Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

[Guest guest]

Man oh man, Rob's story is enough to give a real boost to some tired, worried moms.

Way to go, Rob! woot-woot!

-tammy

To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally

home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look

weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57

allergies remaining... laura:)

[Guest guest]

If he keeps going at this rate, by this time next year, he'll be bringing girls home.

You got a juicer-juice to fix THAT? ; )

To: mb12 valtrex Sent: Wed, March 9, 2011 11:55:08 PMSubject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Man oh man, Rob's story is enough to give a real boost to some tired, worried moms.

Way to go, Rob! woot-woot!

-tammy

To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally

home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look

weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57

allergies remaining... laura:)

[Guest guest]

That's really exciting, .  I'm sorry, I don't know a lot about the history with Rob -- how long ago did he start biomed?  (I got a bit confused because you mentioned the thing about him rocking in the closet 2 years ago). 

 

You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago.

Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.

He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think.

Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent.

We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet...

We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...)

So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining...

laura:)

[Guest guest]

thank you for sharing this with us. i am up again all night with a screaming chld and have no clue  why he is not sleeping. i feel hpeless and cry a lot these  past weeks not knowing what will happen to him when he grows up. (he is 7 now) your  story give me  a bit of a boost and hope that there is a light at the end of the tunnel.

Thank you I really needed it Tunde

 

You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago.

Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.

He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think.

Interestingly enough, he tried on his " old " glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, " Yes, everything. " I said would you like to 'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent.

We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet...

We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...)

So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining...

laura:)

-- " Our lives begin to end the day we become silent about things that matter. " MLK

[Guest guest]

,

What an amazing sister you are! I have a daughter who is 3 years older than my

now 7 yo son with autism (my only other child) and I worry about her having to

take care of him in the future. She is wonderful with him now.....but it is a

concern for her future as well. So nice to hear that you are taking and active

role.....you should know that! I hope he continues to progress!

--

Kasey Dettinger

---- Tunde Brazlik wrote:

> thank you for sharing this with us. i am up again all night with a screaming

> chld and have no clue why he is not sleeping. i feel hpeless and cry a lot

> these past weeks not knowing what will happen to him when he grows up. (he

> is 7 now) your story give me a bit of a boost and hope that there is a

> light at the end of the tunnel.

> Thank you I really needed it

> Tunde

>

> On Wed, Mar 9, 2011 at 11:24 PM, laurargoddin wrote:

>

> >

> >

> > You know, I think about the generation where children are being diagnosed

> > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly

> > the poster child of what is to come for many of them. It's really not

> > pretty. In fact, it's like what becomes of our parents in nursing homes -

> > they are dead long before they are put in the ground. It's not only

> > disturbing, it's a burden, and it's really no way to live. I refuse to let

> > my brother be a burden. Today, he helped me dismantle a part of my wooden

> > deck. He learned how to use a manual screwdriver, and a cordless one, not

> > too shabby for a guy who rocked in my closet almost two years ago.

> >

> > Rob went to FL three months ago to up his prescription on his glasses (so

> > they are closer to what he is supposed to be wearing) and get his teeth

> > fixed. All the mercury fillings are out. Whew! What a relief.

> > He says he feels better. He played with the kids, and the kids were excited

> > that he was finally home. He proceeded to vacuum my upstairs, clean my

> > kitchen, start some laundry, and thumb thru a recipe book to find some

> > cookie recipe he wants to make. WOW. Was all I could think.

> >

> > Interestingly enough, he tried on his " old " glasses (the glasses that are

> > closest to his actual prescription) and this time when he put them on, he

> > didn't flinch, wince, or get teary eyed from the prescription being too

> > strong...in fact, he sat there with them on for a total of 5 minutes. Two

> > years ago he couldn't leave them on for 30 seconds without tears falling on

> > his face, the drooling picking up to a high speed swell out of his mouth.

> > And him literally looking like he was going to come out of his skin.

> > Progress? You bet! I asked him if he could see..and he said, " Yes,

> > everything. " I said would you like to 'see everything?' and he said " no, not

> > yet. " -- I wonder what THAT means...we have time, I guess. And then he

> > mentioned that the frames made his face look weird. (Noticing his own looks?

> > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and

> > starting to be a little more consistent.

> >

> > We go tomorrow to get him back in his program (yuck!) -- but, he thought

> > that finding a job (that had more hours) would be good. He wants to take an

> > art class. (Hobby? Holy Crap!) And when I mentioned taking a class

> > (education) he wasn't completely against it. There is hope yet...

> >

> > We are going to test him this week for metals. Starting his 'natural' detox

> > protocol, and then next week a visit to see his doctor. WHile in FL, my

> > sister, added Lysine to his supplements, Rob mentioned that he got a very

> > large rash all over his belly, and then it was gone. I have also noticed

> > that he isn't drooling anymore. (This drooling stuff seems to come and

> > go...)

> >

> > So, off to the Dr's...and keep on going. We have a lot to accomplish before

> > he has to take his IGg test again...gotta get rid of the 57 allergies

> > remaining...

> >

> > laura:)

> >

> >

> >

>

>

>

> --

> * " Our lives begin to end the day we become silent about things that matter. "

> MLK*

[Guest guest]

Check out a Natural dr in your area or a DAN dr.

Always Call

Christie Gravatt

We are not human beings having a spiritual experience, we are spiritual beings having a human experience!

> > >> >> > You know, I think about the generation where children are being diagnosed> > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly> > the poster child of what is to come for many of them. It's really not> > pretty. In fact, it's like what becomes of our parents in nursing homes -> > they are dead long before they are put in the ground. It's not only> > disturbing, it's a burden, and it's really no way to live. I refuse to let> > my brother be a burden. Today, he helped me dismantle a part of my

wooden> > deck. He learned how to use a manual screwdriver, and a cordless one, not> > too shabby for a guy who rocked in my closet almost two years ago.> >> > Rob went to FL three months ago to up his prescription on his glasses (so> > they are closer to what he is supposed to be wearing) and get his teeth> > fixed. All the mercury fillings are out. Whew! What a relief.> > He says he feels better. He played with the kids, and the kids were excited> > that he was finally home. He proceeded to vacuum my upstairs, clean my> > kitchen, start some laundry, and thumb thru a recipe book to find some> > cookie recipe he wants to make. WOW. Was all I could think.> >> > Interestingly enough, he tried on his "old" glasses (the glasses that are> > closest to his actual prescription) and this time when he put them on, he> >

didn't flinch, wince, or get teary eyed from the prescription being too> > strong...in fact, he sat there with them on for a total of 5 minutes. Two> > years ago he couldn't leave them on for 30 seconds without tears falling on> > his face, the drooling picking up to a high speed swell out of his mouth.> > And him literally looking like he was going to come out of his skin.> > Progress? You bet! I asked him if he could see..and he said, "Yes,> > everything." I said would you like to 'see everything?' and he said "no, not> > yet." -- I wonder what THAT means...we have time, I guess. And then he> > mentioned that the frames made his face look weird. (Noticing his own looks?> > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and> > starting to be a little more consistent.> >> > We go tomorrow to get him back in his

program (yuck!) -- but, he thought> > that finding a job (that had more hours) would be good. He wants to take an> > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > (education) he wasn't completely against it. There is hope yet...> >> > We are going to test him this week for metals. Starting his 'natural' detox> > protocol, and then next week a visit to see his doctor. WHile in FL, my> > sister, added Lysine to his supplements, Rob mentioned that he got a very> > large rash all over his belly, and then it was gone. I have also noticed> > that he isn't drooling anymore. (This drooling stuff seems to come and> > go...)> >> > So, off to the Dr's...and keep on going. We have a lot to accomplish before> > he has to take his IGg test again...gotta get rid of the 57 allergies> > remaining...>

>> > laura:)> >> > > >> > > > -- > *"Our lives begin to end the day we become silent about things that matter."> MLK*

[Guest guest]

Congratulations !!!!!!! Again thank you so much for helping us! God bless you and your family!

Take care

Grace

To: mb12 valtrex Sent: Wed, March 9, 2011 11:24:29 PMSubject: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally

home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look

weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57

allergies remaining... laura:)

[Guest guest]

Hey Alberta,

He's been on Biomed since July 2009. A little less than 2 years. Rob is the

youngest of 7 children. (I am the third - there is a 13 year difference between

Rob and I) -- Our Mom passed in 1997 (Rob was 13)and my Dad had been taking care

of him. My father has had several strokes and is unable to truly care for him.

Rob's option was to go to a group home. I found this option terrifying after

visiting one. Rob is very high functioning, but his education/experience is

that of maybe a 10 year old now. (probably 7 when I got him two years ago.)

Rob has a hernia that didn't heal, and was a disaster to put it mildly when he

arrived at my house.

The reason I took in Rob was I realized that Jimmy (my son) and Rob (my brother)

had very similar issues -- an event one night literally brought me back to being

16 again. When I saw that removal of milk/wheat did wonders for Jimmy, I

started to question my brother's diagnosis. Could diet possibly help him too?

When Rob arrived, I took him to the autism clinic here in Houston. I did about

$3k worth of tests on him, and they had confirmed what I suspected, and some

test results were quite surprising. I immediately put him on 'the diet' -- and

then removed all the IGg foods - all 60 of them.

While Jimmy's progress was almost immediate and noticeable, I noticed that Rob,

while maybe not noticeable to the average person, was very noticeable to me.

His DAN doctor, has forewarned me that Rob was probably MR (mentally retarded)

and would not be able to recover from that. I accepted that information, but

put that out of my head, because I wanted to see what was truly possible. I

don't think if I believe that, that I would be able to see positive results. As

people see what they want to see, not necessarily what is there.

Needless to say, after seeing the doctor from being on the diet for a month -

Rob's processing time went from 20 minutes to almost instant. While she still

maintained that Rob was mentally retarded, she agreed that it was significant.

It's true. Rob may be mentally retarded. He could have been lacking so much in

nutrition and bombarded with toxins that his body shut down and may not recover

completely. I'm not willing to throw in the towel just yet. I wouldn't want

someone to give up on my Jimmy, and therefore, I can't give up on him. He's

with me, because he's supposed to be.

:)laura

>

> >

> >

> > You know, I think about the generation where children are being diagnosed

> > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly

> > the poster child of what is to come for many of them. It's really not

> > pretty. In fact, it's like what becomes of our parents in nursing homes -

> > they are dead long before they are put in the ground. It's not only

> > disturbing, it's a burden, and it's really no way to live. I refuse to let

> > my brother be a burden. Today, he helped me dismantle a part of my wooden

> > deck. He learned how to use a manual screwdriver, and a cordless one, not

> > too shabby for a guy who rocked in my closet almost two years ago.

> >

> > Rob went to FL three months ago to up his prescription on his glasses (so

> > they are closer to what he is supposed to be wearing) and get his teeth

> > fixed. All the mercury fillings are out. Whew! What a relief.

> > He says he feels better. He played with the kids, and the kids were excited

> > that he was finally home. He proceeded to vacuum my upstairs, clean my

> > kitchen, start some laundry, and thumb thru a recipe book to find some

> > cookie recipe he wants to make. WOW. Was all I could think.

> >

> > Interestingly enough, he tried on his " old " glasses (the glasses that are

> > closest to his actual prescription) and this time when he put them on, he

> > didn't flinch, wince, or get teary eyed from the prescription being too

> > strong...in fact, he sat there with them on for a total of 5 minutes. Two

> > years ago he couldn't leave them on for 30 seconds without tears falling on

> > his face, the drooling picking up to a high speed swell out of his mouth.

> > And him literally looking like he was going to come out of his skin.

> > Progress? You bet! I asked him if he could see..and he said, " Yes,

> > everything. " I said would you like to 'see everything?' and he said " no, not

> > yet. " -- I wonder what THAT means...we have time, I guess. And then he

> > mentioned that the frames made his face look weird. (Noticing his own looks?

> > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and

> > starting to be a little more consistent.

> >

> > We go tomorrow to get him back in his program (yuck!) -- but, he thought

> > that finding a job (that had more hours) would be good. He wants to take an

> > art class. (Hobby? Holy Crap!) And when I mentioned taking a class

> > (education) he wasn't completely against it. There is hope yet...

> >

> > We are going to test him this week for metals. Starting his 'natural' detox

> > protocol, and then next week a visit to see his doctor. WHile in FL, my

> > sister, added Lysine to his supplements, Rob mentioned that he got a very

> > large rash all over his belly, and then it was gone. I have also noticed

> > that he isn't drooling anymore. (This drooling stuff seems to come and

> > go...)

> >

> > So, off to the Dr's...and keep on going. We have a lot to accomplish before

> > he has to take his IGg test again...gotta get rid of the 57 allergies

> > remaining...

> >

> > laura:)

> >

> >

> >

>

[Guest guest]

you are truly a wonderful person and your brother is extremely fortunate to have you as a sister. I  read somewhere that all the cells in your body are replaced in a 2 year cycle. Your brain also prunes connections at intervals throughout our lifetime, and although some of the pathways in the brain may take longer to reconnect, with your help your brother should continue to heal and you will likely continue to see progress. There is so much new research on neuroplasticity which shows that your brain can create new connections at just about any age.God bless you .Hey Alberta, He's been on Biomed since July 2009. A little less than 2 years. Rob is the youngest of 7 children. (I am the third - there is a 13 year difference between Rob and I) -- Our Mom passed in 1997 (Rob was 13)and my Dad had been taking care of him. My father has had several strokes and is unable to truly care for him. Rob's option was to go to a group home. I found this option terrifying after visiting one. Rob is very high functioning, but his education/experience is that of maybe a 10 year old now. (probably 7 when I got him two years ago.) Rob has a hernia that didn't heal, and was a disaster to put it mildly when he arrived at my house. The reason I took in Rob was I realized that Jimmy (my son) and Rob (my brother) had very similar issues -- an event one night literally brought me back to being 16 again. When I saw that removal of milk/wheat did wonders for Jimmy, I started to question my brother's diagnosis. Could diet possibly help him too? When Rob arrived, I took him to the autism clinic here in Houston. I did about $3k worth of tests on him, and they had confirmed what I suspected, and some test results were quite surprising. I immediately put him on 'the diet' -- and then removed all the IGg foods - all 60 of them. While Jimmy's progress was almost immediate and noticeable, I noticed that Rob, while maybe not noticeable to the average person, was very noticeable to me. His DAN doctor, has forewarned me that Rob was probably MR (mentally retarded) and would not be able to recover from that. I accepted that information, but put that out of my head, because I wanted to see what was truly possible. I don't think if I believe that, that I would be able to see positive results. As people see what they want to see, not necessarily what is there. Needless to say, after seeing the doctor from being on the diet for a month - Rob's processing time went from 20 minutes to almost instant. While she still maintained that Rob was mentally retarded, she agreed that it was significant. It's true. Rob may be mentally retarded. He could have been lacking so much in nutrition and bombarded with toxins that his body shut down and may not recover completely. I'm not willing to throw in the towel just yet. I wouldn't want someone to give up on my Jimmy, and therefore, I can't give up on him. He's with me, because he's supposed to be. :)laura> > >> >> > You know, I think about the generation where children are being diagnosed> > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly> > the poster child of what is to come for many of them. It's really not> > pretty. In fact, it's like what becomes of our parents in nursing homes -> > they are dead long before they are put in the ground. It's not only> > disturbing, it's a burden, and it's really no way to live. I refuse to let> > my brother be a burden. Today, he helped me dismantle a part of my wooden> > deck. He learned how to use a manual screwdriver, and a cordless one, not> > too shabby for a guy who rocked in my closet almost two years ago.> >> > Rob went to FL three months ago to up his prescription on his glasses (so> > they are closer to what he is supposed to be wearing) and get his teeth> > fixed. All the mercury fillings are out. Whew! What a relief.> > He says he feels better. He played with the kids, and the kids were excited> > that he was finally home. He proceeded to vacuum my upstairs, clean my> > kitchen, start some laundry, and thumb thru a recipe book to find some> > cookie recipe he wants to make. WOW. Was all I could think.> >> > Interestingly enough, he tried on his "old" glasses (the glasses that are> > closest to his actual prescription) and this time when he put them on, he> > didn't flinch, wince, or get teary eyed from the prescription being too> > strong...in fact, he sat there with them on for a total of 5 minutes. Two> > years ago he couldn't leave them on for 30 seconds without tears falling on> > his face, the drooling picking up to a high speed swell out of his mouth.> > And him literally looking like he was going to come out of his skin.> > Progress? You bet! I asked him if he could see..and he said, "Yes,> > everything." I said would you like to 'see everything?' and he said "no, not> > yet." -- I wonder what THAT means...we have time, I guess. And then he> > mentioned that the frames made his face look weird. (Noticing his own looks?> > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and> > starting to be a little more consistent.> >> > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > that finding a job (that had more hours) would be good. He wants to take an> > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > (education) he wasn't completely against it. There is hope yet...> >> > We are going to test him this week for metals. Starting his 'natural' detox> > protocol, and then next week a visit to see his doctor. WHile in FL, my> > sister, added Lysine to his supplements, Rob mentioned that he got a very> > large rash all over his belly, and then it was gone. I have also noticed> > that he isn't drooling anymore. (This drooling stuff seems to come and> > go...)> >> > So, off to the Dr's...and keep on going. We have a lot to accomplish before> > he has to take his IGg test again...gotta get rid of the 57 allergies> > remaining...> >> > laura:)> >> > > >>

[Guest guest]

I know that just b/c this worked on my son when he was 2, it won't work on

everyone, but... Antibiotics is what made my son smart. He has been on them

for 3 years now and quickly went from knowing absolutely nothing -- No receptive

language (not even his name) to being above average in 6 months. We had been

doing biomed for about 15 months at that time, so it was not diet, vitamins or

antifungals.

I too have lost mental abilities that I regained on antibiotics. I find

augmenting particularly good for mental processing. I know many of you fear and

hate these, but these made my son brilliant. He is 4.5 and many years above his

peers in reading, receptive language, math, spelling, writing, science.

Caryn

> >

> > >

> > >

> > > You know, I think about the generation where children are being diagnosed

> > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly

> > > the poster child of what is to come for many of them. It's really not

> > > pretty. In fact, it's like what becomes of our parents in nursing homes -

> > > they are dead long before they are put in the ground. It's not only

> > > disturbing, it's a burden, and it's really no way to live. I refuse to let

> > > my brother be a burden. Today, he helped me dismantle a part of my wooden

> > > deck. He learned how to use a manual screwdriver, and a cordless one, not

> > > too shabby for a guy who rocked in my closet almost two years ago.

> > >

> > > Rob went to FL three months ago to up his prescription on his glasses (so

> > > they are closer to what he is supposed to be wearing) and get his teeth

> > > fixed. All the mercury fillings are out. Whew! What a relief.

> > > He says he feels better. He played with the kids, and the kids were

excited

> > > that he was finally home. He proceeded to vacuum my upstairs, clean my

> > > kitchen, start some laundry, and thumb thru a recipe book to find some

> > > cookie recipe he wants to make. WOW. Was all I could think.

> > >

> > > Interestingly enough, he tried on his " old " glasses (the glasses that are

> > > closest to his actual prescription) and this time when he put them on, he

> > > didn't flinch, wince, or get teary eyed from the prescription being too

> > > strong...in fact, he sat there with them on for a total of 5 minutes. Two

> > > years ago he couldn't leave them on for 30 seconds without tears falling

on

> > > his face, the drooling picking up to a high speed swell out of his mouth.

> > > And him literally looking like he was going to come out of his skin.

> > > Progress? You bet! I asked him if he could see..and he said, " Yes,

> > > everything. " I said would you like to 'see everything?' and he said " no,

not

> > > yet. " -- I wonder what THAT means...we have time, I guess. And then he

> > > mentioned that the frames made his face look weird. (Noticing his own

looks?

> > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and

> > > starting to be a little more consistent.

> > >

> > > We go tomorrow to get him back in his program (yuck!) -- but, he thought

> > > that finding a job (that had more hours) would be good. He wants to take

an

> > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class

> > > (education) he wasn't completely against it. There is hope yet...

> > >

> > > We are going to test him this week for metals. Starting his 'natural'

detox

> > > protocol, and then next week a visit to see his doctor. WHile in FL, my

> > > sister, added Lysine to his supplements, Rob mentioned that he got a very

> > > large rash all over his belly, and then it was gone. I have also noticed

> > > that he isn't drooling anymore. (This drooling stuff seems to come and

> > > go...)

> > >

> > > So, off to the Dr's...and keep on going. We have a lot to accomplish

before

> > > he has to take his IGg test again...gotta get rid of the 57 allergies

> > > remaining...

> > >

> > > laura:)

> > >

> > >

> > >

> >

>

[Guest guest]

You know it's funny you mention it - Jimmy's speech is 100% when he has a

fever... I'm like WTH! I have tried to mimic it using several things, but

without luck. I do NOT understand this at all. The more I read, the more

confused I become. LOL!

I have a lot more testing to do on Rob...but it doesn't seem out of the realm of

things to try. I am pretty open to most things, I just worry about side

effects...Rob's 26, so he's done growing, I do tend to worry about Jimmy only

because he is still growing...

But this is great information. (I have cut, copied and pasted to my 'things to

try' list...)

THanks Caryn!

> > >

> > > >

> > > >

> > > > You know, I think about the generation where children are being

diagnosed

> > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is

truly

> > > > the poster child of what is to come for many of them. It's really not

> > > > pretty. In fact, it's like what becomes of our parents in nursing homes

-

> > > > they are dead long before they are put in the ground. It's not only

> > > > disturbing, it's a burden, and it's really no way to live. I refuse to

let

> > > > my brother be a burden. Today, he helped me dismantle a part of my

wooden

> > > > deck. He learned how to use a manual screwdriver, and a cordless one,

not

> > > > too shabby for a guy who rocked in my closet almost two years ago.

> > > >

> > > > Rob went to FL three months ago to up his prescription on his glasses

(so

> > > > they are closer to what he is supposed to be wearing) and get his teeth

> > > > fixed. All the mercury fillings are out. Whew! What a relief.

> > > > He says he feels better. He played with the kids, and the kids were

excited

> > > > that he was finally home. He proceeded to vacuum my upstairs, clean my

> > > > kitchen, start some laundry, and thumb thru a recipe book to find some

> > > > cookie recipe he wants to make. WOW. Was all I could think.

> > > >

> > > > Interestingly enough, he tried on his " old " glasses (the glasses that

are

> > > > closest to his actual prescription) and this time when he put them on,

he

> > > > didn't flinch, wince, or get teary eyed from the prescription being too

> > > > strong...in fact, he sat there with them on for a total of 5 minutes.

Two

> > > > years ago he couldn't leave them on for 30 seconds without tears falling

on

> > > > his face, the drooling picking up to a high speed swell out of his

mouth.

> > > > And him literally looking like he was going to come out of his skin.

> > > > Progress? You bet! I asked him if he could see..and he said, " Yes,

> > > > everything. " I said would you like to 'see everything?' and he said " no,

not

> > > > yet. " -- I wonder what THAT means...we have time, I guess. And then he

> > > > mentioned that the frames made his face look weird. (Noticing his own

looks?

> > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice,

and

> > > > starting to be a little more consistent.

> > > >

> > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought

> > > > that finding a job (that had more hours) would be good. He wants to take

an

> > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class

> > > > (education) he wasn't completely against it. There is hope yet...

> > > >

> > > > We are going to test him this week for metals. Starting his 'natural'

detox

> > > > protocol, and then next week a visit to see his doctor. WHile in FL, my

> > > > sister, added Lysine to his supplements, Rob mentioned that he got a

very

> > > > large rash all over his belly, and then it was gone. I have also noticed

> > > > that he isn't drooling anymore. (This drooling stuff seems to come and

> > > > go...)

> > > >

> > > > So, off to the Dr's...and keep on going. We have a lot to accomplish

before

> > > > he has to take his IGg test again...gotta get rid of the 57 allergies

> > > > remaining...

> > > >

> > > > laura:)

> > > >

> > > >

> > > >

> > >

> >

>

[Guest guest]

, I think that's a sign of being viral. I've seen that 1)either enough to keep it in my brain's memory file (which is very limited) or from a source that I would find very reliable. google. see what you find.

To: mb12 valtrex Sent: Fri, March 11, 2011 9:15:09 AMSubject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

You know it's funny you mention it - Jimmy's speech is 100% when he has a fever... I'm like WTH! I have tried to mimic it using several things, but without luck. I do NOT understand this at all. The more I read, the more confused I become. LOL!I have a lot more testing to do on Rob...but it doesn't seem out of the realm of things to try. I am pretty open to most things, I just worry about side effects...Rob's 26, so he's done growing, I do tend to worry about Jimmy only because he is still growing...But this is great information. (I have cut, copied and pasted to my 'things to try' list...) THanks Caryn!> > > > > > >> > > >> > > > You know, I think about the generation where children are being diagnosed> > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly> > > > the poster child of what is to come for many of them. It's really not> > > > pretty. In fact, it's like what becomes of our parents in nursing homes -> > > > they are dead long before they are put in the ground. It's

not only> > > > disturbing, it's a burden, and it's really no way to live. I refuse to let> > > > my brother be a burden. Today, he helped me dismantle a part of my wooden> > > > deck. He learned how to use a manual screwdriver, and a cordless one, not> > > > too shabby for a guy who rocked in my closet almost two years ago.> > > >> > > > Rob went to FL three months ago to up his prescription on his glasses (so> > > > they are closer to what he is supposed to be wearing) and get his teeth> > > > fixed. All the mercury fillings are out. Whew! What a relief.> > > > He says he feels better. He played with the kids, and the kids were excited> > > > that he was finally home. He proceeded to vacuum my upstairs, clean my> > > > kitchen, start some laundry, and thumb thru a recipe book to

find some> > > > cookie recipe he wants to make. WOW. Was all I could think.> > > >> > > > Interestingly enough, he tried on his "old" glasses (the glasses that are> > > > closest to his actual prescription) and this time when he put them on, he> > > > didn't flinch, wince, or get teary eyed from the prescription being too> > > > strong...in fact, he sat there with them on for a total of 5 minutes. Two> > > > years ago he couldn't leave them on for 30 seconds without tears falling on> > > > his face, the drooling picking up to a high speed swell out of his mouth.> > > > And him literally looking like he was going to come out of his skin.> > > > Progress? You bet! I asked him if he could see..and he said, "Yes,> > > > everything." I said would you like to 'see everything?' and he

said "no, not> > > > yet." -- I wonder what THAT means...we have time, I guess. And then he> > > > mentioned that the frames made his face look weird. (Noticing his own looks?> > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and> > > > starting to be a little more consistent.> > > >> > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > > > that finding a job (that had more hours) would be good. He wants to take an> > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > > > (education) he wasn't completely against it. There is hope yet...> > > >> > > > We are going to test him this week for metals. Starting his 'natural' detox> > > > protocol, and then next week a visit to see his doctor.

WHile in FL, my> > > > sister, added Lysine to his supplements, Rob mentioned that he got a very> > > > large rash all over his belly, and then it was gone. I have also noticed> > > > that he isn't drooling anymore. (This drooling stuff seems to come and> > > > go...)> > > >> > > > So, off to the Dr's...and keep on going. We have a lot to accomplish before> > > > he has to take his IGg test again...gotta get rid of the 57 allergies> > > > remaining...> > > >> > > > laura:)> > > >> > > > > > > >> > >> >>

[Guest guest]

Thanks Tammy...if you remember where you have read it, and whenever you remember

it or see it again, post it.

:)laura

> > > >

> > > > >

> > > > >

> > > > > You know, I think about the generation where children are being

> diagnosed

> > > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is

> >truly

> > > > > the poster child of what is to come for many of them. It's really not

> > > > > pretty. In fact, it's like what becomes of our parents in nursing

homes

> -

> > > > > they are dead long before they are put in the ground. It's not only

> > > > > disturbing, it's a burden, and it's really no way to live. I refuse to

> >let

> > > > > my brother be a burden. Today, he helped me dismantle a part of my

> wooden

> > > > > deck. He learned how to use a manual screwdriver, and a cordless one,

> not

> > > > > too shabby for a guy who rocked in my closet almost two years ago.

> > > > >

> > > > > Rob went to FL three months ago to up his prescription on his glasses

> (so

> > > > > they are closer to what he is supposed to be wearing) and get his

teeth

> > > > > fixed. All the mercury fillings are out. Whew! What a relief.

> > > > > He says he feels better. He played with the kids, and the kids were

> >excited

> > > > > that he was finally home. He proceeded to vacuum my upstairs, clean my

> > > > > kitchen, start some laundry, and thumb thru a recipe book to find some

> > > > > cookie recipe he wants to make. WOW. Was all I could think.

> > > > >

> > > > > Interestingly enough, he tried on his " old " glasses (the glasses that

> are

> > > > > closest to his actual prescription) and this time when he put them on,

> he

> > > > > didn't flinch, wince, or get teary eyed from the prescription being

too

> > > > > strong...in fact, he sat there with them on for a total of 5 minutes.

> Two

> > > > > years ago he couldn't leave them on for 30 seconds without tears

falling

> >on

> > > > > his face, the drooling picking up to a high speed swell out of his

> mouth.

> > > > > And him literally looking like he was going to come out of his skin.

> > > > > Progress? You bet! I asked him if he could see..and he said, " Yes,

> > > > > everything. " I said would you like to 'see everything?' and he said

" no,

> >not

> > > > > yet. " -- I wonder what THAT means...we have time, I guess. And then he

> > > > > mentioned that the frames made his face look weird. (Noticing his own

> >looks?

> > > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice,

> and

> > > > > starting to be a little more consistent.

> > > > >

> > > > > We go tomorrow to get him back in his program (yuck!) -- but, he

thought

> > > > > that finding a job (that had more hours) would be good. He wants to

take

> >an

> > > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class

> > > > > (education) he wasn't completely against it. There is hope yet...

> > > > >

> > > > > We are going to test him this week for metals. Starting his 'natural'

> >detox

> > > > > protocol, and then next week a visit to see his doctor. WHile in FL,

my

> > > > > sister, added Lysine to his supplements, Rob mentioned that he got a

> very

> > > > > large rash all over his belly, and then it was gone. I have also

noticed

> > > > > that he isn't drooling anymore. (This drooling stuff seems to come and

> > > > > go...)

> > > > >

> > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish

> >before

> > > > > he has to take his IGg test again...gotta get rid of the 57 allergies

> > > > > remaining...

> > > > >

> > > > > laura:)

> > > > >

> > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

My "good" computer died (figures). I lost everything. files, bookmarks, favorites...totally bummed.

Anyhow, this does not pertain to the viral issue specifically, but it's a great read about increased cognition with fever....

https://sfari.org/.../director-s-column-fever-s-promising-puzzle?...

To: mb12 valtrex Sent: Fri, March 11, 2011 2:21:38 PMSubject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura> > > > > > > > >> > > > >> > > > > You know, I think about the generation where children are being > diagnosed> > > > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is > >truly> > > > > the poster child of what is to come for many of them. It's really not> > > > > pretty. In fact, it's like what becomes of our parents in nursing

homes > -> > > > > they are dead long before they are put in the ground. It's not only> > > > > disturbing, it's a burden, and it's really no way to live. I refuse to > >let> > > > > my brother be a burden. Today, he helped me dismantle a part of my > wooden> > > > > deck. He learned how to use a manual screwdriver, and a cordless one, > not> > > > > too shabby for a guy who rocked in my closet almost two years ago.> > > > >> > > > > Rob went to FL three months ago to up his prescription on his glasses > (so> > > > > they are closer to what he is supposed to be wearing) and get his teeth> > > > > fixed. All the mercury fillings are out. Whew! What a relief.> > > > > He says he feels better. He played with the kids, and the kids

were > >excited> > > > > that he was finally home. He proceeded to vacuum my upstairs, clean my> > > > > kitchen, start some laundry, and thumb thru a recipe book to find some> > > > > cookie recipe he wants to make. WOW. Was all I could think.> > > > >> > > > > Interestingly enough, he tried on his "old" glasses (the glasses that > are> > > > > closest to his actual prescription) and this time when he put them on, > he> > > > > didn't flinch, wince, or get teary eyed from the prescription being too> > > > > strong...in fact, he sat there with them on for a total of 5 minutes. > Two> > > > > years ago he couldn't leave them on for 30 seconds without tears falling > >on> > > > > his face, the drooling picking up to a high speed

swell out of his > mouth.> > > > > And him literally looking like he was going to come out of his skin.> > > > > Progress? You bet! I asked him if he could see..and he said, "Yes,> > > > > everything." I said would you like to 'see everything?' and he said "no, > >not> > > > > yet." -- I wonder what THAT means...we have time, I guess. And then he> > > > > mentioned that the frames made his face look weird. (Noticing his own > >looks?> > > > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, > and> > > > > starting to be a little more consistent.> > > > >> > > > > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > > > > that finding a job (that had more hours) would be good. He wants to

take > >an> > > > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > > > > (education) he wasn't completely against it. There is hope yet...> > > > >> > > > > We are going to test him this week for metals. Starting his 'natural' > >detox> > > > > protocol, and then next week a visit to see his doctor. WHile in FL, my> > > > > sister, added Lysine to his supplements, Rob mentioned that he got a > very> > > > > large rash all over his belly, and then it was gone. I have also noticed> > > > > that he isn't drooling anymore. (This drooling stuff seems to come and> > > > > go...)> > > > >> > > > > So, off to the Dr's...and keep on going. We have a lot to accomplish > >before> > >

> > he has to take his IGg test again...gotta get rid of the 57 allergies> > > > > remaining...> > > > >> > > > > laura:)> > > > >> > > > > > > > > >> > > >> > >> >>

[Guest guest]

Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself.

 

Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it.

:)laura-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Very rarely do I ever give my kids something to reduce thier fever. We get 'em for a reason. that's how I see it...

To: mb12 valtrex Sent: Fri, March 11, 2011 3:19:10 PMSubject: Re: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself.

Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Yep, and I feel the same way except for the seizures. I give motrin to avoid the seizures in my son, but as long as Gabi is not lethargic, I let her fever just run its course.

 

Very rarely do I ever give my kids something to reduce thier fever.  We get 'em for a reason. that's how I see it...

To: mb12 valtrex

Sent: Fri, March 11, 2011 3:19:10 PMSubject: Re: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

 

Well, it seems to me when you have a fever, your body is working properly, in that it is fighting invaders and inflammation. Instead of looking at fever as being sick, look at it as getting better.I do fear fevers for my son because of the seizures, but lately on the LDN and belladonna 30C, he's had several fevers but no seizures. I am hoping he is fixing himself.

 

Thanks Tammy...if you remember where you have read it, and whenever you remember it or see it again, post it. :)laura-- Toni------Mind like a steel trap...

Rusty and illegal in 37 states.

-- Toni------Mind like a steel trap...Rusty and illegal in 37 states.

[Guest guest]

Toni...Okay I think I understand that the fever makes the body work

properly...so, why wouldn't he have a fever all the time? It's like he has this

'infection' and the body isn't fighting it all the time -- like it should. Am I

seeing this properly? I think I understand what you are saying, I am just

confused as to why he wouldn't have a fever all the time.

I never considered viral. I think I was naive to think it wasn't. I guess I

was just hoping. lol!

I don't really treat fevers either - except at night when I can't monitor it.

(he hasn't had a real fever since we started biomed - except really 2 times, and

both times I didn't give him anything)

Tammy - I tried to look up your post...would you post it again..

:)laura

> >

> >>

> >>

> >> Thanks Tammy...if you remember where you have read it, and whenever you

> >> remember it or see it again, post it.

> >>

> >> :)laura

> >>

> >> --

> > Toni

> >

> > ------

> > Mind like a steel trap...

> > Rusty and illegal in 37 states.

> >

> >

> >

>

>

>

> --

> Toni

>

> ------

> Mind like a steel trap...

> Rusty and illegal in 37 states.

>

[Guest guest]

Wow, - you are a fantastic sister. What a blessing that you are in his

life to help him and share in his awakening from autism.

kathleen

>

> You know, I think about the generation where children are being diagnosed with

Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster

child of what is to come for many of them. It's really not pretty. In fact,

it's like what becomes of our parents in nursing homes - they are dead long

before they are put in the ground. It's not only disturbing, it's a burden, and

it's really no way to live. I refuse to let my brother be a burden. Today, he

helped me dismantle a part of my wooden deck. He learned how to use a manual

screwdriver, and a cordless one, not too shabby for a guy who rocked in my

closet almost two years ago.

>

> Rob went to FL three months ago to up his prescription on his glasses (so they

are closer to what he is supposed to be wearing) and get his teeth fixed. All

the mercury fillings are out. Whew! What a relief.

> He says he feels better. He played with the kids, and the kids were excited

that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen,

start some laundry, and thumb thru a recipe book to find some cookie recipe he

wants to make. WOW. Was all I could think.

>

> Interestingly enough, he tried on his " old " glasses (the glasses that are

closest to his actual prescription) and this time when he put them on, he didn't

flinch, wince, or get teary eyed from the prescription being too strong...in

fact, he sat there with them on for a total of 5 minutes. Two years ago he

couldn't leave them on for 30 seconds without tears falling on his face, the

drooling picking up to a high speed swell out of his mouth. And him literally

looking like he was going to come out of his skin. Progress? You bet! I asked

him if he could see..and he said, " Yes, everything. " I said would you like to

'see everything?' and he said " no, not yet. " -- I wonder what THAT means...we

have time, I guess. And then he mentioned that the frames made his face look

weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the

conversation. It's nice, and starting to be a little more consistent.

>

> We go tomorrow to get him back in his program (yuck!) -- but, he thought that

finding a job (that had more hours) would be good. He wants to take an art

class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he

wasn't completely against it. There is hope yet...

>

> We are going to test him this week for metals. Starting his 'natural' detox

protocol, and then next week a visit to see his doctor. WHile in FL, my sister,

added Lysine to his supplements, Rob mentioned that he got a very large rash all

over his belly, and then it was gone. I have also noticed that he isn't

drooling anymore. (This drooling stuff seems to come and go...)

>

> So, off to the Dr's...and keep on going. We have a lot to accomplish before

he has to take his IGg test again...gotta get rid of the 57 allergies

remaining...

>

> laura:)

>

[Guest guest]

Hi

Could it be to do with the TH! and TH2 blance, the following link explains it very well. I have Harry on Isoprinosine which i buy from www.goldpharma.com and i follow Dr Cheneys pulsing dosing protocol.

http://www.anapsid.org/cnd/diagnosis/cheneyis.html

x

To: mb12 valtrex From: laurargoddin@...Date: Sat, 12 Mar 2011 01:21:19 +0000Subject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Toni...Okay I think I understand that the fever makes the body work properly...so, why wouldn't he have a fever all the time? It's like he has this 'infection' and the body isn't fighting it all the time -- like it should. Am I seeing this properly? I think I understand what you are saying, I am just confused as to why he wouldn't have a fever all the time. I never considered viral. I think I was naive to think it wasn't. I guess I was just hoping. lol!I don't really treat fevers either - except at night when I can't monitor it. (he hasn't had a real fever since we started biomed - except really 2 times, and both times I didn't give him anything)Tammy - I tried to look up your post...would you post it again..:)laura> >> >>> >>> >> Thanks Tammy...if you remember where you have read it, and whenever you> >> remember it or see it again, post it.> >>> >> :)laura> >>> >> --> > Toni> >> > ------> > Mind like a steel trap...> > Rusty and illegal in 37 states.> >> > > >> > > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.>

[Guest guest]



,

what do you think was it that helped to make all of the changes?

did you try one and keep adding others?

Ginger

My daughter is 18 and she was drowning in Autism.

We are trying everything in the way of biomed. Before I tried but each new thing was a disaster.

Now I am just keeping what is helping. Trying and adding and she now can dress herself. It is not always correct but she doesn't need me to tell her what to do.

In all this I see she is more aware, she can sing along instead of after. There isn't the delay in understanding or stopping like before.

I hope it continues.

I had a few hard days when she is pulling on my hair hard and pretty much will not stop. I had to have her on her own in her room for any peace. All I can think is the last few days we have had organic bananas, apple cider vinegar to help be more alkaline and home made organic yogurt fermented 3 days. These are all new things added in the last days.

She is off to her Dad's for the week, we will see how she does there.

Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

You know, I think about the generation where children are being diagnosed with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly the poster child of what is to come for many of them. It's really not pretty. In fact, it's like what becomes of our parents in nursing homes - they are dead long before they are put in the ground. It's not only disturbing, it's a burden, and it's really no way to live. I refuse to let my brother be a burden. Today, he helped me dismantle a part of my wooden deck. He learned how to use a manual screwdriver, and a cordless one, not too shabby for a guy who rocked in my closet almost two years ago. Rob went to FL three months ago to up his prescription on his glasses (so they are closer to what he is supposed to be wearing) and get his teeth fixed. All the mercury fillings are out. Whew! What a relief.He says he feels better. He played with the kids, and the kids were excited that he was finally home. He proceeded to vacuum my upstairs, clean my kitchen, start some laundry, and thumb thru a recipe book to find some cookie recipe he wants to make. WOW. Was all I could think. Interestingly enough, he tried on his "old" glasses (the glasses that are closest to his actual prescription) and this time when he put them on, he didn't flinch, wince, or get teary eyed from the prescription being too strong...in fact, he sat there with them on for a total of 5 minutes. Two years ago he couldn't leave them on for 30 seconds without tears falling on his face, the drooling picking up to a high speed swell out of his mouth. And him literally looking like he was going to come out of his skin. Progress? You bet! I asked him if he could see..and he said, "Yes, everything." I said would you like to 'see everything?' and he said "no, not yet." -- I wonder what THAT means...we have time, I guess. And then he mentioned that the frames made his face look weird. (Noticing his own looks? hmmmm...) Not to mention the normalcy of the conversation. It's nice, and starting to be a little more consistent. We go tomorrow to get him back in his program (yuck!) -- but, he thought that finding a job (that had more hours) would be good. He wants to take an art class. (Hobby? Holy Crap!) And when I mentioned taking a class (education) he wasn't completely against it. There is hope yet... We are going to test him this week for metals. Starting his 'natural' detox protocol, and then next week a visit to see his doctor. WHile in FL, my sister, added Lysine to his supplements, Rob mentioned that he got a very large rash all over his belly, and then it was gone. I have also noticed that he isn't drooling anymore. (This drooling stuff seems to come and go...) So, off to the Dr's...and keep on going. We have a lot to accomplish before he has to take his IGg test again...gotta get rid of the 57 allergies remaining... laura:)

[Guest guest]

I heard one post a woman's brother was 50 and he started to talk and read.

I can't remember what the changes where but that gives me hope.

I also think my kid can learn even though she is 18 and doesn't read and can barely talk. I do beleive she understands and that is the beginning.

Ginger

Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Hey Alberta, He's been on Biomed since July 2009. A little less than 2 years. Rob is the youngest of 7 children. (I am the third - there is a 13 year difference between Rob and I) -- Our Mom passed in 1997 (Rob was 13)and my Dad had been taking care of him. My father has had several strokes and is unable to truly care for him. Rob's option was to go to a group home. I found this option terrifying after visiting one. Rob is very high functioning, but his education/experience is that of maybe a 10 year old now. (probably 7 when I got him two years ago.) Rob has a hernia that didn't heal, and was a disaster to put it mildly when he arrived at my house. The reason I took in Rob was I realized that Jimmy (my son) and Rob (my brother) had very similar issues -- an event one night literally brought me back to being 16 again. When I saw that removal of milk/wheat did wonders for Jimmy, I started to question my brother's diagnosis. Could diet possibly help him too? When Rob arrived, I took him to the autism clinic here in Houston. I did about $3k worth of tests on him, and they had confirmed what I suspected, and some test results were quite surprising. I immediately put him on 'the diet' -- and then removed all the IGg foods - all 60 of them. While Jimmy's progress was almost immediate and noticeable, I noticed that Rob, while maybe not noticeable to the average person, was very noticeable to me. His DAN doctor, has forewarned me that Rob was probably MR (mentally retarded) and would not be able to recover from that. I accepted that information, but put that out of my head, because I wanted to see what was truly possible. I don't think if I believe that, that I would be able to see positive results. As people see what they want to see, not necessarily what is there. Needless to say, after seeing the doctor from being on the diet for a month - Rob's processing time went from 20 minutes to almost instant. While she still maintained that Rob was mentally retarded, she agreed that it was significant. It's true. Rob may be mentally retarded. He could have been lacking so much in nutrition and bombarded with toxins that his body shut down and may not recover completely. I'm not willing to throw in the towel just yet. I wouldn't want someone to give up on my Jimmy, and therefore, I can't give up on him. He's with me, because he's supposed to be. :)laura> > >> >> > You know, I think about the generation where children are being diagnosed> > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly> > the poster child of what is to come for many of them. It's really not> > pretty. In fact, it's like what becomes of our parents in nursing homes -> > they are dead long before they are put in the ground. It's not only> > disturbing, it's a burden, and it's really no way to live. I refuse to let> > my brother be a burden. Today, he helped me dismantle a part of my wooden> > deck. He learned how to use a manual screwdriver, and a cordless one, not> > too shabby for a guy who rocked in my closet almost two years ago.> >> > Rob went to FL three months ago to up his prescription on his glasses (so> > they are closer to what he is supposed to be wearing) and get his teeth> > fixed. All the mercury fillings are out. Whew! What a relief.> > He says he feels better. He played with the kids, and the kids were excited> > that he was finally home. He proceeded to vacuum my upstairs, clean my> > kitchen, start some laundry, and thumb thru a recipe book to find some> > cookie recipe he wants to make. WOW. Was all I could think.> >> > Interestingly enough, he tried on his "old" glasses (the glasses that are> > closest to his actual prescription) and this time when he put them on, he> > didn't flinch, wince, or get teary eyed from the prescription being too> > strong...in fact, he sat there with them on for a total of 5 minutes. Two> > years ago he couldn't leave them on for 30 seconds without tears falling on> > his face, the drooling picking up to a high speed swell out of his mouth.> > And him literally looking like he was going to come out of his skin.> > Progress? You bet! I asked him if he could see..and he said, "Yes,> > everything." I said would you like to 'see everything?' and he said "no, not> > yet." -- I wonder what THAT means...we have time, I guess. And then he> > mentioned that the frames made his face look weird. (Noticing his own looks?> > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and> > starting to be a little more consistent.> >> > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > that finding a job (that had more hours) would be good. He wants to take an> > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > (education) he wasn't completely against it. There is hope yet...> >> > We are going to test him this week for metals. Starting his 'natural' detox> > protocol, and then next week a visit to see his doctor. WHile in FL, my> > sister, added Lysine to his supplements, Rob mentioned that he got a very> > large rash all over his belly, and then it was gone. I have also noticed> > that he isn't drooling anymore. (This drooling stuff seems to come and> > go...)> >> > So, off to the Dr's...and keep on going. We have a lot to accomplish before> > he has to take his IGg test again...gotta get rid of the 57 allergies> > remaining...> >> > laura:)> >> > > >>

[Guest guest]

I think we have good results on anitbiotics as well.

Nyla had phemonia and was antiboitics. we were going to try antibiotics for PANDAS and started Penv300mg once per day.

I think this is helping as well. Then she had a blowout one day and I wasn't sure what it was.

Can you tell me maybe how you use it. I wondered if I was to give it away from other things.

Before I gave it at night the I started in the morning but I give her enzymes with S boulardi and wonder if the enzymes are just eating this stuff and it not really effecting her.

We are still trying to figure what is working

Any ideas?

Ginger

Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

I know that just b/c this worked on my son when he was 2, it won't work on everyone, but... Antibiotics is what made my son smart. He has been on them for 3 years now and quickly went from knowing absolutely nothing -- No receptive language (not even his name) to being above average in 6 months. We had been doing biomed for about 15 months at that time, so it was not diet, vitamins or antifungals.I too have lost mental abilities that I regained on antibiotics. I find augmenting particularly good for mental processing. I know many of you fear and hate these, but these made my son brilliant. He is 4.5 and many years above his peers in reading, receptive language, math, spelling, writing, science.Caryn> > > > >> > >> > > You know, I think about the generation where children are being diagnosed> > > with Autism - 1 out of 90 (I think)...and I have a brother 26 who is truly> > > the poster child of what is to come for many of them. It's really not> > > pretty. In fact, it's like what becomes of our parents in nursing homes -> > > they are dead long before they are put in the ground. It's not only> > > disturbing, it's a burden, and it's really no way to live. I refuse to let> > > my brother be a burden. Today, he helped me dismantle a part of my wooden> > > deck. He learned how to use a manual screwdriver, and a cordless one, not> > > too shabby for a guy who rocked in my closet almost two years ago.> > >> > > Rob went to FL three months ago to up his prescription on his glasses (so> > > they are closer to what he is supposed to be wearing) and get his teeth> > > fixed. All the mercury fillings are out. Whew! What a relief.> > > He says he feels better. He played with the kids, and the kids were excited> > > that he was finally home. He proceeded to vacuum my upstairs, clean my> > > kitchen, start some laundry, and thumb thru a recipe book to find some> > > cookie recipe he wants to make. WOW. Was all I could think.> > >> > > Interestingly enough, he tried on his "old" glasses (the glasses that are> > > closest to his actual prescription) and this time when he put them on, he> > > didn't flinch, wince, or get teary eyed from the prescription being too> > > strong...in fact, he sat there with them on for a total of 5 minutes. Two> > > years ago he couldn't leave them on for 30 seconds without tears falling on> > > his face, the drooling picking up to a high speed swell out of his mouth.> > > And him literally looking like he was going to come out of his skin.> > > Progress? You bet! I asked him if he could see..and he said, "Yes,> > > everything." I said would you like to 'see everything?' and he said "no, not> > > yet." -- I wonder what THAT means...we have time, I guess. And then he> > > mentioned that the frames made his face look weird. (Noticing his own looks?> > > hmmmm...) Not to mention the normalcy of the conversation. It's nice, and> > > starting to be a little more consistent.> > >> > > We go tomorrow to get him back in his program (yuck!) -- but, he thought> > > that finding a job (that had more hours) would be good. He wants to take an> > > art class. (Hobby? Holy Crap!) And when I mentioned taking a class> > > (education) he wasn't completely against it. There is hope yet...> > >> > > We are going to test him this week for metals. Starting his 'natural' detox> > > protocol, and then next week a visit to see his doctor. WHile in FL, my> > > sister, added Lysine to his supplements, Rob mentioned that he got a very> > > large rash all over his belly, and then it was gone. I have also noticed> > > that he isn't drooling anymore. (This drooling stuff seems to come and> > > go...)> > >> > > So, off to the Dr's...and keep on going. We have a lot to accomplish before> > > he has to take his IGg test again...gotta get rid of the 57 allergies> > > remaining...> > >> > > laura:)> > >> > > > > >> >>

[Guest guest]

, awesome link. I love love love when I can find info written in an easy-to-undertand way. Please feel free to pass along any other juicy stuff you come across.

To: Valtrex <mb12 valtrex >Sent: Sat, March 12, 2011 4:34:51 AMSubject: RE: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Hi Could it be to do with the TH! and TH2 blance, the following link explains it very well. I have Harry on Isoprinosine which i buy from www.goldpharma.com and i follow Dr Cheneys pulsing dosing protocol. http://www.anapsid.org/cnd/diagnosis/cheneyis.html x

To: mb12 valtrex From: laurargoddin@...Date: Sat, 12 Mar 2011 01:21:19 +0000Subject: Re: Update on Rob (my 26 yr old Autistic brother (PDD-NOS)

Toni...Okay I think I understand that the fever makes the body work properly...so, why wouldn't he have a fever all the time? It's like he has this 'infection' and the body isn't fighting it all the time -- like it should. Am I seeing this properly? I think I understand what you are saying, I am just confused as to why he wouldn't have a fever all the time. I never considered viral. I think I was naive to think it wasn't. I guess I was just hoping. lol!I don't really treat fevers either - except at night when I can't monitor it. (he hasn't had a real fever since we started biomed - except really 2 times, and both times I didn't give him anything)Tammy - I tried to look up your post...would you post it again..:)laura> >> >>> >>> >> Thanks Tammy...if you remember where you have read it, and whenever you> >> remember it or see it again, post it.> >>> >> :)laura> >>> >> --> > Toni> >> > ------> > Mind like a steel

trap...> > Rusty and illegal in 37 states.> >> > > >> > > > -- > Toni> > ------> Mind like a steel trap...> Rusty and illegal in 37 states.>