Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Hi Kathy... (this time I have it straight...grin, grin). I was thinking as I read your post that differing opinions might come from how long a person has been on the board. After awhile members become individuals we know and love personally. Sometimes even visit with face to face. We know their families, kids and grandkid's names (if any) and intimate details about their lives. We've talked about end-of-life issues. I'm thinking this closeness is what prompts those who want a memorial of some sort. These people are no longer just members, they are family. Speaking only for myself here, remembering others does not remind me of my battle with this disease. Posting reminds me of it every day and helps me cope. I get the same strength and hope you say you do... we're lucky to have such a board aren't we. You say you live alone. Do you have family near by? I'm sorry I don't remember your dx (diagnosis) or when you were dx. I hope your today is a good one! MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there! memorials I have given this allot of thought and can't seem to shake it ,so please try to understand I mean no harm.I am fairly new here and awhile back I was going through a stage of so much anger I just wanted to hit something. I live alone,and I was pacing in my apartment just so frustrated,as I am sure you know what I was feeling. I came here and Jack had said something very witty and it made me smile when I desperately needed one. I come here and see strength and hope when I need it most. I feel we are all in a big war against this monster. We can share our fears and our triumphs.The word STABLE is so nice to see. Yes, our fallen comrades should be remembered, but I agree with Bruce,that this may not be the forum.I never got the pleasure of meeting the people you speak of and I know there must be someway to honor them without reminding the rest of us what battle we are fighting. I love the knowledge I gain here and the way the people relate. So, I will respect what you decide, but felt the need to express myself. I hope you understand. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Bruce, the problem with those online sites is that we spend more time here than practically anyplace else online. Why should we not have a memorial to our friends? I think it's a grand idea. I want to be remembered. I want people to know what a goof I am and how much I loved the folks on this board. I want people to know how I fought this disease and what my life was like in having it. To disregard those who have come before is to say that we're better than they were and we're bulletproof. We know we're not. Any " newbies " who come here should know of the wonderful people who made this board what it is, and if they don't understand what this board is about then they can look for another. And in response to your remark about the " other board " it's true that we lost a lot of people to this disease. I don't think it " became too visible to remain healthy " . It is still thriving, and even has many members of THIS board on it. No, there aren't as many posts as there are here, and it's true we grieved for quite some time for the awesome people we lost to this disease, but it is a fine board and doing quite well. And those people who died were very deserving of our tears and sorrow. Yes, we're living a life of dying. Remember, no one gets out of this world alive....and while we're here we should celebrate the loved ones who were here before us, or were friends while we were also here. You made it sound as if the whole thing were left in your hands and it isn't. This is a group and this should be decided by the group. If you didn't intend to offend anyone you shouldn't have started your sentence that way which shows that you knew it would offend someone, namely May who had come up with a lovely idea. The first time I came to this board I saw a lot of posts about Ginger. I knew she had died. It didn't deter me from being a member. On the other board we lost several people the first year I was on it. That didn't drive me away either. Sure we can all remember them in other ways, just as I remember my parents in my own way, but as a group I think the memorial database would be the easiest way for hundreds of us to " visit " our friends. If you don't want to see the memorials, DON'T. No one is forcing you to look. The newbies will have to understand that those people supported us at one time and deserve to be memorialized. I won't apologize for being snarky to you. You aren't always in charge here and you don't have to be so damn pompous with your opinions all the time. This is a board for a GROUP of people and our opinions matter and count too. When you pontificate at length about what YOU want then you're discounting the group as a whole. And that's MY opinion in a nutshell. Babs in Texas > > > > > > we have talked before of creating some kind of memorial to mark > > our friends who pass to the other side and haven't came up with > > the right thing yet. > > > > what about a word doc with a text box for each person containing > > a picture of a beautiful flower with their name and dates on it. > > mary-beth would perhaps have to keep the original one in her own pc > and > > add it to files anew every time we add to it. i think it would be > > hard to update on the board so re-loading every time may work. > > > > what kind of flower would remind you of ginger? i did think about a > > pic but that might prove a bit too difficult. > > > > any other ideas > > > > may uip 0606 > > glasgow, scotland > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 >Hey Sher: I was dx in 10/04 and at the end of this month I will be back in Houston, where my daughter is having my first grandchild in August. I moved to In. in o5, lost my job;etc.etc. moved in with mysister till I could get housing.I grew up here but lived in Tx for 27 years. It is really home to me. After all- " all my ex's live in Tx " I respect and do understand your feelings and it seems to me Beth came up with the perfect idea. We don't have time to argue here but respect each other and someone came up with a brilliant idea.I hope to get to know you guys better, but it takes me awhile to get the hang of things. By the way. WOULD ALL THE KATHY'S PLEASE STAND UP????????????????? > Hi Kathy... (this time I have it straight...grin, grin). > > I was thinking as I read your post that differing opinions might come from how long a person has been on the board. > > After awhile members become individuals we know and love personally. Sometimes even visit with face to face. We know their families, kids and grandkid's names (if any) and intimate details about their lives. We've talked about end-of-life issues. I'm thinking this closeness is what prompts those who want a memorial of some sort. These people are no longer just members, they are family. > > Speaking only for myself here, remembering others does not remind me of my battle with this disease. Posting reminds me of it every day and helps me cope. I get the same strength and hope you say you do... we're lucky to have such a board aren't we. > > You say you live alone. Do you have family near by? > > I'm sorry I don't remember your dx (diagnosis) or when you were dx. > I hope your today is a good one! > > MamaSher, age 69. IPF 3-06, OR. > Don't fret about tomorrow, God is already there! > memorials > > > > I have given this allot of thought and can't seem to shake it ,so please try to understand I mean no harm.I am fairly new here and awhile back I was going through a stage of so much anger I just wanted to hit something. I live alone,and I was pacing in my apartment just so frustrated,as I am sure you know what I was feeling. I came here and Jack had said something very witty and it made me smile when I desperately needed one. I come here and see strength and hope when I need it most. I feel we are all in a big war against this monster. We can share our fears and our triumphs.The word STABLE is so nice to see. Yes, our fallen comrades should be remembered, but I agree with Bruce,that this may not be the forum.I never got the pleasure of meeting the people you speak of and I know there must be someway to honor them without reminding the rest of us what battle we are fighting. I love the knowledge I gain here and the way the people relate. So, I will respect what you decide, but felt the need to express myself. I hope you understand. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2008 Report Share Posted June 18, 2008 Kathy... as you know, I kept getting you mixed up with Kathie in WA. Once I got the email uncrossed, I'm very clear! hahaa. I think you two are the only two. I THINK. Gee, 4 years out from your dx. That is so good. What is your dx? I know you must be anxious for your grandchild. I remember when I held my first granddaughter. Just a flood of love. Just like my own kids almost. Will you remain in Houston? Take care. MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there! memorials> > > > I have given this allot of thought and can't seem to shake it ,so please try to understand I mean no harm.I am fairly new here and awhile back I was going through a stage of so much anger I just wanted to hit something. I live alone,and I was pacing in my apartment just so frustrated,as I am sure you know what I was feeling. I came here and Jack had said something very witty and it made me smile when I desperately needed one. I come here and see strength and hope when I need it most. I feel we are all in a big war against this monster. We can share our fears and our triumphs.The word STABLE is so nice to see. Yes, our fallen comrades should be remembered, but I agree with Bruce,that this may not be the forum.I never got the pleasure of meeting the people you speak of and I know there must be someway to honor them without reminding the rest of us what battle we are fighting. I love the knowledge I gain here and the way the people relate. So, I will respect what you decide, but felt the need to express myself. I hope you understand.> Quote Link to comment Share on other sites More sharing options...
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