Re: heat ?????????

[Guest guest]

Bruce, don't forget the ice storms....those are a treat!

Babs

> >

> >

> > Sue,

> > Try not to get too down because you've had a few cruddy days. The heat

> we've been having is brutal and I'm sure your air quality in VA isn't

> any better than ours here in NC when we have a stationary front like we

> do now. This kind of stuff can wreak havoc with our breathing. Just go

> slow and don't panic.

> >

> >

> > I hate when doctors circumstances change and we have to make

> adjustments. I go to Duke also, it's actually practically in my

> backyard. LOL Only about 4 miles from my house to the clinc building

> where I see Dr. on. I'm sure whoever you choose at Duke will be

> fine. My only advice would be make sure the doctor you choose is a

> specialist in interstitial lung diseases as opposed to a general

> pulmonologist or a specialist in some other type of lung disease. You

> can get some info about the doctors their educations, background and

> areas of expertise at this website. http://www.dukeheal th.org/physician

> s

> >

> >

> > Hope that helps!

> >

> >

> >

> >

> >

> > Beth

> > Age 48 Fibrotic NSIP 06/06

> >

> > Change everything. Love and Forgive

> >

> >

> >

> >

> >

> > Re: Back up oxygen systems

> >

> >

> >

> >

> > Thanks guys for your responses. To answer some of your questions

> –MB: the cart is not made of platinum with mink tips (too bad) in

> fact, the wheels are well worn and the screw that holds the cylinder is

> almost stripped. When I said Pulmonary

> > rehab, I actually meant a cardiac and pulmonary maintenance program

> at the local wellness center. When I went through the hospital

> approved program, they supplied the o2. I am on 4 liters at rest, but I

> find 3 is OK too, but I'm on 6-8 on exertion. When I'm

> exercising, I also have to use a rebreather mask which I hate to keep

> the o2 levels up.

> > I am going to take Bruce's advice and

> " diplomatically " inquire of the o2 supplier about the cost of

> the cart rental. I guess what really got me to thinking about

> this, is that I got a bill for over $200 which covered several

> months. It's much easier to pay a smaller amount each month than

> be hit with a whopper of a bill.

> > I have my 3-month check up coming in a week and I

> guess I'm nervous about that. I just have this gnawing feeling

> that the disease has progressed. When you have a few bad days, you

> can't help but think it's the disease, but it could be the

> weather or meds too. I have been going to Duke for my care, and was

> told that my dr. is going to be taking over the medical aspects of the

> transplant program and has to give up his fibrosis patients.

> I've heard a couple of you mention Dr. on and a dr. friend

> also suggested a Dr. Govert. I will see who Dr. Steele recommends and

> go from there.

> > Thanks for your suggestions.

> > Sue D, 62 yr old, Fibrotic NSIP dx 9/07, VA

> >

> >

> >

> >

> >

> >

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> >

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