Response to Shiri and other Chelation questions---HELP!

[Guest guest]

Thanks Shiri! My son is also 4.5 and scripts all the time---very limited

language. Bio med since April 2010 has helped him finally be able to say his

" wants " . We just started TD DMSA this weekend following the AC protocol so it

helps me to hear things like this!!!

How many rounds of Chelating before you noticed a change?? And does anyone know

WHY the DAN! docs run the blood and urine after the SECOND provocation?? What is

significant about round 2 vs. round 1???

Also my son's back has been rashy this weekend----from Chalation?? also noticed

blotchy legs with circles of what looked like " negative skin pigment " ---what

could this be??

> >

> > Hi all,

> >

> > We posted about a month ago about wanting to stop Valtrex/Nizoral after 9

months on it, since our new insurance wasn't going to pay for it. Our son was a

responder to the protocol - he went from a very sick boy with a horrible immune

system, to rarely getting sick and the few times he did get sick he was able to

fight it off within a day. He also lost the constant rash of red dots around his

mouth on Valtrex.

> > I was very afraid to take him off Valtrex. He is 4.5 and not fully

recovered but getting better and better with biomedical interventions. It has

been over a month since off of Valtrex/nizoral and he is actually doing better

than ever! He has not gotten sick once, at a time when everyone around us has

been getting sick. I believe that Valtrex helped strengthen his immune system

and now he is able to fight off infections on his own (and with the help of

daily Vit C, D zinc, and colostrum). But I also see a difference in that

Valtrex/diflucan or nizoral also made him very drowsy and lethargic and now he

is much more energetic and awake/aware and wanting to interact with us all the

time. This is just my personal experience, I'm not a Dr and every kid is

different.

> >

> > We also started AC chelation these past 2 months and have been seeing

amazing gains: doubled his spontaneous language, playing with his brother and

copying him and his scripting is a lot less. He used to script all the time to

the point where it would drive me nuts, and now its only once in a few days a

very little. He is doing great in school, his teacher says he is more

self-directed, follows directions, participates in answering questions at circle

time, and is starting to play with other kids. This is huge for him as there was

a time when he wouldn't even look at other kids. He has also developed a better

sense of humor. Yesterday he actually asked to help daddy clean up the kitchen!

This is a kid who couldn't even find the garbage bin 5 feet away to throw away a

napkin because he would get so lost and disoriented.

> >

> > I don't think he would have been able to handle chelation without causing

stress on his body and having side effects had we had not done Valtrex first,

b/c his body was so frail and such a mess. Cleaning up his diet and healing his

gut also helped get him healthier.

> >

> > We switched to GSE for natural antifungals (which is doing a great job at

controlling his yeast) and have not yet implemented a natural antiviral as we

want to let his body get used to the chelation before we add antivirals back.

> >

> > Just wanted to share our experience so far for anyone who may be in the same

position.

> >

> > Shiri

> >

>

[Guest guest]

Google " loss of pigment zinc " and " loss of pigment Vitamin B " to learn

about pigment issues. Also, there are other reasons.

Love and prayers,

Heidi N

Also my son's back has been rashy this weekend----from Chalation?? also

noticed blotchy legs with circles of what looked like " negative skin

pigment " ---what could this be?

[Guest guest]

Hi ,

The protocol we are using for chelation is the Andy Cutler (AC) protocol which

is very low dose and higher frequency. After reading alot about DAN protocol and

some of the side effects of doing a higher dose protocol I decided it was better

to go low and slow than cause possible irreversible damage that some parents

have reported with high doses. For example, my son gets 10 mg of DMSA orally

every 4 hours, including at night. Dan protocol would give him 150 mg every 8

hours. That dose is 15x of what I give, and b/c DAN protocol is less frequent it

can cause redistribution. The AC protocol also does not recommend TD dmsa b/c

supposedly dmsa is not very stable as a cream and I think it has to do something

with it oxidizing. I have heard of DMPS or ALA being more reliable as a TD

cream. I would go on the Autism-Mercury group and read up on that protocol, I

truly beleive it is the safest way to chelate our kids. My Dan was on board to

do AC after some convincing, but not many are.

We saw improvements on round 4, so hang in there! We just finished round 9. We

put off chelation for 2 years doing everything else, b/c we were so afraid to

start. I can tell you it is the biggest improvement we have seen so far and I

wish we would have started sooner!

As far as the rash, I really don't know what to tell you, except that whenever

we get rashes I take pics and email them to my DAN's nurse b/c it can be a

number of things. We get rashes from yeast (but not blotchy like you describe)

and we've had viral rashes when on antivirals. We have not had rashes from

chelation, but we are doing oral so don't know if transdermal can cause it.

HTH,

Shiri

> > >

> > > Hi all,

> > >

> > > We posted about a month ago about wanting to stop Valtrex/Nizoral after 9

months on it, since our new insurance wasn't going to pay for it. Our son was a

responder to the protocol - he went from a very sick boy with a horrible immune

system, to rarely getting sick and the few times he did get sick he was able to

fight it off within a day. He also lost the constant rash of red dots around his

mouth on Valtrex.

> > > I was very afraid to take him off Valtrex. He is 4.5 and not fully

recovered but getting better and better with biomedical interventions. It has

been over a month since off of Valtrex/nizoral and he is actually doing better

than ever! He has not gotten sick once, at a time when everyone around us has

been getting sick. I believe that Valtrex helped strengthen his immune system

and now he is able to fight off infections on his own (and with the help of

daily Vit C, D zinc, and colostrum). But I also see a difference in that

Valtrex/diflucan or nizoral also made him very drowsy and lethargic and now he

is much more energetic and awake/aware and wanting to interact with us all the

time. This is just my personal experience, I'm not a Dr and every kid is

different.

> > >

> > > We also started AC chelation these past 2 months and have been seeing

amazing gains: doubled his spontaneous language, playing with his brother and

copying him and his scripting is a lot less. He used to script all the time to

the point where it would drive me nuts, and now its only once in a few days a

very little. He is doing great in school, his teacher says he is more

self-directed, follows directions, participates in answering questions at circle

time, and is starting to play with other kids. This is huge for him as there was

a time when he wouldn't even look at other kids. He has also developed a better

sense of humor. Yesterday he actually asked to help daddy clean up the kitchen!

This is a kid who couldn't even find the garbage bin 5 feet away to throw away a

napkin because he would get so lost and disoriented.

> > >

> > > I don't think he would have been able to handle chelation without causing

stress on his body and having side effects had we had not done Valtrex first,

b/c his body was so frail and such a mess. Cleaning up his diet and healing his

gut also helped get him healthier.

> > >

> > > We switched to GSE for natural antifungals (which is doing a great job at

controlling his yeast) and have not yet implemented a natural antiviral as we

want to let his body get used to the chelation before we add antivirals back.

> > >

> > > Just wanted to share our experience so far for anyone who may be in the

same position.

> > >

> > > Shiri

> > >

> >

>

[Guest guest]

We also use the AC protocol and I recommend it. maggied.

>

> Hi ,

>

> The protocol we are using for chelation is the Andy Cutler (AC) protocol which

is very low dose and higher frequency. After reading alot about DAN protocol and

some of the side effects of doing a higher dose protocol I decided it was better

to go low and slow than cause possible irreversible damage that some parents

have reported with high doses. For example, my son gets 10 mg of DMSA orally

every 4 hours, including at night. Dan protocol would give him 150 mg every 8

hours. That dose is 15x of what I give, and b/c DAN protocol is less frequent it

can cause redistribution. The AC protocol also does not recommend TD dmsa b/c

supposedly dmsa is not very stable as a cream and I think it has to do something

with it oxidizing. I have heard of DMPS or ALA being more reliable as a TD

cream. I would go on the Autism-Mercury group and read up on that protocol, I

truly beleive it is the safest way to chelate our kids. My Dan was on board to

do AC after some convincing, but not many are.

>

> We saw improvements on round 4, so hang in there! We just finished round 9. We

put off chelation for 2 years doing everything else, b/c we were so afraid to

start. I can tell you it is the biggest improvement we have seen so far and I

wish we would have started sooner!

>

> As far as the rash, I really don't know what to tell you, except that whenever

we get rashes I take pics and email them to my DAN's nurse b/c it can be a

number of things. We get rashes from yeast (but not blotchy like you describe)

and we've had viral rashes when on antivirals. We have not had rashes from

chelation, but we are doing oral so don't know if transdermal can cause it.

>

> HTH,

> Shiri

>