Guest guest Posted June 13, 2008 Report Share Posted June 13, 2008 I'm not quite sure how to phrase this question, so be patient. In providing oximeters to a few our members made me wonder if there is an organization that supports fibrosis diseases in the sense of raising public awareness, money for research, and perhaps support for those afflicted who do not have the means to get the medical services they need. There are many groups out there for particular diseases, but I do not know of one for fibrosis. I know about the Pulmonary Fibrosis Foundation now, but prior to becoming a fibrosis patient I had never heard of it or the disease. I respect the work it does, particularly their emphasis on the patient. What I hope to see is an organization that can raise funds to help those you can't help themselves. I'm sure some of you can enlighten me on this subject. Jack Quote Link to comment Share on other sites More sharing options...
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