Re: more help needed

[Guest guest]

a

Where are you located? Its worth the extra drive to get to a top flight

facility and doctor.

If you're dropping into the 80's upon exertion then you need more oxygen

for exertion.

As to how you die from the disease, please focus on living more than

dying but here is my understanding or expectations and I don't fear it.

Now this assumes it runs its full course and no other problems. I

picture myself on morphine so not experiencing pain with a couple of

hours per day of alertness and talking with loved ones as I approach the

end. The oxygen perhaps still hooked up or perhaps removed by then since

its just not doing its good anymore. I'm breathing with difficulty and

short of breath but under enough sedation that its not that bad. Then

the time comes that I find myself breathing easy and at peace with

everything, all pain gone and everything beautiful. In medical terms

I've died, but in reality, I've moved to a better place and a better

state.

> >

> > I am recovering from double phnumonia (1st time). On O2 at 3 24/7.

> > Getting PT and Nurse visits at home now. All new to me. My O2 is at

>

>

>

>

>

>

>

>

>

> > about 94 on 3ltr at rest, but as soon as I stand up and do anything

> it

> > drops to low 80's. Will this improve?

> >

> > I have IPF, COPD, Fibromyalgia and CAD. Can you tell me how long I

> > should wait to get another opinion on my dx. Only one pulm in town

> and

> > not very co-operative. Any info I have had to get myself. Results

> came

> > from CT taken last week in hospital that said there is significant

> > increase of disease from last yr CT.

> > Working on appt at Mayo in ville.

> >

> > Any help much appreciated.

> >

> > a Daughton

> >

>

[Guest guest]

Hi a,

If you can get to a top flight facilities or doctors...I think you should go. The Mayo Clinic in

ville (Fl) is pretty good...There's another Mayo Clinic in sdale/Phoenix, Arizona

I had other experiences with them which were pretty good, not related to lung problems since I

wasn't diagnosed yet with PF. If you can give them a chance!

I Hope your husband is feeling better.

IrenePF 03/07 Raynaud's Disease 09/07Crohn's Disease 03/95 Asthma 02/92

Re: more help needed

aWhere are you located? Its worth the extra drive to get to a top flightfacility and doctor.If you're dropping into the 80's upon exertion then you need more oxygenfor exertion.As to how you die from the disease, please focus on living more thandying but here is my understanding or expectations and I don't fear it.Now this assumes it runs its full course and no other problems. Ipicture myself on morphine so not experiencing pain with a couple ofhours per day of alertness and talking with loved ones as I approach theend. The oxygen perhaps still hooked up or perhaps removed by then sinceits just not doing its good anymore. I'm breathing with difficulty andshort of breath but under enough sedation that its not that bad. Thenthe time comes that I find myself breathing easy and at peace witheverything, all pain gone and everything beautiful. In medical termsI've died, but in

reality, I've moved to a better place and a betterstate.> >> > I am recovering from double phnumonia (1st time). On O2 at 3

24/7.> > Getting PT and Nurse visits at home now. All new to me. My O2 is at>>>>>>>>>> > about 94 on 3ltr at rest, but as soon as I stand up and do anything> it> > drops to low 80's. Will this improve?> >> > I have IPF, COPD, Fibromyalgia and CAD. Can you tell me how long I> > should wait to get another opinion on my dx. Only one pulm in town> and> > not very co-operative. Any info I have had to get myself. Results> came> > from CT taken last week in hospital that said there is significant> > increase of disease from last yr CT.> > Working on appt at Mayo in ville.> >> > Any help much appreciated.> >> > a Daughton> >>

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