Guest guest Posted February 20, 2011 Report Share Posted February 20, 2011 Hi all! I have decided to get rid of the viruses in my son. I have some decisions to make though and I need some help. I know I don't know any of you on this group, other than popping on once in awhile, but this is something you have all been working on. I found dr goldberg yesterday and ended up here. I did research and read good and bad things about the dr. So I think I have 3 choices: See if my family dr will work with me, but still I will probably be going it somewhat alone as far as dosing goes, etc... although I know some of you would be able to help with that. He may not even be willing. Find a DAN, there goes alot of money again I am thinking. Been to 2 in my state so far. Go see dr goldberg. Let me tell you a brief history about my son though. The most important thing is his arachnoid cyst on his left temporal lobe. We have been thinking, quite a few years have gone by and we should see if it has grown. We have had 2 surgeons from 2 major hospitals say it was too small to be causing his seizures and didn't need surgery. Of course meds weren't helping the seizures either. Dr goldberg would be able to address this for us. I simply do not want to see a main steam neuro again, it was a nightmare. They tried 19 different anti seizure meds and at one point he was on 3 different ones, totaling 17 pills a day. He was a mass of bruises and his hair was falling out. His eeg was also showing a seizure every minute. He was having 17-25 grand mals a day. had his first seizure at age 3 and just turned 13. After we ditched the mainstream drs we started with holistic. We have been to probably 15 and every single time they have sent us on our way, they could not help us. The monetary part was huge but most importantly was the time wasted. Every person we saw claimed they knew how to get better and we had to stop what we were doing with him. He always regressed. I am afraid of this with dr goldrberg. We have come to far with to see this happen. I am afraid to relinquish control. One DAN treated me like I was stupid and even asked why I had my son on a b-complex. He also asked me who told me to put him on those supplements. o you can see why I hesitate. is moving along slowly. He has been on gaps/bed for the last year and we are seeing slow progress, we never have before. I do not want to give this up because a dr tells me to. has no speech, although on a good day he will try to talk. He sits, but on a good day he will walk around and on a really good day he will fit train track pieces together. He has zero bowel movements and we give him an enema every other day. He is not loud, he is never violent, rarely stims, he is very sweet. He wears a pull up and we feed him. He makes eye contact and he smiles. His seizures I think are a reaction to the wrong food. Although dr goldberg said it is an immune response. Maybe that is why his allergies seem to change. I rely on muscle testing to determine what to feed him. It is not accurate of course, so he does have seizures, from 0-3 a day. I would love some opinions and some feed back about the dr. Thank you so much for your time. No matter what I decide, I am sure I will be part of this group. jo Quote Link to comment Share on other sites More sharing options...
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