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Re: lonely and desperate and about to give up!

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Hi! I do not know as much as the other mom's, but I have had great results with

Kirkman Yeast aid. Also I give coconut oil 1 tsp with each meal, organic

unrefined, cold pressed, Spectrum brand. Coconut Kefir a probiotic drink is good

too. We have used several probiotics, the best for us is Syntol, you can buy it

at Enzymus.com. And also a very potent probiotic, Custom Probiotics #1. We

use Grapefruit Seed Extract for yeast too, Nutribiotic brand. Olive Leaf

Extract, I use brain childs nutritionals brand, 1 dropper full with each meal.

We use Lugol's 2% Iodine, 1 drop a day. Also Candex at night. My son has

problems, with yeast and I know the frustration. I keep a journal, and just

write down everything I see. I have to space new things apart for 5 days for me

to get a grasp on what is going on with him. When I first started this, I

really liked Brain child Nutritionals Intestimend. It did give us die off

though, lots of tears. We used charcoal, epson salts baths, motrin, and Lee

Silsby Pharmacy Gabba/Mag cream helped to calm him. For digestive enzymes I use

Klaire's Brand Vital Enzymes, and Houston Enzymes are a great brand too. The

problem with all of this is that everyone of our kids are different. My son had

problems with Calcium, I see Dr. Megson too, and she never heard of it. She was

not surprised though, our kids are sensitive to everything, and no two are

alike. Some mom's have taken their kids off everything, and gradually

reintroduced stuff 1 thing at a time every 5 days or so. I have to bribe my son

sometimes to do as I ask, we use an activity/outing he loves, or Spry sugar free

all natural candy/gum. We also like Sparx all natural candy. I have been doing

biomedical for 20 months, and progress seems to wax and wane at times.

Sometimes he will seem to have a major regression and then will pull out of it

and make some gains. Hang in there, I feel your pain. We all do, we are all

very brave, and hopeful to keep trying. And although it is hard and we want to

stop, we don't. My only advice to you is to keep notes. I was shocked that my

son could regress from a probiotic, or from Calcium. No one I talked to had

that experience, but sure enough after I pulled those he improved. I use to

gripe about all the money I wasted, but I just take the supplements he can't

take. I have enough to last me 10 years(: Anyway, take care and good luck.

You are a great mother!!!

Judy(:

>

> hi all,

> i hope this gets you because i have been sending msgs to the group without

reply.

> my name is jamila and i live in Nigeria and i feel all alone.I have been doing

biomedicals for my son since july but changes and progress is very slow.

> My son is on the GAPS/SCD diet.

> i brought my son to the US to see Dr Megson in august and we have been killing

yeast.First diflucan,then nystin and when they didnt seem to work,she asked us

to give him sporonox.we have been on sporonox for over a month now but he is

still laughing,smilling and spining.Its just not working.i give him garlic

everyday,coconut milk and his fruit intake is limited.....why wount yeast just

leave us alone?

> With enzymes we still see some undigested food......

> i have seen progress in sleep,no more headbanging and biting.face hiting goes

and comes back.He responds to his therapists and follows all instructions but

will not with us.Chelation is next and i am hoping that we will eradicate yeast

after all those metals are out.

> my questions are is it normally this slow and if i have eliminated everything

but proteins what can be the problem?

> how can you tell if your child has parasites????????

> can you please recomend a good brand of

> iodine

> blackwalnut

> dig enymes

> probiotics.

>  

> some1 tell me smthn to keep me going please.

> thank you and God bless.

>  

>  

>  

>  

>

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Are you sure you have not killed the yeast? Those symptoms can point to other things. Good iodine - lugols 2%, good digestive enzymes- look to Houston. Enzymes, good probiotic -klaires childrens chewables with no strep lines/ dairy. Take care Sent from my iPhone

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

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Guest guest

Parasite cleanse changed the way I looked at yeast; we got great results after cleansing. NOW brand Black Walnut Wormwood Complex worked really well here.

For probiotice, after using Culterelle primarily and adding other probiotics to the mix, we swirched to Custom Probiotics D-Lactate Free and saw good results. I purchased Syntol AMD about a month ago and switched to that, hands down the best solution at bedtime!! I have a very calm child at bedtime.

For us, we give Yeast supps on an empty stomach 1-2 hours AFTER a meal. We had an increase in yeasty behavior when we gave it before the first meal.

For digestive enzymes, we use TRIENZA from Houston's.

S.

To: mb12 valtrex Sent: Mon, March 7, 2011 7:28:31 AMSubject: lonely and desperate and about to give up!

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

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Guest guest

Digestive enzymes did not work for us unless we also used something

for inflammation. We use turmeric/curcumin for this. Also,

killing yeast can cause die-off. It appears that our children need

things to help the liver and help remove toxins. We use seaweeds

with alginates to mop up toxins. We use Modifilan, but you may have

other similar products there to use. Milk thistle is often used for

liver support in the autism arena as well. To use iodine, you need

to know how. Get with a doctor and do some research for your iodine

plan. Iodoral and Lugal's are the most common brands that I see

used.

Love and prayers,

Heidi N

hi all,

i hope this gets you because i have been sending msgs to the group

without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have

been doing biomedicals for my son since july but changes and

progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have

been killing yeast.First diflucan,then nystin and when they didnt

seem to work,she asked us to give him sporonox.we have been on

sporonox for over a month now but he is still laughing,smilling and

spining.Its just not working.i give him garlic everyday,coconut milk

and his fruit intake is limited.....

why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face

hiting goes and comes back.He responds to his therapists and

follows all instructions but will not with us.Chelation is next

and i am hoping that we will eradicate yeast after all those

metals are out.

my questions are is it normally this slow and if i have eliminated

everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

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Guest guest

I have a master hebalist who makes black walnut iodine that you can just rub on

the skin or one that you can drink (my son is still young and won't orally take

too many herbs yet). He also has pure, undiluted wild oregano oil, pure olive

leaf (both leaves and he makes a syrup for kids), and other natural supplements.

He goes by barefoot herbalist. Not sure of his current web store, as it has

recently changed. Also, not sure about shipping out of the US. I think there's

been problems with that, but it's worth a look. If he can't ship it, he will

probably tell you how to make your own. Most of his recipies come from a book

written by Dr. and is still available.

Good luck!!

Diane

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we've been doing biomed now for more than a 1.5 years. We've seen some

improvement but no WOWs at all. DS is a very slow responder. he has measles

virus and is Anne Connolly positive. I don't when he'll get better.

>

> hi all,

> i hope this gets you because i have been sending msgs to the group without

reply.

> my name is jamila and i live in Nigeria and i feel all alone.I have been doing

biomedicals for my son since july but changes and progress is very slow.

> My son is on the GAPS/SCD diet.

> i brought my son to the US to see Dr Megson in august and we have been killing

yeast.First diflucan,then nystin and when they didnt seem to work,she asked us

to give him sporonox.we have been on sporonox for over a month now but he is

still laughing,smilling and spining.Its just not working.i give him garlic

everyday,coconut milk and his fruit intake is limited.....why wount yeast just

leave us alone?

> With enzymes we still see some undigested food......

> i have seen progress in sleep,no more headbanging and biting.face hiting goes

and comes back.He responds to his therapists and follows all instructions but

will not with us.Chelation is next and i am hoping that we will eradicate yeast

after all those metals are out.

> my questions are is it normally this slow and if i have eliminated everything

but proteins what can be the problem?

> how can you tell if your child has parasites????????

> can you please recomend a good brand of

> iodine

> blackwalnut

> dig enymes

> probiotics.

>  

> some1 tell me smthn to keep me going please.

> thank you and God bless.

>  

>  

>  

>  

>

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Guest guest

jamila, NEVER give up! some children are simply slow responders. aka "tough nuts". my son is just that. he's 14 next mo but was diag just before 3rd b-day. did most everything; wore myself completely out! only saw minor improvements. some things we no longer have a problem with simply because he's older and have moved on so to speak.

i dont do as much anymore, mostly due to finances. but, i did a lot and have no regrets (well, maybe where ABA is concerned). just a few words of encouragement. helping our kids is like running a marathon. you have to be with this for the long haul. yes, it gets discouraging at times. esp when i have friends with kids with autism and they did nothing and their kids seem to be progressing more than my son.

in any case, with some kids bodies,it is harder to deal with yeast, parasites, etc. my son has been battling chronic constip for YEARS! tried everything incl scoping. hang in their sister!

vicki

Re: lonely and desperate and about to give up!

we've been doing biomed now for more than a 1.5 years. We've seen some improvement but no WOWs at all. DS is a very slow responder. he has measles virus and is Anne Connolly positive. I don't when he'll get better.

>

> hi all,

> i hope this gets you because i have been sending msgs to the group without reply.

> my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

> My son is on the GAPS/SCD diet.

> i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

> With enzymes we still see some undigested food......

> i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

> my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

> how can you tell if your child has parasites????????

> can you please recomend a good brand of

> iodine

> blackwalnut

> dig enymes

> probiotics.

>

> some1 tell me smthn to keep me going please.

> thank you and God bless.

>

>

>

>

>

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For kids with calcium problem, you may want to check out the Vitamin K protocol.

My son used to have major calcium issues. He still has some mild but it's

improving.

Kathleen

> >

> > hi all,

> > i hope this gets you because i have been sending msgs to the group without

reply.

> > my name is jamila and i live in Nigeria and i feel all alone.I have been

doing biomedicals for my son since july but changes and progress is very slow.

> > My son is on the GAPS/SCD diet.

> > i brought my son to the US to see Dr Megson in august and we have been

killing yeast.First diflucan,then nystin and when they didnt seem to work,she

asked us to give him sporonox.we have been on sporonox for over a month now but

he is still laughing,smilling and spining.Its just not working.i give him garlic

everyday,coconut milk and his fruit intake is limited.....why wount yeast just

leave us alone?

> > With enzymes we still see some undigested food......

> > i have seen progress in sleep,no more headbanging and biting.face hiting

goes and comes back.He responds to his therapists and follows all instructions

but will not with us.Chelation is next and i am hoping that we will eradicate

yeast after all those metals are out.

> > my questions are is it normally this slow and if i have eliminated

everything but proteins what can be the problem?

> > how can you tell if your child has parasites????????

> > can you please recomend a good brand of

> > iodine

> > blackwalnut

> > dig enymes

> > probiotics.

> >  

> > some1 tell me smthn to keep me going please.

> > thank you and God bless.

> >  

> >  

> >  

> >  

> >

>

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Guest guest

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

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Awesome post, Alberta. when do you give the enzyme on the empty belly? (These two guys are constantly eating.) Then how long do you normally wait to give her food? -tammy

To: mb12 valtrex Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

Hi Jamila,From the sounds of it, it seems you're doing everything right. Don't be discouraged, if one thing doesn't work, move on and try something else. It's taken me a good part of a year to figure out what's going on with my kids. It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested. There is still something going on in his gut. My dd had this for the longest time and it's only stopped now for the past 6 weeks. Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system. I really sounds like there's still something in his diet that is still irritating the gut. It could be something that is GFCFSFEF/SCD/GAPS legal. For us,

it was raisins, avocados, bananas, and asparagus. Something else you can look at with regards to stopping undigested foods: oxalates. I know SCD and GAPS allow some high oxalate foods. I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates. When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy. I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD. She's been dumping oxalates for about 2 months now. It's coming out in her urine and stools. Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out. I'm not sure exactly how oxalates relate to better digestion but it worked. I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day. But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day. You'd be surprised but sometimes fixing the one root problem takes care of several other things. I've used products like Candizyme to get rid of yeast. A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach. I did this for a while and it helped with better digestion in the long-run. My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal. Candizyme helped me a lot with yeast. I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base). For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time. The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food). If there's a layer coating the inside of the stomach, the stomach cannot digest food properly. Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it. I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it. When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet. You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son. Take note of these and remove them from the diet. If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively.

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

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I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us,

it was raisins, avocados, bananas, and asparagus.  Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it.  When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

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Alberta, you are quickly becoming our resisdent poop expert. lol. Sounds like good good stuff is going on over there, mama. I don't think we have digestion issues here. But that mucous that you speak of, it's definitely present - though I can't tell whether its mucous, yeast, or both. But it here and present in their poops almost daily. All I can think is "How much of it is in there that's not coming out/?". We've gotta work on the sugar thing. It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be.

Last night at basketball, Tom came running up to me and said "I feel good today. Today is a good day!" I wish my husband could have been there. He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles. Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks. We'll get there

To: mb12 valtrex Sent: Tue, March 8, 2011 6:46:47 AMSubject: Re: lonely and desperate and about to give up!

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7). I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight. In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only. And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore. After it stabilized, it was easy to see all the foods she was eating before that were problematic. Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like

raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return. I would nip the mucous again with the enzymes while removing the raisins. I kept doing this until there were no more foods that caused the mucous and undigested food. Anything that comes out undigested now, I classify it as an intolerant food and I remove it. Everything she eats, she must be able to digest it without enzymes or we don't eat it. I figure that's the only way to let the stomach heal. If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid.

Awesome post, Alberta. when do you give the enzyme on the empty belly? (These two guys are constantly eating.) Then how long do you normally wait to give her food? -tammy

To: mb12 valtrex Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

Hi Jamila,From the sounds of it, it seems you're doing everything right. Don't be discouraged, if one thing doesn't work, move on and try something else. It's taken me a good part of a year to figure out what's going on with my kids. It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested. There is still something going on in his gut. My dd had this for the longest time and it's only stopped now for the past 6 weeks. Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system. I really sounds like there's still something in his diet that is still irritating the gut. It could be something that is GFCFSFEF/SCD/GAPS legal. For us,

it was raisins, avocados, bananas, and asparagus. Something else you can look at with regards to stopping undigested foods: oxalates. I know SCD and GAPS allow some high oxalate foods. I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates. When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy. I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD. She's been dumping oxalates for about 2 months now. It's coming out in her urine and stools. Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out. I'm not sure exactly how oxalates relate to better digestion but it worked. I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day. But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day. You'd be surprised but sometimes fixing the one root problem takes care of several other things. I've used products like Candizyme to get rid of yeast. A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach. I did this for a while and it helped with better digestion in the long-run. My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal. Candizyme helped me a lot with yeast. I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base). For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time. The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food). If there's a layer coating the inside of the stomach, the stomach cannot digest food properly. Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it. I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it. When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet. You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son. Take note of these and remove them from the diet. If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively.

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

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Share on other sites

Guest guest

Hello Jamila:I feel for you. Our progress has also been extremely slow. Although people tell me not to compare on the day to day but on the overall progress during treatment time. We have also been going to Dr. Megson now for a year and 1/2. Where I've seen improvements is in his overall health. He was chronically congested for over 2 year and I think the Cod liver oil has helped heal his immune system. Before he used to only repeat one word, now when prompted he can do up to 4; so there is improvement. We have also been combating yeast and our laughs have stop. We did use diflucan for 2 months and then got Kataconazole (something like that - can't really remember the name) but he then stopped sleeping completely. It is a nightmare. We have started using the Grapefruit seed extract as I'm afraid to keep using strong things and damage his liver. 10 days ago we started our 1st round of chelation with DMSA suppositories. We didn't see any changes yet. I'm with you across the world, my son is basically in the same position as yours. Sorry I can't be of help but I thought it be good to let you know someone will be praying for both of you. I hear you. Be patient. Keep the faith. from land T. ZapataSender: mb12 valtrex Date: Mon, 7 Mar 2011 12:28:31 +0000 (GMT)To: <mb12 valtrex >ReplyTo: mb12 valtrex Subject: lonely and desperate and about to give up! hi all,i hope this gets you because i have been sending msgs to the group without reply.my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.My son is on the GAPS/SCD diet.i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?With enzymes we still see some undigested food......i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?how can you tell if your child has parasites????????can you please recomend a good brand of iodineblackwalnutdig enymesprobiotics. some1 tell me smthn to keep me going please.thank you and God bless.

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I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AMSubject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like

raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us,

it was raisins, avocados, bananas, and asparagus.  Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it.  When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

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, I had an insomniac here on my hands. First night on melatonin, he slept 9 hours straight. He's been on it two months now and we've had only one night where he was up after 11 p.m. I highly recommend it if you haven't tried already.

Jamila, Please don't get discouraged. It can sometimes take gluten a very long time to leave the body (sometimes as long as 8-12 months). Healing takes time. Also, I don't know if you saw one of Alberta's posts from earlier today: Anything she finds in her daughter's poop that is undigested is immediately eliminated from her diet. This lady has "been there", believe me. She when she shares her experiences, it's good to listen. You're caught in a tough spot because you don't want to feed yeast with sugars. But the human body does require some sugar because that's how we make our "brain food" . If your child is not getting anything but proteins, then they are not receiving any nutrients they need that protein can not provide. It's a balancing act between starving the yeast without starving the brain...so make sure your kiddo is well

supplemented. The only two things I follow 100% is absolutely no gluten or casein. Soy is a very close second. It's very limited. I do try to watch phenols, salicylates, and oxalates, but I try to select foods that will give me the most bang for my buck nutritioanlly speaking. Sometimes, you've gotta make the trade-off. Hang in there, don't give up. It Will get better. -tammy p.s. are you guys POSITIVE its yeast?

To: mb12 valtrex Sent: Tue, March 8, 2011 1:09:36 PMSubject: Re: lonely and desperate and about to give up!

Hello Jamila:I feel for you. Our progress has also been extremely slow. Although people tell me not to compare on the day to day but on the overall progress during treatment time. We have also been going to Dr. Megson now for a year and 1/2. Where I've seen improvements is in his overall health. He was chronically congested for over 2 year and I think the Cod liver oil has helped heal his immune system. Before he used to only repeat one word, now when prompted he can do up to 4; so there is improvement. We have also been combating yeast and our laughs have stop. We did use diflucan for 2 months and then got Kataconazole (something like that - can't really remember the name) but he then stopped sleeping completely. It is a nightmare. We have started using the Grapefruit seed extract as I'm afraid to keep using strong things and damage his liver. 10 days ago we started our 1st round of chelation with DMSA suppositories. We didn't see any changes

yet. I'm with you across the world, my son is basically in the same position as yours. Sorry I can't be of help but I thought it be good to let you know someone will be praying for both of you. I hear you. Be patient. Keep the faith. from land T. Zapata

Sender: mb12 valtrex

Date: Mon, 7 Mar 2011 12:28:31 +0000 (GMT)

To: <mb12 valtrex >

ReplyTo: mb12 valtrex

Subject: lonely and desperate and about to give up!

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

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Share on other sites

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....I was just "talking" about you in response to a post. It's been amazing watching your journey, Alberta. You're a wonderful mom and a pretty smart lady, too : ) -tammy

To: mb12 valtrex Sent: Tue, March 8, 2011 1:42:35 PMSubject: Re: lonely and desperate and about to give up!

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order. I don't know where I'd be with my kids without these groups. I totally love all of you guys here!I think it's really important to get the gut in order before doing anything else. We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

Alberta, you are quickly becoming our resisdent poop expert. lol. Sounds like good good stuff is going on over there, mama. I don't think we have digestion issues here. But that mucous that you speak of, it's definitely present - though I can't tell whether its mucous, yeast, or both. But it here and present in their poops almost daily. All I can think is "How much of it is in there that's not coming out/?". We've gotta work on the sugar thing. It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be.

Last night at basketball, Tom came running up to me and said "I feel good today. Today is a good day!" I wish my husband could have been there. He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles. Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks. We'll get there

To: mb12 valtrex Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7). I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight. In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only. And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore. After it stabilized, it was easy to see all the foods she was eating before that were problematic. Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like

raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return. I would nip the mucous again with the enzymes while removing the raisins. I kept doing this until there were no more foods that caused the mucous and undigested food. Anything that comes out undigested now, I classify it as an intolerant food and I remove it. Everything she eats, she must be able to digest it without enzymes or we don't eat it. I figure that's the only way to let the stomach heal. If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid.

Awesome post, Alberta. when do you give the enzyme on the empty belly? (These two guys are constantly eating.) Then how long do you normally wait to give her food? -tammy

To: mb12 valtrex Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

Hi Jamila,From the sounds of it, it seems you're doing everything right. Don't be discouraged, if one thing doesn't work, move on and try something else. It's taken me a good part of a year to figure out what's going on with my kids. It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested. There is still something going on in his gut. My dd had this for the longest time and it's only stopped now for the past 6 weeks. Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system. I really sounds like there's still something in his diet that is still irritating the gut. It could be something that is GFCFSFEF/SCD/GAPS legal. For us,

it was raisins, avocados, bananas, and asparagus. Something else you can look at with regards to stopping undigested foods: oxalates. I know SCD and GAPS allow some high oxalate foods. I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates. When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy. I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD. She's been dumping oxalates for about 2 months now. It's coming out in her urine and stools. Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out. I'm not sure exactly how oxalates relate to better digestion but it worked. I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day. But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day. You'd be surprised but sometimes fixing the one root problem takes care of several other things. I've used products like Candizyme to get rid of yeast. A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach. I did this for a while and it helped with better digestion in the long-run. My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal. Candizyme helped me a lot with yeast. I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base). For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time. The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food). If there's a layer coating the inside of the stomach, the stomach cannot digest food properly. Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it. I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it. When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet. You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son. Take note of these and remove them from the diet. If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively.

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

some1 tell me smthn to keep me going please.

thank you and God bless.

Link to comment
Share on other sites

Guest guest

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PMSubject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like

raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us,

it was raisins, avocados, bananas, and asparagus.  Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her

constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has

IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to

fully digest food without it.  When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

Link to comment
Share on other sites

Guest guest

have you tried nutriiveda from pursuit of research,worth looking into

 

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PM

Subject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

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Share on other sites

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I've already looked at what Nutriiveda is.  My children would not be good candidates for success with Nutriiveda.  My daughter has moderately high IgG issues with cane sugar -- it actually came back on her IgG.  Giving her anything with cane sugar would feed yeast and disrupt her immune system at this point.  My son is also not be a good candidate for Nutriiveda.  Nutriiveda has rice powder and he has severe reactions to all things derived from rice (rice causes major stimming behavior and head banging with him). 

 

have you tried nutriiveda from pursuit of research,worth looking into

 

Not really, I'm just a work at home mom and with 2 kids on the spectrum and I'm around them almost 24-7 so I have some basis for comparisons.  Poops are so important.  I'm not saying what I've observed with my kids will apply to everyone and I can always be corrected but undigested stools are definitely a problem.  Some parents may look at it like " I cannot remove that food because then they will be malnourished " -- think of it this way, if foods are coming out undigested, they will not only be not nourished by the problematic food but they will also not receive nutrients from everything else they eat because the problematic foods are stopping absorption of all other foods. 

Take olive oil, as an example.  Although olive oil is great and has lots of good fatty acids, it causes an IBS reaction and anything she eats in that meal will be immediately flushed out.  So, not only will she not get the good fatty acids from the olive oil, but the veggies with that meal, the meats -- everything -- will be flushed out. 

Then, you can also have the problem of different deficiencies.  I made the mistake for a few months of making my son GFCF because GFCF worked ok for my daughter for a while.  He had different issues.  He has Vit K toxicity and then started reacting to high Vit K foods because I removed the milk, which wasn't causing him problems in the first place, and out went his ability to absorb fats.  He got SO skinny for a while.  I could see his rib cage.  And then his stools turned to diarrhea.  It was awful.  I brought milk back in to balance the Vit D levels he needed and maybe some other stuff in milk that he needs, his stools firmed up and he was good to go again and he's on his way back to being Mr. MeatHouse again.  He still has issues with spaciness a little.  I think I may either give him an enzyme for milk or start supplementing Vit D, but I don't want to throw things off balance with him because his poops are great now.  Still trying to decide what to do with him.  He's got a little verbal apraxia too. 

 

....I was just " talking " about you in response to a post.  It's been amazing watching your journey, Alberta.  You're a wonderful mom and a pretty smart lady, too  : )   -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 1:42:35 PM

Subject: Re: lonely and desperate and about to give up!

 

I tell ya, Tammy, we've been at this a whole year and I'm just starting to get it and get the gut in order.  I don't know where I'd be with my kids without these groups.  I totally love all of you guys here!

I think it's really important to get the gut in order before doing anything else.  We had some really bad gut issues and I think that even if I would have managed to get language, it might still be all messed up if the gut is not fixed.

 

Alberta, you are quickly becoming our resisdent poop expert.   lol.   Sounds like good good stuff is going on over there, mama.  I don't think we have digestion issues here.  But that mucous that you speak of, it's definitely present  - though  I can't tell whether its mucous, yeast, or both.  But it here and present in their poops almost daily.  All I can think is " How much of it is in there that's not coming out/? " .  We've gotta work on the sugar thing.  It's been 1 month and one day completely gfcf - we've come a long way nutritionally speaking- but the sugar intake is higher than I like it to be. 

 

 Last night at basketball, Tom came running up to me and said   " I feel good today. Today is a good day! "    I wish my husband could have been there.  He's been amazing and so supportive though I don't think he's completely convinced - he'd do anything for these kids-but I think he expects to see overnight miracles.  Tom's 8 now...he's gotta understand you can't undo 8 years in 4 weeks.  We'll get there

 

To: mb12 valtrex

Sent: Tue, March 8, 2011 6:46:47 AM

Subject: Re: lonely and desperate and about to give up!

 

I gave the enzymes to Maia 2 hours after a meal (she's not a big dinner eater and has dinner at around 4:00 and doesn't eat before she goes to bed at around 6:30 or 7).  I'd give her the enzymes at around 6:00, to ensure that it has enough time to work overnight.  In the first two weeks, I would also give her the Candizyme first thing when she woke up before she had breakfast (so it has time to work while I'm making breakfast). 

It took a few weeks of doing this -- at around Week 3, I dropped it down to the night dose only.  And by Week 5, we were getting ready to do a stool test so I had to stop all the enzymes for the test and found that I didn't need them anymore.  After it stabilized, it was easy to see all the foods she was eating before that were problematic.  Everything would be digested normally and only the problematic foods would come out undigested, stools would loosen when she ate certain foods (like raisins, this one I didn't know about before we did the enzyme on an empty stomach thing) and the mucous would return.  I would nip the mucous again with the enzymes while removing the raisins.  I kept doing this until there were no more foods that caused the mucous and undigested food.  Anything that comes out undigested now, I classify it as an intolerant food and I remove it.  Everything she eats, she must be able to digest it without enzymes or we don't eat it.  I figure that's the only way to let the stomach heal.  If I give her stuff where she needs enzymes to digest it, I think that it's causing irritation and the enzymes just act as a bandaid. 

 

Awesome post, Alberta.  when do you give the enzyme on the empty belly?  (These two guys are constantly eating.)  Then how long do you normally wait to give her food?           -tammy

To: mb12 valtrex

Sent: Tue, March 8, 2011 2:03:07 AMSubject: Re: lonely and desperate and about to give up!

 

Hi Jamila,From the sounds of it, it seems you're doing everything right.  Don't be discouraged, if one thing doesn't work, move on and try something else.  It's taken me a good part of a year to figure out what's going on with my kids.  It's a learning process and each time something works or doesn't work, we learn from it and revise our methods. 

From what you describe, it sounds like a large part of it is related to the fact that food is still coming out undigested.  There is still something going on in his gut.  My dd had this for the longest time and it's only stopped now for the past 6 weeks.  Yes, you may need to do chelation and antivirals but, first, go back to the basics -- the gut is the foundation for his immune system.  I really sounds like there's still something in his diet that is still irritating the gut.  It could be something that is GFCFSFEF/SCD/GAPS legal.  For us, it was raisins, avocados, bananas, and asparagus. 

Something else you can look at with regards to stopping undigested foods: oxalates.  I know SCD and GAPS allow some high oxalate foods.  I tried a lot of things and her system would not stabilize until I started cutting out high oxalate foods. We are still in the process of moving out more oxalates.  When we started the low oxalate diet, some of the crystals that came out of my daughter were just crazy.  I had no idea that she even had an oxalate problem until after we started a low-oxalate version of GAPS/SCD.  She's been dumping oxalates for about 2 months now.  It's coming out in her urine and stools.  Since then, I've rarely had to use probiotics or enzymes -- she seems to be making enzymes better on her own now that the oxalates are coming out.  I'm not sure exactly how oxalates relate to better digestion but it worked.  I'm so used to her constant yeast-like laughing and behavior that now sometimes I think she's not happy, but that's because she's not laughing inappropriately every moment of the day.  But then, she smiles at me and then wants to play so she is still happy but just not laughing at nothing all day.  You'd be surprised but sometimes fixing the one root problem takes care of several other things. 

I've used products like Candizyme to get rid of yeast.  A trick that worked for us to get rid of yeast with enzymes and using products like Virastop for viruses -- give these enzymes on an empty stomach.  I did this for a while and it helped with better digestion in the long-run.  My aim is that I want to use any product short term to give the body a short boost but let the body take care of the problem on its own by letting it heal.  Candizyme helped me a lot with yeast.  I didn't use grapefruit seed extract because my daughter has IgG issues with citrus and I didn't use Oil of Oregano because she has IBS reactions to olive oil (which many OOOs use as a base).  For a short time, I gave enzymes on an empty stomach because I think she had a mucous layer inside (from all the reactions to food she had in the past, she accumulated a permanent layer of mucous) -- she had mucous and undigested food in her stools for the longest time.  The enzymes on an empty stomach helped to get rid of that mucous layer inside so that the food can come into contact with the stomach lining (we need for food to do this because the stomach lining is how it absorbs nutrients from food).  If there's a layer coating the inside of the stomach, the stomach cannot digest food properly.  Sometimes the mucous layer is persistent and I found that enzymes help to get rid of it.  I gave the Candida enzyme on an empty stomach for about 4 weeks and I stopped it when I saw that she was able to fully digest food without it. 

When you are giving enzymes on an empty stomach, that's a good time to look for any remaining problematic foods in the diet.  You will see the mucous come out more clearly with any problematic foods that may be allowed on all the diets but cause problems for your son.  Take note of these and remove them from the diet.  If the problematic foods stay in the diet, the mucous layer will just build up again and the undigested foods in the stools will come back and you may need to keep going back to the enzymes to get rid of the mucous. 

We are still working on a number of issues (my daughter still does not have functional expressive language yet) but fixing the gut helps all other treatments to work more effectively. 

 

hi all,

i hope this gets you because i have been sending msgs to the group without reply.

my name is jamila and i live in Nigeria and i feel all alone.I have been doing biomedicals for my son since july but changes and progress is very slow.

My son is on the GAPS/SCD diet.

i brought my son to the US to see Dr Megson in august and we have been killing yeast.First diflucan,then nystin and when they didnt seem to work,she asked us to give him sporonox.we have been on sporonox for over a month now but he is still laughing,smilling and spining.Its just not working.i give him garlic everyday,coconut milk and his fruit intake is limited.....why wount yeast just leave us alone?

With enzymes we still see some undigested food......

i have seen progress in sleep,no more headbanging and biting.face hiting goes and comes back.He responds to his therapists and follows all instructions but will not with us.Chelation is next and i am hoping that we will eradicate yeast after all those metals are out.

my questions are is it normally this slow and if i have eliminated everything but proteins what can be the problem?

how can you tell if your child has parasites????????

can you please recomend a good brand of

iodine

blackwalnut

dig enymes

probiotics.

 

some1 tell me smthn to keep me going please.

thank you and God bless.

 

 

 

 

-- Cotter4 Pollerton ManorCarlow059 9134964087 2637921

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