Re: Re: oxalates/

[Guest guest]

, I saw in the description of improvements below so many of the odd symptoms classically defined in PANDAS/PITAND. My son, 17 not-asd, has PANDAS/PITAND episodes that last about 18 mos each. (I call it episodic placement on the spectrum) Other than those 3 episodes (age 8, 11, 16), he has NONE of the symptoms (handwriting, behavioral inflexibility, attention/focus deficits, urinary frequency, ravenous hunger, reflux, weight loss and inability to gain, etc). Would anything in connection with oxalates explain or be supported by the fact that this kid has two very distinct health profiles that are 180 degrees from each other? My thoughts on diet have been challenged through the years with the fact that he can eat anything and enjoy abundant

health...unless he's in one of these 3 episodes. A word of guidance would be much appreciated!GayleTo: mb12 valtrex Sent: Sun, February 20, 2011 7:52:23 PMSubject: Re: Re: oxalates

wow. I saw my nt on this list way more than my pdd. But we've done everything together and that's the way it'll stay. All for one : ) And I think the little guy really needs it. I'll prob keep the pb or do half and half with the sun butter because it's pricey. Giving the calcium helps?

Thanks so much Toni and - you guys are awesome : )

-Tammy

To: mb12 valtrex Sent: Sun, February 20, 2011 4:38:01 PMSubject: Re: oxalates

Tammy,I've put immediately below a list of the comments made by parents of what changed for kids in the first year of our project when they were switching from a previous diet to a diet lower in oxalates. Probably ALL of these kids had already been g/f cf or SCD and these were changes that only happened after they reduced oxalates.We were shocked at the global improvements...in so many areas.Now, after five more years studying the literature for hints for WHY these changes occurred, the science that explains the change is becoming more and more clear. Also, new research on how the gut regulates fluid, pH, microbial defense, and glutathione coordinated to a transporter that moves oxalate across cell membranes makes sense of the improvements people saw in gut function. Similar mechanisms govern secretion in the kidneys, lungs, pancreas, salivary glands and elsewhere.Hopes this helps,Areas of

reported change in our autism oxalate projectDigestive:Improved gut function: digestionLoss of chronic diarrheaLoss of chronic constipationFirst normal stools in lifetime despite previous medical treatmentLoss of ravenous hungerNeeded increase in appetiteLoss of food allergies or sensitivitiesEating foods previously avoidedImproved pancreatic functionLosing tendency to stomach ache or migraineLoss of distended bellyLoss of dysbiosis and yeast problemsAbility to get off all GI medications because of healingBig changes with introduction of VSL #3, an oxalate-degrading probioticImproved tolerance for sulfur foods or supplementsImprovements in reflux or esophagitisLost need for enzymes; or they started working differentlyBig changes in toleration for lots of different supplementsUrinary:Loss of excessive urinationLoss of urinary frequencyObtaining

nighttime continencyObtaining daytime continencyLoss of vulvar or penis pain & inflammationMovement:Improved energy (mitochondrial?)Vastly improved gross motor skillsImproved handwritingImproved fine motor skillsBeginning to enjoy sporting activities with friends and siblingsCognitive:Increased imitation skillsBetter countingBetter and more spontaneous coloringBetter sight word retentionLess rigidityBetter expressive language; losing apraxiaBetter receptive languageAsking more questions: who, what, whereImproved cognition: more complex thoughtSpeaking in much longer sentencesUnderstanding cause and effectIncreases in imaginary playSociabilityDeveloping negotiating skillsPlayfulness: enjoying life; jokesCalming of temperamentOther areas:Loss of photosensitivityLoss of self-abusive behaviorNew ability to tell

parent locations of painRashes and bumps disappearingSleeping through the nightLoss of chronic leg and foot aches (growing pains)Improvement in iron stores and anemiaBetter phenol tolerance incl: no-phenol product started workingLoss of salt cravingCatch-up growthNormalization of 's temperature syndromeNormalization of iodine levelsLoss of tic of swallowing air constantlyLoss of autistic gaitImprovement in acne in teenager>> So how do you know when you should avoid high oxalates? > > I strongly suspect I should avoid it with my younger guy. But the older, I > don't know.> I hate to cut out stuff like carrots and spinach because there's so much

benefit > to them. Vitamin C has been a God-send. We rely on peanut butter too, not only > to mix in supps but as a source of protein because beef came back elevated so I > try to watch it. I hate to take these things away if oxolates are not an issue > for him.> > what signs should I be watching for?> > -Tammy>