Re: Re: Could it be PANDAS? Brain Inflammation?

[Guest guest]

My kids do ok on motrin (ibuprofen) and my daughter is super sensitive to other phenols/salicylates. THANK GOD they can do motrin. (It's dye free)

 

Salicylates are a problem in many with autism. For me, aspirin is

awful. I became intolerant to aspirin, even baby aspirin. I suggest

Googling " salicylates autism " for more information before trying this.

Even if one tolerates it short term, I would be fearful of using it long

term.

Love and prayers,

Heidi N

" Take Two Aspirins Daily - For some people, aspirin works wonders for their

herpes outbreaks. Simply take two aspirin daily. "

per the article i googled online, it also helps kill parasites.

So, if this is a herpes like virus that causes the brain erosion, such as

Dr. Goldberg's new book says, then that is why the aspirin does " wonders " .

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

We've tested positive for varicella and neither kid had Varicella vaccines or chicken pox (that we know of)Why would zinc gluconate kill it, hmmmm.... Some people on Dr. Mercola's site say they cured their herpes with BHT, the unnatural preservative that is banned from the Feingold diet.

 

Jen, my son is basically recovered except this stupid jargon he has - but when he got a fever - his speech is 100%, better than average. (I would say, better than his peers) ....

If you figure this out - or have some ideas -- please post.

thanks! laura:)

PS. I've been looking into viral - the herpes simplex virus can cause brain inflammation -- there was a guy that got rid of this virus using zinc gluconate here is his site:

http://george-eby-research.com/html/herpes.html

He also said that you could use MMS - which I think I am going to start up again. (I have it on hand!)

I'm also going to look into the parasite thing.

>

> Without going into huge history, I will explain that my son was diagnosed

> with regressive autism when he was 2 years old. He lost all language, eye

> contact, functional play skills over a period of about 6 months. Very

> devastating. He did not utter another word until he was nearly 3, after a

> high spike of a 105.2 fever..and that following week he made tremendous

> gains including letter recognition and labeling of all sorts of items that I

> had no clue he was retaining..it was as if a latent virus had burned off in

> his brain through the high fever, and he was able to make breakthroughs

> never attempted before.

>

>

>

> My son is now 6, completely verbal, tho not quite fully conversational. We

> have done biomed for 4 years to include the DAN protocol, diet, oral

> chelation and most recently YASKO, along with intense SLP, OT, behavioral

> therapy, recreational therapy, and music therapy. He is in mainstream

> kindergarten with a full time paraprofessional. Over the years, we have

> notably recognized that along with high fevers, come gains - some stick,

> some do not. We have always suspected some sort of viral/brain inflammation

> connection with my son's symptoms, but have never been able to find a doctor

> who could give us substantial answers as to why.or how to treat it or

> utilize a treatment that would key into this occurrence of fevers/sickness

> and gains. I have questioned PANDAS before to my DAN, he ran some viral

> titers and they all came back negative - tho I do not believe my DAN had any

> idea of what PANDAS was or how to diagnose it, and my knowledge was limited

> too, so he poo pooed it and we moved on - looking for answers in other ways.

>

>

>

>

> Long story short - my son is just recovering from a 7 day stretch of high

> fevers which concluded in pink eye, double ear infection and a bad

> cough/cold. I have never seen him this sick for so long. While sick I

> treated him around the clock with Ibuprofen to keep his fever at bay and

> ended up with a round of Omnicef to treat the bacterial infection manifested

> in his ears/eyes, (gooping with green discharge, so I knew I had to treat

> with RX)... Tho off the Ibuprofin now, he is still finishing up his round

> of RX..7 days to go actually. This week we have noticed a tremendous leap

> in cognition and connections and language, as have his behavioral therapists

> and today - I got a note from his speech therapist at school, saying that

> his session was the most productive she's ever seen with him - that he got

> most of the responses at 100% with no verbal prompting and initiated

> conversations with his peers in ways she has never seen before. Looking at

> our perspective, along with 2 others outside of the family home, I am

> finding a correlation of something..what I do not know. Is it the ibuprofen

> - reducing brain inflammation... is it the RX in his body that is making him

> sharper, etc?

>

>

>

> When we Google PANDAS, his major symptoms are consistent with the following:

>

>

>

> Need for routine/control of environment (OCD)

>

> Huge separation anxiety/generalized anticipatory anxiety

>

> Trouble sleeping/settling down to sleep

>

> Bed wetting

>

> Eye tics (developed just recently with in last 3 months)

>

> Feeling as if on roller coaster (ups and downs wax and wane)

>

> Sudden onset trouble with transitions (when never a problem before)

>

> Inattention/inability to stay focused

>

> Occasional hyperactivity/stimming/scripting

>

>

>

> I feel this is a big indication of his missing puzzle piece, but do not know

> how to move forward or what to do with this information. Can anyone help?

>

>

>

> Work like it is all up to you...but pray like it is all up to God...

>

> 1 in 91 Children...1 in 58 Boys...1 Child Every 20 Minutes... Is Diagnosed

> With Autism.

>

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.