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http://ajrccm.atsjournals.org/cgi/content/full/166/1/111Info on six minute walk P PM (Polymositis) 12/98, UIP 8/00, o2 24/7 9 LPM 8/04, PH 3/06, ILL yo 60Subject: Re: Severe Pulmonary HypertensionTo: Breathe-Support Date: Friday, June 27, 2008, 9:28 PM

,

The 6 minute walk test is the best thing to request. One should have

been done. They walk you in the same small area. There is no going

out of doors as far as I know. They do increase the amount of oxygen.

If she can not walk 6 minutes they will not push it (hopefull).

You hang in there. You are a wonderful daughter! Wish I had someone

like you looking out for me! Lots of love to you my dear.

ette PH/PF/...

> >

> > Hi

> >

> > I know this subject has appeared quite often - yet now that it

> applies to my mother :-p am wondering if there is any treatment

> modality to keep it from getting worse. Just received the echo

back

> today - her fibrosis hasn't worsened too much in the past year,

but

> feel she is not getting enough oxygen - we keep it on 2L yet when

she

> walks, it all changes..

> >

> > My father believes to keep it at 2 when walking - he is

difficult -

> I know her sats drop to about 84 when walking with the pulse

oxymeter

> - she is uncomfortable using a continuous flow portable

> >

> > Any feedback would be much appreciated. .

> >

> > for Dee IPF 10/06 Mpls.

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