RE: Measles + Anne Connolly

[Guest guest]

My son is positive Anne Connolly IgM only. Two things that have really helped him. IVIG and Lamictal. About the only two things that have helped him. Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ArpitaSent: Friday, February 18, 2011 3:35 PMTo: mb12 valtrex Subject: Measles + Anne Connolly DS has high measles anti-bodies and his Anne Connolly test came back positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid. Can you tell me which interventions have worked the most for kids with a similar profile (positive Anne Connolly + high measles anti-bodies). DS has been improving but very very gradually. He has shown some response to anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but now he seems to be getting other stuff - first we had a round of parasites, then yeast and now it is turn for clostridia (and may be strep too). He didn't respond to valtrex, Immunovir or Amantadine.Again, I'd appreciate any inputs on what helped the most for kids with positive Anne Connolly and Measles anti-bodies.Thanks in advance.Best regards,Arpita.

[Guest guest]

would look into lyme and LDN

From: Arpita

Sent: Friday, February 18, 2011 3:34 PM

To: mb12 valtrex

Subject: Measles + Anne Connolly

DS has high measles anti-bodies and his Anne Connolly test came back positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid. Can you tell me which interventions have worked the most for kids with a similar profile (positive Anne Connolly + high measles anti-bodies). DS has been improving but very very gradually. He has shown some response to anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but now he seems to be getting other stuff - first we had a round of parasites, then yeast and now it is turn for clostridia (and may be strep too). He didn't respond to valtrex, Immunovir or Amantadine.Again, I'd appreciate any inputs on what helped the most for kids with positive Anne Connolly and Measles anti-bodies.Thanks in advance.Best regards,Arpita.

[Guest guest]

Pamela,

Thanks for your response. Would you mind sharing what his IGg sub-classes were.

We looked into IVIG, but DS had only high IgA - all his other IGg sub-classes

were withing range. Hence, we decided against IVIG.

Best regards,

Arpita.

>

> My son is positive Anne Connolly IgM only. Two things that have really

> helped him. IVIG and Lamictal. About the only two things that have helped

> him.

>

>

>

> Pamela

>

>

>

> From: mb12 valtrex [mailto:mb12 valtrex ] On

> Behalf Of Arpita

> Sent: Friday, February 18, 2011 3:35 PM

> To: mb12 valtrex

> Subject: Measles + Anne Connolly

>

>

>

>

>

> DS has high measles anti-bodies and his Anne Connolly test came back

> positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid.

>

>

> Can you tell me which interventions have worked the most for kids with a

> similar profile (positive Anne Connolly + high measles anti-bodies).

>

> DS has been improving but very very gradually. He has shown some response to

> anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but

> now he seems to be getting other stuff - first we had a round of parasites,

> then yeast and now it is turn for clostridia (and may be strep too). He

> didn't respond to valtrex, Immunovir or Amantadine.

>

> Again, I'd appreciate any inputs on what helped the most for kids with

> positive Anne Connolly and Measles anti-bodies.

>

> Thanks in advance.

>

> Best regards,

> Arpita.

>

[Guest guest]

How quickly do you see results from LDN? And hos dramatic are these results? I

asked our DAN about it last time but he responded saying it's only going to

modulate his immune system.

>

> would look into lyme and LDN

>

>

>

> From: Arpita

> Sent: Friday, February 18, 2011 3:34 PM

> To: mb12 valtrex

> Subject: Measles + Anne Connolly

>

>

>

> DS has high measles anti-bodies and his Anne Connolly test came back positive

with Landau Kleffner variant. DS is hyperimmune and is a viral kid.

>

> Can you tell me which interventions have worked the most for kids with a

similar profile (positive Anne Connolly + high measles anti-bodies).

>

> DS has been improving but very very gradually. He has shown some response to

anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but now

he seems to be getting other stuff - first we had a round of parasites, then

yeast and now it is turn for clostridia (and may be strep too). He didn't

respond to valtrex, Immunovir or Amantadine.

>

> Again, I'd appreciate any inputs on what helped the most for kids with

positive Anne Connolly and Measles anti-bodies.

>

> Thanks in advance.

>

> Best regards,

> Arpita.

>

[Guest guest]

His total IgG and sublclass one were low. Eventually, his subclass two bottomed out also. I don't recall the numbers and the reference ranges are determined by age. My son has been on IVIG for his Hypogammaglobulinemia for a couple of years. It helps him tremendously. Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of ArpitaSent: Monday, February 21, 2011 10:57 AMTo: mb12 valtrex Subject: Re: Measles + Anne Connolly Pamela,Thanks for your response. Would you mind sharing what his IGg sub-classes were. We looked into IVIG, but DS had only high IgA - all his other IGg sub-classes were withing range. Hence, we decided against IVIG.Best regards,Arpita.>> My son is positive Anne Connolly IgM only. Two things that have really> helped him. IVIG and Lamictal. About the only two things that have helped> him.> > > > Pamela > > > > From: mb12 valtrex [mailto:mb12 valtrex ] On> Behalf Of Arpita> Sent: Friday, February 18, 2011 3:35 PM> To: mb12 valtrex > Subject: Measles + Anne Connolly> > > > > > DS has high measles anti-bodies and his Anne Connolly test came back> positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid.> > > Can you tell me which interventions have worked the most for kids with a> similar profile (positive Anne Connolly + high measles anti-bodies). > > DS has been improving but very very gradually. He has shown some response to> anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but> now he seems to be getting other stuff - first we had a round of parasites,> then yeast and now it is turn for clostridia (and may be strep too). He> didn't respond to valtrex, Immunovir or Amantadine.> > Again, I'd appreciate any inputs on what helped the most for kids with> positive Anne Connolly and Measles anti-bodies.> > Thanks in advance.> > Best regards,> Arpita.>

[Guest guest]

oh we saw WAY more then just immune modulating, lang increase, health increase, socialization, play increase

From: Arpita

Sent: Monday, February 21, 2011 10:58 AM

To: mb12 valtrex

Subject: Re: Measles + Anne Connolly

How quickly do you see results from LDN? And hos dramatic are these results? I asked our DAN about it last time but he responded saying it's only going to modulate his immune system.>> would look into lyme and LDN> > > > From: Arpita > Sent: Friday, February 18, 2011 3:34 PM> To: mb12 valtrex > Subject: Measles + Anne Connolly> > > > DS has high measles anti-bodies and his Anne Connolly test came back positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid. > > Can you tell me which interventions have worked the most for kids with a similar profile (positive Anne Connolly + high measles anti-bodies). > > DS has been improving but very very gradually. He has shown some response to anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but now he seems to be getting other stuff - first we had a round of parasites, then yeast and now it is turn for clostridia (and may be strep too). He didn't respond to valtrex, Immunovir or Amantadine.> > Again, I'd appreciate any inputs on what helped the most for kids with positive Anne Connolly and Measles anti-bodies.> > Thanks in advance.> > Best regards,> Arpita.>

[Guest guest]

We've seen a whole lot less whining. And my children SEE things now. Trees fallen in the field (we've driven by for 4 years and just noticing now) imagining shapes in the clouds, daughter saying " hey mom look there's a pizza hut, of look there's another one... " and she used to not pay attn to ANYthing really. And eye contact, looking us dead in the face eye contact. She asks me what figures of speech mean, she makes jokes and gets them. It has been a real wow for my Asperger (w/ Hashimotos) kid.

 

oh we saw WAY more then just immune modulating, lang increase, health increase, socialization, play increase

From: Arpita

Sent: Monday, February 21, 2011 10:58 AM

To: mb12 valtrex

Subject: Re: Measles + Anne Connolly

 

How quickly do you see results from LDN? And hos dramatic are these results? I asked our DAN about it last time but he responded saying it's only going to modulate his immune system.>> would look into lyme and LDN> > > > From: Arpita > Sent: Friday, February 18, 2011 3:34 PM> To: mb12 valtrex > Subject: Measles + Anne Connolly> > > > DS has high measles anti-bodies and his Anne Connolly test came back positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid. > > Can you tell me which interventions have worked the most for kids with a similar profile (positive Anne Connolly + high measles anti-bodies). > > DS has been improving but very very gradually. He has shown some response to anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but now he seems to be getting other stuff - first we had a round of parasites, then yeast and now it is turn for clostridia (and may be strep too). He didn't respond to valtrex, Immunovir or Amantadine.> > Again, I'd appreciate any inputs on what helped the most for kids with positive Anne Connolly and Measles anti-bodies.> > Thanks in advance.> > Best regards,> Arpita.>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Hi Arpita,

My son also has high measles and is +ve IgM on the Anne Connolly test. In

addition we did the CAM KINASE test (Cunningham test) which was also elevated

(this is supposed to be high in PANDAS). Also my son has normal IgG levels.

Still my DAN thinks IVIG is the best treatment possible. He approached my

insurance company and we got approval for IVIG and so we will be doing IVIG next

week.

Regards,

Umesh

> >

> > My son is positive Anne Connolly IgM only. Two things that have really

> > helped him. IVIG and Lamictal. About the only two things that have helped

> > him.

> >

> >

> >

> > Pamela

> >

> >

> >

> > From: mb12 valtrex [mailto:mb12 valtrex ] On

> > Behalf Of Arpita

> > Sent: Friday, February 18, 2011 3:35 PM

> > To: mb12 valtrex

> > Subject: Measles + Anne Connolly

> >

> >

> >

> >

> >

> > DS has high measles anti-bodies and his Anne Connolly test came back

> > positive with Landau Kleffner variant. DS is hyperimmune and is a viral kid.

> >

> >

> > Can you tell me which interventions have worked the most for kids with a

> > similar profile (positive Anne Connolly + high measles anti-bodies).

> >

> > DS has been improving but very very gradually. He has shown some response to

> > anti-viral treatment (high dose Vit.A, LDM, OLE, Virastop, Monolaurin) but

> > now he seems to be getting other stuff - first we had a round of parasites,

> > then yeast and now it is turn for clostridia (and may be strep too). He

> > didn't respond to valtrex, Immunovir or Amantadine.

> >

> > Again, I'd appreciate any inputs on what helped the most for kids with

> > positive Anne Connolly and Measles anti-bodies.

> >

> > Thanks in advance.

> >

> > Best regards,

> > Arpita.

> >

>

[Guest guest]

Umesh, we are also doing 1st (God pray only) IVIG next week for dd5 with

high/severe PANDAS.

Wishing you success and sending good thoughts--

> > >

> > > My son is positive Anne Connolly IgM only. Two things that have really

> > > helped him. IVIG and Lamictal. About the only two things that have

helped

> > > him.

> > >

> > >

> > >

> > > Pamela

> > >

> > >