lori, Debra V. said what I would have liked to. Sometimes, too often, I just

can't find the words any longer to articulate what I would soo like to say.

I feel like I've been reduced to a 1st grader once again. I think Debra said

it all. Bless you, sweetie! You already know I care and will support you

whatever your decision!!!

PS-I wish I could help with the Dr. list but I can't as I don't do drs. any

longer.

Praying for wisdom!

~Jenn

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Lori, I am sorry to hear that you might leave. I however will not take that to

mean you don't care. Just as you said honey, maybe you care too much sometimes.

I understand that. It is not always easy to read of others sufferings while you

are dealing with your own. Sweetie, whatever it takes for you to feel better or

be in a better frame of mind for your own life. Being a nurse, I understand. I

have felt many times in my practice that sometimes the sorrow of others is heavy

to bear. It takes alot of energy. I love people very much and sometimes it

does feel like it gets to be too much..... too much emotion. It can be

depressing. At the same time, I feel such great rewards from connecting with

people and some how touching their lives. But.... somedays.... I just think

there is nothing left for me to give and I wish I was not needed. (only

sometimes)... especially when I am dealing with alot of pain myself with a

disease that is little understood and believed.

Lori, you have been one compassionate person here. I really wish you would

not leave altogether..... maybe just drop the responsibilities a little and just

come here sometimes.

I am not sure I can really contribute to the doctor list, but alot of people

can.

I really think that might be of some help to others.

Well, love ya.

Do what you have to for yourself honey.... because if we don't take care of

ourselves, no one else will.

hugs to you,

Debra V.

Lori Hammer wrote:

Hi Guys,

Sorry I have not been around through the Holidays. I hope everyone had the best

Holiday that you possibly could.

The reasons I was not on a lto is the fact that I am considering leaving the

Group. But, I am not sure if I can do it. All of you have become my family, my

friends,and especially the one place I can come and talk about the pain I am

having and you are the only ones who understand. You all are very special people

and never let anyone tell you different.

Not too many people in my life understand me. My pain had been getting worse

also I have had to go back to wearing my wrist braces as My Carpal Tunnel has

been bothering me so bad. There are a few of you that I had run ins with and I

apologize with all my heart but we all have different opinions and we are

allowed to have them. And hopefully there are still no hard feelings.

I have been racking my brains and visiting with about trying to compile a

list of the Dr's. who are not Fibro Friendly by you sending us the information.

But, it cannot turn into a revenge type thing. And it will have to be carefully

handled. My docs say they believe but in my heart and soul I know they don't

understand me.

I would like to know what you think about trying to get something together like

that. I would compile the list and all I would need is name and address of the

Doc or specialist you saw and a brief account of how you were treated or what

you were told. I have other details I would like to work out but need to decide

if I am going to stay.

I read some of your emails and I just breaks my heart, and apparently I am a

very empathic person because I take your pain, tears, the hurt,and the feeling

that no one cares very seriously. Sometimes I take on all those feelings

together and dwell on how I can fix someones broken spirit and heart. I take

everyone of your issues very seriously and some times it can bring me down so

far I don't function well. this does not mean anyone and I mean anyone should

hold back what they have to say. That is not the point of that prior comment on

my part. I have been told so many times that God never gives us anything we

cannot handle in our path of life. And so far I really believe it. We need to

have some faith and belief in that and we need to quit thinking we do not count

for anything, because we do. all of us regardless what stage we are at in the

disease. Please , please remember this. I am not trying to preach religion to

anyone so please do not be offended.

What I would like you all to do is think about what I said about compiling a

list of the Docs,specialists, whoever that are not Fibro Friendly. And I am very

" da?n angry at the way we are treated. " I have had this disease a very long

time, and it bothers me that now there are so many young people joining for the

support. But that is what we are here for.

Well that is what is going on in my life at this point and I again apologize for

not being around too much the last week or so.

Remember what ever happens you are all very special people and no one can take

that away from you. NO ONE! We have rights ,too!

Love and Big Gentle Hugs,

Lori Hammer

Moderator

---------------------------------

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Hi Lori,

I've really missed you and your wonderful posts. I want to just jump in and

beg you not to leave. I want to tell you we can't do this without the kind,

caring person that your are.

I want to, but I can't. It wouldn't be fair to you.

I will say that I would miss you terribly. I look forward to seeing your name

and reading what you have written.

I get to feeling the way you have expressed. Sometimes the hardships and pain

and terrible situations people write about are almost too much to bear. There

are so many problems expressed here. People having such a hard time getting

doctors to believe in them and their families and friends too. I have a problem

with letting empathy go too far and have to make myself pull back.

I love to read the posts that tell of happy circumstances, or someone telling

something that has happened to them that was good or funny. Maybe as the stress

from the holidays subsides these types of posts will come back more often.

Maybe there will be a balance then. I think people tend to write when things

are going wrong to express it to a group of people who do understand and care.

All that being said, I do understand what you are going through and would

understand if you decided to leave. But I would really hate it.

I hope you will stay. Maybe not let it take up as much time as before. I

know you are busy as well as in pain and suffering. although you don't mention

it much.

I support whatever you choose to do, but I wish that you will stay.

TTFN,

Marti

Lori Hammer wrote:

Hi Guys,

Sorry I have not been around through the Holidays. I hope everyone had the best

Holiday that you possibly could.

The reasons I was not on a lto is the fact that I am considering leaving the

Group. But, I am not sure if I can do it. All of you have become my family, my

friends,and especially the one place I can come and talk about the pain I am

having and you are the only ones who understand. You all are very special people

and never let anyone tell you different.

Not too many people in my life understand me. My pain had been getting worse

also I have had to go back to wearing my wrist braces as My Carpal Tunnel has

been bothering me so bad. There are a few of you that I had run ins with and I

apologize with all my heart but we all have different opinions and we are

allowed to have them. And hopefully there are still no hard feelings.

I have been racking my brains and visiting with about trying to compile a

list of the Dr's. who are not Fibro Friendly by you sending us the information.

But, it cannot turn into a revenge type thing. And it will have to be carefully

handled. My docs say they believe but in my heart and soul I know they don't

understand me.

I would like to know what you think about trying to get something together like

that. I would compile the list and all I would need is name and address of the

Doc or specialist you saw and a brief account of how you were treated or what

you were told. I have other details I would like to work out but need to decide

if I am going to stay.

I read some of your emails and I just breaks my heart, and apparently I am a

very empathic person because I take your pain, tears, the hurt,and the feeling

that no one cares very seriously. Sometimes I take on all those feelings

together and dwell on how I can fix someones broken spirit and heart. I take

everyone of your issues very seriously and some times it can bring me down so

far I don't function well. this does not mean anyone and I mean anyone should

hold back what they have to say. That is not the point of that prior comment on

my part. I have been told so many times that God never gives us anything we

cannot handle in our path of life. And so far I really believe it. We need to

have some faith and belief in that and we need to quit thinking we do not count

for anything, because we do. all of us regardless what stage we are at in the

disease. Please , please remember this. I am not trying to preach religion to

anyone so please do not be offended.

What I would like you all to do is think about what I said about compiling a

list of the Docs,specialists, whoever that are not Fibro Friendly. And I am very

" da?n angry at the way we are treated. " I have had this disease a very long

time, and it bothers me that now there are so many young people joining for the

support. But that is what we are here for.

Well that is what is going on in my life at this point and I again apologize for

not being around too much the last week or so.

Remember what ever happens you are all very special people and no one can take

that away from you. NO ONE! We have rights ,too!

Love and Big Gentle Hugs,

Lori Hammer

Moderator

---------------------------------

Never miss a thing. Make Yahoo your homepage.

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  • 6 months later...
Guest guest

The answer is it is an autoimmune disease but nobody knows why it

occurs. Evidently my body is attaching itself. I went to the Mayo

Clinic site and read info on it, also WebMD. It mentions

specifically interstitial lung disease can be associated with it so

maybe it is a trigger of it. Who knows.

>

> > I fell off the map for a while but now I am back. I went into a

big

> > denial phase. My lung capacity went up to 80% and I stopped

needing

> > oxygen. My lungs are stable. So I went out of the lung disease

> > world for a while. Turns out we can run but we can't hide. My

lungs

> > are still good but I've had a URI I can't seem to get rid of. So

I

> > saw a weekend doc yesterday who gave me some levaquin and

tussinex

> > (now that is the stuff) and hopefully will get better. It sucks

to

> > have tonsillitis at 50!

> > But the thing is he looked at my medical records with a fresh

eye and

> > announced that probably what is the root of all evil in my body

is

> > mixed connective tissue disease. And from what I read and feel I

am

> > pretty sure he's right. I will probably have the tests done at

some

> > point but not yet.

> >

> > I don't know why in particular I tuned back in tonight but was

> > saddened to read 's post. Godspeed, .

> >

> > Missed you guys! Bruce, Leanne, Mama-Sher, Z, Babs, Joyce,

> > -Beth, and all my peeps. I hope you have been well and

> > happy.

> >

> > S, Lubbock, TX

> > NSIP w/PF 12/2006

> >

> >

> >

> >No virus found in this incoming message.

> >Checked by AVG - http://www.avg.com

> >Version: 8.0.138 / Virus Database: 270.4.10/1549 - Release Date:

7/12/2008 4:31 PM

> >

> >

>

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