Re: Re: Tom--Welcome

[Guest guest]

Hi Tom and welcome!

Like you, I find all of this information AMAZING! I know that the more I learn,

the more I find that I don't know. There seems to be a big problem within the

medical establishment with diagnosis and treatment for us. They like to treat

us like guinea pigs.

I just today returned from my 3 month followup with the pulmo and additional CT,

gallium scan and PFT. My results were less than stellar and I'm again being

subjected to the dreaded prednisone; this time for 2 months and still continuing

with the plaquenil.

Good luck with all you are facing. You'll find good people here to talk to and

vent with , and we all " GET IT " .

Roxanne, 58, South Carolina

2006 Asthma/ PF

2008 IPF/ Sarcoidosis/Gerd

Lady Slipper Orchid

>

> Subject: Re: Anemia medication Slow Fe

> To: Breathe-Support

> Date: Tuesday, August 12, 2008, 2:19 PM

> This is amazing!

>

> On the Stills Support group we have been discussing some of

> the same

> topics. Slow Iron was just inquired about yesterday with a

> number of

> responses. Another member just got out of a rehab unit

> after a month

> in ICU with Pneumonia, who has PF. His appears to have

> been induced

> by methotrexate, although it could be also related to my

> situation.

> No way to tell without a biopsy, I imagine. But you guys

> are more

> experienced than I am.

>

> Prior to that, pain and pain meds and options were a hot

> topic.

>

> The most recent discussion posts tie to one of our Stills

> members

> having to move back in with her mother. The bad part is

> that her

> mother does not " get it " and thinks it is just a

> matter of taking her

> mind off her problems.

>

> Tom Stills 05. Asthma 06, PF 08, sjogrens 08 PA

>

>

> >

> > Thanks Sher! 

> >  

> > Irene

> > PF 03/07 Raynaud's Disease 09/07

> > Re: Anemia medication Slow

> Fe

> >

> >

> > Irene,   I've learned something new here too.

> I've never before

> heard of Slow Fe although I do know anemia = low iron. 

> I'm glad you

> have something to help you.