Heat, uggg, I second that!

[Guest guest]

I confirm that also. Hard to explain to others how

smothering/suffocating the heat/humidity is. I can have the O2

cranked up to the highest flow possible and it just doesn't make any

difference. I need back in the AC for relief. The movement of air

is the only other saving grace, a breeze or fan helps more than

higher flow O2. It makes the air less stagnant/suffocating. I also

have described the pressure as feeling like an elephant is sitting

on my chest.

Kerry

37 IPF '01 S. IN

>

>

> Sue,

> Try not to get too down because you've had a few cruddy days. The

heat we've been having is brutal and I'm sure your air quality in VA

isn't any better than ours here in NC when we have a stationary

front like we do now. This kind of stuff can wreak havoc with our

breathing. Just go slow and don't panic.

>

>

> I hate when doctors circumstances change and we have to make

adjustments. I go to Duke also, it's actually practically in my

backyard. LOL Only about 4 miles from my house to the clinc building

where I see Dr. on. I'm sure whoever you choose at Duke will

be fine. My only advice would be make sure the doctor you choose is

a specialist in interstitial lung diseases as opposed to a general

pulmonologist or a specialist in some other type of lung

disease. You can get some info about the doctors their educations,

background and areas of expertise at this

website. http://www.dukeheal th.org/physician s

>

>

> Hope that helps!

>

>

>

>

>

> Beth

> Age 48 Fibrotic NSIP 06/06

>

> Change everything. Love and Forgive

>

>

>

>

>

> Re: Back up oxygen systems

>

>

>

>

> Thanks guys for your responses. To answer some of your

questions –MB: the cart is not made of platinum with mink tips (too

bad) in fact, the wheels are well worn and the screw that holds the

cylinder is almost stripped. When I said Pulmonary

> rehab, I actually meant a cardiac and pulmonary maintenance

program at the local wellness center. When I went through the

hospital approved program, they supplied the o2. I am on 4 liters

at rest, but I find 3 is OK too, but I'm on 6-8 on exertion. When

I'm exercising, I also have to use a rebreather mask which I hate to

keep the o2 levels up.

>                I am going to take Bruce's advice

and " diplomatically " inquire of the o2 supplier about the cost of

the cart rental.   I guess what really got me to thinking about

this, is that I got a bill for over $200 which covered several

months. It's much easier to pay a smaller amount each month than

be hit with a whopper of a bill.

>                I have my 3-month check up coming in a week and

I guess I'm nervous about that. I just have this gnawing feeling

that the disease has progressed. When you have a few bad days,

you can't help but think it's the disease, but it could be the

weather or meds too. I have been going to Duke for my care, and

was told that my dr. is going to be taking over the medical aspects

of the transplant program and has to give up his fibrosis

patients. I've heard a couple of you mention Dr. on and a

dr. friend also suggested a Dr. Govert. I will see who Dr. Steele

recommends and go from there.

>                Thanks for your suggestions.

> Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA

>

>

>

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>

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