Re: i am unsubscribing/ Beth

[Guest guest]

Dear mary beth, I am unsubscribing. I am very saddened because you have helped us tremendously over the last few months. I did not mean for all of this to happen, and I did not give a patient medical advice. I simply suggested that he monitor his O2 with the Oxymeter. The two boards are very different. I was not seeking help for me. I got that from the other side. I needed help for Don - a very sick man. Don's only comment was that it reminded him of the chicken yard when he was growing up (the old farmer that he is). The hens became very territorial of their chicken yard and would not let anyone invade their territory. I do see the

analogy. You kick his care-giver, you kick the patient. Thank you K K Central Il Hubby ipf- 2006 As for me and my house, we will serve the Lord 14

[Guest guest]

What's really sad about all this is that Tina and K or other CGs do not determine if there is, or is not, something they could change about THEIR behavior and attitude and make an adjustment and then go on and use the two boards for what they were originally intended. You're BLAMING us.

No one has to LEAVE permanently, only take stock, evaluate.

You CGs aren't just mad, you're getting even. You will deny your husbands our support just because you're po'd.

These reactions tells me more than anything that CGs and 'patients' cannot successfully share a board daily. It isn't safe to voice an opinion w/o retaliation!

MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there!

Re: i am unsubscribing/ Beth

Dear mary beth,

I am unsubscribing. I am very saddened because you have helped us tremendously over the last few months. I did not mean for all of this to happen, and I did not give a patient medical advice. I simply suggested that he monitor his O2 with the Oxymeter.

The two boards are very different. I was not seeking help for me. I got that from the other side. I needed help for Don - a very sick man.

Don's only comment was that it reminded him of the chicken yard when he was growing up (the old farmer that he is). The hens became very territorial of their chicken yard and would not let anyone invade their territory. I do see the analogy. You kick his care-giver, you kick the patient. Thank you

K

K

Central Il

Hubby ipf- 2006

As for me and my house, we will serve the Lord

14

[Guest guest]

What is really sad about this, is not that care givers should or

even need to change their attitude or behavoir. Whats sad is that a

few people get their panties bunched up because they don't agree with

something someone has said. someone said in an earlier post that

this site if for patients only. Well a lot of us patients would not

be here if it wasn't for our caregivers me for one Not only do I not

type very well but I also get tired of all the bad news and all the

{side shows} so Teri (not Tina) would read and let me know what post

she believes I would be interested in. Teri has been a member of

this board since before there was a C/G board. Evidently 1 person

has said something to get everyone roused up. The opening page of

the board also says that NOBODY SHOULD TAKE ANY INFO AS MEDICAL

ADVICE WITHOUT FIRST CONTACTING THEIR DOC. Patients and care givers

did get along very well on this site for over two years that I have

been a member, I don't think the CGs are getting mad or even they

are just tired of being belittled on whatever they say or do. If it

wasn't for the love of my life taking the initiative I most likely

wouldn't be on this or any other site, She is a care giver and she

had learned alot of what to expect from me as well as things to talk

to the doc about, And Teri has never denied me any support, she has

been there every step of the way even when i am an ass to her. She's

not po'ed she just feels unwelcome. But all the whoopla about

caregivers on the site has caused her to not want to be a member.

She would do most of my posting because what I have typed in this

post only has taken almost an hour and I am not patient enough to do

this very often. I always thought if we had problems with some one

we were to contact the moderators and let them fix the

problem

Respectfully Jon IPF may 06

>

> What's really sad about all this is that Tina and K or other

CGs do not determine if there is, or is not, something they could

change about THEIR behavior and attitude and make an adjustment and

then go on and use the two boards for what they were originally

intended. You're BLAMING us.

> No one has to LEAVE permanently, only take stock, evaluate.

> You CGs aren't just mad, you're getting even. You will deny your

husbands our support just because you're po'd.

> These reactions tells me more than anything that CGs and 'patients'

cannot successfully share a board daily. It isn't safe to voice an

opinion w/o retaliation!

>

> MamaSher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

> Re: i am unsubscribing/ Beth

>

>

>

>

>

>

> Dear mary beth,

> I am unsubscribing. I am very saddened because you have

helped us tremendously over the last few months. I did not mean for

all of this to happen, and I did not give a patient medical advice.

I simply suggested that he monitor his O2 with the Oxymeter.

> The two boards are very different. I was not seeking help for

me. I got that from the other side. I needed help for Don - a very

sick man.

> Don's only comment was that it reminded him of the chicken yard

when he was growing up (the old farmer that he is). The hens became

very territorial of their chicken yard and would not let anyone

invade their territory. I do see the analogy. You kick his care-

giver, you kick the patient. Thank you

> K

>

>

>

>

>

> K

> Central Il

> Hubby ipf- 2006

> As for me and my house, we will serve the Lord

> 14

>

[Guest guest]

What is really sad about this, is not that care givers should or

even need to change their attitude or behavoir. Whats sad is that a

few people get their panties bunched up because they don't agree with

something someone has said. someone said in an earlier post that

this site if for patients only. Well a lot of us patients would not

be here if it wasn't for our caregivers me for one Not only do I not

type very well but I also get tired of all the bad news and all the

{side shows} so Teri (not Tina) would read and let me know what post

she believes I would be interested in. Teri has been a member of

this board since before there was a C/G board. Evidently 1 person

has said something to get everyone roused up. The opening page of

the board also says that NOBODY SHOULD TAKE ANY INFO AS MEDICAL

ADVICE WITHOUT FIRST CONTACTING THEIR DOC. Patients and care givers

did get along very well on this site for over two years that I have

been a member, I don't think the CGs are getting mad or even they

are just tired of being belittled on whatever they say or do. If it

wasn't for the love of my life taking the initiative I most likely

wouldn't be on this or any other site, She is a care giver and she

had learned alot of what to expect from me as well as things to talk

to the doc about, And Teri has never denied me any support, she has

been there every step of the way even when i am an ass to her. She's

not po'ed she just feels unwelcome. But all the whoopla about

caregivers on the site has caused her to not want to be a member.

She would do most of my posting because what I have typed in this

post only has taken almost an hour and I am not patient enough to do

this very often. I always thought if we had problems with some one

we were to contact the moderators and let them fix the

problem

Respectfully Jon IPF may 06

>

> What's really sad about all this is that Tina and K or other

CGs do not determine if there is, or is not, something they could

change about THEIR behavior and attitude and make an adjustment and

then go on and use the two boards for what they were originally

intended. You're BLAMING us.

> No one has to LEAVE permanently, only take stock, evaluate.

> You CGs aren't just mad, you're getting even. You will deny your

husbands our support just because you're po'd.

> These reactions tells me more than anything that CGs and 'patients'

cannot successfully share a board daily. It isn't safe to voice an

opinion w/o retaliation!

>

> MamaSher, age 69. IPF 3-06, OR.

> Don't fret about tomorrow, God is already there!

> Re: i am unsubscribing/ Beth

>

>

>

>

>

>

> Dear mary beth,

> I am unsubscribing. I am very saddened because you have

helped us tremendously over the last few months. I did not mean for

all of this to happen, and I did not give a patient medical advice.

I simply suggested that he monitor his O2 with the Oxymeter.

> The two boards are very different. I was not seeking help for

me. I got that from the other side. I needed help for Don - a very

sick man.

> Don's only comment was that it reminded him of the chicken yard

when he was growing up (the old farmer that he is). The hens became

very territorial of their chicken yard and would not let anyone

invade their territory. I do see the analogy. You kick his care-

giver, you kick the patient. Thank you

> K

>

>

>

>

>

> K

> Central Il

> Hubby ipf- 2006

> As for me and my house, we will serve the Lord

> 14

>

[Guest guest]

Jon...my apologies for using the wrong name of Tina, sorry. I do know your wife's name is Teri. Both Peggy and I wrote to Teri and there was no response from her. I'm thinking right now a few of you want to be mad.

Now Jon, CG are NOT "'belittled on whatever they say or do". That is an exaggeration. Anything Teri has done or is doing is NOT a problem because of the easy way she does it. I don't know if she is a member on the CG board but here she does not dominate the board and what she can share with you from us is good for both of you. I think she is a good example of how the board is best used between the two.

Again, you and Teri and K. are simply not reading clearly what we have said.

What is the point in being mad Jon? That sure will not solve any disagreements. Teri is not "unwelcome" here because she does not overstep her welcome. If you are here because of your wife then wonderful. What is gained now by both of you leaving????

Goodness. Calm down.

I do not recall seeing any post that says this site is for patients only as you have written. I'll go back again and double check.

I'm not understanding the difficulty in trying to have a meeting of the minds when we disagree.

The CG board is for CGs. The IPF board is for those of us sick/dying with this damn disease. It doesn't mean the two boards never cross over.

I've never been to the CG board but I'm willing to place a bet that if I went there and dominated the board and told people what to do and turned it into a social banquet with mostly off topic subjects, I'd be unwelcome. Quite frankly, this board is not for CGs to discuss themselves. It's for CGs to discuss IPF. I don't see why this is such a problem to understand.

Come on, lets hug and make up...

Do you have a fence around your home? It's a boundary. Your space where you do what you want, how you want. Your neighbor the same. But you can visit, share information, ask questions and then you each go home.

MamaSher, age 69. IPF 3-06, OR.Don't fret about tomorrow, God is already there!

Re: i am unsubscribing/ Beth> > > > > > > Dear mary beth,> I am unsubscribing. I am very saddened because you have helped us tremendously over the last few months. I did not mean for all of this to happen, and I did not give a patient medical advice. I simply suggested that he monitor his O2 with the Oxymeter. > The two boards are very different. I was not seeking help for me. I got that from the other side. I needed help for Don - a very sick man.> Don's only comment was that it reminded him of the chicken yard when he was growing up (the old farmer that he is). The hens became very territorial of their chicken yard and would not let anyone invade their territory. I do see the analogy. You kick his care-giver, you kick the patient. Thank you > K> > > > > > K> Central Il> Hubby ipf- 2006> As for me and my house, we will serve the Lord> 14>