Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Tammy,I didn't know I had a problem till I took them away.A skin blemish I had for 4 years disappeared. I'm off wellbutrin.Canned carrots are low... you can boil and drain carrots... use raw carrots shredded in salad or just slices here and there (iow don't allow snacking on hundreds of baby carrots) Sunflower butter is thinner than PB but can be used. It's not low like once thought, but lower than PB. Arugala and Bok Choy are what I use in place of spinach. Romaine lettuce is good too. So how do you know when you should avoid high oxalates? I strongly suspect I should avoid it with my younger guy. But the older, I don't know. I hate to cut out stuff like carrots and spinach because there's so much benefit to them. Vitamin C has been a God-send. We rely on peanut butter too, not only to mix in supps but as a source of protein because beef came back elevated so I try to watch it. I hate to take these things away if oxolates are not an issue for him. what signs should I be watching for? -Tammy -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Tammy, I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas. Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps, Areas of reported change in our autism oxalate project Digestive: Improved gut function: digestion Loss of chronic diarrhea Loss of chronic constipation First normal stools in lifetime despite previous medical treatment Loss of ravenous hunger Needed increase in appetite Loss of food allergies or sensitivities Eating foods previously avoided Improved pancreatic function Losing tendency to stomach ache or migraine Loss of distended belly Loss of dysbiosis and yeast problems Ability to get off all GI medications because of healing Big changes with introduction of VSL #3, an oxalate-degrading probiotic Improved tolerance for sulfur foods or supplements Improvements in reflux or esophagitis Lost need for enzymes; or they started working differently Big changes in toleration for lots of different supplements Urinary: Loss of excessive urination Loss of urinary frequency Obtaining nighttime continency Obtaining daytime continency Loss of vulvar or penis pain & inflammation Movement: Improved energy (mitochondrial?) Vastly improved gross motor skills Improved handwriting Improved fine motor skills Beginning to enjoy sporting activities with friends and siblings Cognitive: Increased imitation skills Better counting Better and more spontaneous coloring Better sight word retention Less rigidity Better expressive language; losing apraxia Better receptive language Asking more questions: who, what, where Improved cognition: more complex thought Speaking in much longer sentences Understanding cause and effect Increases in imaginary play Sociability Developing negotiating skills Playfulness: enjoying life; jokes Calming of temperament Other areas: Loss of photosensitivity Loss of self-abusive behavior New ability to tell parent locations of pain Rashes and bumps disappearing Sleeping through the night Loss of chronic leg and foot aches (growing pains) Improvement in iron stores and anemia Better phenol tolerance incl: no-phenol product started working Loss of salt craving Catch-up growth Normalization of 's temperature syndrome Normalization of iodine levels Loss of tic of swallowing air constantly Loss of autistic gait Improvement in acne in teenager > > So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know. > I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him. > > what signs should I be watching for? > > -Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Nut butters, some beans, spinach, rhubarb, chocolate.Only LOW ox bean is black eyed peas, and they are SCD illegal. @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I couldn't believe the stuff that was coming out. All kinds of the weirdest crystals -- some were actually quite big -- about the size of a coarse grain of salt. And some pieces even had black specs stuck onto them. I couldn't crush some of these crystals with my fingers -- these were very compacted pieces. The other pieces that were brownish-reddish I could easily smoosh in my fingers and they disintegrated into the very very fine crystals when smooshed. I'm still reeling at how they came out. Most of the " free " ones that were in her urine were very very tiny -- they looked like grit that would come off very fine sandpaper. I described it in detail to the Trying Low Oxalates group. It was SO weird that it took me a while to wrap my brain around it. There were a few days where the urine in her potty was really cloudy. I shone a flashlight to it to see if I could see the bigger oxalate pieces and I almost fell over when I saw that the cloudiness in her urine was actually saturation of the very fine oxalate crystals. There were literally millions of the really fine crystals in her pee and it was so fine that I was just seeing it as cloudy pee but when I shone a flashlight to it, the tiny crystals reflected the light from the flashlight and I could see the little crystals floating around!!!! When I read about the relationship between dumping and B6, I started to wonder if that was why she had trouble with B-complexes and didn't do so well when even I tried to supplement B6 alone before. The time when I supplemented B6, she was still in diapers and I start to wonder if what I was seeing wasn't a " bad " reaction to B6 (because I saw an increase in loose stools) -- I wonder if it was an ox dump. I definitely wouldn't have been able to see these crystals in a diaper at the time. Raw nectarine is still giving her diarrhea. She can do raw pears if they're very ripe but peaches and nectarines are still a no-go when they're raw. Apples, still not happening if she eats a whole apple (raw or cooked) but she can have some small amounts of apple sauce when I cook the apples and puree them. She definitely can't do grape juice or avocados. We can't do eggs. We can't do chicken but turkey is ok. I just kind of have our own customized version of SCD with foods that she will tolerate. I'm still trying to figure out my son. I just added milk back into his diet and he's doing much better with milk than without. He LOVES his potatoes and I wonder if potatoes are an issue for him because he freaks out about them so much. When I got home from work yesterday, my husband told me that Ethan was crying at some point in the day. Maia went up to him and gave him a kiss on the cheek to try to calm him. Sympathy or empathy? This is definitely new behavior that didn't exist before low-ox/SCD. I swear, new things keep happening every day on this diet. Low ox/SCD totally rocks! @Alberta! Awesome! So THAT'S what Oxalate dumping looks like? I saw crystals in my sons stool a couple days ago!! Sweet! I am doing a modified SCD where I am allowing one starch a day....(kind of a weaning process b/c he has been a carb addict even though GFCF!!) What are the biggest Oxalate foods that I should keep in check?? HELP!! Also we are on day 11 Valtrex/Diflucan and he had BRIGHT red cheecks tonight and 2 rashy spots on either side of his mouth!! Yay for a sign that something's going ON!! > > Alberta!!!!!!!!!!!!!!!!!! > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the happy dance > for you, mama!! > > I want to say thank you because 15 minutes ago I was feeling so frustrated and > discouraged that I was ready to throw in the towel and drive my son to pizza > hut. Hearing this put me right back in check. > > Way to go Maia!!!! > > -Tammy > > > > ________________________________ > > To: mb12 valtrex > Sent: Sun, February 20, 2011 7:29:20 PM > Subject: Re: Re: oxalates > >  > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days after > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 days -- I > used that as an opportunity to start her on SCD and reduce oxalates. > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with all > the interventions we've done. I've stopped almost all of her supplements right > now except liquid MB12 and CLO. We are also doing some cell food and > chlorophyll on the advice of our DAN. > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks of > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT came out > (I had no idea prior to starting this that she even had an oxalate issue -- she > just had chronic loose stools and I couldn't figure out why). > > > Here are the new things I'm seeing in Week 8 that weren't there before: > 1. Verbal imitation -- this is the holy grail I've been chasing for a whole > year. She is imitating certain words in poetry on kids shows she's seeing on > TV. She imitates words I make. Prompted is still a bit iffy but when her ABA > therapist asked her to sit the other day, Maia pulled out the chair and said > " sit " . She is imitating all kinds of words and sounds that people around her > are making. She is trying to sing songs. She went from completely mute a year > ago to imitation. She had some quasi word approximations 2 months ago, but now > it is turning into focus on what someone is saying and verbal imitation. Lots > and lots of chattering all day long. My chatty little Princess Maia! She is > attempting new words like saying " music " , " store " . > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a bubble > wand now. She was not able to do this even two weeks ago. This is a skill she > has just acquired. > > > 3. Her stools are consistently formed now. She had an infraction a few days ago > and ate some potato chips and got into some chocolate. Not pretty and she had > diarrhea for two days but once those things left the system, everything was good > again. > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session with only > one 15 minute break in her last ABA session. > > > 5. Can sit through circle time at preschool very consistently now. She can sit > through 35 minutes at a time now without getting up and getting distracted. She > participates in circle time. > > 6. She had an awkward wave before where when she was prompted to wave " bye " to > someone, the palm of her hand would be facing herself. She has just learned to > correct that in Week 7 of reduced oxalate/SCD. > > > This is SO exciting for us. I never imagined that her apraxia could lift like > that. I wish I would've spent that last year doing SCD and low oxalates. I'm > so motivated to do this right now and I'm going to be so fastidious about it. > I'm so amazed at the really nice things I've been seeing in only 8 weeks on this > new diet. Really, really nice! > > I just picked up her DMG in liquid form right now to make sure it's SCD. But > I've also heard that many people with oxalate issues have problems with DMG. > But I was seeing her do some nice things in DMG before. I'm going to > re-introduce it again slowly and see what happens. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I wanted to add to this that there is NO doubt the LOD has pretty much turned my kid's life around. He's a huge diet responder in the first place, but we were fortunate enough to be led to the LOD FIRST, and wow. I wish you could see my kid. When I first started reading about it, I was pretty much in despair because I thought there was just NO way I could get him off his chocolate almond milk (makes me cringe to think about it),do GFCFSFCF, Feingold, everything-free, but just a few months later we were rockin' and rollin' and it's just second nature now. Soon as I see one ingredient I go " Nope. " The ladies over on TLO group are much better cooks than I, but they share like crazy and are amazing like the ones here. We gotta get rid of his parasite infection, deal with thyroid issues, but other than that LOD is all we do. He's had two pretty big regressions in the past year, both times when we tried Nystatin, big shocker, just made that connection a few days ago. Everytime I try one of the " wonder drugs " it backfires, so we just decided hey, lets just keep doing what works. AND LOD WORKS! You'll be happy you tried it, Amy > > > > So how do you know when you should avoid high oxalates? > > > > I strongly suspect I should avoid it with my younger guy. But the older, I > > don't know. > > I hate to cut out stuff like carrots and spinach because there's so much > >benefit > > > > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > > > > to mix in supps but as a source of protein because beef came back elevated so I > > > > try to watch it. I hate to take these things away if oxolates are not an issue > > > for him. > > > > what signs should I be watching for? > > > > -Tammy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 You can use magnesium as well, just calcium seems to have a better affinity to oxalate than magnesium, from what I understand. If you are pretty low ox, you don't need to do cal or mag before the meals. I use the cal before a medium oxalate meal. Like when I allow my mom to buy fries from 's (yes I know there is probably a cross contamination with gluten, we also use an enzyme) Cal probably causes constipation and magnesium (too much) can cause the runs! Toni - can calcium citrate cause constipation? My daughter had finally gotten back to regular, formed stools after what felt like an eternity of loose ones. It seemed like when I started giving the citrate before meals, she got constipated (went from going every day, to going 4 days with nothing and then pooping little pellets). I took the calcium out and she is totally back to normal. The only other thing I did at around this same time that she got constipated was iodine (I started it about a week ago). I had read somewhere that iodine can cause constipation. Just wondering what the likely culprit is. I'm guessing the calcium since removing it helped the issue. If I am pretty low-ox, how important is the calcium before each meal? - Kirk- To: mb12 valtrex From: bellbaby@...Date: Sun, 20 Feb 2011 20:41:48 -0500 Subject: Re: Re: oxalates Try to give calcium citrate 20 mins before ingesting. Citrate form is supposed to bond to oxalate without out forming crystals. Therefore you may get cloudy urine but hopefully will not be painful. I was using regular chewable calciums for myself and getting urinary " pressure " when getting rid of what I assume was oxalate bound calcium urine... once I learned the citrate form did not crystalize, I stopped using the chewables and use only the actualy citrate form. wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps? Thanks so much Toni and - you guys are awesome : ) -Tammy To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates. We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere. Hopes this helps,Areas of reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatment Loss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended belly Loss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplements Improvements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequency Obtaining nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwriting Improved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retention Less rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effect Increases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behavior New ability to tell parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started working Loss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager >> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for? > > -Tammy> -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 We use macadamia nuts, and pumpkin seeds.'s pumpkin seeds are high in salt (read the fine print on the package) but my daughter adores them and they are a good source of um, zinc and magnesium I believe. You can make your own and season more lightly. Sunflower seeds can be used too, just not willy nilly.I have been buying Macadamia + Mango " Kind " bars for quick snack/meals.Do you have a Chipotle fast food restaurant in town? They have many GF options, but if your child is sensitive to soy lecithin, you will probably want to avoid it. Burrito Bowl is a rice bowl with whatever you want... we get a spoon of pintos on the rice and split it between two or three people. I think pintos and kidney beans are medium ox, so as long as you aren't eating a whole can of them, you should be ok to dress up a meal with them. LOD has a steep learning curve, I won't lie! But it's been easier than what I would imagine SCD to be. I am not a chef so the kids get a lot of " boring " meals like grilled chicken and boiled broccoli. We also use white chocolate. It has milk in it. I melt it and add an enzyme (the temp is not too hot) There are white choc without soy lecithin and milk, but I just get the Ghiardelli bars at the regular supermarket. Okay I need suggestions: Implementing a lot of the SCD has eliminated rice bread, and thus peanut butter. BUT my son likes to eat almonds & cashews for snacks. WHAT IN THE WORLD AM I TO GIVE HIM?? Other than dried fruit, fruits....I need SNACK ideas! Help!!!!!!!!!!!!!!!!!!! > > > > > > Alberta!!!!!!!!!!!!!!!!!! > > > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the > > happy dance > > > for you, mama!! > > > > > > I want to say thank you because 15 minutes ago I was feeling so > > frustrated and > > > discouraged that I was ready to throw in the towel and drive my son to > > pizza > > > hut. Hearing this put me right back in check. > > > > > > > > Way to go Maia!!!! > > > > > > -Tammy > > > > > > > > > > > > ________________________________ > > > From: Alberta <gnomederwear@> > > > > > To: mb12 valtrex > > > Sent: Sun, February 20, 2011 7:29:20 PM > > > Subject: Re: Re: oxalates > > > > > >  > > > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days > > after > > > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 > > days -- I > > > used that as an opportunity to start her on SCD and reduce oxalates. > > > > > > > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with > > all > > > the interventions we've done. I've stopped almost all of her > > supplements right > > > now except liquid MB12 and CLO. We are also doing some cell food and > > > chlorophyll on the advice of our DAN. > > > > > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks > > of > > > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT > > came out > > > (I had no idea prior to starting this that she even had an oxalate issue > > -- she > > > just had chronic loose stools and I couldn't figure out why). > > > > > > > > > Here are the new things I'm seeing in Week 8 that weren't there before: > > > 1. Verbal imitation -- this is the holy grail I've been chasing for a > > whole > > > year. She is imitating certain words in poetry on kids shows she's > > seeing on > > > TV. She imitates words I make. Prompted is still a bit iffy but when > > her ABA > > > therapist asked her to sit the other day, Maia pulled out the chair and > > said > > > " sit " . She is imitating all kinds of words and sounds that people > > around her > > > are making. She is trying to sing songs. She went from completely > > mute a year > > > ago to imitation. She had some quasi word approximations 2 months ago, > > but now > > > it is turning into focus on what someone is saying and verbal > > imitation. Lots > > > and lots of chattering all day long. My chatty little Princess Maia! > > She is > > > attempting new words like saying " music " , " store " . > > > > > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a > > bubble > > > wand now. She was not able to do this even two weeks ago. This is a > > skill she > > > has just acquired. > > > > > > > > > 3. Her stools are consistently formed now. She had an infraction a few > > days ago > > > and ate some potato chips and got into some chocolate. Not pretty and > > she had > > > diarrhea for two days but once those things left the system, everything > > was good > > > again. > > > > > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session > > with only > > > one 15 minute break in her last ABA session. > > > > > > > > > 5. Can sit through circle time at preschool very consistently now. She > > can sit > > > through 35 minutes at a time now without getting up and getting > > distracted. She > > > participates in circle time. > > > > > > 6. She had an awkward wave before where when she was prompted to wave > > " bye " to > > > someone, the palm of her hand would be facing herself. She has just > > learned to > > > correct that in Week 7 of reduced oxalate/SCD. > > > > > > > > > This is SO exciting for us. I never imagined that her apraxia could > > lift like > > > that. I wish I would've spent that last year doing SCD and low > > oxalates. I'm > > > so motivated to do this right now and I'm going to be so fastidious about > > it. > > > I'm so amazed at the really nice things I've been seeing in only 8 weeks > > on this > > > new diet. Really, really nice! > > > > > > I just picked up her DMG in liquid form right now to make sure it's > > SCD. But > > > I've also heard that many people with oxalate issues have problems with > > DMG. > > > But I was seeing her do some nice things in DMG before. I'm going to > > > re-introduce it again slowly and see what happens. > > > > > > > > > > > > > -- > Toni > > ------ > Mind like a steel trap... > Rusty and illegal in 37 states. > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. 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Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 Vitamin c converts to oxalate. You can supp the RDA or do more if you break it up in small doses thru the day. Like 25-50 mg here and there. Never heard that about fish oil... most oils are low ox. Hmmm. I was so happy/excited to read this, Alberta. We just started SCD/low ox a month ago... we are still going through some hard times with it, but to read about your daughter's gains is so exciting and makes me even more sure that we are doing the right thing. , so far snacks are hard for us as well. Not sure what to use for ABA reinforcers now too... if anyone has any ideas, all I can come up with is bubbles. And tickles. Songs. And iPad games. But Crosby is liking cucumbers and string beans for snacks, and I've been taking sliced Applegate farms hot dogs with us everywhere (with an ice pack). I'd love to hear what other suggestions people have for snacks/reinforcers. Also, question for Toni: I was reading that vitamin C and fish oil are high ox. What do you use in lieu of these? Both are used a lot with Crosby, and I need to know what to replace them with. Is the fermented fish oil low ox? Thanks! > > > > > > > > Alberta!!!!!!!!!!!!!!!!!! > > > > Yay!!!!!!!!!!!!!!!!!!!!!! That is beyond awesome. I am doing the > > > happy dance > > > > for you, mama!! > > > > > > > > I want to say thank you because 15 minutes ago I was feeling so > > > frustrated and > > > > discouraged that I was ready to throw in the towel and drive my son to > > > pizza > > > > hut. Hearing this put me right back in check. > > > > > > > > > > > Way to go Maia!!!! > > > > > > > > -Tammy > > > > > > > > > > > > > > > > ________________________________ > > > > From: Alberta <gnomederwear@> > > > > > > > To: mb12 valtrex > > > > Sent: Sun, February 20, 2011 7:29:20 PM > > > > Subject: Re: Re: oxalates > > > > > > > >  > > > > I'm on Week 8 of SCD/medium-low oxalates right now. We started two days > > > after > > > > Christmas Day, when Maia was sick and had the flu and didn't eat for 2 > > > days -- I > > > > used that as an opportunity to start her on SCD and reduce oxalates. > > > > > > > > > > > > Each week, I'm seeing absolutely incredible gains I hadn't seen ever with > > > all > > > > the interventions we've done. I've stopped almost all of her > > > supplements right > > > > now except liquid MB12 and CLO. We are also doing some cell food and > > > > chlorophyll on the advice of our DAN. > > > > > > > > We saw a little bit of regression in Weeks 5 to 6 but she had a few weeks > > > of > > > > heavy oxalate dumping. I saw crystals in her stools and urine. A LOT > > > came out > > > > (I had no idea prior to starting this that she even had an oxalate issue > > > -- she > > > > just had chronic loose stools and I couldn't figure out why). > > > > > > > > > > > > Here are the new things I'm seeing in Week 8 that weren't there before: > > > > 1. Verbal imitation -- this is the holy grail I've been chasing for a > > > whole > > > > year. She is imitating certain words in poetry on kids shows she's > > > seeing on > > > > TV. She imitates words I make. Prompted is still a bit iffy but when > > > her ABA > > > > therapist asked her to sit the other day, Maia pulled out the chair and > > > said > > > > " sit " . She is imitating all kinds of words and sounds that people > > > around her > > > > are making. She is trying to sing songs. She went from completely > > > mute a year > > > > ago to imitation. She had some quasi word approximations 2 months ago, > > > but now > > > > it is turning into focus on what someone is saying and verbal > > > imitation. Lots > > > > and lots of chattering all day long. My chatty little Princess Maia! > > > She is > > > > attempting new words like saying " music " , " store " . > > > > > > > > 2. Her apraxia is lifting even more. She is able to blow bubbles from a > > > bubble > > > > wand now. She was not able to do this even two weeks ago. This is a > > > skill she > > > > has just acquired. > > > > > > > > > > > > 3. Her stools are consistently formed now. She had an infraction a few > > > days ago > > > > and ate some potato chips and got into some chocolate. Not pretty and > > > she had > > > > diarrhea for two days but once those things left the system, everything > > > was good > > > > again. > > > > > > > > 4. SO focussed in her ABA sessions. She did an entire 3 hour session > > > with only > > > > one 15 minute break in her last ABA session. > > > > > > > > > > > > 5. Can sit through circle time at preschool very consistently now. She > > > can sit > > > > through 35 minutes at a time now without getting up and getting > > > distracted. She > > > > participates in circle time. > > > > > > > > 6. She had an awkward wave before where when she was prompted to wave > > > " bye " to > > > > someone, the palm of her hand would be facing herself. She has just > > > learned to > > > > correct that in Week 7 of reduced oxalate/SCD. > > > > > > > > > > > > This is SO exciting for us. I never imagined that her apraxia could > > > lift like > > > > that. I wish I would've spent that last year doing SCD and low > > > oxalates. I'm > > > > so motivated to do this right now and I'm going to be so fastidious about > > > it. > > > > I'm so amazed at the really nice things I've been seeing in only 8 weeks > > > on this > > > > new diet. Really, really nice! > > > > > > > > I just picked up her DMG in liquid form right now to make sure it's > > > SCD. But > > > > I've also heard that many people with oxalate issues have problems with > > > DMG. > > > > But I was seeing her do some nice things in DMG before. I'm going to > > > > re-introduce it again slowly and see what happens. > > > > > > > > > > > > > > > > > > > > > -- > > Toni > > > > ------ > > Mind like a steel trap... > > Rusty and illegal in 37 states. > > > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. 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Guest guest Posted February 21, 2011 Report Share Posted February 21, 2011 I'd always taken the jello crystals as the absorbent material in the disposable diapers. I've seen those before and thought they were coming out of the diaper.I've eliminated all snack-type foods for the time being in the name of simplicity. My kids are young enough where if I eliminate them, they don't know any better...well, my daughter sort of does but after a while, she knows I'm not going to cave, so she just eats what I give her. I give a lot of cooked fruit for snacks. I puree and put it in a little tupperware snack container. I also make squash fries. A lot of meat-veggie mix dishes. I do meat-veggie loaves. Sometimes stir fried " noodles " using spaghetti squash. I do salmon once a week. You can do avocados but Maia doesn't tolerate them. I do carrot chips sometimes (I know, they're a little hi-ox so we don't do them very often -- and I didn't know that cal citrate helps to get rid of oxalates -- good to know, Toni). I do a lot of mix stir fries with cooked veggies and some meat. I use garlic veggies a lot for killing parasites and bacteria. I " pad " home made breakfast sausages with zucchini and put in a little green onion for flavor. I've been thinking about making pumpkin flour and doing something with that. I may make pumpkin meat " pancakes " . My kids can't do eggs but you can do it with eggs and pumpkin flour. I give raisins for snacks. I may get adventurous and start making fruit juice jello. I'm thinking about doing fruit roll-ups in the dehydrator with cooked fruits, too. For now, I'm just keeping it simple while I learn more about SCD and mainly do meal foods and give them whenever the kids are hungry. I instruct their school/daycare to do the same. My kids will eat meal foods as snacks. Don't get me wrong, my kids would love " snack " foods as snacks but I think about how expensive ABA is and just say " ah, screw it... " Recovery is the main focus. When they've healed, we can maybe think about snack foods. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Toni and , So I've decided to just do one shwoop and watch the oxalates, phenols and salicylates since we're pretty much starting from scratch anyhow. I've noticed with many of the fruits and vegetables that I'd have the best chance of getting into the boys tend to be low ox/but higher in salicylates. How do we work this? sort of like weight watcher's points? Also, I noticed potatoes were high ox. Do you know if that includes yucca too? My little guy's favorite is mashed potates.... and it's to sneak in cauliflower and a little avocado. Bad enough the peanut butter's gotta go and the tomato sauce has gotta go, but the potatoes? What a bummer. It seems like there's not a single food out there that isn't bad for you one way or another. -Tammy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Tammy, this frustrates me too. However, that being said, what I did do, is that I limit it. I don't kiss it goodbye (except on Feingold - Jimmy was a whiny mess with those foods like grapes, OJ, tomatoes, cucumbers) -- and with potatoes, because my guy loves French fries (I mean, who doesn't?) - I give him calcium citrate 20 min prior. I also give him some high ox drinks (for nutrition reasons).and again, 20 min prior, calcium citrate. This has helped quite a bit. However, Rob is AWFUL on oxalates but seems to tolerate the other stuff, which he is allowed to have outside the house (like when he goes to program)... laura > > Toni and , > > So I've decided to just do one shwoop and watch the oxalates, phenols and > salicylates since we're pretty much starting from scratch anyhow. I've > noticed with many of the fruits and vegetables that I'd have the best chance of > getting into the boys tend to be low ox/but higher in salicylates. How do we > work this? sort of like weight watcher's points? Also, I noticed potatoes were > high ox. Do you know if that includes yucca too? My little guy's favorite is > mashed potates.... and it's to sneak in cauliflower and a little avocado. Bad > enough the peanut butter's gotta go and the tomato sauce has gotta go, but the > potatoes? What a bummer. It seems like there's not a single food out there > that isn't bad for you one way or another. > > > -Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2011 Report Share Posted February 25, 2011 Yucca is high.Red Potatoes are medium.We eat potatoes about once a week. I'm living on the edge tonight, ate some potato chips without calcium... probably pay for it tomorrow. Ouchie.Tammy, DON'T cut all the oxalate low at one time. It will cause a huge, painful dump. Go slowly!!! I still use tomato sauce, just in lower quantities. Toni and , So I've decided to just do one shwoop and watch the oxalates, phenols and salicylates since we're pretty much starting from scratch anyhow. I've noticed with many of the fruits and vegetables that I'd have the best chance of getting into the boys tend to be low ox/but higher in salicylates. How do we work this? sort of like weight watcher's points? Also, I noticed potatoes were high ox. Do you know if that includes yucca too? My little guy's favorite is mashed potates.... and it's to sneak in cauliflower and a little avocado. Bad enough the peanut butter's gotta go and the tomato sauce has gotta go, but the potatoes? What a bummer. It seems like there's not a single food out there that isn't bad for you one way or another. -Tammy -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2011 Report Share Posted March 1, 2011 Nope. Vitamin C converts to oxalate inside the cell. So then it's trapped as oxalate and you have to wait for a " dump " for the cell to expel it.:-(Supposedly you can take vitamin C in small quantities thru the day and avoid the oxalate issue... as the body would be using the vitamin C as it went along. So, if you have enough Calcium and Magnesium you can stop C from becomming oxalate yet have the benefits of the C ? Is that right? Cheryl > > > > B6 is very good to combat oxalate specially from vitamin c > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
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