Univ TN Pulmonary Dr Visit More Info

[Guest guest]

Thanks everyone for their response about my latest visit.

Jane, I am a HUGE exerciser, but I guess you just cannot prevent the

frbrosis, can you? I still can do 40 minutes at 1.6 on 8L continuous

flow & not drop below 90%. The supply company man hooked up two tanks

for me last week until I could get to the doctor & have them upgrade my

oxygen. I've been to rehab all the time previous to this latest

illness. Dr at Vanderbilt in May said I was too ill to go anymore.

BUT I still do the treadmill at home 5-6 times per week & lift hand

weights.

I got a phone call from Apria yesterday saying they got the order but

they have to order my Companion T High Flow portable & exchange my

other liquid tanks for higher flow ones. It would take a few days.

Until then I continue to be careful. I haven't gotten any worse than

this spring, so really needed more oxygen then.

Why I didn't just ask before for more oxygen, I have NO idea. Perhaps

Prednisone " brain fog " or denial or whatever, but I never even gave it

a thought until a couple of weeks ago. I just thought I would get

better & could then get by on the 6 liters like before. Silly me! So

take note others!!

Another question I do have is why didn't doctors ASK ME if I was

getting enough oxygen OR even give me a 6 minute walk test last

spring? My primary care doc upgraded me to the one I now have in May,

but only after I asked him & he never gave me any 6 minute walk test to

see if it would be sufficient. I have no answers. How could you just

trust a sick person? Makes one wonder, doesn't it?

Vicky, I love the photos of Leanne & you during her visit. Thanks for

posting, Vicky.

Sherry age 64

NSIP '98, Bronchiectasis, PH, PBC