Guest guest Posted January 28, 2011 Report Share Posted January 28, 2011 i tried natual and western medicine. no luck. has your son been checked for clostridia? I think I'm in your "club": my son, also 11 and also becames crazy on antibiotics. Chelation was never succes for him. I did the round of ALL French doctors known in our "autistic world": no one seems to have a key. I was ready go for Us to see Dr Russel or dr Goldberg and still not really sure it's what I look for.Somewere, I don't wate no longer for huge progres, I think it will be very long and slow. The only thing I can't to deal with: my son is never ready for any work, he's always tired and sick (and very nervous). I have to struggle all the time. He has also Lyme and Strep higt titers... We're now on homeopathy stuff, the last one I have never really tried. Did you natural issue, Wilma?marynaDe : Wilma Jenks À : mb12 valtrex Envoyé le : Ven 28 janvier 2011, 21h 44min 41sObjet : Re: Newbie/VERY SICK CHILD he had my child on azith, nystatin and charcoal and she got worse an worse on this stuff. had to take her off after a month. she was a mess. Rages for us were due to PANDAS.....getting worse and worse over the years. in NJ was able to help us . www.drneubrander.com. He got some relief w/ high dose steroids and augmentin but what worked much better was high dose azithromycin and the biofilm protocol. SUsan Subject: Re: Newbie/VERY SICK CHILDTo: mb12 valtrex Date: Friday, January 28, 2011, 10:29 AM Hi Wilma. I am not much help with this,but I wanted to tell you your not alone.Most of my sons things are broke in some way.When he comes to his senses for periods(when he is not taking any meds or naturals) he is sad that he has broken so much.He is angry with all doctors now and can see they are the ones prescribing.He is 11 and has been to doctors constantly through out his whole life. Throughout his life he has been sick but doctors couldn't pinpoint what to do.Finally 3 years ago he got the Lyme,diagnoses.I thought here we go he can finally get well.But no he has been sick on all the meds..I tried all different kinds of Lyme docs. The docs keep thinking its "die off" of the infections.Well I have never heard of die off lasting for2-3 yearsSo .I stopped it all.I was on board of the autism Lyme yahoo group,and it had led me to this yahoo group.Now I have tried Valtrex and have had some positives(the first time in his life).So that idea led me to Dr.Usmans office.That was a waste.Now as of 2 weeks ago my son goes to Dr. NIDS.My thought are,that there is something up with his immune system so he reacts abnormal to things. My son is now reacting to the first med prescribed from Dr..He says stay on them.So we will see.Only time will tell us. So far my son should be in a crazy house for children. Please keep in touch or call (785)842-1725 MY child has so many wierd psychiatric symptoms. All meds. and supps make her rage even more. The teeniest bit of any med. makes her want to tear the house apart. I am treating for PANDAS but even the meds for that make her crazy. I am really at a loss. I have been to dozens of doctors and had tons of tests. The last test showeed a lyme "band 41" as abnormal. One doc says it is nothing to look into and others say it is. i need help. she is only 11 and has rages since 2, with no help or relief. thanks Quote Link to comment Share on other sites More sharing options...
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