Re: More Hand Flapping & Stimming??

[Guest guest]

Did you start diet and supplements at the same time? If so, stop the

supplements and just see how he does on the diet.

Don't make multiple changes within the same week. One change at a time.

Caryn

>

> My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet

and gave him 6 suppliments to take.

>

> Ive noticed more negatives than positives, which is really worrying me.

>

> I rang the Bio Dr yesterday to tell him that my son was showing more stimming

signs, and that he his flapping his hands like crazy, and he never really used

to flap his hands before he started this diet. The Dr said it could either be

that his stomache is inflamed or that he is getting more aware and his senses

are more active?

>

> Has anyone heard of this,Im so worried I dont know what to do.

> We have only been going down the Bio route for the last month, so Im very

concerned.

>

> God Bless

> Sophie

>

[Guest guest]

Hi Sophie.  How are your son's stools since he started GFCF?  Have they changed in any way?  And what has he been eating?

 

My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

Ive noticed more negatives than positives, which is really worrying me.

I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

Has anyone heard of this,Im so worried I dont know what to do.

We have only been going down the Bio route for the last month, so Im very concerned.

God Bless

Sophie

[Guest guest]

Hi thanks for responding. His stools have been pretty much the same, in 3 weeks

i think he may of had 3 solid stools but the rest have been his normal as we

call " cement like " but not as smellly.

Hes been eating GF bread with almond butter in the mornings ,for lunch either

pasta rice with tomota sauces with veggies and chicken, sometimes chips (no

coating) with chicken nuggets, mostly home made foods, for dinner, fish cakes ,

cottage pie, lasagne, risotto all with lots of veg, parsley and garlic. All the

stuff I have mentioned is from the " Free From " range in our supermarkets.

Thanks

Sophie

>

> >

> >

> > My son has been on a GFCF diet for 25 days, our biomed Dr put him on this

> > diet and gave him 6 suppliments to take.

> >

> > Ive noticed more negatives than positives, which is really worrying me.

> >

> > I rang the Bio Dr yesterday to tell him that my son was showing more

> > stimming signs, and that he his flapping his hands like crazy, and he never

> > really used to flap his hands before he started this diet. The Dr said it

> > could either be that his stomache is inflamed or that he is getting more

> > aware and his senses are more active?

> >

> > Has anyone heard of this,Im so worried I dont know what to do.

> > We have only been going down the Bio route for the last month, so Im very

> > concerned.

> >

> > God Bless

> > Sophie

> >

> >

> >

>

[Guest guest]

HI Caryn

Thanks for responding. I did mention that to my Dr and he said not to worry now,

and to carry on. The nutrionist at the clinic should have documented this at the

clinic when she gave us my sons diet needs, but nothing was added, so he

apologised and said to just carry on.

here are a list of the suppliments:

Nutra Flax

Medi Clear

GI Integrity

Mental Sharp

Nordic Naturals

Pancreatic VegEnzymes

Thanks

Sophie

> >

> > My son has been on a GFCF diet for 25 days, our biomed Dr put him on this

diet and gave him 6 suppliments to take.

> >

> > Ive noticed more negatives than positives, which is really worrying me.

> >

> > I rang the Bio Dr yesterday to tell him that my son was showing more

stimming signs, and that he his flapping his hands like crazy, and he never

really used to flap his hands before he started this diet. The Dr said it could

either be that his stomache is inflamed or that he is getting more aware and his

senses are more active?

> >

> > Has anyone heard of this,Im so worried I dont know what to do.

> > We have only been going down the Bio route for the last month, so Im very

concerned.

> >

> > God Bless

> > Sophie

> >

>

[Guest guest]

I was tempted to think it's a food sensitivity but if his poops haven't changed, then it's probably not another food sensitivity involving a gluten substitute.  I'm just looking up some of these supplements.  I can't seem to find what Mental Sharp is but the MediClear seems like it's a multi-vitamin.  It looks like it has a lot of variables in it.  I would try stopping that for a few days and see if anything changes.  Any multi-vit with as many variables would definitely drive my dd up the wall with sensory issues.  I gave my son a B-complex for a day and it was a nightmare -- it was bad wth my dd but my son was tired but couldn't sleep, meltdowns and eye stims galore.  I had sworn off any multi-vits for my daughter but decided to try the B-complex once for my son -- OMG, he became another person with stimming behavior like spinning, increased OCD-like behavior with wanting me to label everything all day long, head shaking, irritability...and that was just one day, one dose of the B-complex.  I looked out for it because a lot of other parents have mentioned that their kids have trouble with multi-vits, too. 

It could also be the soy in Nordic Naturals.  Some people have problems with the trace of soy in it, others don't -- something to look at.   

 

HI Caryn

Thanks for responding. I did mention that to my Dr and he said not to worry now, and to carry on. The nutrionist at the clinic should have documented this at the clinic when she gave us my sons diet needs, but nothing was added, so he apologised and said to just carry on.

here are a list of the suppliments:

Nutra Flax

Medi Clear

GI Integrity

Mental Sharp

Nordic Naturals

Pancreatic VegEnzymes

Thanks

Sophie

> >

> > My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

> >

> > Ive noticed more negatives than positives, which is really worrying me.

> >

> > I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

> >

> > Has anyone heard of this,Im so worried I dont know what to do.

> > We have only been going down the Bio route for the last month, so Im very concerned.

> >

> > God Bless

> > Sophie

> >

>

[Guest guest]

Hiya thanks for taking the time to reply.

If I were to stop the mediclear for a couple of days, wont i be taking out some

of the vits that he may be needing or is there something I could replace this

with?

Also another thing to add is that my son has recently had test results back

saying that he was positive to cryptosporidium and

h-pylori, he has been on amoxicillin and Norzol metronidazole for 5 days,

butthe hand flapping started long before the meds, it started 4 days into the

diet.

Thanks again

Sophie

> > > >

> > > > My son has been on a GFCF diet for 25 days, our biomed Dr put him on

> > this diet and gave him 6 suppliments to take.

> > > >

> > > > Ive noticed more negatives than positives, which is really worrying me.

> >

> > > >

> > > > I rang the Bio Dr yesterday to tell him that my son was showing more

> > stimming signs, and that he his flapping his hands like crazy, and he never

> > really used to flap his hands before he started this diet. The Dr said it

> > could either be that his stomache is inflamed or that he is getting more

> > aware and his senses are more active?

> > > >

> > > > Has anyone heard of this,Im so worried I dont know what to do.

> > > > We have only been going down the Bio route for the last month, so Im

> > very concerned.

> > > >

> > > > God Bless

> > > > Sophie

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Hi Sophie,My son did no stimming at all before we started GFCF. The first time I saw him spin, it was after we started GFCF. I couldn't understand why but now I know what caused it in our case. The GFCF alternative products, for example the breads, are really starchy. It caused my son's yeast/bad bacteria to flare causing stimming. After several months of that, we switched to the GAPS diet which allows no grains. All the stimming dissapeared quickly with that diet.My son improved a lot on the GFCF though. Within a month his speech doubled and he could do several things he couldn't do before, for example, riding a tricycle.Gen

My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

Ive noticed more negatives than positives, which is really worrying me.

I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

Has anyone heard of this,Im so worried I dont know what to do.

We have only been going down the Bio route for the last month, so Im very concerned.

God Bless

Sophie

[Guest guest]

Sophie,Look into Low Oxalate Diet. Website is lowoxalate.infoA lot of the GF replacement items are high oxalate. Please don't be discouraged. If you need advice on GF subs that are lower oxalate, you can get help at the yahoo group trying_low_oxalates.

I choose corn or rice noodles over quinoa. I also use spaghetti squash for spaghetti (this is the only thing I make that the kids WOOF down and ask for seconds of!!!)This is a link from my DAN's website:

http://wholisticpeds.com/default.asp?cid=956655663 & n1=2 & n2=38On Fri, Mar 4, 2011 at 6:11 PM, Sophie Camilleri wrote:

 

My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

Ive noticed more negatives than positives, which is really worrying me.

I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

Has anyone heard of this,Im so worried I dont know what to do.

We have only been going down the Bio route for the last month, so Im very concerned.

God Bless

Sophie-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Toni,Can you share how you make your spaghetti squash? Assume I know nothing, because I am an AWFUL cook (I don't even know what a spaghetti squash looks like, so yes, I'm that bad). I've just always wondered how to make this. Thanks!- Kirk-To: mb12 valtrex From: bellbaby@...Date: Sun, 6 Mar 2011 13:44:19 -0500Subject: Re: More Hand Flapping & Stimming??

Sophie,Look into Low Oxalate Diet. Website is lowoxalate.infoA lot of the GF replacement items are high oxalate. Please don't be discouraged. If you need advice on GF subs that are lower oxalate, you can get help at the yahoo group trying_low_oxalates.

I choose corn or rice noodles over quinoa. I also use spaghetti squash for spaghetti (this is the only thing I make that the kids WOOF down and ask for seconds of!!!)This is a link from my DAN's website:

http://wholisticpeds.com/default.asp?cid=956655663 & n1=2 & n2=38On Fri, Mar 4, 2011 at 6:11 PM, Sophie Camilleri wrote:

My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

Ive noticed more negatives than positives, which is really worrying me.

I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

Has anyone heard of this,Im so worried I dont know what to do.

We have only been going down the Bio route for the last month, so Im very concerned.

God Bless

Sophie-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

You make spagetti squash noodles? Or the sauce ?I think you need to share that

recipe.

Cheryl

>

> Sophie,

> Look into Low Oxalate Diet. Website is lowoxalate.info

>

> A lot of the GF replacement items are high oxalate.

>

> Please don't be discouraged. If you need advice on GF subs that are lower

> oxalate, you can get help at the yahoo group trying_low_oxalates.

>

> I choose corn or rice noodles over quinoa.

> I also use spaghetti squash for spaghetti

> (this is the only thing I make that the kids WOOF down and ask for seconds

> of!!!)

[Guest guest]

Life circumstances have made me hate cooking. I used to love it. I grew up and had to deal with non-adventurous people who refuse to eat things. It has made me loathe the process.Anyway, because of this, I take the easy way out. A LOT.

Here is easy spaghetti squash. Buy squash. :-)Place in oven, 350 degrees, about 60-80 minutes. Yes I realize this is not exact. I wing it every time and it usually turns out fine.Turn the squash if it looks like it's getting overdone on one side.

Remove, let it cool a bit so you can handle it. Slice lengthwise.You will see in the center " pumpkin goo " with seeds and strings.Delicately use a fork to try to get out the seeds and wet looking nasties.

While pulling out the nasties, you may notice some regular strands of squash coming up... that is what will be your noodles.Now use the fork to scrape (with the tines) to pull up lots of stringy noodles (everything except the wet goo and seeds can make noodley stuff)

What I do is make sure the kids don't get the stuff that is either too wet or not noodle-y enough. I eat that.Top with your favorite spaghetti topping. We use tomato and meat sauce. You can use butter/ghee/margarine.

There is a more labor intensive way to make it.Split the squash in half lengthwise while it's raw. Remove gunk. Stick it face down in a glass pan of water and bake 350 degrees, ~ 60 mins.This way you won't have to pick apart the goo when it's baked. I have a hard time cutting a raw squash so I do it my way.

The easiest way to describe a spaghetti squash is the bright yellow " uninteresting " looking squash. It is oval, maybe football sized. Almost every supermarket has them. Choose a small one at first in case no one likes it. Bake it about an hour, not the 80 or 90 mins.

Acorn squash are super easy too, good for desserts and breakfasts.

 

Toni,Can you share how you make your spaghetti squash? Assume I know nothing, because I am an AWFUL cook (I don't even know what a spaghetti squash looks like, so yes, I'm that bad). I've just always wondered how to make this. Thanks!

- Kirk-To: mb12 valtrex From: bellbaby@...

Date: Sun, 6 Mar 2011 13:44:19 -0500Subject: Re: More Hand Flapping & Stimming??

 

Sophie,Look into Low Oxalate Diet. Website is lowoxalate.infoA lot of the GF replacement items are high oxalate. Please don't be discouraged. If you need advice on GF subs that are lower oxalate, you can get help at the yahoo group trying_low_oxalates.

I choose corn or rice noodles over quinoa. I also use spaghetti squash for spaghetti (this is the only thing I make that the kids WOOF down and ask for seconds of!!!)This is a link from my DAN's website:

http://wholisticpeds.com/default.asp?cid=956655663 & n1=2 & n2=38On Fri, Mar 4, 2011 at 6:11 PM, Sophie Camilleri wrote:

 

My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

Ive noticed more negatives than positives, which is really worrying me.

I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

Has anyone heard of this,Im so worried I dont know what to do.

We have only been going down the Bio route for the last month, so Im very concerned.

God Bless

Sophie-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

I like mine baked too. I saw a blog a few weeks ago, and she did hers in the crockpot. She cut it first, and put it in the crock with 1 cup of water. I may try that tomorrow. Life circumstances have made me hate cooking. I used to love it. I grew up and had to deal with non-adventurous people who refuse to eat things. It has made me loathe the process.Anyway, because of this, I take the easy way out. A LOT.Here is easy spaghetti squash. Buy squash. :-)Place in oven, 350 degrees, about 60-80 minutes. Yes I realize this is not exact. I wing it every time and it usually turns out fine.Turn the squash if it looks like it's getting overdone on one side.Remove, let it cool a bit so you can handle it. Slice lengthwise.You will see in the center "pumpkin goo" with seeds and strings.Delicately use a fork to try to get out the seeds and wet looking nasties.While pulling out the nasties, you may notice some regular strands of squash coming up... that is what will be your noodles.Now use the fork to scrape (with the tines) to pull up lots of stringy noodles (everything except the wet goo and seeds can make noodley stuff)What I do is make sure the kids don't get the stuff that is either too wet or not noodle-y enough. I eat that.Top with your favorite spaghetti topping. We use tomato and meat sauce. You can use butter/ghee/margarine. There is a more labor intensive way to make it.Split the squash in half lengthwise while it's raw. Remove gunk. Stick it face down in a glass pan of water and bake 350 degrees, ~ 60 mins.This way you won't have to pick apart the goo when it's baked. I have a hard time cutting a raw squash so I do it my way.The easiest way to describe a spaghetti squash is the bright yellow "uninteresting" looking squash. It is oval, maybe football sized. Almost every supermarket has them. Choose a small one at first in case no one likes it. Bake it about an hour, not the 80 or 90 mins.Acorn squash are super easy too, good for desserts and breakfasts. Toni,Can you share how you make your spaghetti squash? Assume I know nothing, because I am an AWFUL cook (I don't even know what a spaghetti squash looks like, so yes, I'm that bad). I've just always wondered how to make this. Thanks!- Kirk-To: mb12 valtrex From: bellbaby@...Date: Sun, 6 Mar 2011 13:44:19 -0500Subject: Re: More Hand Flapping & Stimming?? Sophie,Look into Low Oxalate Diet. Website is lowoxalate.infoA lot of the GF replacement items are high oxalate. Please don't be discouraged. If you need advice on GF subs that are lower oxalate, you can get help at the yahoo group trying_low_oxalates. I choose corn or rice noodles over quinoa. I also use spaghetti squash for spaghetti (this is the only thing I make that the kids WOOF down and ask for seconds of!!!)This is a link from my DAN's website:http://wholisticpeds.com/default.asp?cid=956655663 & n1=2 & n2=38On Fri, Mar 4, 2011 at 6:11 PM, Sophie Camilleri wrote: My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take. Ive noticed more negatives than positives, which is really worrying me. I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?Has anyone heard of this,Im so worried I dont know what to do. We have only been going down the Bio route for the last month, so Im very concerned.God BlessSophie-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Thanks Toni! I'll have to try this! - Kirk-To: mb12 valtrex From: bellbaby@...Date: Sun, 6 Mar 2011 15:16:23 -0500Subject: Re: More Hand Flapping & Stimming??

Life circumstances have made me hate cooking. I used to love it. I grew up and had to deal with non-adventurous people who refuse to eat things. It has made me loathe the process.Anyway, because of this, I take the easy way out. A LOT.

Here is easy spaghetti squash. Buy squash. :-)Place in oven, 350 degrees, about 60-80 minutes. Yes I realize this is not exact. I wing it every time and it usually turns out fine.Turn the squash if it looks like it's getting overdone on one side.

Remove, let it cool a bit so you can handle it. Slice lengthwise.You will see in the center "pumpkin goo" with seeds and strings.Delicately use a fork to try to get out the seeds and wet looking nasties.

While pulling out the nasties, you may notice some regular strands of squash coming up... that is what will be your noodles.Now use the fork to scrape (with the tines) to pull up lots of stringy noodles (everything except the wet goo and seeds can make noodley stuff)

What I do is make sure the kids don't get the stuff that is either too wet or not noodle-y enough. I eat that.Top with your favorite spaghetti topping. We use tomato and meat sauce. You can use butter/ghee/margarine.

There is a more labor intensive way to make it.Split the squash in half lengthwise while it's raw. Remove gunk. Stick it face down in a glass pan of water and bake 350 degrees, ~ 60 mins.This way you won't have to pick apart the goo when it's baked. I have a hard time cutting a raw squash so I do it my way.

The easiest way to describe a spaghetti squash is the bright yellow "uninteresting" looking squash. It is oval, maybe football sized. Almost every supermarket has them. Choose a small one at first in case no one likes it. Bake it about an hour, not the 80 or 90 mins.

Acorn squash are super easy too, good for desserts and breakfasts.

Toni,Can you share how you make your spaghetti squash? Assume I know nothing, because I am an AWFUL cook (I don't even know what a spaghetti squash looks like, so yes, I'm that bad). I've just always wondered how to make this. Thanks!

- Kirk-To: mb12 valtrex From: bellbaby@...

Date: Sun, 6 Mar 2011 13:44:19 -0500Subject: Re: More Hand Flapping & Stimming??

Sophie,Look into Low Oxalate Diet. Website is lowoxalate.infoA lot of the GF replacement items are high oxalate. Please don't be discouraged. If you need advice on GF subs that are lower oxalate, you can get help at the yahoo group trying_low_oxalates.

I choose corn or rice noodles over quinoa. I also use spaghetti squash for spaghetti (this is the only thing I make that the kids WOOF down and ask for seconds of!!!)This is a link from my DAN's website:

http://wholisticpeds.com/default.asp?cid=956655663 & n1=2 & n2=38On Fri, Mar 4, 2011 at 6:11 PM, Sophie Camilleri wrote:

My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take.

Ive noticed more negatives than positives, which is really worrying me.

I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

Has anyone heard of this,Im so worried I dont know what to do.

We have only been going down the Bio route for the last month, so Im very concerned.

God Bless

Sophie-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

If he's on abx, it could be that the increased stimming you're seeing is die-off.

 

Hiya thanks for taking the time to reply.

If I were to stop the mediclear for a couple of days, wont i be taking out some of the vits that he may be needing or is there something I could replace this with?

Also another thing to add is that my son has recently had test results back saying that he was positive to cryptosporidium and

h-pylori, he has been on amoxicillin and Norzol metronidazole for 5 days, butthe hand flapping started long before the meds, it started 4 days into the diet.

Thanks again

Sophie

> > > >

> > > > My son has been on a GFCF diet for 25 days, our biomed Dr put him on

> > this diet and gave him 6 suppliments to take.

> > > >

> > > > Ive noticed more negatives than positives, which is really worrying me.

> >

> > > >

> > > > I rang the Bio Dr yesterday to tell him that my son was showing more

> > stimming signs, and that he his flapping his hands like crazy, and he never

> > really used to flap his hands before he started this diet. The Dr said it

> > could either be that his stomache is inflamed or that he is getting more

> > aware and his senses are more active?

> > > >

> > > > Has anyone heard of this,Im so worried I dont know what to do.

> > > > We have only been going down the Bio route for the last month, so Im

> > very concerned.

> > > >

> > > > God Bless

> > > > Sophie

> > > >

> > >

> >

> >

> >

>

[Guest guest]

our son defn needs folinic acid when on b vits

 

I was tempted to think it's a food sensitivity but if his poops haven't changed, then it's probably not another food sensitivity involving a gluten substitute.  I'm just looking up some of these supplements.  I can't seem to find what Mental Sharp is but the MediClear seems like it's a multi-vitamin.  It looks like it has a lot of variables in it.  I would try stopping that for a few days and see if anything changes.  Any multi-vit with as many variables would definitely drive my dd up the wall with sensory issues.  I gave my son a B-complex for a day and it was a nightmare -- it was bad wth my dd but my son was tired but couldn't sleep, meltdowns and eye stims galore.  I had sworn off any multi-vits for my daughter but decided to try the B-complex once for my son -- OMG, he became another person with stimming behavior like spinning, increased OCD-like behavior with wanting me to label everything all day long, head shaking, irritability...and that was just one day, one dose of the B-complex.  I looked out for it because a lot of other parents have mentioned that their kids have trouble with multi-vits, too. 

It could also be the soy in Nordic Naturals.  Some people have problems with the trace of soy in it, others don't -- something to look at.   

 

HI CarynThanks for responding. I did mention that to my Dr and he said not to worry now, and to carry on. The nutrionist at the clinic should have documented this at the clinic when she gave us my sons diet needs, but nothing was added, so he apologised and said to just carry on.

here are a list of the suppliments:Nutra FlaxMedi ClearGI IntegrityMental SharpNordic NaturalsPancreatic VegEnzymesThanksSophie

> >> > My son has been on a GFCF diet for 25 days, our biomed Dr put him on this diet and gave him 6 suppliments to take. > > > > Ive noticed more negatives than positives, which is really worrying me.

> > > > I rang the Bio Dr yesterday to tell him that my son was showing more stimming signs, and that he his flapping his hands like crazy, and he never really used to flap his hands before he started this diet. The Dr said it could either be that his stomache is inflamed or that he is getting more aware and his senses are more active?

> > > > Has anyone heard of this,Im so worried I dont know what to do. > > We have only been going down the Bio route for the last month, so Im very concerned.> > > > God Bless

> > Sophie> >>

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

[Guest guest]

When you say a die off what does that mean? sorry, Im so new to all of this I

dont mean to sound thick.

Thx

> > > > > >

> > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put him

> > on

> > > > this diet and gave him 6 suppliments to take.

> > > > > >

> > > > > > Ive noticed more negatives than positives, which is really worrying

> > me.

> > > >

> > > > > >

> > > > > > I rang the Bio Dr yesterday to tell him that my son was showing

> > more

> > > > stimming signs, and that he his flapping his hands like crazy, and he

> > never

> > > > really used to flap his hands before he started this diet. The Dr said

> > it

> > > > could either be that his stomache is inflamed or that he is getting

> > more

> > > > aware and his senses are more active?

> > > > > >

> > > > > > Has anyone heard of this,Im so worried I dont know what to do.

> > > > > > We have only been going down the Bio route for the last month, so

> > Im

> > > > very concerned.

> > > > > >

> > > > > > God Bless

> > > > > > Sophie

> > > > > >

> > > > >

> > > >

> > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Thx you Toni for responding to my post, I will take a look at the Low oxalate

diet. Im so new to all of this and my mind is spinning and like all of us mums

and dads we just want to help our little ones out.

Im from London England so I will try to work out some of the recepies

Thanks again

Sophie

>

> >

> >

> > My son has been on a GFCF diet for 25 days, our biomed Dr put him on this

> > diet and gave him 6 suppliments to take.

> >

> > Ive noticed more negatives than positives, which is really worrying me.

> >

> > I rang the Bio Dr yesterday to tell him that my son was showing more

> > stimming signs, and that he his flapping his hands like crazy, and he never

> > really used to flap his hands before he started this diet. The Dr said it

> > could either be that his stomache is inflamed or that he is getting more

> > aware and his senses are more active?

> >

> > Has anyone heard of this,Im so worried I dont know what to do.

> > We have only been going down the Bio route for the last month, so Im very

> > concerned.

> >

> > God Bless

> > Sophie

> >

> >

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

[Guest guest]

That's when the body starts releasing (or detoxingng) the pathogens in your body. While it's not always a pretty sight, it's a very good sign that your treatment plan is working.

To: mb12 valtrex Sent: Mon, March 7, 2011 10:43:06 AMSubject: Re: More Hand Flapping & Stimming??

When you say a die off what does that mean? sorry, Im so new to all of this I dont mean to sound thick.Thx> > > > > >> > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put him> > on> > > > this diet and gave him 6 suppliments to take.> > > > > >> > > > > > Ive noticed more negatives than positives, which is really worrying> > me.> > > >> > > > > >> > > > > > I rang the Bio Dr yesterday to tell him that my son was

showing> > more> > > > stimming signs, and that he his flapping his hands like crazy, and he> > never> > > > really used to flap his hands before he started this diet. The Dr said> > it> > > > could either be that his stomache is inflamed or that he is getting> > more> > > > aware and his senses are more active?> > > > > >> > > > > > Has anyone heard of this,Im so worried I dont know what to do.> > > > > > We have only been going down the Bio route for the last month, so> > Im> > > > very concerned.> > > > > >> > > > > > God Bless> > > > > > Sophie> > > > > >> > > > >> > > >> > > >> > > >> >

>> >> > > >>

[Guest guest]

Thanks for responding and explaining.

Kind Regards

Sophie

> > > > > > >

> > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put him

> > > on

> > > > > this diet and gave him 6 suppliments to take.

> > > > > > >

> > > > > > > Ive noticed more negatives than positives, which is really

worrying

> > > me.

> > > > >

> > > > > > >

> > > > > > > I rang the Bio Dr yesterday to tell him that my son was showing

> > > more

> > > > > stimming signs, and that he his flapping his hands like crazy, and he

> > > never

> > > > > really used to flap his hands before he started this diet. The Dr said

> > > it

> > > > > could either be that his stomache is inflamed or that he is getting

> > > more

> > > > > aware and his senses are more active?

> > > > > > >

> > > > > > > Has anyone heard of this,Im so worried I dont know what to do.

> > > > > > > We have only been going down the Bio route for the last month, so

> > > Im

> > > > > very concerned.

> > > > > > >

> > > > > > > God Bless

> > > > > > > Sophie

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>

[Guest guest]

It's like what Tammy said.  Not sure if you've ever sealed up a piece of uncooked meat in a bag in the summer and put it in the garbage.  As it decomposes, the sealed bag will begin to expand because the meat (which used to be living matter) is decomposing and releasing gases and liquids as it breaks down.  Microorganisms release the same things when they die.  And that stuff affects our kids. 

You could try giving your son some activated charcoal to see if it'll absorb some of the die-off toxins and see if it helps with stimming.  The die off would likely be from the antibiotics killing all the icky stuff.

 

Thanks for responding and explaining.

Kind Regards

Sophie

> > > > > > >

> > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put him

> > > on

> > > > > this diet and gave him 6 suppliments to take.

> > > > > > >

> > > > > > > Ive noticed more negatives than positives, which is really worrying

> > > me.

> > > > >

> > > > > > >

> > > > > > > I rang the Bio Dr yesterday to tell him that my son was showing

> > > more

> > > > > stimming signs, and that he his flapping his hands like crazy, and he

> > > never

> > > > > really used to flap his hands before he started this diet. The Dr said

> > > it

> > > > > could either be that his stomache is inflamed or that he is getting

> > > more

> > > > > aware and his senses are more active?

> > > > > > >

> > > > > > > Has anyone heard of this,Im so worried I dont know what to do.

> > > > > > > We have only been going down the Bio route for the last month, so

> > > Im

> > > > > very concerned.

> > > > > > >

> > > > > > > God Bless

> > > > > > > Sophie

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>

[Guest guest]

Thank you so much for responding and giving me more of an understanding. It is

so awful what our little ones are going through, and I feel so useless, and want

to get the correct help for my son. He doesnt have much speech, so its so hard

to tell if he is in any pain, he is always so happy, we would never of known of

any of these problems if we hadnt gone to a Biomedical doctor.

He finished his antibiotics today, but we have noticed a slight rash on his

body, a bit like a heat rash, and its also on his face but its not red on his

face it loos like dry little spots?

So much is going on with him, I think Im just scared we are doing the right

thing for him.

Thank you all for your advice.

|God Bless

Sophie

> > > > > > > > >

> > > > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put

> > him

> > > > > on

> > > > > > > this diet and gave him 6 suppliments to take.

> > > > > > > > >

> > > > > > > > > Ive noticed more negatives than positives, which is really

> > worrying

> > > > > me.

> > > > > > >

> > > > > > > > >

> > > > > > > > > I rang the Bio Dr yesterday to tell him that my son was

> > showing

> > > > > more

> > > > > > > stimming signs, and that he his flapping his hands like crazy,

> > and he

> > > > > never

> > > > > > > really used to flap his hands before he started this diet. The Dr

> > said

> > > > > it

> > > > > > > could either be that his stomache is inflamed or that he is

> > getting

> > > > > more

> > > > > > > aware and his senses are more active?

> > > > > > > > >

> > > > > > > > > Has anyone heard of this,Im so worried I dont know what to

> > do.

> > > > > > > > > We have only been going down the Bio route for the last

> > month, so

> > > > > Im

> > > > > > > very concerned.

> > > > > > > > >

> > > > > > > > > God Bless

> > > > > > > > > Sophie

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

> >

> >

>

[Guest guest]

Sophie, make sure you get good probiotics into him starting right this minute.

I can't say for certain, but the rash could be die-off as well.

Also, I don't think he's in pain as he probably wouldn't spend so much time smiling. You'd probably see a lot of tantruming that would seem to be "out of the blue" if pain/chronic pain was an issue. Just keep chugging along, momma....good things just might come your way : ) -tammy

To: mb12 valtrex Sent: Mon, March 7, 2011 5:39:09 PMSubject: Re: More Hand Flapping & Stimming??

Thank you so much for responding and giving me more of an understanding. It is so awful what our little ones are going through, and I feel so useless, and want to get the correct help for my son. He doesnt have much speech, so its so hard to tell if he is in any pain, he is always so happy, we would never of known of any of these problems if we hadnt gone to a Biomedical doctor. He finished his antibiotics today, but we have noticed a slight rash on his body, a bit like a heat rash, and its also on his face but its not red on his face it loos like dry little spots?So much is going on with him, I think Im just scared we are doing the right thing for him.Thank you all for your advice.|God Bless Sophie> > > > > > > > >> > > > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put> > him> > > > > on> > > > > > > this diet and gave him 6 suppliments to take.> > > > > > > > >> > > > > > > > > Ive noticed more negatives than positives, which is really> > worrying> > > > >

me.> > > > > > >> > > > > > > > >> > > > > > > > > I rang the Bio Dr yesterday to tell him that my son was> > showing> > > > > more> > > > > > > stimming signs, and that he his flapping his hands like crazy,> > and he> > > > > never> > > > > > > really used to flap his hands before he started this diet. The Dr> > said> > > > > it> > > > > > > could either be that his stomache is inflamed or that he is> > getting> > > > > more> > > > > > > aware and his senses are more active?> > > > > > > > >> > > > > > > > > Has anyone heard of this,Im so worried I dont know what to> > do.>

> > > > > > > > We have only been going down the Bio route for the last> > month, so> > > > > Im> > > > > > > very concerned.> > > > > > > > >> > > > > > > > > God Bless> > > > > > > > > Sophie> > > > > > > > >> > > > > > > >> > > > > > >> > > > > > >> > > > > > >> > > > > >> > > > >> > > > >> > > > >> > > >> > >> >> > > >>

[Guest guest]

Thank you so much for the info Tammy. I have been on the phone to the Dr this

morning and he is getting some Probiotics ready for my son, he also said he

would like to start my son on Valtrex in the next few weeks, he says there is

now so much more medical evidance that the antivaral way is the right way,

America and other countries are so more aware of this, England is quite a way

behind you guys, but at least I can pass on my experience as well now.

Thanks again for taking the time to reply.

Sophie

> > > > > > > > > >

> > > > > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr

put

> > > him

> > > > > > on

> > > > > > > > this diet and gave him 6 suppliments to take.

> > > > > > > > > >

> > > > > > > > > > Ive noticed more negatives than positives, which is really

> > > worrying

> > > > > > me.

> > > > > > > >

> > > > > > > > > >

> > > > > > > > > > I rang the Bio Dr yesterday to tell him that my son was

> > > showing

> > > > > > more

> > > > > > > > stimming signs, and that he his flapping his hands like crazy,

> > > and he

> > > > > > never

> > > > > > > > really used to flap his hands before he started this diet. The

Dr

> > > said

> > > > > > it

> > > > > > > > could either be that his stomache is inflamed or that he is

> > > getting

> > > > > > more

> > > > > > > > aware and his senses are more active?

> > > > > > > > > >

> > > > > > > > > > Has anyone heard of this,Im so worried I dont know what to

> > > do.

> > > > > > > > > > We have only been going down the Bio route for the last

> > > month, so

> > > > > > Im

> > > > > > > > very concerned.

> > > > > > > > > >

> > > > > > > > > > God Bless

> > > > > > > > > > Sophie

> > > > > > > > > >

> > > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > > >

> > > > > >

> > > > >

> > > >

> > >

> > >

> > >

> >

>

[Guest guest]

Sophie, be ready with a good yeast protocol. Make sure you and your doc have a plan in place before you start the Valtrex. Don't start them together, though. Space them apart atleast by a couple of weeks. Good luck! Hope you see good stuff from it : ) -tammy

To: mb12 valtrex Sent: Tue, March 8, 2011 6:26:04 AMSubject: Re: More Hand Flapping & Stimming??

Thank you so much for the info Tammy. I have been on the phone to the Dr this morning and he is getting some Probiotics ready for my son, he also said he would like to start my son on Valtrex in the next few weeks, he says there is now so much more medical evidance that the antivaral way is the right way, America and other countries are so more aware of this, England is quite a way behind you guys, but at least I can pass on my experience as well now.Thanks again for taking the time to reply.Sophie> > > > > > > > > >> > > > > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put> > > him> > > > > > on> > > > > > > > this diet and gave him 6 suppliments to take.> > > > > > > > > >> > > > > > > > > > Ive noticed more negatives than positives, which is really> > > worrying> > > > > > me.> > > > > > > >> > > > > > > > > >> > > > > > > > > > I rang the Bio Dr yesterday to tell him

that my son was> > > showing> > > > > > more> > > > > > > > stimming signs, and that he his flapping his hands like crazy,> > > and he> > > > > > never> > > > > > > > really used to flap his hands before he started this diet. The Dr> > > said> > > > > > it> > > > > > > > could either be that his stomache is inflamed or that he is> > > getting> > > > > > more> > > > > > > > aware and his senses are more active?> > > > > > > > > >> > > > > > > > > > Has anyone heard of this,Im so worried I dont know what to> > > do.> > > > > > > > > > We have only been going down the Bio route for the

last> > > month, so> > > > > > Im> > > > > > > > very concerned.> > > > > > > > > >> > > > > > > > > > God Bless> > > > > > > > > > Sophie> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >> > >> > > > > >> >>

[Guest guest]

Sophie, this is probably obvious but make sure you check that the probiotic doesn't have strep in it -- I dunno, from what I heard from parents with PANDAS kids, when they're this young, don't play with fire by introducing strep into the equation when you don't have to. 

 

Sophie, be ready with a good yeast protocol.  Make sure you and your doc have a plan in place before you start the Valtrex.  Don't start them together, though.  Space them apart atleast by a couple of weeks.  Good luck!  Hope you see good stuff from it  : )    -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:26:04 AMSubject: Re: More Hand Flapping & Stimming??

 

Thank you so much for the info Tammy. I have been on the phone to the Dr this morning and he is getting some Probiotics ready for my son, he also said he would like to start my son on Valtrex in the next few weeks, he says there is now so much more medical evidance that the antivaral way is the right way, America and other countries are so more aware of this, England is quite a way behind you guys, but at least I can pass on my experience as well now.

Thanks again for taking the time to reply.Sophie> > > > > > > > > >> > > > > > > > > > My son has been on a GFCF diet for 25 days, our biomed Dr put

> > > him> > > > > > on> > > > > > > > this diet and gave him 6 suppliments to take.> > > > > > > > > >> > > > > > > > > > Ive noticed more negatives than positives, which is really

> > > worrying> > > > > > me.> > > > > > > >> > > > > > > > > >> > > > > > > > > > I rang the Bio Dr yesterday to tell him

that my son was> > > showing> > > > > > more> > > > > > > > stimming signs, and that he his flapping his hands like crazy,> > > and he> > > > > > never

> > > > > > > > really used to flap his hands before he started this diet. The Dr> > > said> > > > > > it> > > > > > > > could either be that his stomache is inflamed or that he is

> > > getting> > > > > > more> > > > > > > > aware and his senses are more active?> > > > > > > > > >> > > > > > > > > > Has anyone heard of this,Im so worried I dont know what to

> > > do.> > > > > > > > > > We have only been going down the Bio route for the

last> > > month, so> > > > > > Im> > > > > > > > very concerned.> > > > > > > > > >> > > > > > > > > > God Bless

> > > > > > > > > > Sophie> > > > > > > > > >> > > > > > > > >> > > > > > > >> > > > > > > >

> > > > > > > >> > > > > > >> > > > > >> > > > > >> > > > > >> > > > >> > > >

> > >> > > > > >> >>