Guest guest Posted July 20, 2002 Report Share Posted July 20, 2002 That reminds me, Lynn. When I had my EMG, it sounded like aliens were invading. LOL. My muscles were soooo noisy and I had no idea what that meant until he explained it to my afterwards. ) Dawn Lynn wrote: > Hi ! > > My name is Lynn and I have DM. I took Lipitor for 3 > years, then last august, I woke one morning with such > achy arm muscles and my adventure with myositis began! > > My rheumy also felt the DM was caused by the statin. > My CPK was at 3600. I stopped the statin about a week > before all hell broke loose, and from August to > November, my CPK dropped to 777 on its own. That's > why she felt it was related to statins and I would > return to normal. However, in November, I was started > on 60mg of Prednisone and the CPKs continued to drop > until April...I was down to 10 mg of Prednisone and > 7.5 of Methotrexate, 400mg of Plaquenil and a > wonderful CPK of 36!!! > > Then the spring sun came out. In one month my CPK > jumped to 1922. My rheumy changed her tune. Firmed > up my diagnosis (she was playing with the idea I had > MCTD/UCTD). Now, I have dermatomyositis for sure. > The Lipitor was the trigger. > > It's good to have an EMG. If you hear noise when the > needles are stuck into your muscles, that's a bad > sign...at rest, the muscles should be quiet. A biopsy > is great...it's important that the lab knows how to > prepare it, tho...my doc used the Armed Forces > Pathology Institue and they have an excellent > reputation. You might want to push to have an MRI > done prior to the muscle biopsy so a " good " place is > targetted to extract the tissue sample. Mine was > taken from the upper left thigh (no MRI) and it showed > myositis. The sample takes about 1 month to get back. > > I'm feeling good on Methotrexate, even tho I'm not > wild about the drug. I hate Prednisone, can't > convince my rheumy to try the antibiotic protocol, but > I keep trying! Plaquenil is a mild immune suppressant > drug, a member of the quinine family. Others here > will share what they're on. > > Welcome to our group...you are going to get lots of > information and support here! Honest...I don't know > what I'd do without all the friends I've made > here...they've become my family. It's hard on us, > cause our friends at home have a hard time > comprehending this disease... > > Lynn > > --- wrote: > > Hi all, > > > > My name is and I have been tentatively dx > > with pm. I live in the > > Bay Area of CA. I just saw a rheumotologist for the > > first time yesterday. > > He says that I may have pm, but is not really sure. > > He wants me to see a > > neurologist and have an EMG test done, then possibly > > a muscle biopsy. He > > says it could also be ibm or some kind of dystrophy. > > Evidently I don't have > > a classic case of pm in that my muscles do not feel > > weak in themselves, just > > painful. (just! LOL) And the muscles involved are > > mainly in my forearms and > > upper arms, but also involve the wrist and shoulder > > area. > > My cpk has gone from 495 to 356 in the past > > several months, which is good > > news, but since I don't know what was normal for me, > > I don't know how just > > how good. > > I was taking Lipitor and Tricor (both statins) > > for several years, and > > also Mirapex, for a separate neurological condition. > > All three of which are > > known to cause muscle problems. The combination of > > the three may have even > > been worse. Somehow I was under the impression that > > if muscle pain > > occurred, and the medication was stopped, the muscle > > pain would also stop. > > It hasn't, even though the medication was stopped > > over 2 months ago. > > Depending on the test results, the rheumotologist > > thinks that a medication > > called Methotrexate might help. Or pred. I have > > taken pred before and was > > not real happy with the side effects, and that was > > just in the short term. > > Is anyone here taking, or have taken, > > Methotrexate? What other meds are > > used to treat pm or ibm? > > > > Thanks > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 > I am new to the diet and the forum. I have been a vegetarian > for 8 years and I avoided this diet for over a year becouse I > thought that there was nothing I could eat in pahse one. O > sure we can have soft tofu. Fun. I am on day 5 and I feel OK > but I am in need of protien that doesn't involved dead > animals. Any good ides or recipies for that tofu? As a vegetarian you were likely almost doing the SBD anyway. What would you normally eat for protein? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2005 Report Share Posted May 6, 2005 Hi There... I get my protein from tofu as well as various cheeses, eggs, yogurt and milk and nuts.. As a vegan you would NOT necessarily be adhering to the principles of South Beach as mentioned since many vegans eat plenty of high fat sugary deserts and various other sinful delights.. My sister is a vegan that enjoys her chocolate mousse cake everyday for lunch, followed by strawberries loaded with real whipped cream.. The higher the sugar content the better she loves it.. To be a vegan does not mean you are adhering to any healthy eating habits.. it only means that perhaps you are opposed to killing of animals... or that perhaps that you just do not enjoy the texture of meat.. I tend to use my tofu in a " no stick " wok with lots of SB approved veggies.. You can search the net and find lots of good healthy vegan recipes and make them SB approved by modifying them... You can also enjoy some protein shakes.. --- Noctaire wrote: > > I am new to the diet and the forum. I have been a > vegetarian > > for 8 years and I avoided this diet for over a > year becouse I > > thought that there was nothing I could eat in > pahse one. O > > sure we can have soft tofu. Fun. I am on day 5 and > I feel OK > > but I am in need of protien that doesn't involved > dead > > animals. Any good ides or recipies for that tofu? > > As a vegetarian you were likely almost doing the SBD > anyway. What would > you normally eat for protein? > > Just hanging out at the beach and sunning myself...http://www3.sympatico.ca/kdworkin/dishing.jpg __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2005 Report Share Posted May 7, 2005 Hi Velvet... It is fine to stir fry in a non stick wok.. I use mine all the time.. But I tend to wet what I am cooking with some low sodium soy mixed with some lemon juice.. As for baking you can always make some delicious crustless quiche's done with various veggies and low fat cheese~~~ --- velvetmuse42 wrote: > Hi , > Is it OK to stir fry the tofu in phase 1? I can do > lots with that. > Its the bakeing that is getting old. I tried vegan > for a while. no > can do. I need my dairy in my coffee or I am not a > nice person in the > morning. OK I may have a slight coffee addiction. I > live in Seattle, > go figure. > Velvet > > > > > > I am new to the diet and the forum. I have > been a > > > vegetarian > > > > for 8 years and I avoided this diet for over a > > > year becouse I > > > > thought that there was nothing I could eat in > > > pahse one. O > > > > sure we can have soft tofu. Fun. I am on day 5 > and > > > I feel OK > > > > but I am in need of protien that doesn't > involved > > > dead > > > > animals. Any good ides or recipies for that > tofu? > > > > > > As a vegetarian you were likely almost doing the > SBD > > > anyway. What would > > > you normally eat for protein? > > > > > > > > > > Just hanging out at the beach and sunning > myself...http://www3.sympatico.ca/kdworkin/dishing.jpg > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2005 Report Share Posted June 25, 2005 Hi Steph.. Yes there are certain varities of low calorie dressings you cannot have...because they have added sugar.. But there are alternatives that you can indeed have.. I for one do not believe in ruining a great salad by smothering it in some high calorie dressing.. --- stephhov wrote: > > > Hi Steph... > > > > You certainly can have very low calorie salad > > dressings.. so your post does confuse me.. Try the > > Walden Farms dressings or some Italian oil and fat > > free.. > > > > What I meant by diet dressings is that in the carb > guide, it says I > shouldn't have low-fat or fat-free Thousand Island > (or many others) > but I can have regular Thousand Island. > > > I assume that something is added when they reduce > the fat, that > isn't in the original. > > (I must've read it in the book, but have forgotten.) > > ie > > > > Just hanging out at the beach and playing in the sandbox...http://dishingitout0.tripod.com/dishing.html __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2010 Report Share Posted June 7, 2010 Robin,Congratulations on taking a HUGE step in starting to eat intuitively! That's awesome! And good for you for enjoying two chocolate chip cookies! And that you ate them consciously! This is hard and scary but I promise that it DOES get easier! I think the thing that is hard is not the eating as much as the fact that you are facing your feelings and not burying them in food. That is hard work! But you will see great rewards! Please keep us posted and let us know how you are doing.Best,AbbyPracticing IE since 11/08 Hi my name is Robin and I am new to this group and this concept of eating for hunger. Sounds weird hah? I used to be very overweight and 10 years ago I lost 195lbs and have kept it off with the exception of 20lbs which I keep yo-yo-ing back and forth with. Which is telling you that even though most of the weight has gone away the compulsive eating and bingeing hasn't. I have just been hanging on by my teeth and my jaw is killing me. The only way I manage to keep most of weight off is by fasting or very restrictive dieting between binges. The binges and overeating is almost always healthy food but it doesn't matter. It's all abusive. I just finished reading Geneen Roth's book " Women, Food and God " and it really hit home for me. I have been practicing intuitive eating for a week now and it is harder then any " diet " . To eat with awareness, to not stuff down or starve away feeling is a foreign feeling to me. For the first time today I allowed myself to have 2 homemade chocolate chips cookies my daughter made yesterday. I ate them without distraction, I was hungry, but I still feel guilty (this is a food I have deemed evil and not allowed) and want to binge. I am not though, instead I am writing to the group. I am up my customary 20lbs and normally I would be fasting right now to make sure I lost the weight before my sister visits next month. She is a personal trainer and very fit, and although I love her to death and she would not judge me, I still feel I inadequate for not being thin enough. So instead of fasting to get this weight off before she gets here I am eating cookies and trying to be kind to myself. Seems like a retarded concept but I get it now. Robin -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2011 Report Share Posted January 15, 2011 Hello! I'm fairly new to IE. While I'm not overweight, I feel as though I was headed down that path before this book. It all started 3 years ago when I read " Skinny bitch " (avoid this book! it ruined my life with food). I was already a skinny bitch but thought I could improve so I decided to go vegetarian after that. That meant eating a lot of cheese in place of meat and for the first time in my life, overeating in the extreme. It's a lucky thing I was already into exercise. I remember having a " farewell to Mcs " meal. A nice big mac (my favorite). Avoiding meat made me feel morally superior. I quickly became addicted to chocolate to fill a void, and ate it until headaches set in. I finally decided to diet after approx a 10lb weight gain post high school over a 3 year period (still not overweight, just skewed body preception). I limited myself to 1200 calories a day or tried to and " failed " so I binged, because I had already messed up anyway. I gorged on peanut butter when chocolate wasn't around or caramel icing (two items I never cared much for before the deprivation!). I avoided restaurants and turned down social invitations until the lbs came off, which they never did. Food became my obessesion for the first time in my life. I never cared about calories or fat grams before. I was the fast food queen in high school - my friends used to marvel at how skinny I was despite my food intake. It finally hit me after reading IE that I used to eat exactly that way! When I was hungry I ate and stopped when I was full. It didn't matter that I ate crap, I was able to stay slim, happy, and SANE, because I ignored diets and listened to the signals. So here I am, ready to take back what's mine. It's been up and down so far. I have a string of good days, and not so good days and some stressors that set me off. Winter does not help either. Chocolate needs some work as I sTILL go overboard when I know darn well I'm full and keeping extra around seems to set off more overeating. Glad for this community! Quote Link to comment Share on other sites More sharing options...
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