Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Hi all, I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Lynnett, I know exactly how you feel. Run - do not walk to the doctor who wants to help your son. focus on getting him better-then (as much as she does not deserve it), send that pedi all the info you can get your hands on. It may spare another child down the road. I can never quite get used to hearing these stories. I hope and pray your son sees a quick recovery. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 With rare exception, we're still years away from a PANDAS kid/parent having a phenomenal diagnostic experience with a pedi. The tough skin I had to develop with the schools was nothing compared to the armor that had to be developed to deal with uneducated docs. I'm sorry for your experience and happy that you didn't take it lying down. Attagirl!To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all, I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 I have to say that I am stunned that more pedi's aren't up to speed with PANDAS and this is why: PANDAS is treated with antibiotics. Antibiotics are produced and patented by Big Pharma. Big Pharma sends their foot soldiers out into the field to introduce the latestest and the greatest to all the docs, pedi's and specialists. These foot soldiers (salespeople) are in the doctor's offices each and every week making sure the rx's keep flowing. I'm shocked they're not making a bigger push as there is a "pill" for it. As sad and pathetic as it is, that is where the hope lies that docs will get up to speed. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:43:06 PMSubject: Re: pediatricians With rare exception, we're still years away from a PANDAS kid/parent having a phenomenal diagnostic experience with a pedi. The tough skin I had to develop with the schools was nothing compared to the armor that had to be developed to deal with uneducated docs. I'm sorry for your experience and happy that you didn't take it lying down. Attagirl! To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 It is very sad to me to see this. I have the same experiences and know many going through this also. The good thing is that we don't listen.We push harder to help our children. I feel for the children of the parents who don't push to get their children well. Tammy F. Hi all, I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Thanks for the encouragement Gayle. I have developed thick skin myself through this journey, yet today did get to me :-( Its just so disappointing Gayle Owens wrote: >With rare exception, we're still years away from a PANDAS kid/parent having a >phenomenal diagnostic experience with a pedi. The tough skin I had to develop >with the schools was nothing compared to the armor that had to be developed to >deal with uneducated docs. I'm sorry for your experience and happy that you >didn't take it lying down. Attagirl! > > > >________________________________ > >To: mb12 valtrex >Sent: Tue, February 22, 2011 10:23:08 PM >Subject: pediatricians > > >Hi all, >I just took my son to the pediatrician because he has been showing extreme >symptoms of pandas. He has been having extreme ocd, night terrors, seperation >anxiety, he hasn't gone to school for a month because he has violent outbursts >every time we try to take him out of the house, ect. I know with autism we are >accustomed to behavior issues, ocd, ect but this is way above and beyond his >normal personality. She basically indicated that I'm a terrible mother for even >trying to see if he has pandas. According to her pandas is something that NT >children get not kids with autism. She said he would have to have swollen >tonsils to even qualify. And all he needs is psychiatric meds. That we should >call 911 to get emergency psychiatry help during the next melt down and they >will probably put him in a mental hospital for a week but we have to go through >the bad in order to get him the help he needs??? Wth???? Are these doctors for >real? Why can't they just research a little so they could at least be accurate >with their info while they try to belittle us. I've done the hours of reasearch, >spoken to the people at the pandas network, spoken to the pandas researchers at >Yale university and spoken to the clinical director of pediatric immunology @ >Stanford and that Dr. Wants to see my son because he thinks that he has pandas >and can help us, not to mention this site with the most valuable knowledge from >moms that have been through it. Has she done any research on the subject to >where she could tell me to dismiss the idea? I just don't understand why >parents' haves to go through so much crap just to try to do right by our kids. >Sorry to vent so much just can't believe that the docs we r supposed to trust >are still so completely in the dark still :-( thanks for letting me vent I know >u all understand my frustration. > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Tammy- Thanks for the encouragement as well. It was also surprising to me how grossly uneducated the docs are in this area. This is not biomedical they should know more. U are so right the pharmacy reps take turns parading into the docs offices pushing their products I'm so surprised they haven't hit on this area. She knew of pandas yet everything she " knew " was wrong. I just can't wait to send the info to her and I am also going to have the pandas doc send her a statement of my sons treatment so she sees that it is necessary. T Lynn wrote: >I have to say that I am stunned that more pedi's aren't up to speed with PANDAS >and this is why: >PANDAS is treated with antibiotics. Antibiotics are produced and patented by Big >Pharma. Big Pharma sends their foot soldiers out into the field to introduce the >latestest and the greatest to all the docs, pedi's and specialists. These foot >soldiers (salespeople) are in the doctor's offices each and every week making >sure the rx's keep flowing. I'm shocked they're not making a bigger push as >there is a " pill " for it. As sad and pathetic as it is, that is where the >hope lies that docs will get up to speed. > >-Tammy > > > > >________________________________ > >To: mb12 valtrex >Sent: Tue, February 22, 2011 10:43:06 PM >Subject: Re: pediatricians > > >With rare exception, we're still years away from a PANDAS kid/parent having a >phenomenal diagnostic experience with a pedi. The tough skin I had to develop >with the schools was nothing compared to the armor that had to be developed to >deal with uneducated docs. I'm sorry for your experience and happy that you >didn't take it lying down. Attagirl! > > > >________________________________ > >To: mb12 valtrex >Sent: Tue, February 22, 2011 10:23:08 PM >Subject: pediatricians > > >Hi all, >I just took my son to the pediatrician because he has been showing extreme >symptoms of pandas. He has been having extreme ocd, night terrors, seperation >anxiety, he hasn't gone to school for a month because he has violent outbursts >every time we try to take him out of the house, ect. I know with autism we are >accustomed to behavior issues, ocd, ect but this is way above and beyond his >normal personality. She basically indicated that I'm a terrible mother for even >trying to see if he has pandas. According to her pandas is something that NT >children get not kids with autism. She said he would have to have swollen >tonsils to even qualify. And all he needs is psychiatric meds. That we should >call 911 to get emergency psychiatry help during the next melt down and they >will probably put him in a mental hospital for a week but we have to go through >the bad in order to get him the help he needs??? Wth???? Are these doctors for >real? Why can't they just research a little so they could at least be accurate >with their info while they try to belittle us. I've done the hours of reasearch, >spoken to the people at the pandas network, spoken to the pandas researchers at >Yale university and spoken to the clinical director of pediatric immunology @ >Stanford and that Dr. Wants to see my son because he thinks that he has pandas >and can help us, not to mention this site with the most valuable knowledge from >moms that have been through it. Has she done any research on the subject to >where she could tell me to dismiss the idea? I just don't understand why >parents' haves to go through so much crap just to try to do right by our kids. >Sorry to vent so much just can't believe that the docs we r supposed to trust >are still so completely in the dark still :-( thanks for letting me vent I know >u all understand my frustration. > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2011 Report Share Posted February 22, 2011 Tammy you hit the nail on the head. It drives me crazy because when the docs throw their little fit a lot of parents trust them and fold to whatever they recommend and it is HARMING the kids. Many parents don't know that there is anything else out there and they trust the words of these pediatricians. Its horrible. Tammy Farmer wrote: >It is very sad to me to see this. I have the same experiences and know >many going through this also. The good thing is that we don't listen.We >push harder to help our children. > I feel for the children of the parents who don't push to get their >children well. Tammy F. >> >> Hi all, >> I just took my son to the pediatrician because he has been showing >> extreme symptoms of pandas. He has been having extreme ocd, night >> terrors, seperation anxiety, he hasn't gone to school for a month >> because he has violent outbursts every time we try to take him out of >> the house, ect. I know with autism we are accustomed to behavior >> issues, ocd, ect but this is way above and beyond his normal >> personality. She basically indicated that I'm a terrible mother for >> even trying to see if he has pandas. According to her pandas is >> something that NT children get not kids with autism. She said he would >> have to have swollen tonsils to even qualify. And all he needs is >> psychiatric meds. That we should call 911 to get emergency psychiatry >> help during the next melt down and they will probably put him in a >> mental hospital for a week but we have to go through the bad in order >> to get him the help he needs??? Wth???? Are these doctors for real? >> Why can't they just research a little so they could at least be >> accurate with their info while they try to belittle us. I've done the >> hours of reasearch, spoken to the people at the pandas network, spoken >> to the pandas researchers at Yale university and spoken to the >> clinical director of pediatric immunology @ Stanford and that Dr. >> Wants to see my son because he thinks that he has pandas and can help >> us, not to mention this site with the most valuable knowledge from >> moms that have been through it. Has she done any research on the >> subject to where she could tell me to dismiss the idea? I just don't >> understand why parents' haves to go through so much crap just to try >> to do right by our kids. Sorry to vent so much just can't believe that >> the docs we r supposed to trust are still so completely in the dark >> still :-( thanks for letting me vent I know u all understand my >> frustration. >> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Yup, amazing how many idiot docs there are out there who think PANDAS is not "real" and it's impossible for an autistic kid to have any "real" medical issues. We went thru several docs, even one's at top Childrens Hospitals before we found a doc who would treat our son who had a severe, manic case of PANDAS. We are seeing in NJ who is great. Dan Rossignol it in FLA and is good too. Worth the travel! Where do you live? Someone here can recommend someone for you. Also, there is a yahoo group pandas_autism. Subject: pediatriciansTo: mb12 valtrex Date: Tuesday, February 22, 2011, 10:23 PM Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 I didn't know. For years, I didn't know. When my PDD son was first eval'd for early intervention through school, they were hesitiant to make a dx - so they simply made recommendations to the school. I didn't know about developmental pediatricians, or ABA or speech therapists and occupational therapists outside of school. Nobody ever mentioned the diet. NOTHING. Not one drop of info. I was blind as blind can be. I knew nothing about autism (except what I had seen on Rainman), so I nver googled. It took three more years (he wasn't dx'd til he was 7, nearly 8) before a dx. I had started investigating and learning on my own at this point. All his doctor could do was address the "adhd" part of his "co-morbid" condition and send me off with an rx for ritalin. The man never took one step towards what I have since learned to be the standard of care for spectrum disorder. Not one measure on that list which is pathetic to begin with. He declined every test I asked for, simply patted me on the back, asked me not to expect too much and sent me on my way. This is not acceptable. To: mb12 valtrex Sent: Wed, February 23, 2011 12:44:11 AMSubject: Re: pediatricians Tammy you hit the nail on the head. It drives me crazy because when the docs throw their little fit a lot of parents trust them and fold to whatever they recommend and it is HARMING the kids. Many parents don't know that there is anything else out there and they trust the words of these pediatricians. Its horrible. Tammy Farmer wrote:>It is very sad to me to see this. I have the same experiences and know >many going through this also. The good thing is that we don't listen.We >push harder to help our children.> I feel for the children of the parents who don't push to get their >children well. Tammy F.>>>> Hi all,>> I just took my son to the pediatrician because he has been showing >> extreme symptoms of pandas. He has been having extreme ocd, night >> terrors, seperation anxiety, he hasn't gone to school for a month >> because he has violent outbursts every time we try to take him out of >> the house, ect. I know with autism we are accustomed to behavior >> issues, ocd, ect but this is way above and beyond his normal >> personality. She basically indicated that I'm a terrible mother for >> even trying to see if he has pandas. According to her pandas is >> something that NT children get not kids with autism. She said he would >> have to have swollen tonsils to even qualify. And all he needs is >> psychiatric meds. That we should call 911 to get emergency psychiatry >> help during the next melt down and they will probably put him in a >> mental hospital for a week but we have to go through the bad in order >> to get him the help he needs??? Wth???? Are these doctors for real? >> Why can't they just research a little so they could at least be >> accurate with their info while they try to belittle us. I've done the >> hours of reasearch, spoken to the people at the pandas network, spoken >> to the pandas researchers at Yale university and spoken to the >> clinical director of pediatric immunology @ Stanford and that Dr. >> Wants to see my son because he thinks that he has pandas and can help >> us, not to mention this site with the most valuable knowledge from >> moms that have been through it. Has she done any research on the >> subject to where she could tell me to dismiss the idea? I just don't >> understand why parents' haves to go through so much crap just to try >> to do right by our kids. Sorry to vent so much just can't believe that >> the docs we r supposed to trust are still so completely in the dark >> still :-( thanks for letting me vent I know u all understand my >> frustration.>>>> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 I have been very lucky. We came to find a ped, after two previous ones in Florida, who is non-vax friendly and who helped me a lot. He is a little too laid back and a little too mainstream for me to call " perfect, " but my 3 yr old appt with Gabi went like this... and I kid you not! " How are her tantrums? " -They are horrible, lasting up to an hour, about anything. " How do you discipline? " -The usual, timeouts, taking away stuff, an occasional spank. " Well, by 3, tantrums should be winding down. You need to get that looked at. " -I have an appt with the state evaluators in May. " Ok, well if that doesn't pan out, you can see Dr. X the psychiatrist, she's in network for you. " If that doesn't work out, your next step is Dr. Y, out in Tampa. He is a developmental pediatrician, and they don't take insurance. But if there's something going on with your child, they will find it. " Dr. X was the next door down, so I could make an appt easily, and he gave me the info for Dr. Y.He gave me a road map for my whole " age 3 yr. " for her.I actually have more complaints since getting the dx, I have had to do a lot more work all by myself! But I really grateful for his help... esp. after I hear all the opposite stories.  I didn't know. For years, I didn't know. When my PDD son was first eval'd for early intervention through school, they were hesitiant to make a dx - so they simply made recommendations to the school.  I didn't know about developmental pediatricians, or ABA or speech therapists and occupational therapists outside of school. Nobody ever mentioned the diet. NOTHING. Not one drop of info.  I was blind as blind can be. I knew nothing about autism (except what I had seen on Rainman), so I nver googled. It took three more years (he wasn't dx'd til he was 7, nearly 8) before a dx. I had started investigating and learning on my own at this point. All his doctor could do was address the " adhd " part of his " co-morbid " condition and send me off with an rx for ritalin. The man never took one step towards what I have since learned to be the standard of care for spectrum disorder. Not one measure on that list which is pathetic to begin with. He declined every test I asked for, simply patted me on the back, asked me not to expect too much and sent me on my way. This is not acceptable. To: mb12 valtrex Sent: Wed, February 23, 2011 12:44:11 AMSubject: Re: pediatricians  Tammy you hit the nail on the head. It drives me crazy because when the docs throw their little fit a lot of parents trust them and fold to whatever they recommend and it is HARMING the kids. Many parents don't know that there is anything else out there and they trust the words of these pediatricians. Its horrible. Tammy Farmer wrote:>It is very sad to me to see this. I have the same experiences and know >many going through this also. The good thing is that we don't listen.We >push harder to help our children.> I feel for the children of the parents who don't push to get their >children well. Tammy F.>>>> Hi all,>> I just took my son to the pediatrician because he has been showing >> extreme symptoms of pandas. He has been having extreme ocd, night >> terrors, seperation anxiety, he hasn't gone to school for a month >> because he has violent outbursts every time we try to take him out of >> the house, ect. I know with autism we are accustomed to behavior >> issues, ocd, ect but this is way above and beyond his normal >> personality. She basically indicated that I'm a terrible mother for >> even trying to see if he has pandas. According to her pandas is >> something that NT children get not kids with autism. She said he would >> have to have swollen tonsils to even qualify. And all he needs is >> psychiatric meds. That we should call 911 to get emergency psychiatry >> help during the next melt down and they will probably put him in a >> mental hospital for a week but we have to go through the bad in order >> to get him the help he needs??? Wth???? Are these doctors for real? >> Why can't they just research a little so they could at least be >> accurate with their info while they try to belittle us. I've done the >> hours of reasearch, spoken to the people at the pandas network, spoken >> to the pandas researchers at Yale university and spoken to the >> clinical director of pediatric immunology @ Stanford and that Dr. >> Wants to see my son because he thinks that he has pandas and can help >> us, not to mention this site with the most valuable knowledge from >> moms that have been through it. Has she done any research on the >> subject to where she could tell me to dismiss the idea? I just don't >> understand why parents' haves to go through so much crap just to try >> to do right by our kids. Sorry to vent so much just can't believe that >> the docs we r supposed to trust are still so completely in the dark >> still :-( thanks for letting me vent I know u all understand my >> frustration.>>>> > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Vent away. Most pediatricians are completely worthless when it comes to our kids. Time to shop for another doc. I'm sorry you had that experience….. Like you don't have enough stress. Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of lynnett1114Sent: Tuesday, February 22, 2011 10:23 PMTo: mb12 valtrex Subject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 Me, too Tammy. Causes me physical pain. Been there myself. <sigh> Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of T LynnSent: Tuesday, February 22, 2011 10:33 PMTo: mb12 valtrex Subject: Re: pediatricians Lynnett, I know exactly how you feel. Run - do not walk to the doctor who wants to help your son. focus on getting him better-then (as much as she does not deserve it), send that pedi all the info you can get your hands on. It may spare another child down the road. I can never quite get used to hearing these stories. I hope and pray your son sees a quick recovery. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2011 Report Share Posted February 23, 2011 I wasted a year of my son's life pumping him with Tylenol and milk because when he was 1 and I suspected he had autism and asked my pediatrician she assured me he was perfect and I was paranoid. I didn't figure it out on my own until he was two and had completely regressed. ONLY go to doctors who will help your child and NEVER let them pressure you into anything. Subject: RE: pediatriciansTo: mb12 valtrex Date: Wednesday, February 23, 2011, 2:11 PM Me, too Tammy. Causes me physical pain. Been there myself. <sigh> Pamela From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of T LynnSent: Tuesday, February 22, 2011 10:33 PMTo: mb12 valtrex Subject: Re: pediatricians Lynnett, I know exactly how you feel. Run - do not walk to the doctor who wants to help your son. focus on getting him better-then (as much as she does not deserve it), send that pedi all the info you can get your hands on. It may spare another child down the road. I can never quite get used to hearing these stories. I hope and pray your son sees a quick recovery. -Tammy To: mb12 valtrex Sent: Tue, February 22, 2011 10:23:08 PMSubject: pediatricians Hi all,I just took my son to the pediatrician because he has been showing extreme symptoms of pandas. He has been having extreme ocd, night terrors, seperation anxiety, he hasn't gone to school for a month because he has violent outbursts every time we try to take him out of the house, ect. I know with autism we are accustomed to behavior issues, ocd, ect but this is way above and beyond his normal personality. She basically indicated that I'm a terrible mother for even trying to see if he has pandas. According to her pandas is something that NT children get not kids with autism. She said he would have to have swollen tonsils to even qualify. And all he needs is psychiatric meds. That we should call 911 to get emergency psychiatry help during the next melt down and they will probably put him in a mental hospital for a week but we have to go through the bad in order to get him the help he needs??? Wth???? Are these doctors for real? Why can't they just research a little so they could at least be accurate with their info while they try to belittle us. I've done the hours of reasearch, spoken to the people at the pandas network, spoken to the pandas researchers at Yale university and spoken to the clinical director of pediatric immunology @ Stanford and that Dr. Wants to see my son because he thinks that he has pandas and can help us, not to mention this site with the most valuable knowledge from moms that have been through it. Has she done any research on the subject to where she could tell me to dismiss the idea? I just don't understand why parents' haves to go through so much crap just to try to do right by our kids. Sorry to vent so much just can't believe that the docs we r supposed to trust are still so completely in the dark still :-( thanks for letting me vent I know u all understand my frustration. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.