Guest guest Posted May 9, 2002 Report Share Posted May 9, 2002 Jane, I just posted the same question. Guess we not so silly. Miki __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2004 Report Share Posted February 11, 2004 Sami, I have those sensations frequently. I call them little earthquakes in my body. Don't know what it's about, unless it has to do with nerve endings and Lupus involvement. Sorry I can't be more help. Loving hugs, MM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Kim, It is nice to see you posting, I hope that you are getting the help you need from your doctors. Hopefully the Methadone will help calm your pain down a bit. As for the limbs jerking, is it like one or two big jerks, or is it like a constant thing? I know mine will jerk from time to time, like if I'm holding something it will go flying out of my hands, but it is not a constant tremor. I'm not sure if this is what you mean or not. I don't remember talking with you before but I hope to get to know you better. I know it is hard to even get out of bed, but I find if I don't post for a while due to pain or work, that I feel very isolated and alone. I work from home most of the time and live by myself, so I can go days without actually talking to anyone. The group helps me feel like I"m not alone. Where are you located and are you getting any treatment? I hope you are having a good weekend with less pain. <hugs> Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Jo, For my muscle spasms I take Flexeril but am trying to get it changed as my muscles are getting worse. Lori Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Hi Kim, I think that we've (almost) all experienced problems with spasms in our RSD limbs... I used to take something for that, but I honestly cannot remember what it was called... Anyone?? Hugs, Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Kim, It sounds like you may have hit part of the next stage of RSD. Muscle Spasms hurt in their own way, also causing other problems, including the jumping all over on it's own. If you sleep with someone, it gets really interesting, because once the limb really gets to going, you end up punching them, kicking them, etc........ and can get away with it, because you can blame it on the RSD! lol Works really well when you are not in the best of moods with each other! The Neurontin should help with it some, but if it doesn't help it completely.....as in calming it down.......talk to your doctor about adding a muscle relaxer, like Flexeril or Skelaxin. I'm taking both Skelaxin and Topamax, and mine have almost disappeared again (the spasms). Good luck and I hope that they go away for you again! Tonia -------Original Message------- Hello everyone, it has been a long time since I have posted anything, I have been having so much trouble with my arm and hand I just stay in bed.I have even thought about and actually gotten one of my big bottles of nurontin. The doc. put me back on methadone and that seems to help just a tiny bit. But my question today is does anyone that has the rsd in a limb have problems now and then with that limb all of a sudden just start jerking for no reason? I have been having that problem the past few days and it is driving me crazy. Well, that is it for now.I hope that Y'all have as much of a pain free day as possible.Kim ____________________________________________________ IncrediMail - Email has finally evolved - Click Here Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 For the spasms and dystonia part of RSD I take both Flexeril and Valium three times daily. Ask me how I still keep my eyes open. Barbarajomal1@... wrote: Hi Kim,I think that we've (almost) all experienced problems with spasms in our RSD limbs... I used to take something for that, but I honestly cannot remember what it was called...Anyone?? Hugs,Jo Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2004 Report Share Posted August 14, 2004 Yes.Kim wrote: But my question today is does anyone that has the rsd in a limb have problems now and then with that limb all of a sudden just start jerking for no reason? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2005 Report Share Posted August 2, 2005 In a message dated 8/1/2005 11:01:23 P.M. Eastern Daylight Time, bstevens8@... writes: Her numbers seemed hihg to me but I wanted to know what ohters thought. As I am worried about her. Hi Bren, She needs to make an appointment with her doctor for blood work. There could be another reason for the high number. Don't let this worry you. It may cause your numbers to go higher. hugs Eunice Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2008 Report Share Posted July 7, 2008 I got a copy of my last visit with sSands today and it says that I am a New York class type 3.......has anyone heard of or knows what this means? I tried to look it up on the computer, but no success and I have not a clue what it means. Thanks a bunch. Take care, KAthy...fl pf.....4/07 Quote Link to comment Share on other sites More sharing options...
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