Need help

January 13, 2005

OK, complete tonic (with tumeric).... complete nutrition, and msm... and at least get her off celebrex... then you can work on the others....

http://www.drugdigest.org/DD/Interaction/ChooseDrugs this site might help you on interactionsroni_slye <roni_slye@...> wrote:

Thank you Suzi, The problem with getting my mom off the medications is, one the drs tell her she will not get out of bed without the meds and she believes them, two I think she likes them and is probably addicted to them. My mom believes that medications are the answer to everything and has taken a lot of medications for as long as I remember. If you have a headache at her house and happen to mention it, she will offer you some tylenol with codeine. Her problems are numerous (I believe largley due to the meds, diet, and inactivity). She has a form of arthritis called ankylosing Spondylitis, osteo arthritis in her knees (she has had a knee replacement), bursitis, IBS, high cholestrol, high blood pressure, osteoporosis, restless leg syndrome, acid reflux, and just a few days ago was diagnosed with

diabetis. I think this is it, but I may be forgetting a few things. My only hope is that if she has even a small success with alternative treatments, she may be more open to getting off the meds and changing her lifestyle. I know these are high hopes, but since she has given me the opportunity I have to try. I have Deep tissue repair oil and BF & C, but I am concerned about reactions with the meds, and liver damage due to the fact that the meds are already so hard on the liver. Are these concerns valid or is it redundant due to the fact that the meds are already so damaging? I think the MSM should be pretty safe. If anyone knows of any concerns with MSM and meds please let me know. So, given the fact that she is probably not going to quit taking the meds what alternative remedies would be pretty safe. They also must be easy and pleasant or she will not do it (she may not anyway). I know this is a lot to ask, but

again I have to try. Thank you so much for your input Suzi, and I will show Mom your response. I just hope I don't completely alienate her. I am walking a very fine line as she gets very defensive about her meds and drs, but it is worth the risk if I can get through to her in even a small way.Love,Roni -- In health , Suzanne <suziesgoats@y...> wrote:> Hi Roni.> I know Don will have alot in the a.m. however, tell your mother from me... one mother to another well, actually a grandmother to ...(I'm 51, if that helps)> that Celebrex is the worst she can take... they prescribed that for me... after surgery and I took it in the hosp... didn't do anything for the pain and arthritis... (oh yes, forgot to mention that they also told me that the arthritis was a combo osteo and rhumatoid) now let

me tell you what did work. We're talking level 4 on the knee cap... and that I would always have some swelling and pain..... (Some swelling?? It was twice the size of the other one even months after and they drained it 3 times)...and pain.> Now if you can get the powder MSM and capsule it yourself the better... take 3-4 capsules 3 times a day for the first week then cut back to 6 -9 - as the pain lessens cut back the following week to 4-6.... and this can vary some... Also, get some deep tissue oil, BF & C ... use these as a rub or salve on the afflicted area 2-3 times a day or as needed...> Get your mother off these drugs.(the combo of all of them is really screwing with her body) .. what are her problems? Please tell her for me (let her read this) that these meds are only making matters worse... > My knee only aches slightly when there are weather changes and I am going up steps

(at the same time)... only time I notice it.. They told me I would not run again... HAAAA! What do they know... I also did alot of juicing and raw veggies, salads, etc during this time... No it wasn't easy, but I did not want to live with pain and an ugly knee.. Your mom is going to have to make some tough decisions... Detox baths are also very good... and hot/cold therapy.. (did them too).....> Wait for Don's reply in the a.m. and add these together...>

January 13, 2005

roni_slye wrote:

>

> Thank you Don,

> Actually, you have helped me. I completely agree that the meds are

> causing many of her problems, unfortunately she doesn't see this.

> When I have talked to her about side effects of meds, she swears she

> has never had any problems from her meds. I have seen a slight

> glimmer of hope lately though, as I explained to her that perhaps

> she did have side effects from her medications but just didn't

> realize that it was the medications causing the " new " problem she

> was having, she seemed to actually give this some thought.

> Unfortunately she doesn't want to " give up " anything she likes, and

> wants a pill to take care of everything so that she will not have to

> change. I think, perhaps, she might be starting to realize that the

> pills are not taking care of everything. I hope this is the case,

> because it is very sad to see her growing sicker by the day. Do you

> know of any problems with MSM and the meds, Don? Take care and thank

> you for your help.

>

> Love,

> Roni

======================

Hi Roni,

I have found no indications that MSM reacts with any drugs your mother

is on. It is quite safe and would do her a lot of good.

It is a shame to see our parents fall victim to the pharmaceutical

combine and even embrace and defend it while it kills them. Strange.

They'll never have me, that's for sure.

Peace be with you Roni and I too hope that your mother begins to realize

the damage being done.

--

Peace, love and light,

Don " Quai " Eitner

" Spirit sleeps in the mineral, breathes in the vegetable, dreams in the animal

and wakes in man. "

--

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May 12, 2006

Therese - If it's any consolation, the psych fellow I would like to take my son to only takes Medicaid and Medical Mutual. She's down in Akron. A bit further away than Beachwood. I hope you find someone close by! Chris

----- Original Message -----

From: therese taylor

Sent: Thursday, May 11, 2006 9:31 PM

Subject: [ ] need help

Hi, This is Therese, I've been a member for awhile, but I'm not very active on the computer. I've gotten some very helpful advice from here before and I am very greatful. But I desperately need more. I'm a single parent and I personally don't have insurance, but my son has Medicaid. I need a new Psychologist and a Ped. Psychiatrist for my 5 yr old son who takes this insurance ( that's harder to find than you would think!) And I live in Lakewood, driving to Beechwood or farther is a little rough on me with the gas prices. I have no help from his father (he still denies his sons' diagnosis). If anyone has any ideas, I would very happy to hear them!Thanks,Therese

March 22, 2007

I sent a complaint to HUD in June 2006 and they have yet to call or

investigate. I also contacted the HUD IG and complained that HUD was derelict in

Law

enforcement. The FBI told me to contact the HUD IG.

Ken

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July 13, 2007

suggestion is probably best for this. Go to Craig's List

online and look for roommate siutation. I would tell people I'm

allergic to mold and ask I can do a mold culture plate to get " some "

idea if house/apartment is very moldy, also does it smell clean?,

does it look clean and in good repair. There are a whole list of

things one can look for, but moving doesn't help, if you move some

place else moldy. I think more places are moldy than not. I think

it's epidemic since there is no warning to public that this is very

bad for them and what to look for, what to do. That was my

experience in looking for a place to stay. Hard to find a cleaner

place than one I was escaping from. Arrangements where you can stay

temporarily are best until you know if you feel okay there. It has

been discussed here that hotels and motels are not usually very good

due in part to fact that they have window air conditioners that do

not have filters to keep them clean and are not cleaned out

frequently enough, if ever. Some hotels have " central air

conditioners " and those may be less moldy but those hotels/motels

that have central air for their rooms tend to be expensive.

Marriott Residence Inn have central air. Another member here says

they have alot of toxic chemicals though, like frequent pest spray,

but at least they don't have the window air conditioners, and I did

well there. I have found I'm made very ill by places that

have " organic smells " , like moldy places, but so far not " chemical

smells " . I did notice the Marriott chain I stayed at had chemical

smells. I didn't know if that was pesticide but at time thought it

might be new carpet or frequent painting that they did. If you stay

for a month, you can ask for an extra low rate and not pay tax but

it is still expensive but better than nothing. Some people sleep in

their car while looking. I don't know if weather would permit that

where you are. However cars cool off better at night, than houses

do.

Fill the backseat with bunch of pillows and sleep on them with light

blanket. Cars have less indoor air problems than houses do.

Rates on motels/hotels are probably higher now since it is summer

vacation time. October and after you should be able to get better

rates. Get personal references or something before you move in with

someone you don't know though.

http://cleveland.craigslist.org/

>

> Hello,

>

> I'm in Cleveland moving from hotel to hotel room.

July 14, 2007

I'm with Barb on this but I don't think that the culture plate method of

testing is

going to work adequately and its also going to take them WEEKS for them to

give

you an answer as to what it is that grows, (right, Barb?) so perhaps what

would

be better would be to bring a small vacumn cleaner and suck up a large

enough

sample of dust to be sent in for a QPCR ERMI type test, although I don't

have the

foggiest idea how accurate that might be in the real world.. (I suppose a

landlord might be able

to fool it TOO by bringing in dust from known clean buildings to overide the

DNA in the dust in the

known dirty ones..)

Also, has anyone done ERMI with Aerotech/P & K or EmLab or whatever their name

is now, what is the turn around?

Also, it costs $250-300 a pop.

Also, cars can and do get contaminated, esp. if they have been parked in or

around moldy apt. buildings.

We can't just buy new cars at the drop of a hat. (plus, new cars have their

own issues for many of us..)

See, this is a very difficult problem..

On 7/13/07, barb1283 <barb1283@...> wrote:

>

> suggestion is probably best for this. >

>

July 14, 2007

Do you have cholestyramine? Because I found that after that first

hellish week, cholestyramine really helped me a lot with sleeping

better (although when the mold was really bad, decent sleep was

impossible)

I had not slept a full eight hours or even five or six hours in years

until I GOT OUT for good..

Do you have a big HEPA air cleaner? I used a Whirlpool Whispure AP450

and it helped a LOT in making one room safer - I left it in bedroom

and had it run 24/7. If you clean the room thouroughly FIRST and then

bring cleaner in, turn it on and then keep air cleaner on at least on

low 24/7 that helps a lot.

It was around $225, new filters are around $80 but they last six

months. (its big)

July 14, 2007

....more on same theme. Join the Y. It's about 40 month to exercise

(and shower up), but don't make it obvious it is to shower..lol. Eat

out, enjoy the library air conditioning to read/use the internet and

search for a place, go to Best Buy and watch television...lol....enjoy

the a/c in the evening at a movie theatre and have a hot dog. They

used to have $1 theatres in some areas. I haven't looked for one in

while though. Find a place before winter!

>

> Hello,

>

> I'm in Cleveland moving from hotel to hotel room. I can't seem to

find a

> good

July 14, 2007

That would be good idea for signing a long term lease but for looking

for a place it would be too expensive. You don't need to send mold

plates off to be analyized to see that a place is moldy. If place is

very moldy, you will see in 48-72 hours much growth yourself.

--- In , LiveSimply <quackadillian@...>

wrote:

>

July 14, 2007

I agree. I cant go in a library or the old movie theater. Actually Im so sick

I cant leave the house. And I have developed many food allergies as well as

MCS really bad.

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July 14, 2007

It's hard to give advice on this as everyones level of illness is

different as are their exposures. I stayed with my daughter a while

when I first got out and it didn't help, I know now, it was because I

had chemical/toxin intolerance to boot. the best relief I got was

when I bought a RV that had a AC that hadn't hardly been used and I

kept it going constantly. I removed the seatcovers and with help

cleaned every inch of the RV. good luck.

July 14, 2007

Barb, depending on how sick this person is, would greatly affect how or

if any of this advice would help them. for one thing, if their lungs

have been badly damaged, exercise would not be the thing to do, let

alone the fact that with fibromyalgia/nerve damage it could make them

very sore. I know its hard to understand just how sick some very bad

exposures can hurt people but you need to get a better understanding of

it all before you tell people to go join the Y. librarys can be very

moldy, eating out can be very dangerious if they have developed food

allergies, ect.

> >

> > Hello,

> >

> > I'm in Cleveland moving from hotel to hotel room. I can't seem to

> find a

> > good

>

July 14, 2007

Just throwing out some ideas. Person needs to tailor them to their

own situation.

>

> Barb, depending on how sick this person is, would greatly affect how

or

> if any of this advice would help them. for one thing, if their lungs

> have been

July 14, 2007

Public libraries are climate controlled year-round so they should be

fairly safe, unlike school libraries that are closed over hot, humid

summers, but one needs to learn how to detect an unhealthy building,

as we all have or are trying to. They can be anywhere, any building.

My intention was to give some ideas of how to avoid his old moldy

place until he finds a healthier place.

My mention of exercise was not directing him to exercise. I don't

know how the Y would feel if it were obvious you were temporarily

homelss and using the club to shower and shave, so may want to do look

as if you are there to exercise even if you don't. Maybe they

wouldn't mind. I would make it look like I joined for purpose Y

membership is meant for. That is what I meant.

Anyway, they are just ideas and one should adapt them to their own

situation, not follow them robotically. That's true of everyting in

life. Never follow things other people say mindlessly.

>

> Barb, depending on how sick this person is, would greatly affect how

or if any of this advice would help them.

July 14, 2007

So have I Gingersnap,

and they are spraying toxin on the grass I got hit so bad I really need to go

to the hospital but every time I try that most of you know what happen to me. So

I just have to pray and keep hope alive they dogs got so ill we had to take them

to the vet.

they called the dogs illness allergies? my grandkids are here with head ace

and skin rasees just like myself and now I know why I have to take so much mega

Acidophilus my feet burn eye's ears skin rashes bleeding the list is long.

I must fine a way to get safe medical help there's much much more going on as

you see in my e-mail I can't use Elvira52 only web mail it does't work as well.

I can't stay on line long enough and if you call well any one using Bellsouth

know what I mean if they have to call.

MAAT.

Elvira

Gingersnap1964@... wrote:

I agree. I cant go in a library or the old movie theater. Actually I'm

so sick

I cant leave the house. And I have developed many food allergies as well as

MCS really bad.

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July 15, 2007

Glen,

My heart goes out to you in this desperation that so many of us must deal

with until we can get to environmentally safe housing.

Check out corporate housing or what are called short stays. You can find

them online and they are familiar with mold and chemical sensitivity's since so

many of us end up in these places. These are apartments unlike the extended

stays which are hotels. They are usually well maintained and will work with

you. Short stays/corporate housing are month to month with some offering daily

rates and generally are much less expensive then hotels though of course

will be more expensive then unfurnished rentals with a year lease. The short

stays supply you with everything and have regular kitchens. I just left

corporate housing where I stayed for over 6 months. Look for the studios with

the

sliding doors where there is open space (if possible avoid ones with windows

that face out onto buildings and or with roof tops that you would also face out

onto). If need be you can purchase a portable air conditioner to avoid the

use of central a/c's that are so often problematic. As you may have already

figured out and to quote from a post that summed up a lot of this, " This is

a very expensive illness to have. " Most have no idea of just how devastating

a mold exposure can be for some people.

Also as suggested in a prior post, Craig's list is a great resource.

Look under month to month/ sublets and or roommates. However unlike ,

I try to stay away from new buildings which do tend to be more problematic

for both off gassing as well as moisture intrusion and mold. The lingering

smell of new paint and or a chemical smell months and even years later can also

be the smell of mold growing in newer buildings. If the smell worsens with

time, it is mold.

Hang in there and let us know where you end up.

B

In a message dated 7/13/2007 7:11:50 PM Pacific Daylight Time,

i2ubin31@... writes:

Hello,

I'm in Cleveland moving from hotel to hotel room. I can't seem to find a

good place and don't have the mold sense to know. I can't sleep in the heat

and

the air conditioners all seem to give me problems. My health is going

downhill

and need help fast. Is there anyone in the group that has a really good

place and that would help me recover? I am willing to pay for everything. I

would

leave asap. I have family but everyone thinks I'm crazy and doesn't really

want to be involved. I'm not sure how long I can go on like this.

Glenn

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July 15, 2007

It was our experience that yes, you are right those short stay places were

less expensive than hotels in our area (which cost around $200 night!! but

they were still MUCH MUCH more than we ever could afford to pay to stay

somewhere for any real length of time. This may not be the case in many

places but it was where we were.

Some people may be able to afford it, we weren't. I don't think many of

those places are such a valid option for many people who have lost job,

savings, etc. for that reason. This probably varies from one city to another

quite a bit though.

On 7/15/07, bobbinsbiomed@... <bobbinsbiomed@...> wrote:

>

> Glen,

>

> My heart goes out to you in this desperation that so many of us must deal

> with until we can get to environmentally safe housing.

>

> Check out corporate housing or what are called short stays. You can find

> them online and they are familiar with mold and chemical sensitivity's

> since so

> many of us end up in these places. These are apartments unlike the

> extended

> stays which are hotels. They are usually well maintained and will work

> with

> you. Short stays/corporate housing are month to month with some offering

> daily

> rates and generally are much less expensive then hotels though of course

> will be more expensive then unfurnished rentals with a year lease.

>

February 1, 2008

go to biotoxin.info for answers on treatment for toxix mold exposure

>

> I am almost certain that the building I am working in contains mold.

> I have only been there 3 months and during that time I have been sick

> like never before. We have had some rain over the past month and the

> roof leaks really bad. You can see brown spots all over the ceiling

> and some place require a bucket to catch the water. For the past

> month, I have been so sick that it is hard for me to go to work. I

> missed a full week two weeks ago and am out sick again today. I have

> spent the past month coughing, sinus congestion, aches, dizzy, etc. I

> know this sounds like the flu but I haven't had a fever. I'm always

> tired and sleep around 10 hours a night. Never have I slept that

> much. I'm sleepy and work. Feel confused and forget things, so I have

> to make a million notes just to remember things. I have no

> concentration at work, but am fine at home. Once I leave work I start

> to feel better, but the coughing and aches continue. Sometimes I feel

> like my throat is closing up.

>

> I am not the only one who has had problems lately. Several people are

> continuously blowing their nose. One falls asleep at his desk.

> Another has had a headache since before I started working there. He's

> been to all kinds of doctors with no explanation as to what's causing

> his headache. Another woman has started coughing really bad. Just

> about everybody takes sinus medication as if it were candy.

>

> I need to know how I can get tested to see if I have been exposed to

> mold. I hate to leave my job, but I will if its for the sake of my

> health. I don't have insurance and not much money since I have missed

> so many days. I can't go from doctor to doctor. I'm thinking about

> going to the emergency room, but they would probably just give me

> some antibiotics and send me home. We have a free clinic, but I don't

> know if they would take my concerns seriously. I am just to the point

> that I don't know what to do. I contacted my local health department

> and they told me to see a family doctor. Please help me get better.

>

February 2, 2008

Hello,

I thought I would post to this one. First of all, has anyone

approached the management on this, especially human resources? If

not, then I would do it as a group. If so, then has anyone called

OSHA and told them about the leaky roof and that everyone is getting

sick? You have a valid complaint not just about the illness but if

the roof is leaking it is an electrical hazard....or call your local

environmental health department and ask them what your next step

would be.

Remember, if you worried about job security there are always

whistleblowing laws that may protect you afterward but if you know

someone that is a lawyer, etc get clarification on that not just my

word. There is also the employers insurer --- they do not like paying

claims because of employer's negligence. In this case, I would act

NOW!

http://www.hazards.org/whistleblowers/victimisation.pdf

Kim

>

> I am almost certain that the building I am working in contains

mold.

> I have only been there 3 months and during that time I have been

sick

> like never before. We have had some rain over the past month and

the

> roof leaks really bad. You can see brown spots all over the ceiling

> and some place require a bucket to catch the water. For the past

> month, I have been so sick that it is hard for me to go to work. I

> missed a full week two weeks ago and am out sick again today. I

have

> spent the past month coughing, sinus congestion, aches, dizzy, etc.

I

> know this sounds like the flu but I haven't had a fever. I'm always

> tired and sleep around 10 hours a night. Never have I slept that

> much. I'm sleepy and work. Feel confused and forget things, so I

have

> to make a million notes just to remember things. I have no

> concentration at work, but am fine at home. Once I leave work I

start

> to feel better, but the coughing and aches continue. Sometimes I

feel

> like my throat is closing up.

>

> I am not the only one who has had problems lately. Several people

are

> continuously blowing their nose. One falls asleep at his desk.

> Another has had a headache since before I started working there.

He's

> been to all kinds of doctors with no explanation as to what's

causing

> his headache. Another woman has started coughing really bad. Just

> about everybody takes sinus medication as if it were candy.

>

> I need to know how I can get tested to see if I have been exposed

to

> mold. I hate to leave my job, but I will if its for the sake of my

> health. I don't have insurance and not much money since I have

missed

> so many days. I can't go from doctor to doctor. I'm thinking about

> going to the emergency room, but they would probably just give me

> some antibiotics and send me home. We have a free clinic, but I

don't

> know if they would take my concerns seriously. I am just to the

point

> that I don't know what to do. I contacted my local health

department

> and they told me to see a family doctor. Please help me get better.

>

February 2, 2008

This sounds like a real dilemma but its not an unusual situation.

You have to feel it out. Does the management seem at all responsive to

things like this? If so there may be hope, but if I were you, I would

start trying to get out of there NOW. The other options all are beyond your

financial reach.

Start trying to find another job where they treat their employees

better. Don't burn your

bridges. The fact that you don't have vacation time, insurance, etc. also means

that you have less to lose by leaving. They don't care enough to give employees

benefits, then they also don't care enough to keep them.

Do you have any relatives you could stay with if you can't afford to

rent anymore?

That helps a lot. What they are doing is abusing you and your co-workers.

You need to protect your health. It will get worse if you stay. The

only situation

I would stay in is if it is addressed immediately. They might do that

if someone manages to

take a sample of the mold and have it tested. Consult a lawyer as to

'chain of custody'

rules in your state. If you can see brown patches of mold, the sample needs to

be taken of that. By removing a chunk and placing it in a plastic bag.

That works better

than a tape lift. Ideally someone who is not a party to a lawsuit (an

outsider with

standing in the community to testify, is best) but if not, an employee

but they will become a target

of hatred by management for this. I don't think 'whistleblower laws'

apply unless actual lawbreaking

is going on. In civil suits, damages are based on lost wages, etc.

Which means that in some

states, the lives of children and old people are basicaly 'worthless'

and those of people of working age

with children worth more based on their salaries. (I mean to lawyers

deciding whether your case will

be a moneymaker for them)

On Jan 31, 2008 9:56 AM, omegajasmine <omegajasmine@...> wrote: