Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 ,What a lovely thing to share. Glad he found his words. I'm in tears! jo, Have you ever had a GPL OAT? If so, I have a way of analyzing the results by looking at ratios and comparing to other autistic children to give percentile ranks that identifies issues that doctors miss who only look at what is over the reference range. I'd be glad to do that if you have any old test results from GPL. (I don't have a database from the other labs.) I can share the results with whichever doctor you want, if you've done one of these OATS before. Also, some executions of GAPS end up high oxalate. We have quite a few people who show up on the oxalate listserve after not doing so well on GAPS. They can keep the good things from GAPS, but just start lowering oxalate to see if that gives them more benefit. Please look at lowoxalate.info/ at the food lists for a look at the oxalate status of the foods he is eating. We have found that it doesn't particularly matter what age you are when you start LOD, that you get benefits whenever! We even have a 45 year old man with severe autism who really changed when his mother and he reduced oxalate. He had never paid attention to stuff in his house, and suddenly he was Mr. Curiosity digging into everything with a never been seen before interest in the outside world. He became more physically active, as well...less a couch potato. I've known this family for years. They came to my father's funeral twelve years ago and when they started reducing oxalate it had been so many years since anything had changed! We've seen LOD help a lot of severe cases where the problem seemed to be INITIATING speech or action. These are the boys who have it in their heads what they want to say but they just cannot get it out, where even initiating movement is difficult. One boy wrote me at Christmas who writes using a keyboard via FC who describes the change as not getting stuck anymore. This is what he said: > " I am the boy that got his sleep back. > >I am the boy that has feeling in his body. > >I am the boy that doesn't get stuck all the time anymore. > >I am the boy that no longer suffers from stomach episodes. > >I am the boy that wants to tell the world: > > From where I stand, I can see the light at the end the tunnel. The road > to recovery doesn't seem impossible anymore. > >I am the boy your research is healing. > >I am the boy you have helped. > >I am healing; I am growing; I am . " I think he is about ten. We love the " tough nut " kids that may have seen slight improvements with other interventions but who still have so far to go. > > Hi all! I have decided to get rid of the viruses in my son. I have some decisions to make though and I need some help. I know I don't know any of you on this group, other than popping on once in awhile, but this is something you have all been working on. > > I found dr goldberg yesterday and ended up here. I did research and read good and bad things about the dr. > > So I think I have 3 choices: > > See if my family dr will work with me, but still I will probably be going it somewhat alone as far as dosing goes, etc... although I know some of you would be able to help with that. He may not even be willing. > > Find a DAN, there goes alot of money again I am thinking. Been to 2 in my state so far. > > Go see dr goldberg. > > Let me tell you a brief history about my son though. > > The most important thing is his arachnoid cyst on his left temporal lobe. We have been thinking, quite a few years have gone by and we should see if it has grown. We have had 2 surgeons from 2 major hospitals say it was too small to be causing his seizures and didn't need surgery. Of course meds weren't helping the seizures either. Dr goldberg would be able to address this for us. I simply do not want to see a main steam neuro again, it was a nightmare. > > They tried 19 different anti seizure meds and at one point he was on 3 different ones, totaling 17 pills a day. He was a mass of bruises and his hair was falling out. His eeg was also showing a seizure every minute. He was having 17-25 grand mals a day. > > had his first seizure at age 3 and just turned 13. After we ditched the mainstream drs we started with holistic. We have been to probably 15 and every single time they have sent us on our way, they could not help us. The monetary part was huge but most importantly was the time wasted. > > Every person we saw claimed they knew how to get better and we had to stop what we were doing with him. He always regressed. I am afraid of this with dr goldrberg. We have come to far with to see this happen. I am afraid to relinquish control. One DAN treated me like I was stupid and even asked why I had my son on a b-complex. He also asked me who told me to put him on those supplements. o you can see why I hesitate. > > is moving along slowly. He has been on gaps/bed for the last year and we are seeing slow progress, we never have before. I do not want to give this up because a dr tells me to. > > has no speech, although on a good day he will try to talk. He sits, but on a good day he will walk around and on a really good day he will fit train track pieces together. He has zero bowel movements and we give him an enema every other day. He is not loud, he is never violent, rarely stims, he is very sweet. He wears a pull up and we feed him. He makes eye contact and he smiles. His seizures I think are a reaction to the wrong food. Although dr goldberg said it is an immune response. Maybe that is why his allergies seem to change. I rely on muscle testing to determine what to feed him. It is not accurate of course, so he does have seizures, from 0-3 a day. > > I would love some opinions and some feed back about the dr. > > Thank you so much for your time. No matter what I decide, I am sure I will be part of this group. > > jo > -- Toni------Mind like a steel trap...Rusty and illegal in 37 states. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Thank you but is on no high oxolate foods. He was eating 2 of them, not that ofetn and I took them out of his diet. He had an oat test probably 4 or 5 years ago. I don't understand how you can help though and is it too late? jo > > > > Hi all! I have decided to get rid of the viruses in my son. I have some decisions to make though and I need some help. I know I don't know any of you on this group, other than popping on once in awhile, but this is something you have all been working on. > > > > I found dr goldberg yesterday and ended up here. I did research and read good and bad things about the dr. > > > > So I think I have 3 choices: > > > > See if my family dr will work with me, but still I will probably be going it somewhat alone as far as dosing goes, etc... although I know some of you would be able to help with that. He may not even be willing. > > > > Find a DAN, there goes alot of money again I am thinking. Been to 2 in my state so far. > > > > Go see dr goldberg. > > > > Let me tell you a brief history about my son though. > > > > The most important thing is his arachnoid cyst on his left temporal lobe. We have been thinking, quite a few years have gone by and we should see if it has grown. We have had 2 surgeons from 2 major hospitals say it was too small to be causing his seizures and didn't need surgery. Of course meds weren't helping the seizures either. Dr goldberg would be able to address this for us. I simply do not want to see a main steam neuro again, it was a nightmare. > > > > They tried 19 different anti seizure meds and at one point he was on 3 different ones, totaling 17 pills a day. He was a mass of bruises and his hair was falling out. His eeg was also showing a seizure every minute. He was having 17-25 grand mals a day. > > > > had his first seizure at age 3 and just turned 13. After we ditched the mainstream drs we started with holistic. We have been to probably 15 and every single time they have sent us on our way, they could not help us. The monetary part was huge but most importantly was the time wasted. > > > > Every person we saw claimed they knew how to get better and we had to stop what we were doing with him. He always regressed. I am afraid of this with dr goldrberg. We have come to far with to see this happen. I am afraid to relinquish control. One DAN treated me like I was stupid and even asked why I had my son on a b-complex. He also asked me who told me to put him on those supplements. o you can see why I hesitate. > > > > is moving along slowly. He has been on gaps/bed for the last year and we are seeing slow progress, we never have before. I do not want to give this up because a dr tells me to. > > > > has no speech, although on a good day he will try to talk. He sits, but on a good day he will walk around and on a really good day he will fit train track pieces together. He has zero bowel movements and we give him an enema every other day. He is not loud, he is never violent, rarely stims, he is very sweet. He wears a pull up and we feed him. He makes eye contact and he smiles. His seizures I think are a reaction to the wrong food. Although dr goldberg said it is an immune response. Maybe that is why his allergies seem to change. I rely on muscle testing to determine what to feed him. It is not accurate of course, so he does have seizures, from 0-3 a day. > > > > I would love some opinions and some feed back about the dr. > > > > Thank you so much for your time. No matter what I decide, I am sure I will be part of this group. > > > > jo > > > Quote Link to comment Share on other sites More sharing options...
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