Re: low oxalate diet

[Guest guest]

IMO, if a child has suspected leaky gut, try low oxalate diet to see if things improve. There will be healing regressions, so make sure you read the files/group messages at trying_low_oxalates so you know what supps to have on hand.

A way to tell if a person has problems with oxalates is to look at their diet... if they crave high oxalate foods, they likely have a problem with them.We tried the LOD for my son due to the fact he has seizures. Me and my daughter are doing it because she's ASD and I feel I should support them by doing the diet (I do cheat sometimes) My diet was very high oxalate, as my big craving foods were high oxalate ones. Being on the diet helped cleared up a 3 yr skin issue in me... something traditional medicine did not do and that GFCF only somewhat helped... once I did LOD, it healed 100%

 

Hello Group,

I am trying to find information regarding the low oxalate diet. I did SCD for a year and saw great results the only problem was when we tested my daughter food allergies she seemed to have #3 for nuts, and certain other things. Her DAN thought her results were a mistake even though I had adheared to the diet perfectly for a year he couldn't believe how few things she was sensitive to. I am wondering what makes one choose low oxalates diet, like is there specific symtoms I should look for or is it a trial and error thing. Also I am trying to work on the parasite issue without testing but my daughter was a #3 sensitivity to Black walnut which seems to be the natural choice by many. My daughter is still self injurious biting her wrists and hitting herself in the head so I'm wondering if maybe I'm missing something, could it be diet or parasites, has anyone used something to stop self injury with success. Sorry so long!

Thanks,

Sandy

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Sandy,

So had your child had higher numbers of reactive foods before SCD?

We have had children on the low oxalate diet lose self injurious behavior. This

makes sense because oxalate can cause both pain and peripheral neuropathy and

itching or tingling or burning, so if you remove the cause of the pain or odd

feeling, then there is no longer a reason to injure.

We've learned on the TLO listserve a lot by having adults with other conditions

that improve on the diet tell us what they are FEELING, and it helps us in

interpreting what the children are feeling who maybe cannot tell us.

One of the remarkable things that came out after our first survey is that some

parents found that children who had been in obvious pain, but couldn't

communicate where that pain was, once they were low in oxalate, they could

identify WHERE they hurt and that helped their parents know what to do to help

them.

Oxalate gets taken up by blood vessels where it can cause so much inflammation

that it will make the blood vessels swell and show up like a roadmap on the

surface of the skin, something called livedo reticularis. Oxalate can build up

in the skin. Sometimes (in genetic hyperoxalurias) there is enough oxalate in

the skin and its blood supply to cause lesions and even gangrene, but what does

it feel like when it has not yet broken out in a lesion?

Did you see the list of symptoms parents said improved that I listed a couple of

days ago? Just search on my name about one or two days ago.

One of the best ways to tell if the diet would be relevant is just to start

reducing oxalate and see if anything changes. Often by just reducing the one or

two highest foods, someone will see in the first two days or so what we call

" the honeymoon " , which is a day or two of new skills and nice changes, and then,

just as suddenly, someone will see an onslaught of symptoms that we call " the

dump " . This happens as stored oxalate is liberated from cells where it was

stored all over the body. This oxalate in circulation causes the related

symptoms. These are the same sorts of symptoms that will clear up as the diet

continues.

It is totally shocking for some people how big this reaction can be when all you

did was remove maybe one or two foods from the diet.

Ordinarily, if normal levels of oxalate were in the diet before someone goes

lower, this dumping is not a big deal. But, if someone has been extremely high

in oxalate with a leaky gut for a long time, the dumping can be tough, and that

is why we recommend EASING into the diet in that case because that helps to keep

the severity of the symptoms down.

This is why we continue to believe it is very bad advice for someone beginning

biomedical treatment to ever go first to a higher oxalate diet before going low

oxalate....That strategy just adds in some misery that never has to be there.

Starting with a low oxalate g/f c/f or low oxalate SCD or whatever other diet

you choose makes sense. You can with gradually add in more oxalate later when

the child's body has detoxed from stored oxalate.

If there is any way we can help, let us know! You can get to our listserve by

clicking on " support " at lowoxalate.info.

>

> Hello Group,

>

> I am trying to find information regarding the low oxalate diet. I did SCD for

a year and saw great results the only problem was when we tested my daughter

food allergies she seemed to have #3 for nuts, and certain other things. Her DAN

thought her results were a mistake even though I had adheared to the diet

perfectly for a year he couldn't believe how few things she was sensitive to. I

am wondering what makes one choose low oxalates diet, like is there specific

symtoms I should look for or is it a trial and error thing. Also I am trying to

work on the parasite issue without testing but my daughter was a #3 sensitivity

to Black walnut which seems to be the natural choice by many. My daughter is

still self injurious biting her wrists and hitting herself in the head so I'm

wondering if maybe I'm missing something, could it be diet or parasites, has

anyone used something to stop self injury with success. Sorry so long!

>

> Thanks,

> Sandy

>

[Guest guest]

Hi Sandy,Something that was happening that told me that my daughter had an oxalate issue was that she couldn't tolerate ANY nuts at all.  Oils that come from nuts and seeds were also a problem.  She had chronic diarrhea that got WAY worse when she ate nuts of any sort.  If she ate walnuts, they would come out undigested along with a few days of diarrhea that was more wicked than usual. 

She also had problems with things like amaranth, quinoa, -- any grain product.But these did not show up on her IGG.  She reacted to these things but she didn't have an immunological response to them.  The body would just reject them. 

This is why I suspected there was an oxalate problem.  And when I started her on medium-low ox...holy cow, she dumped oxalates like crazy.  I'm seeing lots of new gains every day now in week 8 of a low ox version of SCD.  We did see some healing regressions at Weeks 5 to 6.  Don't be discouraged if you see the regression...it's healing regression that passes.

 

Hello Group,

I am trying to find information regarding the low oxalate diet. I did SCD for a year and saw great results the only problem was when we tested my daughter food allergies she seemed to have #3 for nuts, and certain other things. Her DAN thought her results were a mistake even though I had adheared to the diet perfectly for a year he couldn't believe how few things she was sensitive to. I am wondering what makes one choose low oxalates diet, like is there specific symtoms I should look for or is it a trial and error thing. Also I am trying to work on the parasite issue without testing but my daughter was a #3 sensitivity to Black walnut which seems to be the natural choice by many. My daughter is still self injurious biting her wrists and hitting herself in the head so I'm wondering if maybe I'm missing something, could it be diet or parasites, has anyone used something to stop self injury with success. Sorry so long!

Thanks,

Sandy