Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 The pulmo is having a tough time controlling my use of Coumadin, which is a necessity with Flolan. Every time my weight fluctuates, the numbers change....then it is back to square one. I am having a problem with nausea. I have no appetite. I have to force myself to eat. We can not find the cause, so we don't know how to make it stop. I weighed 134 this morning. I haven't weighed 134 since 6th grade. I am now taking Phenegran to get through the day and Remeran at night. Neither of these drugs promote clear thinking!! I am taking Xanax because of panic attacks. Another mood pill. On top of this, I began having severe pain in my knee. So, while waiting for my ortho appt, I am taking pain pills. I have to really concentrate to make a simple decision. So, keep me in your prayers. I get hope from my doctors. They are working like mad dogs to keep me alive. My pulmo told me on Wednesday that he was not ready to discuss mortality. I had said something about dying. I don't think the word is in his vocabulary. So, if they believe.....I will believe. Hugs, Joyce D.Pulmonary Fibrosis 1997 Bronchiectasis 2004 Pulmonary Hypertension 2008 Mixed Connective Tissue Disease (Lupus, RA, Sjogren's, etc) Rejected for Transplant 2006 .....I will not forget you. Behold, I have engraved you on the palm of my hands. Isaiah 49: 15-16 Quote Link to comment Share on other sites More sharing options...
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