Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 Welcome Ninfa Sorry to hear that you have RP, but welcome anyway. I know it's rough, but now you have us. As you were already told, we're here for the good times and as well as the bad. Once again welcome. love, rene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 In a message dated 11/26/00 2:53:36 PM Pacific Standard Time, FANIN16@... writes: << >> Ninfa. Thank you for your post. I'm sorry that you have RP. You seem to do really well posting for not knowing much English. Please continue to write. Are you on any medication right now? Let us know how you are doing. Hope you have a great week coming up. Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 Thank you Ninfa for you post. Don't worry about the writing in English .I myself don't do to good either LOL.Just glad that you are now posting. How are you feeling ??? What medicine are you on ?? Please let us know a little about your self so we can get to know each other better. Yes this group is the best. Here you learn so much more about RP then not even the Dr. know much about that. Just remember RP is only a Part of your life. OK We are here for you in your good times and bad times too. So just ask all you wand. OK .Hope to hear from you real soon again. Love Heidi > Dear RP Group Support; Hello. I would like to introduce myself to the > group. I am Colombian[i dont speak or read English well but I will try my > very best to comunicate] I was diagnosed with Polychondritis 9 years ago. I > know it is very hard to deal with - this disease and I thank GOD for giving > me the strenght to go on everday and finding this support group. It helps me > to know that I am not alone and I can understand -what everyone is going > through and find how everyone tries to deal with this disease My name is > Ninfa , and i live here and New York > May GOD bless you and feel better > FANIN16@... > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 Ninfa, Hi and welcome to the RP. group. Sorry to hear you have RP. but I am happy you found us. I am looking forward to getting to know more about you. Hugs, Sandy > Dear RP Group Support; Hello. I would like to introduce myself to the > group. I am Colombian[i dont speak or read English well but I will try my > very best to comunicate] I was diagnosed with Polychondritis 9 years ago. I > know it is very hard to deal with - this disease and I thank GOD for giving > me the strenght to go on everday and finding this support group. It helps me > to know that I am not alone and I can understand -what everyone is going > through and find how everyone tries to deal with this disease My name is > Ninfa , and i live here and New York > May GOD bless you and feel better > FANIN16@... > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2000 Report Share Posted November 26, 2000 Hi Ninfa! So glad you posted. I know it must take you awhile to pussle out some of the messages and to make one of your own but we really appreciate it because then you can be part of our family. Nine years of RP sounds like a long time to me (poor in Boston with 30+ years of it), What is yours like? Where and how are you affected? How did you wind up in New York? How long have you been there? Do you like it? Too many questions, yeah? Welcome Love Carolyn New Member...... > Dear RP Group Support; Hello. I would like to introduce myself to the > group. I am Colombian[i dont speak or read English well but I will try my > very best to comunicate] I was diagnosed with Polychondritis 9 years ago. I > know it is very hard to deal with - this disease and I thank GOD for giving > me the strenght to go on everday and finding this support group. It helps me > to know that I am not alone and I can understand -what everyone is going > through and find how everyone tries to deal with this disease My name is > Ninfa , and i live here and New York > May GOD bless you and feel better > FANIN16@... > > > DISCLAIMER!! > WE ARE NOT MEDICAL PROFESSIONALS, THEREFORE ANY INFORMATION THAT IS RECEIVED HERE IS FROM EXPERIENCE ONLY. PLEASE CONSULT WITH YOUR DOCTOR BEFORE TRYING ANYTHING THAT IS SUGGESTED. WE ARE NOT A SUBSTITUTE FOR YOUR PHYSICIAN AND ARE NOT TRYING TO BE. REMEMBER EVERYONE IS DIFFERENT AND TREATMENT MAYBE DIFFERENT FOR MANY OF US. THANK YOU > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2000 Report Share Posted November 27, 2000 Ninfa, Good to see you post. Please post more so we can get to know you better. I think you have posted before or at least signed up with the group earlier because your name rings a bell. Keep posting we love to hear form everone. My name is Glenda and I live in Oregon. I am 43yrs old and have 2 grown children and am raising my 5yr granddaughter now. I lead a faily normal life and work 40plus hours a week. I have had RP for over 7yrs. Lots of Love Glenda --- FANIN16@... wrote: > Dear RP Group Support; Hello. I would like to > introduce myself to the > group. I am Colombian[i dont speak or read English > well but I will try my > very best to comunicate] I was diagnosed with > Polychondritis 9 years ago. I > know it is very hard to deal with - this disease and > I thank GOD for giving > me the strenght to go on everday and finding this > support group. It helps me > to know that I am not alone and I can understand > -what everyone is going > through and find how everyone tries to deal with > this disease My name is > Ninfa , and i live here and New York > > May GOD bless you and feel better > > > FANIN16@... > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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