Re: Still so much Echolalia & scrolling, when will ever stop?

[Guest guest]

we got rid of it with vit A In our house

From: Irma Sahdala

Sent: Thursday, March 03, 2011 12:09 PM

To: mb12 valtrex

Subject: Still so much Echolalia & scrolling, when will ever stop?

Unfortunately my little 3 year old still scrolls and his echolalia hasn't gone away. I fear he'll have this condition for the rest of his life?? His Pre-school teachers say he's like a cute little parrot but it just saddens me when he repeats and scrolls so much.He doesn't understand how to reply to basic yes and no questions, and forget about him answering what you did at school today, it breaks my heart. If only some parents knew not to take communication with their children for granted What has helped your children with echolalia, vocal stimms and scrolling? I can't think of anything else to do to help? I've tried almost everything suggested on this board? ..."Calling all Biomedical Super Moms", "Calling all Biomedical Super Moms": Cheryl, .Z, Toni.L, Marcia.H, G, .F...anyone, anyone...geeze even I'm starting to get a bit echolalic myself..LOL....

[Guest guest]

Irma, when my son was three, he wouldn't answer a question, either. He would simply repeat the question I asked him. By the time he started early intervention preschool and even in kindergarten, it didn't get much better. I remember in kindergarten, he teacher reporting to me that he would try to participate in circle time and he would raise his hand to talk. When she called on him, he would babble or speak off-topic. Slowly over the next two years, it got better and better. With that said, most typical kids won't come home and tell their mom's what happened at school. Unless something really great or really horrible took place, the conversation for an nt typically sounds like this:

"Hi babe. How was school ?"

"Fine"

"What'd ya do today?"

"Nothing"

So don't be upset that your 3 year old won't share more. Tom really didn't talk about what went on at school until the middle-end of last year. (He was 7 and in second grade and had ALOT of complaints!). And even then it wasn't much. Be patient and persistent with therapy and it will come with time.

We still struggle with word usage. He's 8 now and completely conversational. But his language (for the most part) is that of a 5 or 6 year old. Hang in there...it'll get better and better!

we're homeschooling this year. The day before yesterday, I sent him upstairs to read a few pages out of a book he's reading. without me even asking, he came down the stairs and shared with me a funny part that happened in the story. I was stunned and overjoyed! It means he actually comprehended what he read and was able to retell it to me. This is huge! And it's a long way from where we were when he was 3. I know it's so hard not to get discouraged. I hope our experience gives you a little boost. -tammy

To: mb12 valtrex Sent: Thu, March 3, 2011 12:09:29 PMSubject: Still so much Echolalia & scrolling, when will ever stop?

Unfortunately my little 3 year old still scrolls and his echolalia hasn't gone away. I fear he'll have this condition for the rest of his life?? His Pre-school teachers say he's like a cute little parrot but it just saddens me when he repeats and scrolls so much.He doesn't understand how to reply to basic yes and no questions, and forget about him answering what you did at school today, it breaks my heart. If only some parents knew not to take communication with their children for granted What has helped your children with echolalia, vocal stimms and scrolling? I can't think of anything else to do to help? I've tried almost everything suggested on this board? ..."Calling all Biomedical Super Moms", "Calling all Biomedical Super Moms": Cheryl, .Z, Toni.L, Marcia.H, G, .F...anyone, anyone...geeze even I'm starting

to get a bit echolalic myself..LOL....

[Guest guest]

kill the yeast and bacteria.

>

> Unfortunately my little 3 year old still scrolls and his echolalia hasn't gone

> away.  I fear he'll have this condition for the rest of his life??  His

> Pre-school teachers say he's like a cute little parrot but it just saddens me

> when he repeats and scrolls so much.

>

> He doesn't understand how to reply to basic yes and no questions, and forget

> about him answering what you did at school today, it breaks my heart.  If only

> some parents knew not to take communication with their children for granted 

 

>

> What has helped your children with echolalia, vocal stimms and scrolling?  I

> can't think of anything else to do to help?  I've tried almost everything

> suggested on this board? ... " Calling all Biomedical Super Moms " ,  " Calling all

> Biomedical Super Moms " :  Cheryl, .Z, Toni.L, Marcia.H, G,

> .F...anyone, anyone...geeze even I'm starting to get a bit echolalic

> myself..LOL.... 

>

[Guest guest]

Hi Irma,

I'm new to the group so don't have any advice on how to make it stop per se, but

I'm an SLP and I wonder if your son is using picture exchange? If not, I would

ask that they start using this at school and train you to use it at home. Most

echolalia is a failure to understand what is being asked. The use of a visual

system supports that understanding and also allows your child to communicate

with you. His teacher/slp can write a list of three big things he did in the day

and when he comes home with his picture system he can choose from a selection to

tell you what he did. And since the teacher has written to you, you'll know if

he is being accurate or random. The teacher/slp can rehearse this with him

before he leaves school too.

HTH,

Kathleen

>

> Unfortunately my little 3 year old still scrolls and his echolalia hasn't gone

> away.  I fear he'll have this condition for the rest of his life??  His

> Pre-school teachers say he's like a cute little parrot but it just saddens me

> when he repeats and scrolls so much.

>

> He doesn't understand how to reply to basic yes and no questions, and forget

> about him answering what you did at school today, it breaks my heart.  If only

> some parents knew not to take communication with their children for granted 

 

>

> What has helped your children with echolalia, vocal stimms and scrolling?  I

> can't think of anything else to do to help?  I've tried almost everything

> suggested on this board? ... " Calling all Biomedical Super Moms " ,  " Calling all

> Biomedical Super Moms " :  Cheryl, .Z, Toni.L, Marcia.H, G,

> .F...anyone, anyone...geeze even I'm starting to get a bit echolalic

> myself..LOL.... 

>