Re: I had a frustrating day today

[Guest guest]

Hi Jane: This is Lou. I am so sorry you had to experience all

that today. It is hard to keep encouraged when things go that way.

I do hope you will find someone that can help you, listen to you and

get things right for you.

Hopefully you will be on chat Thursday night again. It was great to

talk with you last time.

I LOVE YOU THIS DAY!!

MARY LOU (74) RICHMOND VA

IPF '02

>

>

> Hi! I am so frustrated and upset. I went to the rehab doctor

today for

> a 2 month follow-up in Chattanooga at Siskin. I was a patient 4

years

> ago when I was relearning everything!

>

> The original doctor that took care of me 4 years ago left after I

had

> been home about 15 months. I didn't know he had left until I

appear

> at my next apointment and no one is there. I think a PA came in

and I

> told her I was not happy about these circumstances of not being

> informed. Next visit, they have hired a new PA and I really like

him.

> He was so encouraging. He prescribed my medication and prescribed

> therapy for me twice. (PT) He wanted me to bring copies of my tests

> from Emory (Step Trial).

>

> I don't remember how long he was there but I know it was a good

while.

> My appointment for Thursday was changed to today. So I went and

this

> nice PA has left. Another doctor, that I didm't even know came in

and

> he knew nothing about me. He didn't even listen to me or check my

> strength. Nothing!!! I asked how olong he had been there and he

said 3

> years. So I wouln't have known him. But he is moving away next

week!

>

> So I am trying to figure out what to do. I may call them and tell

them

> I will never be back there.

>

> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>

[Guest guest]

Hi Jane,

I hope you'll feel better soon! I understand how frustrated and upset you were today. They should have informed you that they were no longer there, so you would have known what to do next...

One of the dr's, I had a long time ago, he was really nice, answered my questions, did 2 surgeries to repair the damage, previous surgeon had done etc. He moved to the US, informed his patient there was another dr taking over....I said OK, I'll see her, my first appointment, she dismissed all my questions, wanted nothing to hear about my condition etc...I was refusing to book an appointment from the time I opened the door to leave her office...

I'm not sure how rehab works...is there a possibility to do rehab and all your records to be transferred at the Emory hospital?

Can you get copies and when you find a new rehab, you'll bring all records to them?

IrenePF 03/07 Raynaud's Disease 09/07

I had a frustrating day today

Hi! I am so frustrated and upset. I went to the rehab doctor today for a 2 month follow-up in Chattanooga at Siskin. I was a patient 4 years ago when I was relearning everything!

The original doctor that took care of me 4 years ago left after I had been home about 15 months. I didn't know he had left until I appear at my next apointment and no one is there. I think a PA came in and I told her I was not happy about these circumstances of not being informed. Next visit, they have hired a new PA and I really like him. He was so encouraging. He prescribed my medication and prescribed therapy for me twice. (PT) He wanted me to bring copies of my tests from Emory (Step Trial).

I don't remember how long he was there but I know it was a good while. My appointment for Thursday was changed to today. So I went and this nice PA has left. Another doctor, that I didm't even know came in and he knew nothing about me. He didn't even listen to me or check my strength. Nothing!!! I asked how olong he had been there and he said 3 years. So I wouln't have known him. But he is moving away next week!

So I am trying to figure out what to do. I may call them and tell them I will never be back there.

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

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[Guest guest]

> >

> >

> > Hi! I am so frustrated and upset. I went to the rehab doctor

> today for

> > a 2 month follow-up in Chattanooga at Siskin. I was a patient 4

> years

> > ago when I was relearning everything!

> >

> > The original doctor that took care of me 4 years ago left after I

> had

> > been home about 15 months. I didn't know he had left until I

> appear

> > at my next apointment and no one is there. I think a PA came in

> and I

> > told her I was not happy about these circumstances of not being

> > informed. Next visit, they have hired a new PA and I really like

> him.

> > He was so encouraging. He prescribed my medication and prescribed

> > therapy for me twice. (PT) He wanted me to bring copies of my tests

> > from Emory (Step Trial).

> >

> > I don't remember how long he was there but I know it was a good

> while.

> > My appointment for Thursday was changed to today. So I went and

> this

> > nice PA has left. Another doctor, that I didm't even know came in

> and

> > he knew nothing about me. He didn't even listen to me or check my

> > strength. Nothing!!! I asked how olong he had been there and he

> said 3

> > years. So I wouln't have known him. But he is moving away next

> week!

> >

> > So I am trying to figure out what to do. I may call them and tell

> them

> > I will never be back there.

> >

> > Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

> >

>

[Guest guest]

As well you would be frustrated. That sucks.

S

>

>

> Hi! I am so frustrated and upset. I went to the rehab doctor

today for

> a 2 month follow-up in Chattanooga at Siskin. I was a patient 4

years

> ago when I was relearning everything!

>

> The original doctor that took care of me 4 years ago left after I

had

> been home about 15 months. I didn't know he had left until I

appear

> at my next apointment and no one is there. I think a PA came in

and I

> told her I was not happy about these circumstances of not being

> informed. Next visit, they have hired a new PA and I really like

him.

> He was so encouraging. He prescribed my medication and prescribed

> therapy for me twice. (PT) He wanted me to bring copies of my tests

> from Emory (Step Trial).

>

> I don't remember how long he was there but I know it was a good

while.

> My appointment for Thursday was changed to today. So I went and

this

> nice PA has left. Another doctor, that I didm't even know came in

and

> he knew nothing about me. He didn't even listen to me or check my

> strength. Nothing!!! I asked how olong he had been there and he

said 3

> years. So I wouln't have known him. But he is moving away next

week!

>

> So I am trying to figure out what to do. I may call them and tell

them

> I will never be back there.

>

> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>