Guest guest Posted August 4, 2008 Report Share Posted August 4, 2008 My visit on Friday finally persuaded me that I am going to have to pursue a transplant. They did PFT's & it showed me that I have declined quite a bit. I guess I wasn't able to acknowledge that fact previously. I had to make the effort to get back to where I was before the pneumonia the first of March. Now my vist to Vanderbilt the first part of October will be to see how I proceed. First, the GI (liver) doctor must approve I am able to take the additional immunosuppresant medication necessary after transplant with my liver disease. ly, I doubt this will be a problem, but I am not the doctor. So wish me luck. I did get them to upgrade me in oxygen as I could not pass the 6 minute walk test using 6L continuous flow. I've been very careful not to overdo, but it's difficult when you don't get enough oxygen, right? Sometimes it is hard to understand just how ill you are! Sorry to hear about Vicky passing. Others have many more problems than myself. At least I may have some hope & decided I'll go as far as I can until I am told " NO! (Jesus holding my hand all the way). " Sherry , age 64 NSIP '98, PH, Bronchiectasis & PBC (liver disease) Quote Link to comment Share on other sites More sharing options...
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