Re: I need some words of encouragement here, k?

[Guest guest]

((( Lou))) Oh, honey, they sound like right jobsworths. I'm sorry I can't offer any advice as our O2 supply is different over here, but they don't have any understanding do they .

Love Ze xx

>> I talked to my pulmo about an hour ago, he took me off the lasix and > potassium, weren't doing any good. On 15mg prednisone daily which > seems to be ok. Haven't lost a huge amount of weight anyhow. I also > have a call in to my "PCP" to take me off the "simvastatin" for > cholesterol (high amts. run in family history) as since I have been > on it for 2 months (also checked website for side effects of that) > have been having severe cramps in legs, bone and muscle aches all > over, etc.> > Now I called the oxygen company, and asked them to come and fill the > liquid tank (huge one, floor model) tomorrow because I would run out > before Monday otherwise. He said just came on Monday didn't > he? I said yes, but I have had the tubing hooked up to the tank > because my elect. concentrator gets too hot and makes the whole apt. > hot and runs up my elect bill $75. per month. He said I am not > allowed to use the liq oxy tank that way, it is only here for the > helios and companion units to be filled with upon leaving the house. > I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-A. > IT IS WHAT IT IS. You know what? I was just trying to live cooler > for a few days. This company is a billion dollar company, and this > is how they treat the elderly. He was trying to be nice but it just > didn't set with me right. I had to promise him I would only use it > when I leave the house with the Helios and companion. He said ok. > When was here Monday, he neglected to remove the water > retainer when he rolled it out to the van to refill the oxy. and > water went all over my carpet, down the hall and out the door. what > a slob. I am going to cry now. bye for> now> mary lou>

[Guest guest]

PLEASE DON'T CRY MARY LOUIm sorry you are having a rough time todayBULL-CRAP is rightBrett Bowser 40 MI.familial UIP/IPF 11/07 stage 4 lung cancer 7/08I talked to my pulmo about an hour ago, he took me off the lasix and potassium, weren't doing any good. On 15mg prednisone daily which seems to be ok. Haven't lost a huge amount of weight anyhow. I also have a call in to my "PCP" to take me off the "simvastatin" for cholesterol (high amts. run in family history) as since I have been on it for 2 months (also checked website for side effects of that) have been having severe cramps in legs, bone and muscle aches all over, etc.Now I called the oxygen company, and asked them to come and fill the liquid tank (huge one, floor model) tomorrow because I would run out before Monday otherwise. He said just came on Monday didn't he? I said yes, but I have had the tubing hooked up to the tank because my elect. concentrator gets too hot and makes the whole apt. hot and runs up my elect bill $75. per month. He said I am not allowed to use the liq oxy tank that way, it is only here for the helios and companion units to be filled with upon leaving the house. I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-A. IT IS WHAT IT IS. You know what? I was just trying to live cooler for a few days. This company is a billion dollar company, and this is how they treat the elderly. He was trying to be nice but it just didn't set with me right. I had to promise him I would only use it when I leave the house with the Helios and companion. He said ok. When was here Monday, he neglected to remove the water retainer when he rolled it out to the van to refill the oxy. and water went all over my carpet, down the hall and out the door. what a slob. I am going to cry now. bye fornowmary lou

[Guest guest]

IRENE,BRETT,ZENA: I talked with pulmo about the liq oxy tank and he

only can prescribe it in my house, he has no control over what use I

have to it, also the oxy co. put me on hold and the manager did come

to the phone and he is the one I was going round and round with.

say-la-vie

mary lou

>

> Sending Hugs to you ((((( Lou))))

> Can you make a complaint to your O2 company or even talk to the

manager?

> or talk with pulmo of the situation with the tanks

> Irene

> PF 03/07 Raynaud's Disease 09/07

> Crohn's Disease 03/95 Asthma 02/92

>

>

>

> I need some words of encouragement here,

k?

>

>

> I talked to my pulmo about an hour ago, he took me off the lasix

and

> potassium, weren't doing any good. On 15mg prednisone daily which

> seems to be ok. Haven't lost a huge amount of weight anyhow. I also

> have a call in to my " PCP " to take me off the " simvastatin " for

> cholesterol (high amts. run in family history) as since I have been

> on it for 2 months (also checked website for side effects of that)

> have been having severe cramps in legs, bone and muscle aches all

> over, etc.

>

> Now I called the oxygen company, and asked them to come and fill

the

> liquid tank (huge one, floor model) tomorrow because I would run

out

> before Monday otherwise. He said just came on Monday didn't

> he? I said yes, but I have had the tubing hooked up to the tank

> because my elect. concentrator gets too hot and makes the whole

apt.

> hot and runs up my elect bill $75. per month. He said I am not

> allowed to use the liq oxy tank that way, it is only here for the

> helios and companion units to be filled with upon leaving the

house.

> I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-

A.

> IT IS WHAT IT IS. You know what? I was just trying to live cooler

> for a few days. This company is a billion dollar company, and this

> is how they treat the elderly. He was trying to be nice but it just

> didn't set with me right.. I had to promise him I would only use it

> when I leave the house with the Helios and companion. He said ok.

> When was here Monday, he neglected to remove the water

> retainer when he rolled it out to the van to refill the oxy. and

> water went all over my carpet, down the hall and out the door. what

> a slob. I am going to cry now. bye for

> now

> mary lou

>

>

>

>

>

__________________________________________________________________

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[Guest guest]

Lou

My suggestion if you want to use liquid at home is to have the

pulmonologist prescribe it in that way. The oxygen company will still

not like it but have little choice. Furthermore if they had the right

size reservoir or reservoirs at your home weekly deliveries would still

suffice.

>

> I talked to my pulmo about an hour ago, he took me off the lasix and

> potassium, weren't doing any good. On 15mg prednisone daily which

> seems to be ok. Haven't lost a huge amount of weight anyhow. I also

> have a call in to my " PCP " to take me off the " simvastatin " for

> cholesterol (high amts. run in family history) as since I have been

> on it for 2 months (also checked website for side effects of that)

> have been having severe cramps in legs, bone and muscle aches all

> over, etc.

>

> Now I called the oxygen company, and asked them to come and fill the

> liquid tank (huge one, floor model) tomorrow because I would run out

> before Monday otherwise. He said just came on Monday didn't

> he? I said yes, but I have had the tubing hooked up to the tank

> because my elect. concentrator gets too hot and makes the whole apt.

> hot and runs up my elect bill $75. per month. He said I am not

> allowed to use the liq oxy tank that way, it is only here for the

> helios and companion units to be filled with upon leaving the house.

> I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-A.

> IT IS WHAT IT IS. You know what? I was just trying to live cooler

> for a few days. This company is a billion dollar company, and this

> is how they treat the elderly. He was trying to be nice but it just

> didn't set with me right. I had to promise him I would only use it

> when I leave the house with the Helios and companion. He said ok.

> When was here Monday, he neglected to remove the water

> retainer when he rolled it out to the van to refill the oxy. and

> water went all over my carpet, down the hall and out the door. what

> a slob. I am going to cry now. bye for

> now

> mary lou

>

[Guest guest]

Lou

He can prescribe what he wants you to use both stationary and portable.

If he writes the prescription saying you liquid they cannot substitute.

> >

> > Sending Hugs to you ((((( Lou))))

> > Can you make a complaint to your O2 company or even talk to the

> manager?

> > or talk with pulmo of the situation with the tanks

> > Irene

> > PF 03/07 Raynaud's Disease 09/07

> > Crohn's Disease 03/95 Asthma 02/92

> >

> >

> >

> > I need some words of encouragement here,

> k?

> >

> >

> > I talked to my pulmo about an hour ago, he took me off the lasix

> and

> > potassium, weren't doing any good. On 15mg prednisone daily which

> > seems to be ok. Haven't lost a huge amount of weight anyhow. I also

> > have a call in to my " PCP " to take me off the " simvastatin " for

> > cholesterol (high amts. run in family history) as since I have been

> > on it for 2 months (also checked website for side effects of that)

> > have been having severe cramps in legs, bone and muscle aches all

> > over, etc.

> >

> > Now I called the oxygen company, and asked them to come and fill

> the

> > liquid tank (huge one, floor model) tomorrow because I would run

> out

> > before Monday otherwise. He said just came on Monday didn't

> > he? I said yes, but I have had the tubing hooked up to the tank

> > because my elect. concentrator gets too hot and makes the whole

> apt.

> > hot and runs up my elect bill $75. per month. He said I am not

> > allowed to use the liq oxy tank that way, it is only here for the

> > helios and companion units to be filled with upon leaving the

> house.

> > I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-

> A.

> > IT IS WHAT IT IS. You know what? I was just trying to live cooler

> > for a few days. This company is a billion dollar company, and this

> > is how they treat the elderly. He was trying to be nice but it just

> > didn't set with me right.. I had to promise him I would only use it

> > when I leave the house with the Helios and companion. He said ok.

> > When was here Monday, he neglected to remove the water

> > retainer when he rolled it out to the van to refill the oxy. and

> > water went all over my carpet, down the hall and out the door. what

> > a slob. I am going to cry now. bye for

> > now

> > mary lou

> >

> >

> >

> >

> >

> __________________________________________________________________

> > Be smarter than spam. See how smart SpamGuard is at giving junk

> email the boot with the All-new Yahoo! Mail. Click on Options in

> Mail and switch to New Mail today or register for free at

> http://mail.yahoo.ca

> >

>

[Guest guest]

Lou, I just started Pravastatin for high cholesterol. Geeze. Somethin' else.

I'm just bug-eyed at your water condition. I can't believe anyone would leave you in such a mess. Aren't they responsible to have wet vac's brought in and clean up the water/mess?

CALGON, take us away!....................

MamaSher, age 69. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

I need some words of encouragement here, k?

I talked to my pulmo about an hour ago, he took me off the lasix and potassium, weren't doing any good. On 15mg prednisone daily which seems to be ok. Haven't lost a huge amount of weight anyhow. I also have a call in to my "PCP" to take me off the "simvastatin" for cholesterol (high amts. run in family history) as since I have been on it for 2 months (also checked website for side effects of that) have been having severe cramps in legs, bone and muscle aches all over, etc.Now I called the oxygen company, and asked them to come and fill the liquid tank (huge one, floor model) tomorrow because I would run out before Monday otherwise. He said just came on Monday didn't he? I said yes, but I have had the tubing hooked up to the tank because my elect. concentrator gets too hot and makes the whole apt. hot and runs up my elect bill $75. per month. He said I am not allowed to use the liq oxy tank that way, it is only here for the helios and companion units to be filled with upon leaving the house. I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-A. IT IS WHAT IT IS. You know what? I was just trying to live cooler for a few days. This company is a billion dollar company, and this is how they treat the elderly. He was trying to be nice but it just didn't set with me right. I had to promise him I would only use it when I leave the house with the Helios and companion. He said ok. When was here Monday, he neglected to remove the water retainer when he rolled it out to the van to refill the oxy. and water went all over my carpet, down the hall and out the door. what a slob. I am going to cry now. bye fornowmary lou

[Guest guest]

Calgon... http://www.calgon.co.uk/ I'm confused

Love Ze xx>> Lou, I just started Pravastatin for high cholesterol. Geeze. Somethin' else.> > I'm just bug-eyed at your water condition. I can't believe anyone would leave you in such a mess. Aren't they responsible to have wet vac's brought in and clean up the water/mess?> CALGON, take us away!....................> > > MamaSher, age 69. IPF 3-06, OR. > Nasturtiums> Don't fret about tomorrow, God is already there!> > I need some words of encouragement here, k?> > > I talked to my pulmo about an hour ago, he took me off the lasix and > potassium, weren't doing any good. On 15mg prednisone daily which > seems to be ok. Haven't lost a huge amount of weight anyhow. I also > have a call in to my "PCP" to take me off the "simvastatin" for > cholesterol (high amts. run in family history) as since I have been > on it for 2 months (also checked website for side effects of that) > have been having severe cramps in legs, bone and muscle aches all > over, etc.> > Now I called the oxygen company, and asked them to come and fill the > liquid tank (huge one, floor model) tomorrow because I would run out > before Monday otherwise. He said just came on Monday didn't > he? I said yes, but I have had the tubing hooked up to the tank > because my elect. concentrator gets too hot and makes the whole apt. > hot and runs up my elect bill $75. per month. He said I am not > allowed to use the liq oxy tank that way, it is only here for the > helios and companion units to be filled with upon leaving the house. > I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-A. > IT IS WHAT IT IS. You know what? I was just trying to live cooler > for a few days. This company is a billion dollar company, and this > is how they treat the elderly. He was trying to be nice but it just > didn't set with me right. I had to promise him I would only use it > when I leave the house with the Helios and companion. He said ok. > When was here Monday, he neglected to remove the water > retainer when he rolled it out to the van to refill the oxy. and > water went all over my carpet, down the hall and out the door. what > a slob. I am going to cry now. bye for> now> mary lou>

[Guest guest]

AENA, SO FUNNY, YOU KNOW, MY MOM IN THE 1940'S WAS USING CALGON IN

THE BATHTUB AS THEN I BELIEVE ALL WOMEN WERE USING IT TO SOFTEN THEIR

SKIN AND GET " AWAY FROM IT ALL " .

LOVE, MARY LOU

IPF '02

> >

> > Lou, I just started Pravastatin for high cholesterol. Geeze.

> Somethin' else.

> >

> > I'm just bug-eyed at your water condition. I can't believe anyone

> would leave you in such a mess. Aren't they responsible to have wet

> vac's brought in and clean up the water/mess?

> > CALGON, take us away!....................

> >

> >

> > MamaSher, age 69. IPF 3-06, OR.

> > Nasturtiums

> > Don't fret about tomorrow, God is already there!

> >

> > I need some words of encouragement

here, k?

> >

> >

> > I talked to my pulmo about an hour ago, he took me off the lasix

and

> > potassium, weren't doing any good. On 15mg prednisone daily which

> > seems to be ok. Haven't lost a huge amount of weight anyhow. I

also

> > have a call in to my " PCP " to take me off the " simvastatin " for

> > cholesterol (high amts. run in family history) as since I have

been

> > on it for 2 months (also checked website for side effects of that)

> > have been having severe cramps in legs, bone and muscle aches all

> > over, etc.

> >

> > Now I called the oxygen company, and asked them to come and fill

the

> > liquid tank (huge one, floor model) tomorrow because I would run

out

> > before Monday otherwise. He said just came on Monday didn't

> > he? I said yes, but I have had the tubing hooked up to the tank

> > because my elect. concentrator gets too hot and makes the whole

apt.

> > hot and runs up my elect bill $75. per month. He said I am not

> > allowed to use the liq oxy tank that way, it is only here for the

> > helios and companion units to be filled with upon leaving the

house.

> > I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-

A.

> > IT IS WHAT IT IS. You know what? I was just trying to live cooler

> > for a few days. This company is a billion dollar company, and this

> > is how they treat the elderly. He was trying to be nice but it

just

> > didn't set with me right. I had to promise him I would only use it

> > when I leave the house with the Helios and companion. He said ok.

> > When was here Monday, he neglected to remove the water

> > retainer when he rolled it out to the van to refill the oxy. and

> > water went all over my carpet, down the hall and out the door.

what

> > a slob. I am going to cry now. bye for

> > now

> > mary lou

> >

>

[Guest guest]

Zee ... "Calgon" is a bath product and that was the line said during the commercials on TV...stressed woman getting into a bath and saying, "Calgon, take me away!"..Something we here on this side of the pond recognize...

MamaSher, age 69. IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

I need some words of encouragement here, k?> > > I talked to my pulmo about an hour ago, he took me off the lasix and > potassium, weren't doing any good. On 15mg prednisone daily which > seems to be ok. Haven't lost a huge amount of weight anyhow. I also > have a call in to my "PCP" to take me off the "simvastatin" for > cholesterol (high amts. run in family history) as since I have been > on it for 2 months (also checked website for side effects of that) > have been having severe cramps in legs, bone and muscle aches all > over, etc.> > Now I called the oxygen company, and asked them to come and fill the > liquid tank (huge one, floor model) tomorrow because I would run out > before Monday otherwise. He said just came on Monday didn't > he? I said yes, but I have had the tubing hooked up to the tank > because my elect. concentrator gets too hot and makes the whole apt. > hot and runs up my elect bill $75. per month. He said I am not > allowed to use the liq oxy tank that way, it is only here for the > helios and companion units to be filled with upon leaving the house. > I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-A. > IT IS WHAT IT IS. You know what? I was just trying to live cooler > for a few days. This company is a billion dollar company, and this > is how they treat the elderly. He was trying to be nice but it just > didn't set with me right. I had to promise him I would only use it > when I leave the house with the Helios and companion. He said ok. > When was here Monday, he neglected to remove the water > retainer when he rolled it out to the van to refill the oxy. and > water went all over my carpet, down the hall and out the door. what > a slob. I am going to cry now. bye for> now> mary lou>

[Guest guest]

Run their ass off and file a complaint with the BBB. Contact medicare

or medcaide and file a complaint. Most of al fight back don't take

the crap and you be surprised how good it feels to fight back

>

> I talked to my pulmo about an hour ago, he took me off the lasix

and

> potassium, weren't doing any good. On 15mg prednisone daily which

> seems to be ok. Haven't lost a huge amount of weight anyhow. I

also

> have a call in to my " PCP " to take me off the " simvastatin " for

> cholesterol (high amts. run in family history) as since I have been

> on it for 2 months (also checked website for side effects of that)

> have been having severe cramps in legs, bone and muscle aches all

> over, etc.

>

> Now I called the oxygen company, and asked them to come and fill

the

> liquid tank (huge one, floor model) tomorrow because I would run

out

> before Monday otherwise. He said just came on Monday didn't

> he? I said yes, but I have had the tubing hooked up to the tank

> because my elect. concentrator gets too hot and makes the whole

apt.

> hot and runs up my elect bill $75. per month. He said I am not

> allowed to use the liq oxy tank that way, it is only here for the

> helios and companion units to be filled with upon leaving the

house.

> I may Not USE IT ANY OTHER WAY. or they will remove it. bULL-CRAP-

A.

> IT IS WHAT IT IS. You know what? I was just trying to live cooler

> for a few days. This company is a billion dollar company, and this

> is how they treat the elderly. He was trying to be nice but it

just

> didn't set with me right. I had to promise him I would only use it

> when I leave the house with the Helios and companion. He said ok.

> When was here Monday, he neglected to remove the water

> retainer when he rolled it out to the van to refill the oxy. and

> water went all over my carpet, down the hall and out the door.

what

> a slob. I am going to cry now. bye for

> now

> mary lou

>